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A basket of patient stories, research updates, and company news.
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Introducing New Care Features to Simplify Your Health Journey
For the past decade, PicnicHealth has been dedicated to giving you control of your health by providing access to your complete medical records. We’ve had the privilege of working with tens of thousands of patients, most of whom live with chronic diseases, and through countless conversations, one thing has become crystal clear: managing complex care journeys is a huge challenge. Between juggling multiple specialists and keeping track of different treatment plans, it’s easy to feel both overwhelmed and that no single doctor sees the full picture.
Introducing New Care Features to Simplify Your Health Journey
For the past decade, PicnicHealth has been dedicated to giving you control of your health by providing access to your complete medical records. We’ve had the privilege of working with tens of thousands of patients, most of whom live with chronic diseases, and through countless conversations, one thing has become crystal clear: managing complex care journeys is a huge challenge. Between juggling multiple specialists and keeping track of different treatment plans, it’s easy to feel both overwhelmed and that no single doctor sees the full picture.
Patients
PicnicHealth Launches Clinical Services as a New Core Capability, Including Clinical Care for Patients and Virtual Site Capabilities for Life Sciences Teams
PicnicHealth announces the launch of its Clinical Services, featuring a Virtual Clinic for patients and a Virtual Site for life sciences companies. These services, which are supported by a team of PicnicHealth’s in-house providers, have been designed to enhance care management for patients and drive more efficient observational research for life sciences companies. This launch marks a major step in the company’s mission to simplify healthcare for everyone.
PicnicHealth Launches Clinical Services as a New Core Capability, Including Clinical Care for Patients and Virtual Site Capabilities for Life Sciences Teams
PicnicHealth announces the launch of its Clinical Services, featuring a Virtual Clinic for patients and a Virtual Site for life sciences companies. These services, which are supported by a team of PicnicHealth’s in-house providers, have been designed to enhance care management for patients and drive more efficient observational research for life sciences companies. This launch marks a major step in the company’s mission to simplify healthcare for everyone.
Company
New at PicnicHealth: Smart highlights, pinned imaging and more!
Check our our latest features including AI highlights and blurbs to help you understand your medical records.
New at PicnicHealth: Smart highlights, pinned imaging and more!
Check our our latest features including AI highlights and blurbs to help you understand your medical records.
Patients
Jennifer Stacey Joins PicnicHealth as Chief Delivery Officer
Today, PicnicHealth, a company dedicated to simplifying observational research, announces the appointment of Jennifer Stacey as Chief Delivery Officer. In this role, Stacey will oversee the end-to-end delivery of observational studies conducted on the PicnicHealth platform to accelerate customer success and drive innovation in the healthcare industry.
Jennifer Stacey Joins PicnicHealth as Chief Delivery Officer
Today, PicnicHealth, a company dedicated to simplifying observational research, announces the appointment of Jennifer Stacey as Chief Delivery Officer. In this role, Stacey will oversee the end-to-end delivery of observational studies conducted on the PicnicHealth platform to accelerate customer success and drive innovation in the healthcare industry.
Company
What we mean by “Messy” Real-World Data
Real-world medical records quickly break common assumptions used to develop AI techniques in academic settings, and it’s these real-world issues that make our job difficult and interesting. They’re also the reason that “pretty good on a benchmark” has never translated into a great solution for the tasks we train on.
What we mean by “Messy” Real-World Data
Real-world medical records quickly break common assumptions used to develop AI techniques in academic settings, and it’s these real-world issues that make our job difficult and interesting. They’re also the reason that “pretty good on a benchmark” has never translated into a great solution for the tasks we train on.
Technology
Building a Personal Medical AI
PicnicHealth’s AI strategy is focused on building personal medical AI that helps patients get better care and, through our research-focused products, eventually better therapeutic options. To do this, our approach to large language model (LLM) development introduces a distinctive dimension – we bring generalized medical knowledge together with a detailed understanding of a patient’s own medical journey by interpreting their records.
Building a Personal Medical AI
PicnicHealth’s AI strategy is focused on building personal medical AI that helps patients get better care and, through our research-focused products, eventually better therapeutic options. To do this, our approach to large language model (LLM) development introduces a distinctive dimension – we bring generalized medical knowledge together with a detailed understanding of a patient’s own medical journey by interpreting their records.
Technology
PicnicHealth announces PicnicAI, a platform that unlocks the Universal Patient Record with generative AI
Today, PicnicHealth announces PicnicAI, the groundbreaking technology that unlocks the Universal Patient Record. PicnicAI collects medical records from everywhere in the U.S. and transforms them into meaningful data for patients and researchers. It is powered by a proprietary, industry-leading LLM that outperforms GPT-4 and healthcare industry-specific models in accuracy, efficiency, and cost on tasks that involve structuring or understanding medical records.
PicnicHealth announces PicnicAI, a platform that unlocks the Universal Patient Record with generative AI
Today, PicnicHealth announces PicnicAI, the groundbreaking technology that unlocks the Universal Patient Record. PicnicAI collects medical records from everywhere in the U.S. and transforms them into meaningful data for patients and researchers. It is powered by a proprietary, industry-leading LLM that outperforms GPT-4 and healthcare industry-specific models in accuracy, efficiency, and cost on tasks that involve structuring or understanding medical records.
Company
Meet PicnicHealth: Observational Research Simplified
As the life sciences landscape continues to evolve rapidly, the ability to conduct highly efficient yet deeply insightful and reliable research is crucial. PicnicHealth Pulse is specifically designed to address the shortcomings of traditional observational study approaches
Meet PicnicHealth: Observational Research Simplified
As the life sciences landscape continues to evolve rapidly, the ability to conduct highly efficient yet deeply insightful and reliable research is crucial. PicnicHealth Pulse is specifically designed to address the shortcomings of traditional observational study approaches
Company
PicnicHealth Launches Life Science Product to Simplify Observational Research
PicnicHealth launched its life science product today to enable high-quality, low-burden research for life sciences companies and patients.
PicnicHealth Launches Life Science Product to Simplify Observational Research
PicnicHealth launched its life science product today to enable high-quality, low-burden research for life sciences companies and patients.
Company
PicnicHealth Earns Honors as Top Health Technology Company from Newsweek and MedTech Breakthrough
PicnicHealth today announced it was ranked among the World’s Best Digital Health Companies by Newsweek and named the “Best MedTech Startup” by MedTech Breakthrough.
PicnicHealth Earns Honors as Top Health Technology Company from Newsweek and MedTech Breakthrough
PicnicHealth today announced it was ranked among the World’s Best Digital Health Companies by Newsweek and named the “Best MedTech Startup” by MedTech Breakthrough.
Company
New at PicnicHealth: In-app rewards, pins, care team updates and more!
Discover what's new at PicnicHealth! Unlock rewards, streamline care team management, track conditions with ease, and explore our latest Pins feature.
New at PicnicHealth: In-app rewards, pins, care team updates and more!
Discover what's new at PicnicHealth! Unlock rewards, streamline care team management, track conditions with ease, and explore our latest Pins feature.
Patients
Maddox's Journey: Love, Challenges, and Advocacy in the World of CAH
Walking through life with salt-wasting congenital adrenal hyperplasia (CAH) brings its own set of ups and downs. For Taylor and her son, Maddox, it’s a path marked by sudden storms and sunny days, a mix of medical emergencies and moments of pure childhood joy. Here’s their story, told with the warmth and honesty that Taylor brings to every conversation.
Maddox's Journey: Love, Challenges, and Advocacy in the World of CAH
Walking through life with salt-wasting congenital adrenal hyperplasia (CAH) brings its own set of ups and downs. For Taylor and her son, Maddox, it’s a path marked by sudden storms and sunny days, a mix of medical emergencies and moments of pure childhood joy. Here’s their story, told with the warmth and honesty that Taylor brings to every conversation.
Patients
PicnicHealth Appoints Rachael Thomas Higgins as Chief Commercial Officer
PicnicHealth announces the appointment of Rachael Thomas Higgins as Chief Commercial Officer
PicnicHealth Appoints Rachael Thomas Higgins as Chief Commercial Officer
PicnicHealth announces the appointment of Rachael Thomas Higgins as Chief Commercial Officer
Company
Empowering Wellness: Spotlight on Three Organizations Championing Black Mental and Physical Health
As we celebrate Black History Month, we recognize that Black history and the wellness of Black communities must be top of mind every day of the year. Despite the many contributions Black people have made to medicine and wellness, alarming health disparities due to structural and interpersonal racism, still exist for Black people.
Empowering Wellness: Spotlight on Three Organizations Championing Black Mental and Physical Health
As we celebrate Black History Month, we recognize that Black history and the wellness of Black communities must be top of mind every day of the year. Despite the many contributions Black people have made to medicine and wellness, alarming health disparities due to structural and interpersonal racism, still exist for Black people.
Patients
PicnicHealth Launches New AI-Driven Study Portal to Streamline Observational Research
PicnicHealth announced the launch of a new study portal to facilitate faster, more accurate observational research.
PicnicHealth Launches New AI-Driven Study Portal to Streamline Observational Research
PicnicHealth announced the launch of a new study portal to facilitate faster, more accurate observational research.
Company
Amplify Your Voice: Join the #ShareYourRare Campaign!
In honor of Rare Disease Awareness Month, we're thrilled to kick off our #ShareYourRare campaign. We believe that your stories matter, and through #ShareYourRare, we want to highlight the often-overlooked challenges and stories of those who are living with a rare condition.
Amplify Your Voice: Join the #ShareYourRare Campaign!
In honor of Rare Disease Awareness Month, we're thrilled to kick off our #ShareYourRare campaign. We believe that your stories matter, and through #ShareYourRare, we want to highlight the often-overlooked challenges and stories of those who are living with a rare condition.
Patients
Making a Difference: A Closer Look at Rare Patient Voice's Role in Research
In celebration of Rare Disease Month, we are thrilled to shine a spotlight on Change Champions, dedicated partners, and organizations making a lasting impact on rare disease research throughout the year. At the forefront of this movement is Rare Patient Voice, a remarkable resource founded with a singular mission – to provide patients and family caregivers a platform to be heard by actively participating in diverse research endeavors, including rare diseases.
Making a Difference: A Closer Look at Rare Patient Voice's Role in Research
In celebration of Rare Disease Month, we are thrilled to shine a spotlight on Change Champions, dedicated partners, and organizations making a lasting impact on rare disease research throughout the year. At the forefront of this movement is Rare Patient Voice, a remarkable resource founded with a singular mission – to provide patients and family caregivers a platform to be heard by actively participating in diverse research endeavors, including rare diseases.
Patients
How to Advocate for Your Child with Achondroplasia in a Medical Setting
Navigating the complex medical landscape is an imposing journey, and it becomes even more challenging when your child is diagnosed with a rare condition like Achondroplasia.
How to Advocate for Your Child with Achondroplasia in a Medical Setting
Navigating the complex medical landscape is an imposing journey, and it becomes even more challenging when your child is diagnosed with a rare condition like Achondroplasia.
Patients
Embracing Life's Uniqueness: Lydia and Charlie’s Journey with Achondroplasia
In the heart of Urbana, Ohio, Lydia and her husband Charlie embarked on an unexpected journey that began with the arrival of their daughter, Dagny. Diagnosed with achondroplasia, their story is one of discovery, resilience, and unwavering love.
Embracing Life's Uniqueness: Lydia and Charlie’s Journey with Achondroplasia
In the heart of Urbana, Ohio, Lydia and her husband Charlie embarked on an unexpected journey that began with the arrival of their daughter, Dagny. Diagnosed with achondroplasia, their story is one of discovery, resilience, and unwavering love.
Patients
Navigating Life with Achondroplasia: Brynn's Story
In a world where each child's journey is unique, Brynn’s story stands out for its strength and resilience. Diagnosed with achondroplasia, Brynn, and her family, have navigated a path filled with challenges, discoveries, and immense love.
Navigating Life with Achondroplasia: Brynn's Story
In a world where each child's journey is unique, Brynn’s story stands out for its strength and resilience. Diagnosed with achondroplasia, Brynn, and her family, have navigated a path filled with challenges, discoveries, and immense love.
Patients
Journey of Understanding: A Family's Experience with Achondroplasia
The journey of Janet's family into the world of achondroplasia began unexpectedly when their baby girl was diagnosed at four months old.
Journey of Understanding: A Family's Experience with Achondroplasia
The journey of Janet's family into the world of achondroplasia began unexpectedly when their baby girl was diagnosed at four months old.
Patients
‘Tis the season — join PicnicHealth in giving back to The American Kidney Fund and The Chandler Project
We’re thrilled to share that #PicnicHealthGivesBack, our annual giving campaign, has returned this year. From now until January 5, 2024, we’re donating to The American Kidney Fund (AKF) and The Chandler Project for each new PicnicHealth sign-up, up to $6k. Join PicnicHealth today to make an even bigger impact.
‘Tis the season — join PicnicHealth in giving back to The American Kidney Fund and The Chandler Project
We’re thrilled to share that #PicnicHealthGivesBack, our annual giving campaign, has returned this year. From now until January 5, 2024, we’re donating to The American Kidney Fund (AKF) and The Chandler Project for each new PicnicHealth sign-up, up to $6k. Join PicnicHealth today to make an even bigger impact.
Company
Life with IgA Nephropathy: What to expect after diagnosis
Life with IgA Nephropathy: What to expect after diagnosis
Life with IgA Nephropathy: What to expect after diagnosis
Life with IgA Nephropathy: What to expect after diagnosis
Patients
Webinar: How to Advocate for Your Child with Achondroplasia in a Medical Setting
We partnered with The Chandler Project for an empowering achondroplasia community webinar on how to advocate for your child in a medical setting!
Webinar: How to Advocate for Your Child with Achondroplasia in a Medical Setting
We partnered with The Chandler Project for an empowering achondroplasia community webinar on how to advocate for your child in a medical setting!
Patients
CAHtalog: The Power of Medical Records in Research
CAHtalog: The Power of Medical Records in Research is a brief presentation that highlights the CAHtalog registry – an effort sponsored by Neurocrine and supported by CARES and PicnicHealth.
CAHtalog: The Power of Medical Records in Research
CAHtalog: The Power of Medical Records in Research is a brief presentation that highlights the CAHtalog registry – an effort sponsored by Neurocrine and supported by CARES and PicnicHealth.
Patients
Navigating the Holidays with a Chronic Illness
The first of November has sort of always been the mental marker for me to “up my game” for the Holiday Season. Pumpkin lattes and all things Gourd related are being shoved down our throats. I used to like Pumpkin Spice but now I think it’s safe to say the Pumpkin Craze has gone a bit overboard. Nevertheless I still have love for those that get suckered into the few months of insane commercialism and Seasonal Trends.
Navigating the Holidays with a Chronic Illness
The first of November has sort of always been the mental marker for me to “up my game” for the Holiday Season. Pumpkin lattes and all things Gourd related are being shoved down our throats. I used to like Pumpkin Spice but now I think it’s safe to say the Pumpkin Craze has gone a bit overboard. Nevertheless I still have love for those that get suckered into the few months of insane commercialism and Seasonal Trends.
Patients
PicnicHealth Introduces PicnicStudies: A Complete Solution for Registry-Based Studies
We are excited to announce the launch of PicnicStudies! With this new solution, run faster and more efficient observational studies from end-to-end.
PicnicHealth Introduces PicnicStudies: A Complete Solution for Registry-Based Studies
We are excited to announce the launch of PicnicStudies! With this new solution, run faster and more efficient observational studies from end-to-end.
Company
Beyond the Diagnosis
In October 2022, at the young age of 30, Rachel found herself facing a life-altering diagnosis. While most people her age were enjoying reaching the toddler phase of parenting, she was plunged into a world of uncertainty, fear, and guilt. Her husband, a dedicated United States Navy member, was about to embark on an extended sea duty, leaving her to navigate the turbulence of a cancer diagnosis with two young children by her side.
Beyond the Diagnosis
In October 2022, at the young age of 30, Rachel found herself facing a life-altering diagnosis. While most people her age were enjoying reaching the toddler phase of parenting, she was plunged into a world of uncertainty, fear, and guilt. Her husband, a dedicated United States Navy member, was about to embark on an extended sea duty, leaving her to navigate the turbulence of a cancer diagnosis with two young children by her side.
Patients
PicnicHealth Acquires AllStripes, Fortifying its Role as the Leader in Patient-Centered Healthcare Evidence Generation
PicnicHealth announced the acquisition of AllStripes, a platform dedicated to generating evidence about the rare disease community. This strategic consolidation establishes PicnicHealth as the leading patient-centric evidence generation partner within a rapidly evolving life sciences landscape.
PicnicHealth Acquires AllStripes, Fortifying its Role as the Leader in Patient-Centered Healthcare Evidence Generation
PicnicHealth announced the acquisition of AllStripes, a platform dedicated to generating evidence about the rare disease community. This strategic consolidation establishes PicnicHealth as the leading patient-centric evidence generation partner within a rapidly evolving life sciences landscape.
Company
PicnicHealth Acquires AllStripes, Fortifying its Role as the Leader in Patient-Centered Healthcare Evidence Generation
PicnicHealth announced the acquisition of AllStripes, a platform dedicated to generating evidence about the rare disease community. This strategic consolidation establishes PicnicHealth as the leading patient-centric evidence generation partner within a rapidly evolving life sciences landscape.
PicnicHealth Acquires AllStripes, Fortifying its Role as the Leader in Patient-Centered Healthcare Evidence Generation
PicnicHealth announced the acquisition of AllStripes, a platform dedicated to generating evidence about the rare disease community. This strategic consolidation establishes PicnicHealth as the leading patient-centric evidence generation partner within a rapidly evolving life sciences landscape.
Company
A Letter to My Younger Self With Dwarfism
Life isn’t always fair. You have just turned 15 ½ and you’ve lost feeling in your lower legs. You have spinal cord compression. Lower back surgery is absolutely necessary. I know you think that this is the end of the world, but some miracles can happen. You will experience even harder things in life.
A Letter to My Younger Self With Dwarfism
Life isn’t always fair. You have just turned 15 ½ and you’ve lost feeling in your lower legs. You have spinal cord compression. Lower back surgery is absolutely necessary. I know you think that this is the end of the world, but some miracles can happen. You will experience even harder things in life.
Patients
How breast cancer research studies can help your family with early detection
Early detection of breast cancer can make all the difference in terms of treatment options and outcomes. In addition to regular self-exams and OBGYN appointments, having a complete picture of your family history is one of the best tools you have at your disposal.
How breast cancer research studies can help your family with early detection
Early detection of breast cancer can make all the difference in terms of treatment options and outcomes. In addition to regular self-exams and OBGYN appointments, having a complete picture of your family history is one of the best tools you have at your disposal.
Patients
When You're the Youngest Breast Cancer Patient Your Doctor's Ever Seen
I strongly believe that age is just a number.There was a point in my cancer journey when I bargained with God. I asked him why he allowed me to get diagnosed in my twenties and wished he could have changed the timing to at least my forties or fifties.
When You're the Youngest Breast Cancer Patient Your Doctor's Ever Seen
I strongly believe that age is just a number.There was a point in my cancer journey when I bargained with God. I asked him why he allowed me to get diagnosed in my twenties and wished he could have changed the timing to at least my forties or fifties.
Patients
It’s OK If You Don’t ‘Grow Bolder As You Grow Balder’ with Breast Cancer
What’s the most favorite thing about yourself? My answer used to be my thick hair. It was organically long, healthy, and shiny. I used to follow the Asian stereotype where nothing about my body was #thiccccc, except my hair.
It’s OK If You Don’t ‘Grow Bolder As You Grow Balder’ with Breast Cancer
What’s the most favorite thing about yourself? My answer used to be my thick hair. It was organically long, healthy, and shiny. I used to follow the Asian stereotype where nothing about my body was #thiccccc, except my hair.
Patients
Why You're Never 'Done' Even After Breast Cancer Treatment
Why You're Never 'Done' Even After Breast Cancer Treatment
Why You're Never 'Done' Even After Breast Cancer Treatment
Why You're Never 'Done' Even After Breast Cancer Treatment
Patients
Why You're Never 'Done' Even After Breast Cancer Treatment
Why You're Never 'Done' Even After Breast Cancer Treatment
Why You're Never 'Done' Even After Breast Cancer Treatment
Why You're Never 'Done' Even After Breast Cancer Treatment
Company
Meet the Team: Sara Snell Taylor
Get to know Sara Snell Taylor, Senior Epidemiologist at PicnicHealth and discover how she leverages real-world data to improve patient outcomes
Meet the Team: Sara Snell Taylor
Get to know Sara Snell Taylor, Senior Epidemiologist at PicnicHealth and discover how she leverages real-world data to improve patient outcomes
Company
PicnicHealth Announces Entry into Market for Oncology-Focused Real-World Data
PicnicHealth is thrilled to announce our entry into the real-world data market for oncology. Leveraging our successes in chronic and rare diseases, we're now dedicated to advancing oncology research by collaborating directly with people living with cancer.
PicnicHealth Announces Entry into Market for Oncology-Focused Real-World Data
PicnicHealth is thrilled to announce our entry into the real-world data market for oncology. Leveraging our successes in chronic and rare diseases, we're now dedicated to advancing oncology research by collaborating directly with people living with cancer.
Company
Team Spotlight: Justin Maslin
Welcome to PicnicHealth’s Team Spotlight series, where we introduce you to the talented people that are working behind the scenes at PicnicHealth. Today you’ll get to know Justin Maslin, the Engineering Manager for the Care Experience team at PicnicHealth
Team Spotlight: Justin Maslin
Welcome to PicnicHealth’s Team Spotlight series, where we introduce you to the talented people that are working behind the scenes at PicnicHealth. Today you’ll get to know Justin Maslin, the Engineering Manager for the Care Experience team at PicnicHealth
Company
How is PicnicHealth different from my patient portal?
Patients typically access their medical records through patient portals, which are online platforms that allow you to view their health information and communicate with your healthcare providers. Many patient portals are part of an electronic health record (EHR) system used by healthcare providers. While EHR systems are helpful tools for managing records from one facility, requesting prescription refills, or paying bills, they often fall short when consolidating information from different healthcare organizations or participating in research.
How is PicnicHealth different from my patient portal?
Patients typically access their medical records through patient portals, which are online platforms that allow you to view their health information and communicate with your healthcare providers. Many patient portals are part of an electronic health record (EHR) system used by healthcare providers. While EHR systems are helpful tools for managing records from one facility, requesting prescription refills, or paying bills, they often fall short when consolidating information from different healthcare organizations or participating in research.
Patients
How is participating in a PicnicHealth study different from a traditional clinical trial?
Clinical trials and PicnicHealth are two approaches when it comes to advancing medical knowledge and improving patient outcomes. While both clinical trials and PicnicHealth have their strengths and limitations, it's important to understand the differences between the two when considering options for improving healthcare.
How is participating in a PicnicHealth study different from a traditional clinical trial?
Clinical trials and PicnicHealth are two approaches when it comes to advancing medical knowledge and improving patient outcomes. While both clinical trials and PicnicHealth have their strengths and limitations, it's important to understand the differences between the two when considering options for improving healthcare.
Patients
5 Must-Follow Kidney Disease Content Creators for IgAN Patients
Managing an IgA nephropathy (IgAN) diagnosis, whether it's yours or that of a loved one, can feel incredibly overwhelming, isolating, and just plain difficult. These five content creators living with IgAN are giving hope to the community by sharing their real experiences, tips, and resources to remind you you’re not alone.
5 Must-Follow Kidney Disease Content Creators for IgAN Patients
Managing an IgA nephropathy (IgAN) diagnosis, whether it's yours or that of a loved one, can feel incredibly overwhelming, isolating, and just plain difficult. These five content creators living with IgAN are giving hope to the community by sharing their real experiences, tips, and resources to remind you you’re not alone.
Patients
AAPI Heritage Month: Asian Representation and Inclusion in Research
Although there is a large and diversified group of Asian Americans and Pacific Islanders (AAPI) in the United States, clinical trials and medical research frequently underrepresent this group. This underrepresentation result in a lack of knowledge about how particular medications and therapies affect AAPI people, potentially resulting in less effective or even hazardous medical interventions.
AAPI Heritage Month: Asian Representation and Inclusion in Research
Although there is a large and diversified group of Asian Americans and Pacific Islanders (AAPI) in the United States, clinical trials and medical research frequently underrepresent this group. This underrepresentation result in a lack of knowledge about how particular medications and therapies affect AAPI people, potentially resulting in less effective or even hazardous medical interventions.
Patients
PicnicHealth Announces Continued Real-World Data Strategic Partnership with Roche and Genentech to Advance Neurological Disease Research
PicnicHealth is excited to announce that we are expanding our long-term partnership with Roche and Genentech to better understand brain health and accelerate neurological disease research using real-world data.
PicnicHealth Announces Continued Real-World Data Strategic Partnership with Roche and Genentech to Advance Neurological Disease Research
PicnicHealth is excited to announce that we are expanding our long-term partnership with Roche and Genentech to better understand brain health and accelerate neurological disease research using real-world data.
Company
My Journey with IgAN: Overcoming Challenges and Finding Support
Sarah You is an IgAN Change Champion who has used her challenges with IgA nephropathy to help others. Sarah was diagnosed with IgAN when she was 21 years old, living as an international student in the US. She flew back to receive treatment and be with her family in Korea following her diagnosis. Now that she understands how to manage her IgAN, she has a master's degree in immunology and is currently applying to medical schools so she can be a support system for other rare disease patients.
My Journey with IgAN: Overcoming Challenges and Finding Support
Sarah You is an IgAN Change Champion who has used her challenges with IgA nephropathy to help others. Sarah was diagnosed with IgAN when she was 21 years old, living as an international student in the US. She flew back to receive treatment and be with her family in Korea following her diagnosis. Now that she understands how to manage her IgAN, she has a master's degree in immunology and is currently applying to medical schools so she can be a support system for other rare disease patients.
Patients
Your IgAN Lab Values: A Comprehensive Guide
IgA nephropathy (IgAN) is a type of kidney disease that affects the glomeruli, the tiny filtering units within the kidneys. To diagnose and monitor IgAN, patients typically undergo a range of tests, including blood labs for kidney diseases, urine tests for kidney disease, and imaging studies.
Your IgAN Lab Values: A Comprehensive Guide
IgA nephropathy (IgAN) is a type of kidney disease that affects the glomeruli, the tiny filtering units within the kidneys. To diagnose and monitor IgAN, patients typically undergo a range of tests, including blood labs for kidney diseases, urine tests for kidney disease, and imaging studies.
Patients
CureDuchenne Partners with PicnicHealth to Advance Research and Simplify Patient Experience by Incorporating Electronic Health Records into Data-Integrated Biobank
CureDuchenne and PicnicHealth Announce Real-World Evidence-Focused Partnership to Incorporate Participant Medical Records into CureDuchenne Link
CureDuchenne Partners with PicnicHealth to Advance Research and Simplify Patient Experience by Incorporating Electronic Health Records into Data-Integrated Biobank
CureDuchenne and PicnicHealth Announce Real-World Evidence-Focused Partnership to Incorporate Participant Medical Records into CureDuchenne Link
Company
Kidney Biopsy for IgAN: Understanding the Procedure and Its Importance
In the US, nearly two million kidney biopsies are performed each year at a rate of 175 procedures per million population. Kidney biopsies can reveal important information about kidney function and inform nephrologists about the possible cause of symptoms that brought the patient in for a visit in the first place.
Kidney Biopsy for IgAN: Understanding the Procedure and Its Importance
In the US, nearly two million kidney biopsies are performed each year at a rate of 175 procedures per million population. Kidney biopsies can reveal important information about kidney function and inform nephrologists about the possible cause of symptoms that brought the patient in for a visit in the first place.
Patients
Top Tools to Help Manage Your IgA Nephropathy Care
Managing a chronic condition can be challenging, but there are tools to help patients monitor their health and manage their symptoms. From wearable health monitors to online medical record platforms, blood pressure monitors, symptom-tracking apps, and diet-tracking tools, patients have a variety of resources at their disposal. Here are six tools that can help you take control of your health and manage your IgA Nephropathy:
Top Tools to Help Manage Your IgA Nephropathy Care
Managing a chronic condition can be challenging, but there are tools to help patients monitor their health and manage their symptoms. From wearable health monitors to online medical record platforms, blood pressure monitors, symptom-tracking apps, and diet-tracking tools, patients have a variety of resources at their disposal. Here are six tools that can help you take control of your health and manage your IgA Nephropathy:
Patients
5 Advocacy Organizations for IgAN Warriors
There are many organizations dedicated to helping patients with IgA nephropathy. Here are five of the top organizations that IgA nephropathy patients can turn to for support and resources.
5 Advocacy Organizations for IgAN Warriors
There are many organizations dedicated to helping patients with IgA nephropathy. Here are five of the top organizations that IgA nephropathy patients can turn to for support and resources.
Patients
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