For each patient who signs up for PicnicHealth, we will contribute $25 to an advocacy organization supporting your community
Let PicnicHealth collect and organize the records for you
Have all medical records in one place to communicate well with doctors, family, and care partners
Share your story with researchers who are developing new treatments
Input the required information so we can begin collecting medical records and confirm your or your loved one’s diagnosis.
After we collect the records, view them in your timeline.
Share your or your loved one’s story with researchers and receive updates on research with our partners when available.
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At PicnicHealth, we’re patients too, so we know how important it is that your private data stays private. Here’s our promise:
We protect your personal information with military grade encryption and abide by HIPAA compliant practices.
Your data is fully de-identified. We only share datasets that are structured for research, never redacted medical records.
PicnicHealth will ask for your consent every time before sharing any information with any partners. You can opt out at any time.
We use an IRB (Institutional Review Board) and work with a team of physicians to protect the best interest of our research volunteers.
For each patient who signs up for PicnicHealth, we will contribute $25 to The American Kidney Fund in support of the IgAN community.
Join Now
The American Kidney Fund (AKF) is the leading nonprofit dedicated to combating kidney disease for 37 million Americans and those at risk. Their broad range of programs helps people at every stage of their fight against kidney disease, from prevention to post-transplant care.
Learn MoreWe believe that better care happens when you have control over your records.
Join NowJust answer a few questions about yourself and let us know who your doctors are. As soon as you finish signing up, we’ll start contacting your doctors and hospitals.
Join Now
No calling, faxing, or paperwork for you! We’ll brave the hold music and contact every one of your doctors to make sure they’ve received and processed our request.
With your records consolidated in one place, you’ll be able to access them whenever you need them. Pull up your medical information anywhere you have internet access—and share it securely with your care team.
When you join PicnicHealth, you may be invited to complete health and well-being surveys. These surveys help researchers understand your daily experience and capture insights that may not be available in your medical records.
You can complete surveys from your PicnicHealth account, you may also receive compensation for sharing your story.
PicnicHealth has impacted my health care journey in so many ways. I’ve been easily able to provide records to my transplant team, and identify my trends in my lab work. I like to own my healthcare journey and stay informed. PicnicHealth has been able to help me do that.
Our Partners
At PicnicHealth, we’re patients too, so we know how important it is that your private data stays private. Here’s our promise:
We protect your personal information with military grade encryption and abide by HIPAA compliant practices.
Your data is fully de-identified. We only share datasets that are structured for research, never redacted medical records.
PicnicHealth will ask for your consent every time before sharing any information with any partners. You can opt out at any time.
We use an IRB (Institutional Review Board) and work with a team of physicians to protect the best interest of our research volunteers.
IgA Nephropathy, also known simply as IgAN, is a kidney disorder. It happens when a type of protein called Immunoglobulin A (IgA) builds up in your kidneys. This buildup can cause inflammation and damage to your kidney’s filters, known as glomeruli. Over time, this can potentially lead to kidney failure.
The exact cause of IgA Nephropathy is still unknown. Researchers are actively investigating why some people accumulate IgA deposits in their kidneys.
Common symptoms include:
• Blood in the urine (hematuria)
• Excess protein in the urine (proteinuria)
• High blood pressure
• Swelling in the lower extremities (edema)
• Fatigue
If you’re experiencing any of these symptoms, it’s important to consult a healthcare professional for an accurate diagnosis and appropriate treatment.
A kidney biopsy that shows IgA Nephropathy is required to participate in this study. This is because it is currently the most reliable way to formally diagnose the condition.
IgA nephropathy can become life-threatening if it progresses to more advanced stages of kidney disease. However, with proper management and treatment, many people live with the condition for years without progressing to severe stages.
As of 2023, there are two FDA-approved treatments specifically for IgA Nephropathy: Filspari and Tarpeyo. Additional treatment options include corticosteroids, drugs that suppress the immune system (immunosuppressants), and medications that help control blood pressure and protect your kidneys (ACE/ARB inhibitors).
Keeping track of your IgA Nephropathy care journey can be tough, and PicnicHealth is here to help. Here are a few tools that make this easier:
Medical record collection: We securely collect your medical records, including lab results, test reports, and treatment history, and store them in one location you can easily access or share with anyone you’d like to keep in the loop, like new providers or family members.
Personalized health dashboard: Our platform makes it easier to track your health data, monitor symptoms, and learn about IgA Nephropathy care.
Living with IgAN can be difficult, but keeping track of your medical records doesn’t have to be. PicnicHealth's resources take care of the hard stuff, like organizing all of your past medical records in one place, so you can focus on taking care of your kidney health. When you join the PicnicHealth community, you become part of a group of people helping to move IgAN treatment forward by participating in easy and accessible medical research – on your terms. Get started with PicnicHealth to experience easier medical records management and patient-powered research.
At PicnicHealth, we are patients too - and we hate spam. Once a month, we’ll send you a newsletter that covers tips from your community, research updates, and inspirational stories from other patients.
