Contribute to hemophilia research from home.
PicnicHealth combines de-identified data from medical records to enable you to contribute to medical research from home. By helping researchers understand what diagnosis, care, and life with hemophilia looks like everyday we hope to identify safer, more effective treatments.
Why do patients trust PicnicHealth's research work?
As a patient-centered company, PicnicHealth values your privacy and security. We protect your information by using end-to-end encryption and abiding by HIPAA compliant practices.
PicnicHealth will ask for your consent before sharing any information with any partners. Any info will be anonymized before sharing.
We do not send partners redacted medical records. Instead we share datasets that are structured for research.
PicnicHealth uses an IRB (Institutional Review Board) to protect and act in the best interest of our volunteers.
We work with great partners
Medical records document the journeys of patients over time. Our Hemophilia Research Program combines anonymized medical record data from hundreds of consented hemophilia patients. This data will allow researchers to better understand the care, management, and challenges of living with hemophilia out in the real world. We're currently developing our slate of vetted, Hemophilia-specific research partners, but below you can see some of the partners we have worked with in the past on other diseases. We'll share more with you as we have researchers signed up - the more participants involved, the more we can attract great scientists!
Make your life easier—while changing what we know about hemophilia
Access your records from anywhere. Share your full medical history instantly with your doctors, old or new.
By participating in PicnicHealth studies, we’ll collect your complete medical history at no charge (normally $700).
Only you decide how your information is used. We use 256-bit military grade encryption and are HIPAA compliant.
You’re not alone. By joining this study with hundreds of other people with hemophilia, you increase your impact.
Using your real-world information allows researchers to improve care faster, without extra visits from you.
Researchers get the information they need to do their work—nothing more.
How it Works
Sign up and share the names of your doctors in 5 minutes.
PicnicHealth compiles and anonymizes your medical records.
Researchers use this real-world info from hundreds of patients to make discoveries.
Our Mission
Making progress on finding new treatments for rare medical conditions can be challenging and frustrating. Research requires many patients to identify patterns and results. Patient medical histories are often incomplete. Clinical trials are impactful but take time.
PicnicHealth set out to change that. We partner with researchers to gather and anonymize medical information on patients with rare diseases. By leveraging historical records, known as “real-world evidence,” we can contribute to finding new treatments. Because we’re all stronger together.
We also believe patients should own their information. The current system is fragmented and broken. Which is why we provide all participants with complete, digital, private medical histories so that your doctors always have the full picture of your medical history.
“As a patient myself, being able to shape the future of research is incredibly rewarding. I firmly believe we can better use technology to improve health outcomes.”
