Your PicnicHealth timeline provides a single source of information for you and your doctors. It is a tool to help you coordinate care and understand your own health. You can share your timeline with any of your doctors with a few clicks. The doctor will receive a secure link and get access to your medical history.

PicnicHealth works directly with people like you to help collect and manage your medical records. That means going out and collecting all of your medical records from your different doctors and keeping them up-to-date over time. PicnicHealth will then transform your records into a timeline that makes it easier to find what you’re looking for. When you see your doctor again, PicnicHealth will update your timeline with new records. You can access your PicnicHealth timeline from anywhere and even share it with your doctors with a few clicks.

Anyone participating in the DISCOVER-HCM Registry study can sign up for the PicnicHealth application.

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PicnicHealth and BMS take privacy very seriously. Your medical records are kept safe using the highest encryption standard available: 256-bit SSL. This is the same technology that banks use to keep account information safe.

Medical records document what’s actually happening when doctors see patients, so they can be really helpful for understanding how care is delivered. They also contain a lot of information about HCM, your symptoms, health status, and treatments. Putting all of this information together for a diverse group of patients will allow the scientific community to see patterns that no one doctor can see on his or her own, enabling the community to design new trials or improve care for individuals living with hypertrophic cardiomyopathy (HCM).

BMS has engaged PicnicHealth to help researchers collect and manage your medical records to learn more about how HCM affects people in the real world. When you sign up for the PicnicHealth application, your medical records will be centrally organized on a secure online platform and you will be able to gain access. To protect your privacy, information that directly identifies you will be removed, and a unique code will be assigned to your medical records (key-coded) before sharing with others for the purpose of this study. The information gathered from patient medical records is helpful for researchers to understand real-world treatment patterns and short- and long-term outcomes.

PicnicHealth will collect medical records from all the doctors, hospitals, and clinics that you tell us about. PicnicHealth does not collect dental or optometry records.  As part of PicnicHealth’s record collection service, medical records and information concerning sexual health, mental health (excluding therapist records), and drugs/alcohol can be collected and digitized for you to access them online through the PicnicHealth app.  However, information related to mental health, sexual health (e.g., gender identity, sexual orientation), and sexual health laboratory findings including pregnancy test results and results of sexually transmitted infection evaluations), and records of drugs/alcohol abuse testing and treatment will not be shared with researchers unless it is relevant to the study.

PicnicHealth will never share your records without your explicit consent. By signing up for the DISCOVER-HCM Registry study and the PicnicHealth application, you're agreeing to share your medical records collected by PicnicHealth  in accordance to the consent provided in relation to the DISCOVER-HCM Registry study. You can also choose to share the collected medical records using the share function at the top of your PicnicHealth timeline. You will be the only person who can access your medical records on PicnicHealth. No one — including your doctor or insurance company — will be able to see your medical records unless you choose to share them.

You may choose to delete your medical records from the PicnicHealth service at any time and for any reason. Just email PicnicHealth at [email protected].

Yes. You can view this sample timeline.

Bristol Myers Squibb (BMS) is the sponsor of the DISCOVER-HCM Registry study. BMS has engaged PicnicHealth, a digital health company, to help collect & manage study participants’ medical records for the purpose of this study. IQVIA is the contract research organization carrying out the study in collaboration with BMS.

That's ok. Enter as many doctors as you remember. The hospital or clinic name is usually enough and the PicnicHealth team will follow up with you if there’s any confusion. If PicnicHealth finds doctors mentioned in your records who you did not include on your doctor list, you will get an email asking for your permission to request records from that new doctor.

You can access your medical records collected for this study through the PicnicHealth application free of charge for the duration of the duration of the DISCOVER-HCM Registry study. You’ll be notified when your free account services end, and you can maintain services to the PicnicHealth application after the end of the DISCOVER-HCM Registry study at your own expense.

PicnicHealth will update your medical records regularly. To keep your records most up-to-date, you can always tell PicnicHealth when you have seen the doctor. Just click the “Request Records” button at the top of your timeline, and PicnicHealth will retrieve your new records for you.

In the first month, some records might be missing because PicnicHealth is still collecting them for you. After the first month, if you suspect that records are still missing, you can let us know about those records by clicking "Request Records" at the top of your timeline. If you suspect that any information on your Timeline is incorrect, please contact us at [email protected].

At the top of your timeline, click on "Doctors" to add new doctors or medical facilities. PicnicHealth will then collect your records from your new doctors. If you have any questions about how to use the timeline, please feel free to contact us at [email protected].

It takes about 3 to 4 weeks to retrieve most of your historical medical records. The timing mainly depends on how quickly your doctors respond to PicnicHealth's requests for your records.

We will collect records going back for 5 years. In most states, doctors are required to keep records for at least 7 years, but many will keep them for much longer. So how far back we can go really depends on the record keeping practices of your doctors.