Have questions? Speak with a member of our team by calling 

Join NowJoin Now

Help IgA Nephropathy (Berger's Disease) Research From Home.

Who is eligible to join?
  • Diagnosed with IgAN (Berger's Disease) affecting your kidneys
  • Received a kidney biopsy by a medical professional
  • Received medical care in the U.S. in the past 7 years
Why join?

Get your records, give to science

Your health in your hands.

Access all of your medical records directly from your PicnicHealth account. Just go to your appointments, and we do the rest.

  • View doctors’ notes, test results, medications, imaging, and more.
  • Search your records by visit date, doctor, location, or keyword.
  • We’ll update you when we add new records.

Share records seamlessly.

Coordinate your healthcare with a click. PicnicHealth makes it easy to share records with a new specialist, or just keep your family in the loop.

  • Share records directly via email, text message, or link.
  • Set custom security measures to share your records securely.
  • Pause or remove access any time.

Accelerate research from home.

Contributing to research has never been easier. Earn rewards for sharing your records with researchers, answering questions about your health, and referring friends.

  • Share your anonymized records with researchers.
  • Earn rewards for completing surveys about your health.
  • Refer members of your community to participate.
Research Impact

Your records make a difference

Data contained in medical records tells the true story of each individual's journey with IgAN. This information is powerful for you, your loved ones, and the IgAN community.

Medical records help researchers learn:
  • Can we provide patients with new treatments without a formal clinical trial?
  • How can we examine diseases over time to find what risk factors correlate with occurrence and progression?
  • How do we understand how medical treatments work for real people in the normal course of care?
8.1M+

Records Collected

250k+

Providers on Record

50+

Partner Organizations

How it works

1.  Sign up in minutes

Answer a few questions about your medical care and which doctors you’ve seen.

2. We gather your records

Our team will collect and digitize your medical records at no cost to you. No uploads or appointments necessary.

3. Manage your health

Once we’ve digitized your records, access all of your records right from your PicnicHealth account - doctors’ notes, test results, imaging and more.

4. Opt in to research

Your records are completely de-identified, then analyzed together with records from others.

How it works

1.  Sign up in minutes

Answer a few questions about your loved one's medical care and which doctors they've seen.

2. We gather your loved one's records

Our team will collect and digitize your loved one's medical records at no cost to you. No uploads or appointments necessary.

3. Manage your loved one's health

Once we’ve digitized your loved one's records, access all of their records right from your PicnicHealth account - doctors’ notes, test results, imaging and more.

4. Opt in to research

Your loved one's records are completely de-identified, then analyzed together with records from others.

Privacy & Security

At PicnicHealth, we’re patients too, so we know how important it is that your loved one's private data stays private. Here’s our promise:

Security

We protect your loved one's personal information with military grade encryption and abide by HIPAA compliant practices.

Privacy

Your loved one's data is fully de-identified. We only share datasets that are structured for research, never redacted medical records.

Transparency

PicnicHealth will ask for your consent every time before sharing any information with any partners. You can opt out at any time.

Responsibility

We use an IRB (Institutional Review Board) and work with a team of physicians to protect the best interest of our research volunteers.

REAL PEOPLE, REAL STORIES
PicnicHealth gives me the ability to track my kidney function. Since signing up for PicnicHealth I discovered that 4 years ago I went to the ER and during that visit my lab tests showed I was in stage 1 kidney failure and they did not tell me. I could have slowed the progression of my disease and avoided dialysis and a transplant if I would have found out at stage 1. Instead I found out at stage 5, end stage renal failure. If I would have had PicnicHealth then maybe things would have been different.
Kristin
IgAN Research Participant
REAL PEOPLE, REAL STORIES
PicnicHealth gives me the ability to track my kidney function. Since signing up for PicnicHealth I discovered that 4 years ago I went to the ER and during that visit my lab tests showed I was in stage 1 kidney failure and they did not tell me. I could have slowed the progression of my disease and avoided dialysis and a transplant if I would have found out at stage 1. Instead I found out at stage 5, end stage renal failure. If I would have had PicnicHealth then maybe things would have been different.
Kristin
IgAN Research Participant
REAL PEOPLE, REAL STORIES
“PicnicHealth has impacted my health care journey in so many ways. I’ve been easily able to provide records to my transplant team, and identify my trends in my lab work. I like to own my healthcare journey and stay informed. PicnicHealth has been able to help me do that.”
Cristie
IgAN Research Participant
REAL PEOPLE, REAL STORIES
"After the initial shock and devastation of my diagnosis, I wanted to fight the disease in any way I could, and participating in medical research became my way of fighting back. Research has been successful in helping to improve treatments, but until there’s a cure, my fight will continue."
Lisa Marie
PicnicHealth Research Participant
REAL PEOPLE, REAL STORIES
“The thought of my voice being heard in the world of medicine is really what motivated me to join this study. Not only to advocate for myself but others and knowing the advocacy put forth will have both a powerful and positive impact.”
Chinara
PicnicHealth Research Participant

Privacy & Security

At PicnicHealth, we’re patients too, so we know how important it is that your private data stays private. Here’s our promise:

Security

We protect your personal information with military grade encryption and abide by HIPAA compliant practices.

Privacy

Your data is fully de-identified. We only share datasets that are structured for research, never redacted medical records.

Transparency

PicnicHealth will ask for your consent every time before sharing any information with any partners. You can opt out at any time.

Responsibility

We use an IRB (Institutional Review Board) and work with a team of physicians to protect the best interest of our research volunteers.

Have all medical records in one place to communicate well with doctors, family, and care partners

Let PicnicHealth collect and organize the records for you

Share your story with researchers who are developing new treatments

1
1

Sign Up

Input the required information so we can begin collecting medical records and confirm your diagnosis.


2
2

Receive Your Timeline

After we collect your records, view them in your timeline.

3
3

Contribute to Research

Share your story with researchers and receive updates on research with our partners when available.

REAL PEOPLE, REAL STORIES
PicnicHealth gives me the ability to track my kidney function. Since signing up for PicnicHealth I discovered that 4 years ago I went to the ER and during that visit my lab tests showed I was in stage 1 kidney failure and they did not tell me. I could have slowed the progression of my disease and avoided dialysis and a transplant if I would have found out at stage 1. Instead I found out at stage 5, end stage renal failure. If I would have had PicnicHealth then maybe things would have been different.
Kristin
IgAN Research Participant
REAL PEOPLE, REAL STORIES
PicnicHealth gives me the ability to track my kidney function. Since signing up for PicnicHealth I discovered that 4 years ago I went to the ER and during that visit my lab tests showed I was in stage 1 kidney failure and they did not tell me. I could have slowed the progression of my disease and avoided dialysis and a transplant if I would have found out at stage 1. Instead I found out at stage 5, end stage renal failure. If I would have had PicnicHealth then maybe things would have been different.
Kristin
IgAN Research Participant
REAL PEOPLE, REAL STORIES
“PicnicHealth has impacted my health care journey in so many ways. I’ve been easily able to provide records to my transplant team, and identify my trends in my lab work. I like to own my healthcare journey and stay informed. PicnicHealth has been able to help me do that.”
Cristie
IgAN Research Participant
REAL PEOPLE, REAL STORIES
"After the initial shock and devastation of my diagnosis, I wanted to fight the disease in any way I could, and participating in medical research became my way of fighting back. Research has been successful in helping to improve treatments, but until there’s a cure, my fight will continue."
Lisa Marie
PicnicHealth Research Participant
REAL PEOPLE, REAL STORIES
“The thought of my voice being heard in the world of medicine is really what motivated me to join this study. Not only to advocate for myself but others and knowing the advocacy put forth will have both a powerful and positive impact.”
Chinara
PicnicHealth Research Participant

Privacy & Security

At PicnicHealth, we’re patients too, so we know how important it is that your loved one's private data stays private. Here’s our promise:

Security

We protect your loved one's personal information with military grade encryption and abide by HIPAA compliant practices.

Privacy

Your loved one's data is fully de-identified. We only share datasets that are structured for research, never redacted medical records.

Transparency

PicnicHealth will ask for your consent every time before sharing any information with any partners. You can opt out at any time.

Responsibility

We use an IRB (Institutional Review Board) and work with a team of physicians to protect the best interest of our research volunteers.

Privacy & Security

At PicnicHealth, we’re patients too, so we know how important it is that your private data stays private. Here’s our promise:

Security

We protect your personal information with military grade encryption and abide by HIPAA compliant practices.

Privacy

Your data is fully de-identified. We only share datasets that are structured for research, never redacted medical records.

Transparency

PicnicHealth will ask for your consent every time before sharing any information with any partners. You can opt out at any time.

Responsibility

We use an IRB (Institutional Review Board) and work with a team of physicians to protect the best interest of our research volunteers.

How it works

1.  Sign up in minutes

Answer a few questions about your loved one's medical care and which doctors they've seen.

2. We gather your loved one's records

Our team will collect and digitize your loved one's medical records at no cost to you. No uploads or appointments necessary.

3. Manage your loved one's health

Once we’ve digitized your loved one's records, access all of their records right from your PicnicHealth account - doctors’ notes, test results, imaging and more.

4. Opt in to research

Your loved one's records are completely de-identified, then analyzed together with records from others.

How it works

1.  Sign up in minutes

Answer a few questions about your medical care and which doctors you’ve seen.

2. We gather your records

Our team will collect and digitize your medical records at no cost to you. No uploads or appointments necessary.

3. Manage your health

Once we’ve digitized your records, access all of your records right from your PicnicHealth account - doctors’ notes, test results, imaging and more.

4. Opt in to research

Your records are completely de-identified, then analyzed together with records from others.

Why join?

Get your records, give to science

Your health in your hands.

Access all of your medical records directly from your PicnicHealth account. Just go to your appointments, and we do the rest.

  • View doctors’ notes, test results, medications, imaging, and more.
  • Search your records by visit date, doctor, location, or keyword.
  • We’ll update you when we add new records.

Share records seamlessly.

Coordinate your healthcare with a click. PicnicHealth makes it easy to share records with a new specialist, or just keep your family in the loop.

  • Share records directly via email, text message, or link.
  • Set custom security measures to share your records securely.
  • Pause or remove access any time.

Accelerate research from home.

Contributing to research has never been easier. Earn rewards for sharing your records with researchers, answering questions about your health, and referring friends.

  • Share your anonymized records with researchers.
  • Earn rewards for completing surveys about your health.
  • Refer members of your community to participate.
Research Impact

Your records make a difference

Data contained in medical records tells the true story of each individual's journey with IgAN. This information is powerful for you, your loved ones, and the IgAN community.

Medical records help researchers learn:
  • Can we provide patients with new treatments without a formal clinical trial?
  • How can we examine diseases over time to find what risk factors correlate with occurrence and progression?
  • How do we understand how medical treatments work for real people in the normal course of care?
8.1M+

Records Collected

250k+

Providers on Record

50+

Partner Organizations

REAL PEOPLE, REAL STORIES
PicnicHealth gives me the ability to track my kidney function. Since signing up for PicnicHealth I discovered that 4 years ago I went to the ER and during that visit my lab tests showed I was in stage 1 kidney failure and they did not tell me. I could have slowed the progression of my disease and avoided dialysis and a transplant if I would have found out at stage 1. Instead I found out at stage 5, end stage renal failure. If I would have had PicnicHealth then maybe things would have been different.
Kristin
IgAN Research Participant
REAL PEOPLE, REAL STORIES
PicnicHealth gives me the ability to track my kidney function. Since signing up for PicnicHealth I discovered that 4 years ago I went to the ER and during that visit my lab tests showed I was in stage 1 kidney failure and they did not tell me. I could have slowed the progression of my disease and avoided dialysis and a transplant if I would have found out at stage 1. Instead I found out at stage 5, end stage renal failure. If I would have had PicnicHealth then maybe things would have been different.
Kristin
IgAN Research Participant
REAL PEOPLE, REAL STORIES
“PicnicHealth has impacted my health care journey in so many ways. I’ve been easily able to provide records to my transplant team, and identify my trends in my lab work. I like to own my healthcare journey and stay informed. PicnicHealth has been able to help me do that.”
Cristie
IgAN Research Participant
REAL PEOPLE, REAL STORIES
"After the initial shock and devastation of my diagnosis, I wanted to fight the disease in any way I could, and participating in medical research became my way of fighting back. Research has been successful in helping to improve treatments, but until there’s a cure, my fight will continue."
Lisa Marie
PicnicHealth Research Participant
REAL PEOPLE, REAL STORIES
“The thought of my voice being heard in the world of medicine is really what motivated me to join this study. Not only to advocate for myself but others and knowing the advocacy put forth will have both a powerful and positive impact.”
Chinara
PicnicHealth Research Participant

Privacy & Security

At PicnicHealth, we’re patients too, so we know how important it is that your loved one's private data stays private. Here’s our promise:

Security

We protect your loved one's personal information with military grade encryption and abide by HIPAA compliant practices.

Privacy

Your loved one's data is fully de-identified. We only share datasets that are structured for research, never redacted medical records.

Transparency

PicnicHealth will ask for your consent every time before sharing any information with any partners. You can opt out at any time.

Responsibility

We use an IRB (Institutional Review Board) and work with a team of physicians to protect the best interest of our research volunteers.

Privacy & Security

At PicnicHealth, we’re patients too, so we know how important it is that your private data stays private. Here’s our promise:

Security

We protect your personal information with military grade encryption and abide by HIPAA compliant practices.

Privacy

Your data is fully de-identified. We only share datasets that are structured for research, never redacted medical records.

Transparency

PicnicHealth will ask for your consent every time before sharing any information with any partners. You can opt out at any time.

Responsibility

We use an IRB (Institutional Review Board) and work with a team of physicians to protect the best interest of our research volunteers.

How it works

1.  Sign up in minutes

Answer a few questions about your loved one's medical care and which doctors they've seen.

2. We gather your loved one's records

Our team will collect and digitize your loved one's medical records at no cost to you. No uploads or appointments necessary.

3. Manage your loved one's health

Once we’ve digitized your loved one's records, access all of their records right from your PicnicHealth account - doctors’ notes, test results, imaging and more.

4. Opt in to research

Your loved one's records are completely de-identified, then analyzed together with records from others.

How it works

1.  Sign up in minutes

Answer a few questions about your medical care and which doctors you’ve seen.

2. We gather your records

Our team will collect and digitize your medical records at no cost to you. No uploads or appointments necessary.

3. Manage your health

Once we’ve digitized your records, access all of your records right from your PicnicHealth account - doctors’ notes, test results, imaging and more.

4. Opt in to research

Your records are completely de-identified, then analyzed together with records from others.

REAL PEOPLE, REAL STORIES
PicnicHealth gives me the ability to track my kidney function. Since signing up for PicnicHealth I discovered that 4 years ago I went to the ER and during that visit my lab tests showed I was in stage 1 kidney failure and they did not tell me. I could have slowed the progression of my disease and avoided dialysis and a transplant if I would have found out at stage 1. Instead I found out at stage 5, end stage renal failure. If I would have had PicnicHealth then maybe things would have been different.
Kristin
IgAN Research Participant
REAL PEOPLE, REAL STORIES
PicnicHealth gives me the ability to track my kidney function. Since signing up for PicnicHealth I discovered that 4 years ago I went to the ER and during that visit my lab tests showed I was in stage 1 kidney failure and they did not tell me. I could have slowed the progression of my disease and avoided dialysis and a transplant if I would have found out at stage 1. Instead I found out at stage 5, end stage renal failure. If I would have had PicnicHealth then maybe things would have been different.
Kristin
IgAN Research Participant
REAL PEOPLE, REAL STORIES
“PicnicHealth has impacted my health care journey in so many ways. I’ve been easily able to provide records to my transplant team, and identify my trends in my lab work. I like to own my healthcare journey and stay informed. PicnicHealth has been able to help me do that.”
Cristie
IgAN Research Participant
REAL PEOPLE, REAL STORIES
"After the initial shock and devastation of my diagnosis, I wanted to fight the disease in any way I could, and participating in medical research became my way of fighting back. Research has been successful in helping to improve treatments, but until there’s a cure, my fight will continue."
Lisa Marie
PicnicHealth Research Participant
REAL PEOPLE, REAL STORIES
“The thought of my voice being heard in the world of medicine is really what motivated me to join this study. Not only to advocate for myself but others and knowing the advocacy put forth will have both a powerful and positive impact.”
Chinara
PicnicHealth Research Participant
Why join?

Get your records, give to science

Your health in your hands.

Access all of your medical records directly from your PicnicHealth account. Just go to your appointments, and we do the rest.

  • View doctors’ notes, test results, medications, imaging, and more.
  • Search your records by visit date, doctor, location, or keyword.
  • We’ll update you when we add new records.

Share records seamlessly.

Coordinate your healthcare with a click. PicnicHealth makes it easy to share records with a new specialist, or just keep your family in the loop.

  • Share records directly via email, text message, or link.
  • Set custom security measures to share your records securely.
  • Pause or remove access any time.

Accelerate research from home.

Contributing to research has never been easier. Earn rewards for sharing your records with researchers, answering questions about your health, and referring friends.

  • Share your anonymized records with researchers.
  • Earn rewards for completing surveys about your health.
  • Refer members of your community to participate.
Research Impact

Your records make a difference

Data contained in medical records tells the true story of each individual's journey with IgAN. This information is powerful for you, your loved ones, and the IgAN community.

Medical records help researchers learn:
  • Can we provide patients with new treatments without a formal clinical trial?
  • How can we examine diseases over time to find what risk factors correlate with occurrence and progression?
  • How do we understand how medical treatments work for real people in the normal course of care?
8.1M+

Records Collected

250k+

Providers on Record

50+

Partner Organizations

Privacy & Security

At PicnicHealth, we’re patients too, so we know how important it is that your loved one's private data stays private. Here’s our promise:

Security

We protect your loved one's personal information with military grade encryption and abide by HIPAA compliant practices.

Privacy

Your loved one's data is fully de-identified. We only share datasets that are structured for research, never redacted medical records.

Transparency

PicnicHealth will ask for your consent every time before sharing any information with any partners. You can opt out at any time.

Responsibility

We use an IRB (Institutional Review Board) and work with a team of physicians to protect the best interest of our research volunteers.

Privacy & Security

At PicnicHealth, we’re patients too, so we know how important it is that your private data stays private. Here’s our promise:

Security

We protect your personal information with military grade encryption and abide by HIPAA compliant practices.

Privacy

Your data is fully de-identified. We only share datasets that are structured for research, never redacted medical records.

Transparency

PicnicHealth will ask for your consent every time before sharing any information with any partners. You can opt out at any time.

Responsibility

We use an IRB (Institutional Review Board) and work with a team of physicians to protect the best interest of our research volunteers.

REAL PEOPLE, REAL STORIES
PicnicHealth gives me the ability to track my kidney function. Since signing up for PicnicHealth I discovered that 4 years ago I went to the ER and during that visit my lab tests showed I was in stage 1 kidney failure and they did not tell me. I could have slowed the progression of my disease and avoided dialysis and a transplant if I would have found out at stage 1. Instead I found out at stage 5, end stage renal failure. If I would have had PicnicHealth then maybe things would have been different.
Kristin
IgAN Research Participant
REAL PEOPLE, REAL STORIES
PicnicHealth gives me the ability to track my kidney function. Since signing up for PicnicHealth I discovered that 4 years ago I went to the ER and during that visit my lab tests showed I was in stage 1 kidney failure and they did not tell me. I could have slowed the progression of my disease and avoided dialysis and a transplant if I would have found out at stage 1. Instead I found out at stage 5, end stage renal failure. If I would have had PicnicHealth then maybe things would have been different.
Kristin
IgAN Research Participant
REAL PEOPLE, REAL STORIES
“PicnicHealth has impacted my health care journey in so many ways. I’ve been easily able to provide records to my transplant team, and identify my trends in my lab work. I like to own my healthcare journey and stay informed. PicnicHealth has been able to help me do that.”
Cristie
IgAN Research Participant
REAL PEOPLE, REAL STORIES
"After the initial shock and devastation of my diagnosis, I wanted to fight the disease in any way I could, and participating in medical research became my way of fighting back. Research has been successful in helping to improve treatments, but until there’s a cure, my fight will continue."
Lisa Marie
PicnicHealth Research Participant
REAL PEOPLE, REAL STORIES
“The thought of my voice being heard in the world of medicine is really what motivated me to join this study. Not only to advocate for myself but others and knowing the advocacy put forth will have both a powerful and positive impact.”
Chinara
PicnicHealth Research Participant
Why join?

Get your records, give to science

Your health in your hands.

Access all of your medical records directly from your PicnicHealth account. Just go to your appointments, and we do the rest.

  • View doctors’ notes, test results, medications, imaging, and more.
  • Search your records by visit date, doctor, location, or keyword.
  • We’ll update you when we add new records.

Share records seamlessly.

Coordinate your healthcare with a click. PicnicHealth makes it easy to share records with a new specialist, or just keep your family in the loop.

  • Share records directly via email, text message, or link.
  • Set custom security measures to share your records securely.
  • Pause or remove access any time.

Accelerate research from home.

Contributing to research has never been easier. Earn rewards for sharing your records with researchers, answering questions about your health, and referring friends.

  • Share your anonymized records with researchers.
  • Earn rewards for completing surveys about your health.
  • Refer members of your community to participate.

Privacy & Security

At PicnicHealth, we’re patients too, so we know how important it is that your loved one's private data stays private. Here’s our promise:

Security

We protect your loved one's personal information with military grade encryption and abide by HIPAA compliant practices.

Privacy

Your loved one's data is fully de-identified. We only share datasets that are structured for research, never redacted medical records.

Transparency

PicnicHealth will ask for your consent every time before sharing any information with any partners. You can opt out at any time.

Responsibility

We use an IRB (Institutional Review Board) and work with a team of physicians to protect the best interest of our research volunteers.

Privacy & Security

At PicnicHealth, we’re patients too, so we know how important it is that your private data stays private. Here’s our promise:

Security

We protect your personal information with military grade encryption and abide by HIPAA compliant practices.

Privacy

Your data is fully de-identified. We only share datasets that are structured for research, never redacted medical records.

Transparency

PicnicHealth will ask for your consent every time before sharing any information with any partners. You can opt out at any time.

Responsibility

We use an IRB (Institutional Review Board) and work with a team of physicians to protect the best interest of our research volunteers.

Research Impact

Your records make a difference

Data contained in medical records tells the true story of each individual's journey with IgAN. This information is powerful for you, your loved ones, and the IgAN community.

Medical records help researchers learn:
  • Can we provide patients with new treatments without a formal clinical trial?
  • How can we examine diseases over time to find what risk factors correlate with occurrence and progression?
  • How do we understand how medical treatments work for real people in the normal course of care?
8.1M+

Records Collected

250k+

Providers on Record

50+

Partner Organizations

"PicnicHealth makes it possible for patients like you and I to have a voice in the medical research community. It means the world to me that I can participate in the advancement of care and knowledge for my condition.”

Chelsea
PicnicHealth Research Participant

"It’s important to me to bring awareness to the disease and do my part to help future patients. Sending records to researchers is just the start of what we can do!”

Cristie
PicnicHealth Research Participant

“I participate in research to help generations after me not to go through the same pain.”

Nadine
PicnicHealth Research Participant

HOW WE WORK

Clinical Connection

Clinical Connection and PicnicHealth have teamed up to facilitate convenient participation for patients in studies that may help reshape the future of medical progress. Together we are helping to link patients with studies tailored to their requirements.

Medical Record Access

Access your medical records anywhere, anytime

PicnicHealth’s platform connects you with a comprehensive timeline of your medical records, updated when you request new records. Best of all, qualified patients can join for free.

Help breast cancer research while earning rewards

When you complete surveys on the PicnicHealth platform you can earn rewards. Your surveys help researchers understand your daily experience and capture insights that may not be available in your medical records.

How PicnicHealth Works

We believe that better care happens when you have control over your records.

Join For Free

Tell us about your care

Just answer a few questions about yourself and let us know who your doctors are. As soon as you finish signing up, we’ll start contacting your doctors and hospitals.

Join Now

We’ll start building your timeline

No calling, faxing, or paperwork for you! We’ll brave the hold music and contact every one of your doctors to make sure they’ve received and processed our request.

You're In Control

With your records consolidated in one place, you’ll be able to access them whenever you need them. Pull up your medical information anywhere you have internet access—and share it securely with your care team.

Earn rewards completing health surveys at home

When you join PicnicHealth, you may be invited to complete health and well-being surveys. These surveys help researchers understand your daily experience and capture insights that may not be available in your medical records.

You can complete surveys from your PicnicHealth account, you may also receive compensation for sharing your story.

HOW WE WORK

Clinical Connection

Clinical Connection and PicnicHealth have teamed up to facilitate convenient participation for patients in studies that may help reshape the future of medical progress. Together we are helping to link patients with studies tailored to their requirements.

Medical Record Access

Access your medical records anytime, anywhere

PicnicHealth organizes all of your medical records in one simple timeline that updates automatically. Keep track of your health history and share important information with your care team.

Learn from other IgA Nephropathy patients

Whether you're caring for a loved one or managing your own care, IgAN Warriors has your back. Explore resources, stories, and tips shared by Change Champions and experts within your IgAN community.

How PicnicHealth Works

Join Now

Sign up for PicnicHealth in less than five minutes

Just answer a few questions about yourself and let us know who your doctors are. As soon as you finish signing up, we’ll start connecting you with your medical records.

Change Champions

Meet Other IgAN Patients Who Have Empowered Themselves Through PicnicHealth

Your medical history,
your control

We securely store your data, but you're in charge. We know this is your most private information, so it's entirely up to you if and when you want to give access to anyone else. Whether that's a doctor or a research study, our job is to make sure your records are fully under your control.

Change Champions

Meet Other IgAN Patients Who Have Empowered Themselves Through PicnicHealth

Unlock your health journey
with PicnicHealth

  • Use your timeline for care management
  • Connect with your IgAN community
  • Learn how your research participation is making an impact
IGAN WARRIORS Change Champions

Meet Other IgAN Patients Who Have Empowered Themselves Through PicnicHealth

Frequently Asked Questions
Who can join this study?

Anyone who has been diagnosed, or is a caregiver with permission to share the medical history of the person diagnosed, and lives in the U.S.

Study Basics
What does PicnicHealth do?

PicnicHealth works directly with people like you to help collect and manage your medical records. That means going out and collecting all of your medical records from your different doctors and keeping them up-to-date over time. PicnicHealth will then transform your records into a timeline that makes it easier to find what you’re looking for. When you see your doctor again, PicnicHealth will update your timeline with new records. You can access your PicnicHealth timeline from anywhere and even share it with your doctors with a few clicks.

About PicnicHealth
How long will it take to get my medical records?

It takes about 3 to 4 weeks to retrieve most of your historical medical records. The timing mainly depends on how quickly your doctors respond to PicnicHealth's requests for your records.

What to Expect
Who will be able to see my medical records?

By signing up for this study, you agree to share your medical records with medical researchers. They will only receive records stripped of any information that could be used to identify you personally. Outside of that, no one—including your doctor or insurance company—will be able to see your medical records unless you choose to share them by clicking "Send Records" at the top of your PicnicHealth timeline.

Data and Privacy
Can I see what my records will look like in my PicnicHealth account?

Yes. You can view this sample timeline.

About PicnicHealth
What is the purpose of the study?

Our goal is to advance the understanding of various diseases while supporting research to improve the quality of care. Information from medical records is particularly useful for diseases, because it gives us insight into what living with the disease is really like and how treatment options work in the real world.

Study Basics
What if I can’t remember the names of all my doctors?

You can just enter as many doctors as you remember. The hospital or clinic name is usually enough and the PicnicHealth team will follow up with you if there’s any confusion. If PicnicHealth finds doctors mentioned in your records who you did not include on your doctor list, you will get an email asking for your permission to request records from that new doctor.

About PicnicHealth
How far back will you collect historical records?

We will collect records going back as far as possible. In most states, doctors are required to keep records for at least 7 years, but many will keep them for much longer. So how far back we can go really depends on the record keeping practices of your doctors.

What to Expect
Can I delete my medical records from PicnicHealth?

You may choose to delete your medical records from the PicnicHealth service at any time and for any reason. Just email PicnicHealth at [email protected]. Once records have been collected for a particular research initiative, you can’t remove them from that research initiative.

Data and Privacy
Will I see the research results?

Yes! We believe it’s important for you to see the results of research produced using your data and we’ll make every effort to share published results back with you.

Study Basics
How will my doctor know it’s okay to share my records?

When you sign up, you’ll read and sign a form that authorizes PicnicHealth to request your medical records on your behalf. You can e-sign this form online—no printing or mailing involved. Your doctor will then know that it's okay to share your medical records with PicnicHealth.

About PicnicHealth
When I first see my PicnicHealth timeline, will it be complete?

When you first see your timeline, it's possible that some of your medical records are not yet available. That's because PicnicHealth is still working hard to collect them for you. You should be able to see your medical records within 3 to 4 weeks of signing up. After the first month, your timeline will be updated regularly with information from your new doctor visits.

What to Expect
Will my medical records be secure?

PicnicHealth takes privacy very seriously. Your personal information is never shared without your explicit permission. Your medical records are kept safe using the highest encryption standard available: 256-bit SSL. This is the same technology that banks use to keep account information safe.

Data and Privacy
Can medical records really help with research?

Medical records record what’s actually happening when doctors see patients, so they can be really helpful for understanding how medical care is delivered in the real world. They also contain a lot of information about your experiences—your symptoms, your health status, and your treatments. Putting all of this information together for a diverse group of patients will allow researchers to see patterns that no one doctor can see on his or her own.

Study Basics
What if my doctor doesn’t have electronic records?

No problem. PicnicHealth can work with records in any format, whether your doctor takes notes with a pen or on an iPad.

About PicnicHealth
What should I do if I notice there are medical records missing from my PicnicHealth timeline?

In the first month, some records might be missing because PicnicHealth is still collecting them for you. After the first month, if you suspect that records are still missing, you can let us know about those records by clicking "Request Records" at the top of your timeline.

What to Expect
Is this a clinical trial?

This is not a clinical trial. A traditional clinical trial involves testing a specific treatment, like a drug or medical device. In this research, we are only looking at data from medical records produced during your normal visits to the doctor. The goal is to better understand how patients across the US are being treated and why a disease looks different in different people.

Study Basics
How can I use my PicnicHealth timeline?

Your PicnicHealth timeline provides a single source of information for you and your doctors. It is a tool to help you coordinate care and understand your own health. You can share your timeline with any of your doctors with a few clicks. The doctor will receive a secure link and get access to your medical history.

About PicnicHealth
What kinds of medical records will you collect?

PicnicHealth will collect medical records from all the doctors, hospitals, and clinics that you tell us about. PicnicHealth does not collect dental or optometry records.

What to Expect
Who is sponsoring the study? Are there any third parties involved?

The research is directly sponsored by PicnicHealth. At PicnicHealth, we specialize in building de-identified medical record data sets for researchers. Our goal is to get this data into the hands of researchers who can analyze the data to answer research questions about how diseases look and are treated out in the real world (not in a very controlled clinical trial setting) with the hope that this can ultimately lead to better care. Third party organizations can apply for access to the de-identified data. These might be government, academic, or commercial innovators. As with all PicnicHealth research, access to the data will be free to all academic researchers.

Study Basics
Will PicnicHealth cost me anything?

You’ll receive PicnicHealth’s service free of charge for the duration of the study as long as you’re a participant.

About PicnicHealth
Will I get records from my scans and imaging?

Yes! You will be able to view your imaging files right in your PicnicHealth timeline.

What to Expect
Will PicnicHealth update my medical records every time I see the doctor?

PicnicHealth will update your medical records regularly. To keep your records most up-to-date, you can always tell PicnicHealth when you have seen the doctor. Just click the “Request Records” button at the top of your timeline, and PicnicHealth will retrieve your new records for you.

What to Expect
What should I do if I see a new doctor?

At the top of your timeline, click on "Doctors" to add new doctors or medical facilities. PicnicHealth will then collect your records from your new doctors.

What to Expect
Can I stop participating in this research?

Yes. Your participation in this research is completely voluntary and you can withdraw at any time. If you choose to stop participating, your medical records will remain available for you through your PicnicHealth account. At that time we will stop collecting any new medical records. You can download copies of your records at any time. You can always tell PicnicHealth to delete your medical records, although the information that has already been shared with third party partners can’t be deleted.

What to Expect

Help IgA Nephropathy (Berger's Disease) Research From Home.

Who is eligible to join?
  • Diagnosed with IgAN (Berger's Disease) affecting your kidneys
  • Received a kidney biopsy by a medical professional
  • Received medical care in the U.S. in the past 7 years
Join Now

PicnicHealth is teaming up with Clinical Connection to help propel research and optimize care for those living with IgAN.

You need to be eligible to receive compensation. This study is NOT related to diabetic nephropathy.

“Research is extremely important to me. With research we will be able to fully understand if there are preventative measures that can be taken that could either slow the progression of other symptoms or totally eliminate them.”

Janet
VISTA research participant

“Research is what gives doctors the information they need to best treat my child. It is how we get new medicines. It develops new things to improve the quality of life. We're grateful for research, so very grateful.”

Melissa
VISTA research participant

Your records make a difference

Data contained in medical records tells the true story of each individual's journey with IgAN. This information is powerful for you, your loved ones, and the IgAN community.

Medical records help researchers learn:
  • Can we provide patients with new treatments without a formal clinical trial?
  • How can we examine diseases over time to find what risk factors correlate with occurrence and progression?
  • How do we understand how medical treatments work for real people in the normal course of care?
Join Now

What does participation look like?

To sign up, all you need to do is confirm achondroplasia diagnosis, and provide the names of a few of your child's healthcare providers.

With your consent, PicnicHealth will then work to compile your child's complete health history into a digital timeline. All this information will be securely transferred to a private portal, that is updated regularly which only you can access.

Protecting Your Child's Privacy

We take privacy seriously.  When your child’s health data is gathered, we make sure to strip away any personal details that could identify them, using a process we call de-identification. This way researchers get the valuable health information they need, without any of the private information they don’t.  

Your child’s de-identified data will only be shared with the VISTA study researchers.  You can learn more about this in our data ownership policy.

Participate and Get Compensated

By joining VISTA, both you and your child will have the opportunity to complete short (10-15 minutes long) surveys every six months about health and daily life, right from your Picnichealth account. These surveys are not just a way for you to earn compensation – they’re also a crucial tool for researchers, helping them understand aspects of your child’s health that aren’t captured in medical records.

The power of community in research

Learn more about our achondroplasia Change Champions and advocacy partners and how you can get involved!

Stay up to date with our newsletter

At PicnicHealth, we are people too - and we hate spam. Once a month, we’ll send you a newsletter that covers tips from your community, research updates, and inspirational stories.

Thank you for subscribing!
Oops! Something went wrong, please try again.
No items found.
Frequently Asked Questions
Who can join this study?

Anyone who has been diagnosed, or is a caregiver with permission to share the medical history of the person diagnosed, and lives in the U.S.

Study Basics
What does PicnicHealth do?

PicnicHealth works directly with people like you to help collect and manage your medical records. That means going out and collecting all of your medical records from your different doctors and keeping them up-to-date over time. PicnicHealth will then transform your records into a timeline that makes it easier to find what you’re looking for. When you see your doctor again, PicnicHealth will update your timeline with new records. You can access your PicnicHealth timeline from anywhere and even share it with your doctors with a few clicks.

About PicnicHealth
How long will it take to get my medical records?

It takes about 3 to 4 weeks to retrieve most of your historical medical records. The timing mainly depends on how quickly your doctors respond to PicnicHealth's requests for your records.

What to Expect
Who will be able to see my medical records?

By signing up for this study, you agree to share your medical records with medical researchers. They will only receive records stripped of any information that could be used to identify you personally. Outside of that, no one—including your doctor or insurance company—will be able to see your medical records unless you choose to share them by clicking "Send Records" at the top of your PicnicHealth timeline.

Data and Privacy
Can I see what my records will look like in my PicnicHealth account?

Yes. You can view this sample timeline.

About PicnicHealth
What is the purpose of the study?

Our goal is to advance the understanding of various diseases while supporting research to improve the quality of care. Information from medical records is particularly useful for diseases, because it gives us insight into what living with the disease is really like and how treatment options work in the real world.

Study Basics
What if I can’t remember the names of all my doctors?

You can just enter as many doctors as you remember. The hospital or clinic name is usually enough and the PicnicHealth team will follow up with you if there’s any confusion. If PicnicHealth finds doctors mentioned in your records who you did not include on your doctor list, you will get an email asking for your permission to request records from that new doctor.

About PicnicHealth
How far back will you collect historical records?

We will collect records going back as far as possible. In most states, doctors are required to keep records for at least 7 years, but many will keep them for much longer. So how far back we can go really depends on the record keeping practices of your doctors.

What to Expect
Can I delete my medical records from PicnicHealth?

You may choose to delete your medical records from the PicnicHealth service at any time and for any reason. Just email PicnicHealth at [email protected]. Once records have been collected for a particular research initiative, you can’t remove them from that research initiative.

Data and Privacy
Will I see the research results?

Yes! We believe it’s important for you to see the results of research produced using your data and we’ll make every effort to share published results back with you.

Study Basics
How will my doctor know it’s okay to share my records?

When you sign up, you’ll read and sign a form that authorizes PicnicHealth to request your medical records on your behalf. You can e-sign this form online—no printing or mailing involved. Your doctor will then know that it's okay to share your medical records with PicnicHealth.

About PicnicHealth
When I first see my PicnicHealth timeline, will it be complete?

When you first see your timeline, it's possible that some of your medical records are not yet available. That's because PicnicHealth is still working hard to collect them for you. You should be able to see your medical records within 3 to 4 weeks of signing up. After the first month, your timeline will be updated regularly with information from your new doctor visits.

What to Expect
Will my medical records be secure?

PicnicHealth takes privacy very seriously. Your personal information is never shared without your explicit permission. Your medical records are kept safe using the highest encryption standard available: 256-bit SSL. This is the same technology that banks use to keep account information safe.

Data and Privacy
Can medical records really help with research?

Medical records record what’s actually happening when doctors see patients, so they can be really helpful for understanding how medical care is delivered in the real world. They also contain a lot of information about your experiences—your symptoms, your health status, and your treatments. Putting all of this information together for a diverse group of patients will allow researchers to see patterns that no one doctor can see on his or her own.

Study Basics
What if my doctor doesn’t have electronic records?

No problem. PicnicHealth can work with records in any format, whether your doctor takes notes with a pen or on an iPad.

About PicnicHealth
What should I do if I notice there are medical records missing from my PicnicHealth timeline?

In the first month, some records might be missing because PicnicHealth is still collecting them for you. After the first month, if you suspect that records are still missing, you can let us know about those records by clicking "Request Records" at the top of your timeline.

What to Expect
Is this a clinical trial?

This is not a clinical trial. A traditional clinical trial involves testing a specific treatment, like a drug or medical device. In this research, we are only looking at data from medical records produced during your normal visits to the doctor. The goal is to better understand how patients across the US are being treated and why a disease looks different in different people.

Study Basics
How can I use my PicnicHealth timeline?

Your PicnicHealth timeline provides a single source of information for you and your doctors. It is a tool to help you coordinate care and understand your own health. You can share your timeline with any of your doctors with a few clicks. The doctor will receive a secure link and get access to your medical history.

About PicnicHealth
What kinds of medical records will you collect?

PicnicHealth will collect medical records from all the doctors, hospitals, and clinics that you tell us about. PicnicHealth does not collect dental or optometry records.

What to Expect
Who is sponsoring the study? Are there any third parties involved?

The research is directly sponsored by PicnicHealth. At PicnicHealth, we specialize in building de-identified medical record data sets for researchers. Our goal is to get this data into the hands of researchers who can analyze the data to answer research questions about how diseases look and are treated out in the real world (not in a very controlled clinical trial setting) with the hope that this can ultimately lead to better care. Third party organizations can apply for access to the de-identified data. These might be government, academic, or commercial innovators. As with all PicnicHealth research, access to the data will be free to all academic researchers.

Study Basics
Will PicnicHealth cost me anything?

You’ll receive PicnicHealth’s service free of charge for the duration of the study as long as you’re a participant.

About PicnicHealth
Will I get records from my scans and imaging?

Yes! You will be able to view your imaging files right in your PicnicHealth timeline.

What to Expect
Will PicnicHealth update my medical records every time I see the doctor?

PicnicHealth will update your medical records regularly. To keep your records most up-to-date, you can always tell PicnicHealth when you have seen the doctor. Just click the “Request Records” button at the top of your timeline, and PicnicHealth will retrieve your new records for you.

What to Expect
What should I do if I see a new doctor?

At the top of your timeline, click on "Doctors" to add new doctors or medical facilities. PicnicHealth will then collect your records from your new doctors.

What to Expect
Can I stop participating in this research?

Yes. Your participation in this research is completely voluntary and you can withdraw at any time. If you choose to stop participating, your medical records will remain available for you through your PicnicHealth account. At that time we will stop collecting any new medical records. You can download copies of your records at any time. You can always tell PicnicHealth to delete your medical records, although the information that has already been shared with third party partners can’t be deleted.

What to Expect

Join Now
Have questions about how it works or PicnicHealth?
Email us at [email protected].

Stay up to date with our newsletter

Subscribe to our newsletter to receive tips from your community, research updates, and stories from other patients.

Thank you for subscribing!
Oops! Something went wrong, please try again.

At PicnicHealth, we're patients too - and we hate spam. We promise to only send you the good stuff.

Stay up to date with our newsletter

Get community stories, tips, and articles right to your inbox.

Thank you for subscribing!
Oops! Something went wrong, please try again.