Have questions? Speak with a member of our team by calling
Have questions? Speak with a member of our team by calling
Provide your or your child’s anonymized medical records to research. Change what researchers know about LC-FAOD, plus get free access to your complete medical records in your PicnicHealth timeline.
Provide your or your child’s anonymized medical records to research. Change what researchers know about LC-FAOD, plus get free access to your complete medical records in your PicnicHealth timeline.
Access all of your medical records directly from your PicnicHealth account. Just go to your appointments, and we do the rest.
Coordinate your healthcare with a click. PicnicHealth makes it easy to share records with a new specialist, or just keep your family in the loop.
Contributing to research has never been easier. Earn rewards for sharing your records with researchers, answering questions about your health, and referring friends.
Data contained in medical records tells the true story of each individual's journey with LCFAOD. This information is powerful for you, your loved ones, and the LCFAOD community.
Records Collected
Providers on Record
Partner Organizations
Answer a few questions about your medical care and which doctors you’ve seen.
Our team will collect and digitize your medical records at no cost to you. No uploads or appointments necessary.
Once we’ve digitized your records, access all of your records right from your PicnicHealth account - doctors’ notes, test results, imaging and more.
Your records are completely de-identified, then analyzed together with records from others.
Answer a few questions about your loved one's medical care and which doctors they've seen.
Our team will collect and digitize your loved one's medical records at no cost to you. No uploads or appointments necessary.
Once we’ve digitized your loved one's records, access all of their records right from your PicnicHealth account - doctors’ notes, test results, imaging and more.
Your loved one's records are completely de-identified, then analyzed together with records from others.
"After the initial shock and devastation of my diagnosis, I wanted to fight the disease in any way I could, and participating in medical research became my way of fighting back. Research has been successful in helping to improve treatments, but until there’s a cure, my fight will continue."
I helped start PicnicHealth because I believe there’s nothing more rewarding than shaping the future of research. I firmly believe technology can improve outcomes for bleeding disorder patients.
At PicnicHealth, we’re patients too, so we know how important it is that your private data stays private. Here’s our promise:
We protect your personal information with military grade encryption and abide by HIPAA compliant practices.
Your data is fully de-identified. We only share datasets that are structured for research, never redacted medical records.
PicnicHealth will ask for your consent every time before sharing any information with any partners. You can opt out at any time.
We use an IRB (Institutional Review Board) and work with a team of physicians to protect the best interest of our research volunteers.
At PicnicHealth, we’re patients too, so we know how important it is that your loved one's private data stays private. Here’s our promise:
We protect your loved one's personal information with military grade encryption and abide by HIPAA compliant practices.
Your loved one's data is fully de-identified. We only share datasets that are structured for research, never redacted medical records.
PicnicHealth will ask for your consent every time before sharing any information with any partners. You can opt out at any time.
We use an IRB (Institutional Review Board) and work with a team of physicians to protect the best interest of our research volunteers.
Answer a few questions about your medical care and which doctors you’ve seen.
Our team will collect and digitize your medical records at no cost to you. No uploads or appointments necessary.
Once we’ve digitized your records, access all of your records right from your PicnicHealth account - doctors’ notes, test results, imaging and more.
Your records are completely de-identified, then analyzed together with records from others.
Answer a few questions about your loved one's medical care and which doctors they've seen.
Our team will collect and digitize your loved one's medical records at no cost to you. No uploads or appointments necessary.
Once we’ve digitized your loved one's records, access all of their records right from your PicnicHealth account - doctors’ notes, test results, imaging and more.
Your loved one's records are completely de-identified, then analyzed together records from others.
Access all of your medical records directly from your PicnicHealth account. Just go to your appointments, and we do the rest.
Coordinate your healthcare with a click. PicnicHealth makes it easy to share records with a new specialist, or just keep your family in the loop.
Contributing to research has never been easier. Earn rewards for sharing your records with researchers, answering questions about your health, and referring friends.
Data contained in medical records tells the true story of each individual's journey with LCFAOD. This information is powerful for you, your loved ones, and the LCFAOD community.
Records Collected
Providers on Record
Partner Organizations
"After the initial shock and devastation of my diagnosis, I wanted to fight the disease in any way I could, and participating in medical research became my way of fighting back. Research has been successful in helping to improve treatments, but until there’s a cure, my fight will continue."
I helped start PicnicHealth because I believe there’s nothing more rewarding than shaping the future of research. I firmly believe technology can improve outcomes for bleeding disorder patients.
At PicnicHealth, we’re patients too, so we know how important it is that your private data stays private. Here’s our promise:
We protect your personal information with military grade encryption and abide by HIPAA compliant practices.
Your data is fully de-identified. We only share datasets that are structured for research, never redacted medical records.
PicnicHealth will ask for your consent every time before sharing any information with any partners. You can opt out at any time.
We use an IRB (Institutional Review Board) and work with a team of physicians to protect the best interest of our research volunteers.
At PicnicHealth, we’re patients too, so we know how important it is that your loved one's private data stays private. Here’s our promise:
We protect your loved one's personal information with military grade encryption and abide by HIPAA compliant practices.
Your loved one's data is fully de-identified. We only share datasets that are structured for research, never redacted medical records.
PicnicHealth will ask for your consent every time before sharing any information with any partners. You can opt out at any time.
We use an IRB (Institutional Review Board) and work with a team of physicians to protect the best interest of our research volunteers.
At PicnicHealth, we’re patients too, so we know how important it is that your private data stays private. Here’s our promise:
We protect your personal information with military grade encryption and abide by HIPAA compliant practices.
Your data is fully de-identified. We only share datasets that are structured for research, never redacted medical records.
PicnicHealth will ask for your consent every time before sharing any information with any partners. You can opt out at any time.
We use an IRB (Institutional Review Board) and work with a team of physicians to protect the best interest of our research volunteers.
At PicnicHealth, we’re patients too, so we know how important it is that your loved one's private data stays private. Here’s our promise:
We protect your loved one's personal information with military grade encryption and abide by HIPAA compliant practices.
Your loved one's data is fully de-identified. We only share datasets that are structured for research, never redacted medical records.
PicnicHealth will ask for your consent every time before sharing any information with any partners. You can opt out at any time.
We use an IRB (Institutional Review Board) and work with a team of physicians to protect the best interest of our research volunteers.
Data contained in medical records tells the true story of each individual's journey with LCFAOD. This information is powerful for you, your loved ones, and the LCFAOD community.
If your child is enrolled in the VISTA observational study, and receives care in the US, it takes just a few minutes to sign up.
No commitment—you're free to opt-out at any time.
After sign-up and with your permission, we contact your child's care providers to collect their health history—imaging files, test results, and doctors' notes.
Our rigorous multi-step process removes all identifying information. See our Privacy Pledge. We will assign your child's data a unique identifier before sharing with BioMarin researchers.
We combine your child's de-identified health data with data from other participants to create an invaluable dataset—only for VISTA researchers.
If you consent to participate in VISTA and sign up for the PicnicHealth application, you will be able to gain access to your child’s digitized medical records for free, for the duration of the study or until you withdraw them from the study, or cancel your PicnicHealth application. You can maintain services to the PicnicHealth application after the end of the VISTA study at your own expense.
Join NowAccess all of your medical records directly from your PicnicHealth account. Just go to your appointments, and we do the rest.
Coordinate your healthcare with a click. PicnicHealth makes it easy to share records with a new specialist, or just keep your family in the loop.
Contributing to research has never been easier. Earn rewards for sharing your records with researchers, answering questions about your health, and referring friends.
"After the initial shock and devastation of my diagnosis, I wanted to fight the disease in any way I could, and participating in medical research became my way of fighting back. Research has been successful in helping to improve treatments, but until there’s a cure, my fight will continue."
I helped start PicnicHealth because I believe there’s nothing more rewarding than shaping the future of research. I firmly believe technology can improve outcomes for bleeding disorder patients.
