PicnicHealth is excited to partner with Komodo Health to enrich its patient-centered real-world data Research Platform. This collaboration will enable PicnicHealth to unlock rich new insights about complex diseases and treatment outcomes.

Sickle cell disease is the most common inherited blood disorder in the United States. The Centers for Disease Control and Prevention estimate that 100,000 people are living with sickle cell in the US

We’re excited to announce the formation of our Scientific Advisory Board (SAB) and welcome inaugural members, including Robert Kaplan, PhD, Jeffrey Brown, PhD, and Milena Gianfrancesco, PhD, MPH.

The esteemed pediatric neurologist spoke to AllStripes about Niemann-Pick disease type C research, the importance of medical records — and hope.

Four members of the rare disease community describe their experiences with coordinated health care.

A roundup of thoughtful and energetic takeaways, courtesy of our AllStripes Ambassadors.

“There are times when it’s not fun, but there are benefits you’ll see once you accept the diagnosis and begin to meet others.”

Lara is the mother of Eden, a bubbly 13-year-old with a rare condition. After years of symptoms, Eden was diagnosed with Kleefstra syndrome at 8 years old.

Community builder Ade Adeyokunnu refuses to let sickle cell keep him from living.

This week, we’re exploring just a few of grief’s many forms.

Some basic information for anyone with 504s or IEPs on their mind this back-to-school season.

Blaine has fully embraced the community that helped him through the early years of his diagnosis with IBM, a rare muscle disease.

Only 5 percent of rare diseases have approved treatments. How could drug repurposing help?

This week, Finding Dory and disability representation, how the time tax relates to rare disease and profound insight on giving and receiving support.

Barry is a gregarious, outgoing jokester. He’s also leading the charge for adult GM2 research.

Content about disabilities, curated with the rare disease community in mind.

After Alexis began experiencing eye pain, a doctor predicted she had a long diagnostic journey in front of her. He was right.

After Dinah’s daughter was diagnosed with CCM3, a rare condition that causes brain lesions, she went looking for clues about what might lie ahead.

To me, they mean self-confidence, loving my disabled body fully and unapologetically taking up space.

Julie’s daughter Amber, who has Kleefstra syndrome, went through a period of regression that stumped her doctors.

Karen would rather people take a straightforward interest in Doug than stare at him.

How Julianne, a young adult with Gorham-Stout disease, is pushing past her own discomfort to help others.

How making a friend in the rare-disease community led to an accurate diagnosis of PROS.

Joe is determined to help his family, one meal at a time.

Andrea was rejected for professional dance jobs because PROS caused growths to develop on her face, but she refused to let society’s standard of beauty stop her from living out her passion.