AbbVie Patient-Centric Real-World Data Collection Pilot Study
We're partnering with AbbVie in innovative research that aims to better understand how disease affects real people outside of clinical trials. By learning how patients and doctors manage disease in the real world, we can help address important questions to improve the quality of care for others like you.
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How it works
Create a PicnicHealth account and share the names of your doctors in 5 minutes.
PicnicHealth compiles your medical records for you, and provides them to AbbVie as described in the separate AbbVie Information and Consent Form that you signed for the study.
For this study you'll need one visit with a doctor at Northwestern Medical Center or your own doctor.
Researchers use anonymized info from other patients like you to make discoveries.
Why do patients join PicnicHealth's research?
As a patient-centered company, PicnicHealth values your privacy and security. We protect your information by using end-to-end encryption and abiding by HIPAA compliant practices.
PicnicHealth will ask for your consent before sharing any information with any partners. Any personally identifying information will be removed from your records before sharing with AbbVie.
We do not send researchers redacted medical records. Instead, we share datasets that do not directly identify you as described in the separate AbbVie Information and Consent Form that you signed for the study. The datasets are structured with only the information needed for research.
PicnicHealth uses an IRB (Institutional Review Board) to protect and act in the best interest of our volunteers.
PicnicHealth's research principles:
our rigid commitment to patient empowerment and good research practices.
An Institutional Review Board (IRB) reviews our studies to ensure participants are well informed and are opting in willingly.
Before researchers receive your data, we remove information that directly identifies you as described in the separate AbbVie Information and Consent Form that you signed for the study.
You make the choice to proactively opt in. We’ll never share your information without consent.
De-identified medical data sets are free for qualified academic, non-commercial use.
If you decide you'd rather not participate in research anymore, no problem.
I helped start PicnicHealth because I believe there’s nothing more rewarding than shaping the future of research. I firmly believe technology can improve outcomes for patients.
Our mission
Progress in finding new treatments for serious diseases can be frustratingly slow. PicnicHealth set out to change that. We are experts in giving patients the full picture of their medical care by collecting their fragmented medical records in one secure place. We then partner with researchers, who can use the coded medical information from those records to find safer, better treatments. Our combined experiences make us stronger together.
