Have questions? Speak with a member of our team by calling
Have questions? Speak with a member of our team by calling
Contribute your de-identified medical records to give researchers a holistic picture of the real impact of HD. This information will accelerate our understanding of HD. Sign up in minutes and get $200.
Huntington's Disease Research Participant
Huntington's Disease Research Participant
Contribute your de-identified medical records to give researchers a holistic picture of the real impact of HD. This information will accelerate our understanding of HD. Sign up in minutes and get $200.
Contributing to research has never been easier. Earn additional compensation for answering surveys about your health and referring friends.
Access all of your medical records directly from your PicnicHealth account. Just add your doctors, and we do the rest.
Coordinate your healthcare with a click. PicnicHealth makes it easy to share records with a new specialist, or just keep your family in the loop.
Data contained in medical records tells the true story of each individual's journey with HD. This information is powerful for you, your loved ones, and the HD community.
Records Collected
Providers on Record
Partner Organizations
Answer a few questions about your medical care and which doctors you’ve seen.
Our team will collect and digitize your medical records at no cost to you. No uploads or appointments necessary.
Once we’ve digitized your records, access all of your records right from your PicnicHealth account - doctors’ notes, test results, imaging and more.
Your records are completely de-identified, then analyzed together with records from others.
Answer a few questions about your loved one's medical care and which doctors they've seen.
Our team will collect and digitize your loved one's medical records at no cost to you. No uploads or appointments necessary.
Once we’ve digitized your loved one's records, access all of their records right from your PicnicHealth account - doctors’ notes, test results, imaging and more.
Your loved one's records are completely de-identified, then analyzed together with records from others.
Your story matters, and we want to help make your voice heard in research. Read through some of our participant's testimonials to see why they support PicnicHealth in making a difference in real-world research and their communities.
“I was inspired by the work PicnicHealth is doing to create an easy environment to those who have medical conditions like HD or JHD. The goal to make medical information easily accessible to those who need extra help is extremely important. Also, the only way we will make progress in this fight is by getting involved firsthand in different research initiatives. I want to know when I leave this earth I left it better than I entered it.”
“We love the idea of having all of Nathan's health records in one place and we want to try to fight HD. Even if it doesn't help Nathan, his participation could help others and quite possibly our two children who are both at risk.”
“I signed up for PicnicHealth to be one of the first individuals whose health information is used to find an effective treatment or cure for another disease or disorder! This is easy and has tremendous potential to do unfathomable good for others.”
At PicnicHealth, we’re patients too, so we know how important it is that your private data stays private. Here’s our promise:
We protect your personal information with military grade encryption and abide by HIPAA compliant practices.
Your data is fully de-identified. We only share datasets that are structured for research, never redacted medical records.
PicnicHealth will ask for your consent every time before sharing any information with any partners. You can opt out at any time.
We use an IRB (Institutional Review Board) and work with a team of physicians to protect the best interest of our research volunteers.
At PicnicHealth, we’re patients too, so we know how important it is that your loved one's private data stays private. Here’s our promise:
We protect your loved one's personal information with military grade encryption and abide by HIPAA compliant practices.
Your loved one's data is fully de-identified. We only share datasets that are structured for research, never redacted medical records.
PicnicHealth will ask for your consent every time before sharing any information with any partners. You can opt out at any time.
We use an IRB (Institutional Review Board) and work with a team of physicians to protect the best interest of our research volunteers.
Answer a few questions about your medical care and which doctors you’ve seen.
Our team will collect and digitize your medical records at no cost to you. No uploads or appointments necessary.
Once we’ve digitized your records, access all of your records right from your PicnicHealth account - doctors’ notes, test results, imaging and more.
Your records are completely de-identified, then analyzed together with records from others.
Answer a few questions about your loved one's medical care and which doctors they've seen.
Our team will collect and digitize your loved one's medical records at no cost to you. No uploads or appointments necessary.
Once we’ve digitized your loved one's records, access all of their records right from your PicnicHealth account - doctors’ notes, test results, imaging and more.
Your loved one's records are completely de-identified, then analyzed together records from others.
Contributing to research has never been easier. Earn additional compensation for answering surveys about your health and referring friends.
Access all of your medical records directly from your PicnicHealth account. Just add your doctors, and we do the rest.
Coordinate your healthcare with a click. PicnicHealth makes it easy to share records with a new specialist, or just keep your family in the loop.
Data contained in medical records tells the true story of each individual's journey with HD. This information is powerful for you, your loved ones, and the HD community.
Records Collected
Providers on Record
Partner Organizations
Your story matters, and we want to help make your voice heard in research. Read through some of our participant's testimonials to see why they support PicnicHealth in making a difference in real-world research and their communities.
“I was inspired by the work PicnicHealth is doing to create an easy environment to those who have medical conditions like HD or JHD. The goal to make medical information easily accessible to those who need extra help is extremely important. Also, the only way we will make progress in this fight is by getting involved firsthand in different research initiatives. I want to know when I leave this earth I left it better than I entered it.”
“We love the idea of having all of Nathan's health records in one place and we want to try to fight HD. Even if it doesn't help Nathan, his participation could help others and quite possibly our two children who are both at risk.”
“I signed up for PicnicHealth to be one of the first individuals whose health information is used to find an effective treatment or cure for another disease or disorder! This is easy and has tremendous potential to do unfathomable good for others.”
At PicnicHealth, we’re patients too, so we know how important it is that your private data stays private. Here’s our promise:
We protect your personal information with military grade encryption and abide by HIPAA compliant practices.
Your data is fully de-identified. We only share datasets that are structured for research, never redacted medical records.
PicnicHealth will ask for your consent every time before sharing any information with any partners. You can opt out at any time.
We use an IRB (Institutional Review Board) and work with a team of physicians to protect the best interest of our research volunteers.
At PicnicHealth, we’re patients too, so we know how important it is that your loved one's private data stays private. Here’s our promise:
We protect your loved one's personal information with military grade encryption and abide by HIPAA compliant practices.
Your loved one's data is fully de-identified. We only share datasets that are structured for research, never redacted medical records.
PicnicHealth will ask for your consent every time before sharing any information with any partners. You can opt out at any time.
We use an IRB (Institutional Review Board) and work with a team of physicians to protect the best interest of our research volunteers.
At PicnicHealth, we’re patients too, so we know how important it is that your private data stays private. Here’s our promise:
We protect your personal information with military grade encryption and abide by HIPAA compliant practices.
Your data is fully de-identified. We only share datasets that are structured for research, never redacted medical records.
PicnicHealth will ask for your consent every time before sharing any information with any partners. You can opt out at any time.
We use an IRB (Institutional Review Board) and work with a team of physicians to protect the best interest of our research volunteers.
At PicnicHealth, we’re patients too, so we know how important it is that your loved one's private data stays private. Here’s our promise:
We protect your loved one's personal information with military grade encryption and abide by HIPAA compliant practices.
Your loved one's data is fully de-identified. We only share datasets that are structured for research, never redacted medical records.
PicnicHealth will ask for your consent every time before sharing any information with any partners. You can opt out at any time.
We use an IRB (Institutional Review Board) and work with a team of physicians to protect the best interest of our research volunteers.
Data contained in medical records tells the true story of each individual's journey with HD. This information is powerful for you, your loved ones, and the HD community.
If your child is enrolled in the VISTA observational study, and receives care in the US, it takes just a few minutes to sign up.
No commitment—you're free to opt-out at any time.
After sign-up and with your permission, we contact your child's care providers to collect their health history—imaging files, test results, and doctors' notes.
Our rigorous multi-step process removes all identifying information. See our Privacy Pledge. We will assign your child's data a unique identifier before sharing with BioMarin researchers.
We combine your child's de-identified health data with data from other participants to create an invaluable dataset—only for VISTA researchers.
If you consent to participate in VISTA and sign up for the PicnicHealth application, you will be able to gain access to your child’s digitized medical records for free, for the duration of the study or until you withdraw them from the study, or cancel your PicnicHealth application. You can maintain services to the PicnicHealth application after the end of the VISTA study at your own expense.
Join NowContributing to research has never been easier. Earn additional compensation for answering surveys about your health and referring friends.
Access all of your medical records directly from your PicnicHealth account. Just add your doctors, and we do the rest.
Coordinate your healthcare with a click. PicnicHealth makes it easy to share records with a new specialist, or just keep your family in the loop.
Your story matters, and we want to help make your voice heard in research. Read through some of our participant's testimonials to see why they support PicnicHealth in making a difference in real-world research and their communities.
“I was inspired by the work PicnicHealth is doing to create an easy environment to those who have medical conditions like HD or JHD. The goal to make medical information easily accessible to those who need extra help is extremely important. Also, the only way we will make progress in this fight is by getting involved firsthand in different research initiatives. I want to know when I leave this earth I left it better than I entered it.”
“We love the idea of having all of Nathan's health records in one place and we want to try to fight HD. Even if it doesn't help Nathan, his participation could help others and quite possibly our two children who are both at risk.”
“I signed up for PicnicHealth to be one of the first individuals whose health information is used to find an effective treatment or cure for another disease or disorder! This is easy and has tremendous potential to do unfathomable good for others.”
Our partners are committed to helping individuals and families impacted by HD, and we are honored to collaborate with such inspiring organizations.
