Accelerate Congenital Adrenal Hyperplasia (CAH) research from home.

Your medical records hold important information about how real people like you manage CAH. CARES Foundation has partnered with Neurocrine Biosciences to conduct a new type of registry to combine the de-identified medical histories of many volunteers into a single, CAH research database: CAHtalog™. PicnicHealth’s research platform will be utilized to collect your medical records and structure the data for research purposes.

The CAHtalog™ registry is now enrolling adults and children who have been diagnosed with classic CAH and live in the U.S.

Join Now

Donate your anonymized records in minutes to securely share your experiences with CAH researchers.

CAHtalog™ is a disease registry – a type of database that is used to collect and record information about people diagnosed with a specific disease. In the registry, people living with CAH will consent to have PicnicHealth collect medical records on their behalf, which will be combined into a de-identified CAH database. CAHtalog™ is a CARES Foundation-supported registry.

Join Now

Join the community to change what we know about CAH.

More than anything, researchers need data from actual patients with CAH – lots of data – to identify patterns and find answers. Some research questions your anonymized records can help answer include:

  • What is the natural history of CAH?

  • How is CAH managed in the real world?

  • What is the total impact of CAH on people’s quality of life?

The main purpose of the CAHtalog™ registry is to obtain information about how adults and children with CAH are managed by their doctors in a real-world setting. The registry will provide the CAH community with a better understanding of how CAH is managed. It will also give a better picture of the natural history of CAH and will help raise awareness of CAH, which may help improve the care of future CAH patients.

How you can help

It takes just a few minutes to contribute to CAH research, and your participation is completely anonymous. CARES Foundation and Neurocrine Biosciences have partnered to build CAHtalog™.

1

If you (or your child) has been diagnosed with classic CAH and receive care in the U.S., tell us where to gather your health history from.

2

PicnicHealth will gather imaging files, test results, doctors’ notes, etc. and then remove any identifying information (like your name, date of birth, phone number, and address).

3

Once your medical history is made anonymous, it’s compiled with others’ information to create an invaluable resource for researchers.

4

You’ll receive a copy of your fully digitized medical records via the PicnicHealth timeline (view a demo here), and future updates on findings made from your contribution.

Join Now
REAL PEOPLE, REAL STORIES
“CARES Foundation is collaborating with Neurocrine Biosciences on the development of the CAHtalog™ Registry. Utilizing PicnicHealth’s research platform, this first-of-its-kind registry will enable patients and their families to easily share their real-world data for the advancement of CAH research. We’re excited to participate in the project and see the positive impact of the registry”
Dr. Karen Lin Su
CARES Medical Director
Real people real stories
“I love that PicnicHealth gives me the chance to access all of my medical records on my cell phone. This gives me the confidence to advocate for myself if my parents are not with me. I plan to keep using this program even after I graduate high school and head to college.”
Kambri
Sickle Cell Research Participant

Join CAHtalog™!

Low effort, high impact

No extra calls, tests, or medications, but tremendous potential for insights and breakthroughs.

Reputable partners

Neurocrine is partnering with CARES Foundation for the development and implementation of CAHtalog™, which will be housed on PicnicHealth’s research platform.

Privacy

PicnicHealth will not share personal information with CARES or Neurocrine Biosciences. Researchers never see full medical records, only aggregated, anonymized datasets of hundreds of people.

Security

PicnicHealth takes protecting your privacy very seriously. PicnicHealth uses military grade encryption (256-bit SSL, the highest encryption standard available), abides by HIPAA-compliant practices and is HITRUST certified.

Responsibility

All CAHtalog™ material will use an IRB (Institutional Review Board) as an external check to make sure our practices are always ethical.

Frequently Asked Questions
Study Basics
basics
Who can join this registry?
What is PicnicHealth?
PicnicHealth is a service specialized in helping patient collect and manage their medical records.

How is PicnicHealth related to UnitedHealthcare?
UnitedHealthcare is partnering with PicnicHealth as part of a Family Engagement Center initiative. Your child will receive PicnicHealth's services for free, which includes getting a PicnicHealth timeline with all of your child’s medical records in one place.  

What does PicnicHealth do? 
PicnicHealth collects your child’s medical records on your behalf and helps you manage them in a PicnicHealth timeline. When you see the doctor again, we’ll update your PicnicHealth timeline with the new records. You can access your medical records from anywhere and even share them with your child’s doctors with a few clicks.

Can I see what a PicnicHealth account looks like?
Yes. You can view this sample timeline.  

Will PicnicHealth cost me anything?
You’ll receive PicnicHealth’s service free of charge in partnership with UnitedHealthcare during the first year pilot program. One year after you start using PicnicHealth, your child’s PicnicHealth timeline will continue to be available, but no new records will be added. If UnitedHealthcare and PicnicHealth do not continue their partnership, you will have the option of subscribing directly.

How can I use my PicnicHealth timeline?
The PicnicHealth timeline provides a single source of information for you, your child’s doctors, and your UnitedHealthcare Family Advisors and Clinicians. It is a tool to help you coordinate care and navigate the diagnostic journey and can be shared with a few clicks. When you share your child’s medical records, the recipient will receive a secure link and get instant access to your child’s medical history.

Anyone who has been diagnosed with classic congenital adrenal hyperplasia (CAH) and lives in the U.S. is eligible to participate, including both adults and children with classic CAH.

about
What does PicnicHealth do?
What is PicnicHealth?
PicnicHealth is a service specialized in helping patient collect and manage their medical records.

How is PicnicHealth related to UnitedHealthcare?
UnitedHealthcare is partnering with PicnicHealth as part of a Family Engagement Center initiative. Your child will receive PicnicHealth's services for free, which includes getting a PicnicHealth timeline with all of your child’s medical records in one place.  

What does PicnicHealth do? 
PicnicHealth collects your child’s medical records on your behalf and helps you manage them in a PicnicHealth timeline. When you see the doctor again, we’ll update your PicnicHealth timeline with the new records. You can access your medical records from anywhere and even share them with your child’s doctors with a few clicks.

Can I see what a PicnicHealth account looks like?
Yes. You can view this sample timeline.  

Will PicnicHealth cost me anything?
You’ll receive PicnicHealth’s service free of charge in partnership with UnitedHealthcare during the first year pilot program. One year after you start using PicnicHealth, your child’s PicnicHealth timeline will continue to be available, but no new records will be added. If UnitedHealthcare and PicnicHealth do not continue their partnership, you will have the option of subscribing directly.

How can I use my PicnicHealth timeline?
The PicnicHealth timeline provides a single source of information for you, your child’s doctors, and your UnitedHealthcare Family Advisors and Clinicians. It is a tool to help you coordinate care and navigate the diagnostic journey and can be shared with a few clicks. When you share your child’s medical records, the recipient will receive a secure link and get instant access to your child’s medical history.

PicnicHealth works directly with people like you or your child to help collect and manage medical records. That means going out and collecting all of your medical records from different doctors and keeping them up-to-date over time. PicnicHealth will then transform the records into a timeline that makes it easier to find what you’re looking for. When you see the doctor again, PicnicHealth will update the timeline with new records. You can access your PicnicHealth timeline from anywhere and even share it with your doctors with a few clicks.

what-to-expect
How long will it take to get my medical records?
What is PicnicHealth?
PicnicHealth is a service specialized in helping patient collect and manage their medical records.

How is PicnicHealth related to UnitedHealthcare?
UnitedHealthcare is partnering with PicnicHealth as part of a Family Engagement Center initiative. Your child will receive PicnicHealth's services for free, which includes getting a PicnicHealth timeline with all of your child’s medical records in one place.  

What does PicnicHealth do? 
PicnicHealth collects your child’s medical records on your behalf and helps you manage them in a PicnicHealth timeline. When you see the doctor again, we’ll update your PicnicHealth timeline with the new records. You can access your medical records from anywhere and even share them with your child’s doctors with a few clicks.

Can I see what a PicnicHealth account looks like?
Yes. You can view this sample timeline.  

Will PicnicHealth cost me anything?
You’ll receive PicnicHealth’s service free of charge in partnership with UnitedHealthcare during the first year pilot program. One year after you start using PicnicHealth, your child’s PicnicHealth timeline will continue to be available, but no new records will be added. If UnitedHealthcare and PicnicHealth do not continue their partnership, you will have the option of subscribing directly.

How can I use my PicnicHealth timeline?
The PicnicHealth timeline provides a single source of information for you, your child’s doctors, and your UnitedHealthcare Family Advisors and Clinicians. It is a tool to help you coordinate care and navigate the diagnostic journey and can be shared with a few clicks. When you share your child’s medical records, the recipient will receive a secure link and get instant access to your child’s medical history.

It takes about 3 to 4 weeks to retrieve most of your historical medical records. The timing mainly depends on how quickly your doctors respond to PicnicHealth's requests for your records.

data-and-privacy
Who will be able to see my medical records?
What is PicnicHealth?
PicnicHealth is a service specialized in helping patient collect and manage their medical records.

How is PicnicHealth related to UnitedHealthcare?
UnitedHealthcare is partnering with PicnicHealth as part of a Family Engagement Center initiative. Your child will receive PicnicHealth's services for free, which includes getting a PicnicHealth timeline with all of your child’s medical records in one place.  

What does PicnicHealth do? 
PicnicHealth collects your child’s medical records on your behalf and helps you manage them in a PicnicHealth timeline. When you see the doctor again, we’ll update your PicnicHealth timeline with the new records. You can access your medical records from anywhere and even share them with your child’s doctors with a few clicks.

Can I see what a PicnicHealth account looks like?
Yes. You can view this sample timeline.  

Will PicnicHealth cost me anything?
You’ll receive PicnicHealth’s service free of charge in partnership with UnitedHealthcare during the first year pilot program. One year after you start using PicnicHealth, your child’s PicnicHealth timeline will continue to be available, but no new records will be added. If UnitedHealthcare and PicnicHealth do not continue their partnership, you will have the option of subscribing directly.

How can I use my PicnicHealth timeline?
The PicnicHealth timeline provides a single source of information for you, your child’s doctors, and your UnitedHealthcare Family Advisors and Clinicians. It is a tool to help you coordinate care and navigate the diagnostic journey and can be shared with a few clicks. When you share your child’s medical records, the recipient will receive a secure link and get instant access to your child’s medical history.

By signing up for this registry, you agree to share your de-identified medical records with CAH researchers. They will only receive records stripped of any information that could be used to identify you personally. Outside of that, no one—including your doctor or insurance company—will be able to see your medical records unless you choose to share them by clicking "Send Records" at the top of your PicnicHealth timeline.

basics
What is the purpose of the registry?
What is PicnicHealth?
PicnicHealth is a service specialized in helping patient collect and manage their medical records.

How is PicnicHealth related to UnitedHealthcare?
UnitedHealthcare is partnering with PicnicHealth as part of a Family Engagement Center initiative. Your child will receive PicnicHealth's services for free, which includes getting a PicnicHealth timeline with all of your child’s medical records in one place.  

What does PicnicHealth do? 
PicnicHealth collects your child’s medical records on your behalf and helps you manage them in a PicnicHealth timeline. When you see the doctor again, we’ll update your PicnicHealth timeline with the new records. You can access your medical records from anywhere and even share them with your child’s doctors with a few clicks.

Can I see what a PicnicHealth account looks like?
Yes. You can view this sample timeline.  

Will PicnicHealth cost me anything?
You’ll receive PicnicHealth’s service free of charge in partnership with UnitedHealthcare during the first year pilot program. One year after you start using PicnicHealth, your child’s PicnicHealth timeline will continue to be available, but no new records will be added. If UnitedHealthcare and PicnicHealth do not continue their partnership, you will have the option of subscribing directly.

How can I use my PicnicHealth timeline?
The PicnicHealth timeline provides a single source of information for you, your child’s doctors, and your UnitedHealthcare Family Advisors and Clinicians. It is a tool to help you coordinate care and navigate the diagnostic journey and can be shared with a few clicks. When you share your child’s medical records, the recipient will receive a secure link and get instant access to your child’s medical history.

The goal of CAHtalog™ is to advance the understanding of CAH and to support research to improve the quality of care for patients with CAH. Information from medical records is particularly useful for diseases, such as CAH, because it gives insight into what living with the disease is really like and how treatment options work in the real world.

what-to-expect
How far back will you collect historical records?
What is PicnicHealth?
PicnicHealth is a service specialized in helping patient collect and manage their medical records.

How is PicnicHealth related to UnitedHealthcare?
UnitedHealthcare is partnering with PicnicHealth as part of a Family Engagement Center initiative. Your child will receive PicnicHealth's services for free, which includes getting a PicnicHealth timeline with all of your child’s medical records in one place.  

What does PicnicHealth do? 
PicnicHealth collects your child’s medical records on your behalf and helps you manage them in a PicnicHealth timeline. When you see the doctor again, we’ll update your PicnicHealth timeline with the new records. You can access your medical records from anywhere and even share them with your child’s doctors with a few clicks.

Can I see what a PicnicHealth account looks like?
Yes. You can view this sample timeline.  

Will PicnicHealth cost me anything?
You’ll receive PicnicHealth’s service free of charge in partnership with UnitedHealthcare during the first year pilot program. One year after you start using PicnicHealth, your child’s PicnicHealth timeline will continue to be available, but no new records will be added. If UnitedHealthcare and PicnicHealth do not continue their partnership, you will have the option of subscribing directly.

How can I use my PicnicHealth timeline?
The PicnicHealth timeline provides a single source of information for you, your child’s doctors, and your UnitedHealthcare Family Advisors and Clinicians. It is a tool to help you coordinate care and navigate the diagnostic journey and can be shared with a few clicks. When you share your child’s medical records, the recipient will receive a secure link and get instant access to your child’s medical history.

PicnicHealth will collect records going back as far as possible. In most states, doctors are required to keep records for at least 7 years, but many will keep them for much longer. So how far back data collection can go really depends on the record keeping practices of your doctors.

data-and-privacy
What information will be de-identified?
What is PicnicHealth?
PicnicHealth is a service specialized in helping patient collect and manage their medical records.

How is PicnicHealth related to UnitedHealthcare?
UnitedHealthcare is partnering with PicnicHealth as part of a Family Engagement Center initiative. Your child will receive PicnicHealth's services for free, which includes getting a PicnicHealth timeline with all of your child’s medical records in one place.  

What does PicnicHealth do? 
PicnicHealth collects your child’s medical records on your behalf and helps you manage them in a PicnicHealth timeline. When you see the doctor again, we’ll update your PicnicHealth timeline with the new records. You can access your medical records from anywhere and even share them with your child’s doctors with a few clicks.

Can I see what a PicnicHealth account looks like?
Yes. You can view this sample timeline.  

Will PicnicHealth cost me anything?
You’ll receive PicnicHealth’s service free of charge in partnership with UnitedHealthcare during the first year pilot program. One year after you start using PicnicHealth, your child’s PicnicHealth timeline will continue to be available, but no new records will be added. If UnitedHealthcare and PicnicHealth do not continue their partnership, you will have the option of subscribing directly.

How can I use my PicnicHealth timeline?
The PicnicHealth timeline provides a single source of information for you, your child’s doctors, and your UnitedHealthcare Family Advisors and Clinicians. It is a tool to help you coordinate care and navigate the diagnostic journey and can be shared with a few clicks. When you share your child’s medical records, the recipient will receive a secure link and get instant access to your child’s medical history.

PicnicHealth will de-identify your data before sharing it with researchers, stripping away personally identifiable information. This includes, but is not limited to, your name, email, date of birth, phone number, address, and the names of your doctors.  

Everyone who participates in CAHtalog™ will remain anonymous.

about
What is PicnicHealth’s role in CAHtalog™?
What is PicnicHealth?
PicnicHealth is a service specialized in helping patient collect and manage their medical records.

How is PicnicHealth related to UnitedHealthcare?
UnitedHealthcare is partnering with PicnicHealth as part of a Family Engagement Center initiative. Your child will receive PicnicHealth's services for free, which includes getting a PicnicHealth timeline with all of your child’s medical records in one place.  

What does PicnicHealth do? 
PicnicHealth collects your child’s medical records on your behalf and helps you manage them in a PicnicHealth timeline. When you see the doctor again, we’ll update your PicnicHealth timeline with the new records. You can access your medical records from anywhere and even share them with your child’s doctors with a few clicks.

Can I see what a PicnicHealth account looks like?
Yes. You can view this sample timeline.  

Will PicnicHealth cost me anything?
You’ll receive PicnicHealth’s service free of charge in partnership with UnitedHealthcare during the first year pilot program. One year after you start using PicnicHealth, your child’s PicnicHealth timeline will continue to be available, but no new records will be added. If UnitedHealthcare and PicnicHealth do not continue their partnership, you will have the option of subscribing directly.

How can I use my PicnicHealth timeline?
The PicnicHealth timeline provides a single source of information for you, your child’s doctors, and your UnitedHealthcare Family Advisors and Clinicians. It is a tool to help you coordinate care and navigate the diagnostic journey and can be shared with a few clicks. When you share your child’s medical records, the recipient will receive a secure link and get instant access to your child’s medical history.

PicnicHealth’s research platform will be used to collect your medical records and structure the data for research purposes.

basics
Will I see the registry results?
What is PicnicHealth?
PicnicHealth is a service specialized in helping patient collect and manage their medical records.

How is PicnicHealth related to UnitedHealthcare?
UnitedHealthcare is partnering with PicnicHealth as part of a Family Engagement Center initiative. Your child will receive PicnicHealth's services for free, which includes getting a PicnicHealth timeline with all of your child’s medical records in one place.  

What does PicnicHealth do? 
PicnicHealth collects your child’s medical records on your behalf and helps you manage them in a PicnicHealth timeline. When you see the doctor again, we’ll update your PicnicHealth timeline with the new records. You can access your medical records from anywhere and even share them with your child’s doctors with a few clicks.

Can I see what a PicnicHealth account looks like?
Yes. You can view this sample timeline.  

Will PicnicHealth cost me anything?
You’ll receive PicnicHealth’s service free of charge in partnership with UnitedHealthcare during the first year pilot program. One year after you start using PicnicHealth, your child’s PicnicHealth timeline will continue to be available, but no new records will be added. If UnitedHealthcare and PicnicHealth do not continue their partnership, you will have the option of subscribing directly.

How can I use my PicnicHealth timeline?
The PicnicHealth timeline provides a single source of information for you, your child’s doctors, and your UnitedHealthcare Family Advisors and Clinicians. It is a tool to help you coordinate care and navigate the diagnostic journey and can be shared with a few clicks. When you share your child’s medical records, the recipient will receive a secure link and get instant access to your child’s medical history.

Yes! The CAHtalog™ registry make every effort to share published results back with you.

about
Can I see what my records will look like in my PicnicHealth account?
What is PicnicHealth?
PicnicHealth is a service specialized in helping patient collect and manage their medical records.

How is PicnicHealth related to UnitedHealthcare?
UnitedHealthcare is partnering with PicnicHealth as part of a Family Engagement Center initiative. Your child will receive PicnicHealth's services for free, which includes getting a PicnicHealth timeline with all of your child’s medical records in one place.  

What does PicnicHealth do? 
PicnicHealth collects your child’s medical records on your behalf and helps you manage them in a PicnicHealth timeline. When you see the doctor again, we’ll update your PicnicHealth timeline with the new records. You can access your medical records from anywhere and even share them with your child’s doctors with a few clicks.

Can I see what a PicnicHealth account looks like?
Yes. You can view this sample timeline.  

Will PicnicHealth cost me anything?
You’ll receive PicnicHealth’s service free of charge in partnership with UnitedHealthcare during the first year pilot program. One year after you start using PicnicHealth, your child’s PicnicHealth timeline will continue to be available, but no new records will be added. If UnitedHealthcare and PicnicHealth do not continue their partnership, you will have the option of subscribing directly.

How can I use my PicnicHealth timeline?
The PicnicHealth timeline provides a single source of information for you, your child’s doctors, and your UnitedHealthcare Family Advisors and Clinicians. It is a tool to help you coordinate care and navigate the diagnostic journey and can be shared with a few clicks. When you share your child’s medical records, the recipient will receive a secure link and get instant access to your child’s medical history.

Yes. You can view this sample timeline.

about
What if I can’t remember the names of all my doctors?
What is PicnicHealth?
PicnicHealth is a service specialized in helping patient collect and manage their medical records.

How is PicnicHealth related to UnitedHealthcare?
UnitedHealthcare is partnering with PicnicHealth as part of a Family Engagement Center initiative. Your child will receive PicnicHealth's services for free, which includes getting a PicnicHealth timeline with all of your child’s medical records in one place.  

What does PicnicHealth do? 
PicnicHealth collects your child’s medical records on your behalf and helps you manage them in a PicnicHealth timeline. When you see the doctor again, we’ll update your PicnicHealth timeline with the new records. You can access your medical records from anywhere and even share them with your child’s doctors with a few clicks.

Can I see what a PicnicHealth account looks like?
Yes. You can view this sample timeline.  

Will PicnicHealth cost me anything?
You’ll receive PicnicHealth’s service free of charge in partnership with UnitedHealthcare during the first year pilot program. One year after you start using PicnicHealth, your child’s PicnicHealth timeline will continue to be available, but no new records will be added. If UnitedHealthcare and PicnicHealth do not continue their partnership, you will have the option of subscribing directly.

How can I use my PicnicHealth timeline?
The PicnicHealth timeline provides a single source of information for you, your child’s doctors, and your UnitedHealthcare Family Advisors and Clinicians. It is a tool to help you coordinate care and navigate the diagnostic journey and can be shared with a few clicks. When you share your child’s medical records, the recipient will receive a secure link and get instant access to your child’s medical history.

You can just enter as many doctors as you remember. The hospital or clinic name is usually enough, and the PicnicHealth team will follow up with you if there’s any confusion. If PicnicHealth finds doctors mentioned in your records who you did not include on the doctor list, you will get an email asking for your permission to request records from that new doctor.

what-to-expect
When I first see my PicnicHealth timeline, will it be complete?
What is PicnicHealth?
PicnicHealth is a service specialized in helping patient collect and manage their medical records.

How is PicnicHealth related to UnitedHealthcare?
UnitedHealthcare is partnering with PicnicHealth as part of a Family Engagement Center initiative. Your child will receive PicnicHealth's services for free, which includes getting a PicnicHealth timeline with all of your child’s medical records in one place.  

What does PicnicHealth do? 
PicnicHealth collects your child’s medical records on your behalf and helps you manage them in a PicnicHealth timeline. When you see the doctor again, we’ll update your PicnicHealth timeline with the new records. You can access your medical records from anywhere and even share them with your child’s doctors with a few clicks.

Can I see what a PicnicHealth account looks like?
Yes. You can view this sample timeline.  

Will PicnicHealth cost me anything?
You’ll receive PicnicHealth’s service free of charge in partnership with UnitedHealthcare during the first year pilot program. One year after you start using PicnicHealth, your child’s PicnicHealth timeline will continue to be available, but no new records will be added. If UnitedHealthcare and PicnicHealth do not continue their partnership, you will have the option of subscribing directly.

How can I use my PicnicHealth timeline?
The PicnicHealth timeline provides a single source of information for you, your child’s doctors, and your UnitedHealthcare Family Advisors and Clinicians. It is a tool to help you coordinate care and navigate the diagnostic journey and can be shared with a few clicks. When you share your child’s medical records, the recipient will receive a secure link and get instant access to your child’s medical history.

When you first see your timeline, it's possible that some of your medical records are not yet available. That's because PicnicHealth is still working hard to collect them for you. You should be able to see your medical records within 4 to 6 weeks of signing up. After the first month, your timeline will be updated regularly with information from your new doctor visits.

data-and-privacy
Can I delete my medical records from PicnicHealth?
What is PicnicHealth?
PicnicHealth is a service specialized in helping patient collect and manage their medical records.

How is PicnicHealth related to UnitedHealthcare?
UnitedHealthcare is partnering with PicnicHealth as part of a Family Engagement Center initiative. Your child will receive PicnicHealth's services for free, which includes getting a PicnicHealth timeline with all of your child’s medical records in one place.  

What does PicnicHealth do? 
PicnicHealth collects your child’s medical records on your behalf and helps you manage them in a PicnicHealth timeline. When you see the doctor again, we’ll update your PicnicHealth timeline with the new records. You can access your medical records from anywhere and even share them with your child’s doctors with a few clicks.

Can I see what a PicnicHealth account looks like?
Yes. You can view this sample timeline.  

Will PicnicHealth cost me anything?
You’ll receive PicnicHealth’s service free of charge in partnership with UnitedHealthcare during the first year pilot program. One year after you start using PicnicHealth, your child’s PicnicHealth timeline will continue to be available, but no new records will be added. If UnitedHealthcare and PicnicHealth do not continue their partnership, you will have the option of subscribing directly.

How can I use my PicnicHealth timeline?
The PicnicHealth timeline provides a single source of information for you, your child’s doctors, and your UnitedHealthcare Family Advisors and Clinicians. It is a tool to help you coordinate care and navigate the diagnostic journey and can be shared with a few clicks. When you share your child’s medical records, the recipient will receive a secure link and get instant access to your child’s medical history.

You may choose to delete your medical records from the PicnicHealth service at any time and for any reason. Just email PicnicHealth at [email protected]. Once records have been collected for a particular research initiative, you can’t remove them from that research initiative.

basics
Can medical records really help with research?
What is PicnicHealth?
PicnicHealth is a service specialized in helping patient collect and manage their medical records.

How is PicnicHealth related to UnitedHealthcare?
UnitedHealthcare is partnering with PicnicHealth as part of a Family Engagement Center initiative. Your child will receive PicnicHealth's services for free, which includes getting a PicnicHealth timeline with all of your child’s medical records in one place.  

What does PicnicHealth do? 
PicnicHealth collects your child’s medical records on your behalf and helps you manage them in a PicnicHealth timeline. When you see the doctor again, we’ll update your PicnicHealth timeline with the new records. You can access your medical records from anywhere and even share them with your child’s doctors with a few clicks.

Can I see what a PicnicHealth account looks like?
Yes. You can view this sample timeline.  

Will PicnicHealth cost me anything?
You’ll receive PicnicHealth’s service free of charge in partnership with UnitedHealthcare during the first year pilot program. One year after you start using PicnicHealth, your child’s PicnicHealth timeline will continue to be available, but no new records will be added. If UnitedHealthcare and PicnicHealth do not continue their partnership, you will have the option of subscribing directly.

How can I use my PicnicHealth timeline?
The PicnicHealth timeline provides a single source of information for you, your child’s doctors, and your UnitedHealthcare Family Advisors and Clinicians. It is a tool to help you coordinate care and navigate the diagnostic journey and can be shared with a few clicks. When you share your child’s medical records, the recipient will receive a secure link and get instant access to your child’s medical history.

Medical records show what’s happening when doctors see patients, so they can be really helpful for understanding how medical care is delivered in the real world. They also contain a lot of information about how you experience CAH —your symptoms, your health status, and your treatments. Putting all this information together for a diverse group of patients will allow researchers to see patterns that no one doctor can see on their own.

what-to-expect
What should I do if I notice there are medical records missing from my PicnicHealth timeline?
What is PicnicHealth?
PicnicHealth is a service specialized in helping patient collect and manage their medical records.

How is PicnicHealth related to UnitedHealthcare?
UnitedHealthcare is partnering with PicnicHealth as part of a Family Engagement Center initiative. Your child will receive PicnicHealth's services for free, which includes getting a PicnicHealth timeline with all of your child’s medical records in one place.  

What does PicnicHealth do? 
PicnicHealth collects your child’s medical records on your behalf and helps you manage them in a PicnicHealth timeline. When you see the doctor again, we’ll update your PicnicHealth timeline with the new records. You can access your medical records from anywhere and even share them with your child’s doctors with a few clicks.

Can I see what a PicnicHealth account looks like?
Yes. You can view this sample timeline.  

Will PicnicHealth cost me anything?
You’ll receive PicnicHealth’s service free of charge in partnership with UnitedHealthcare during the first year pilot program. One year after you start using PicnicHealth, your child’s PicnicHealth timeline will continue to be available, but no new records will be added. If UnitedHealthcare and PicnicHealth do not continue their partnership, you will have the option of subscribing directly.

How can I use my PicnicHealth timeline?
The PicnicHealth timeline provides a single source of information for you, your child’s doctors, and your UnitedHealthcare Family Advisors and Clinicians. It is a tool to help you coordinate care and navigate the diagnostic journey and can be shared with a few clicks. When you share your child’s medical records, the recipient will receive a secure link and get instant access to your child’s medical history.

In the first month, some records might be missing because PicnicHealth is still collecting them for you. After the first month, if you suspect that records are still missing, you can let us know about those records by clicking "Request Records" at the top of your timeline.

data-and-privacy
Will my medical records be secure?
What is PicnicHealth?
PicnicHealth is a service specialized in helping patient collect and manage their medical records.

How is PicnicHealth related to UnitedHealthcare?
UnitedHealthcare is partnering with PicnicHealth as part of a Family Engagement Center initiative. Your child will receive PicnicHealth's services for free, which includes getting a PicnicHealth timeline with all of your child’s medical records in one place.  

What does PicnicHealth do? 
PicnicHealth collects your child’s medical records on your behalf and helps you manage them in a PicnicHealth timeline. When you see the doctor again, we’ll update your PicnicHealth timeline with the new records. You can access your medical records from anywhere and even share them with your child’s doctors with a few clicks.

Can I see what a PicnicHealth account looks like?
Yes. You can view this sample timeline.  

Will PicnicHealth cost me anything?
You’ll receive PicnicHealth’s service free of charge in partnership with UnitedHealthcare during the first year pilot program. One year after you start using PicnicHealth, your child’s PicnicHealth timeline will continue to be available, but no new records will be added. If UnitedHealthcare and PicnicHealth do not continue their partnership, you will have the option of subscribing directly.

How can I use my PicnicHealth timeline?
The PicnicHealth timeline provides a single source of information for you, your child’s doctors, and your UnitedHealthcare Family Advisors and Clinicians. It is a tool to help you coordinate care and navigate the diagnostic journey and can be shared with a few clicks. When you share your child’s medical records, the recipient will receive a secure link and get instant access to your child’s medical history.

PicnicHealth takes privacy very seriously. Your personal information is never shared without your explicit permission. Your medical records are kept safe using the highest encryption standard available: 256-bit SSL. This is the same technology that banks use to keep account information safe.

basics
Is this a clinical trial?
What is PicnicHealth?
PicnicHealth is a service specialized in helping patient collect and manage their medical records.

How is PicnicHealth related to UnitedHealthcare?
UnitedHealthcare is partnering with PicnicHealth as part of a Family Engagement Center initiative. Your child will receive PicnicHealth's services for free, which includes getting a PicnicHealth timeline with all of your child’s medical records in one place.  

What does PicnicHealth do? 
PicnicHealth collects your child’s medical records on your behalf and helps you manage them in a PicnicHealth timeline. When you see the doctor again, we’ll update your PicnicHealth timeline with the new records. You can access your medical records from anywhere and even share them with your child’s doctors with a few clicks.

Can I see what a PicnicHealth account looks like?
Yes. You can view this sample timeline.  

Will PicnicHealth cost me anything?
You’ll receive PicnicHealth’s service free of charge in partnership with UnitedHealthcare during the first year pilot program. One year after you start using PicnicHealth, your child’s PicnicHealth timeline will continue to be available, but no new records will be added. If UnitedHealthcare and PicnicHealth do not continue their partnership, you will have the option of subscribing directly.

How can I use my PicnicHealth timeline?
The PicnicHealth timeline provides a single source of information for you, your child’s doctors, and your UnitedHealthcare Family Advisors and Clinicians. It is a tool to help you coordinate care and navigate the diagnostic journey and can be shared with a few clicks. When you share your child’s medical records, the recipient will receive a secure link and get instant access to your child’s medical history.

This is not a clinical trial. A traditional clinical trial involves testing a specific treatment, like a drug or medical device. In this research, we are only looking at data from medical records produced during your normal visits to the doctor. The goal is to better understand how patients across the U.S. are being treated and why a disease looks different in different people. This will not change your current care.

about
How will my doctor know it’s okay to share my records?
What is PicnicHealth?
PicnicHealth is a service specialized in helping patient collect and manage their medical records.

How is PicnicHealth related to UnitedHealthcare?
UnitedHealthcare is partnering with PicnicHealth as part of a Family Engagement Center initiative. Your child will receive PicnicHealth's services for free, which includes getting a PicnicHealth timeline with all of your child’s medical records in one place.  

What does PicnicHealth do? 
PicnicHealth collects your child’s medical records on your behalf and helps you manage them in a PicnicHealth timeline. When you see the doctor again, we’ll update your PicnicHealth timeline with the new records. You can access your medical records from anywhere and even share them with your child’s doctors with a few clicks.

Can I see what a PicnicHealth account looks like?
Yes. You can view this sample timeline.  

Will PicnicHealth cost me anything?
You’ll receive PicnicHealth’s service free of charge in partnership with UnitedHealthcare during the first year pilot program. One year after you start using PicnicHealth, your child’s PicnicHealth timeline will continue to be available, but no new records will be added. If UnitedHealthcare and PicnicHealth do not continue their partnership, you will have the option of subscribing directly.

How can I use my PicnicHealth timeline?
The PicnicHealth timeline provides a single source of information for you, your child’s doctors, and your UnitedHealthcare Family Advisors and Clinicians. It is a tool to help you coordinate care and navigate the diagnostic journey and can be shared with a few clicks. When you share your child’s medical records, the recipient will receive a secure link and get instant access to your child’s medical history.

When you sign up, you’ll read and sign a form that authorizes PicnicHealth to request your medical records on your behalf. You can e-sign this form online -- no printing or mailing involved. Your doctor will then know that it's okay to share your medical records with PicnicHealth.

what-to-expect
What kinds of medical records will you collect?
What is PicnicHealth?
PicnicHealth is a service specialized in helping patient collect and manage their medical records.

How is PicnicHealth related to UnitedHealthcare?
UnitedHealthcare is partnering with PicnicHealth as part of a Family Engagement Center initiative. Your child will receive PicnicHealth's services for free, which includes getting a PicnicHealth timeline with all of your child’s medical records in one place.  

What does PicnicHealth do? 
PicnicHealth collects your child’s medical records on your behalf and helps you manage them in a PicnicHealth timeline. When you see the doctor again, we’ll update your PicnicHealth timeline with the new records. You can access your medical records from anywhere and even share them with your child’s doctors with a few clicks.

Can I see what a PicnicHealth account looks like?
Yes. You can view this sample timeline.  

Will PicnicHealth cost me anything?
You’ll receive PicnicHealth’s service free of charge in partnership with UnitedHealthcare during the first year pilot program. One year after you start using PicnicHealth, your child’s PicnicHealth timeline will continue to be available, but no new records will be added. If UnitedHealthcare and PicnicHealth do not continue their partnership, you will have the option of subscribing directly.

How can I use my PicnicHealth timeline?
The PicnicHealth timeline provides a single source of information for you, your child’s doctors, and your UnitedHealthcare Family Advisors and Clinicians. It is a tool to help you coordinate care and navigate the diagnostic journey and can be shared with a few clicks. When you share your child’s medical records, the recipient will receive a secure link and get instant access to your child’s medical history.

PicnicHealth will collect medical records from all the U.S. doctors, hospitals, and clinics that you tell us about. PicnicHealth does not collect dental or optometry records.

basics
What is a disease registry?
What is PicnicHealth?
PicnicHealth is a service specialized in helping patient collect and manage their medical records.

How is PicnicHealth related to UnitedHealthcare?
UnitedHealthcare is partnering with PicnicHealth as part of a Family Engagement Center initiative. Your child will receive PicnicHealth's services for free, which includes getting a PicnicHealth timeline with all of your child’s medical records in one place.  

What does PicnicHealth do? 
PicnicHealth collects your child’s medical records on your behalf and helps you manage them in a PicnicHealth timeline. When you see the doctor again, we’ll update your PicnicHealth timeline with the new records. You can access your medical records from anywhere and even share them with your child’s doctors with a few clicks.

Can I see what a PicnicHealth account looks like?
Yes. You can view this sample timeline.  

Will PicnicHealth cost me anything?
You’ll receive PicnicHealth’s service free of charge in partnership with UnitedHealthcare during the first year pilot program. One year after you start using PicnicHealth, your child’s PicnicHealth timeline will continue to be available, but no new records will be added. If UnitedHealthcare and PicnicHealth do not continue their partnership, you will have the option of subscribing directly.

How can I use my PicnicHealth timeline?
The PicnicHealth timeline provides a single source of information for you, your child’s doctors, and your UnitedHealthcare Family Advisors and Clinicians. It is a tool to help you coordinate care and navigate the diagnostic journey and can be shared with a few clicks. When you share your child’s medical records, the recipient will receive a secure link and get instant access to your child’s medical history.

A disease registry is a standardized collection (database) of information about individuals with a specific diagnosis or condition.

about
What if my doctor doesn’t have electronic records?
What is PicnicHealth?
PicnicHealth is a service specialized in helping patient collect and manage their medical records.

How is PicnicHealth related to UnitedHealthcare?
UnitedHealthcare is partnering with PicnicHealth as part of a Family Engagement Center initiative. Your child will receive PicnicHealth's services for free, which includes getting a PicnicHealth timeline with all of your child’s medical records in one place.  

What does PicnicHealth do? 
PicnicHealth collects your child’s medical records on your behalf and helps you manage them in a PicnicHealth timeline. When you see the doctor again, we’ll update your PicnicHealth timeline with the new records. You can access your medical records from anywhere and even share them with your child’s doctors with a few clicks.

Can I see what a PicnicHealth account looks like?
Yes. You can view this sample timeline.  

Will PicnicHealth cost me anything?
You’ll receive PicnicHealth’s service free of charge in partnership with UnitedHealthcare during the first year pilot program. One year after you start using PicnicHealth, your child’s PicnicHealth timeline will continue to be available, but no new records will be added. If UnitedHealthcare and PicnicHealth do not continue their partnership, you will have the option of subscribing directly.

How can I use my PicnicHealth timeline?
The PicnicHealth timeline provides a single source of information for you, your child’s doctors, and your UnitedHealthcare Family Advisors and Clinicians. It is a tool to help you coordinate care and navigate the diagnostic journey and can be shared with a few clicks. When you share your child’s medical records, the recipient will receive a secure link and get instant access to your child’s medical history.

No problem. PicnicHealth can work with data in any format, whether your doctor takes notes with a pen or on an iPad.

what-to-expect
Will I get records from scans and imaging?
What is PicnicHealth?
PicnicHealth is a service specialized in helping patient collect and manage their medical records.

How is PicnicHealth related to UnitedHealthcare?
UnitedHealthcare is partnering with PicnicHealth as part of a Family Engagement Center initiative. Your child will receive PicnicHealth's services for free, which includes getting a PicnicHealth timeline with all of your child’s medical records in one place.  

What does PicnicHealth do? 
PicnicHealth collects your child’s medical records on your behalf and helps you manage them in a PicnicHealth timeline. When you see the doctor again, we’ll update your PicnicHealth timeline with the new records. You can access your medical records from anywhere and even share them with your child’s doctors with a few clicks.

Can I see what a PicnicHealth account looks like?
Yes. You can view this sample timeline.  

Will PicnicHealth cost me anything?
You’ll receive PicnicHealth’s service free of charge in partnership with UnitedHealthcare during the first year pilot program. One year after you start using PicnicHealth, your child’s PicnicHealth timeline will continue to be available, but no new records will be added. If UnitedHealthcare and PicnicHealth do not continue their partnership, you will have the option of subscribing directly.

How can I use my PicnicHealth timeline?
The PicnicHealth timeline provides a single source of information for you, your child’s doctors, and your UnitedHealthcare Family Advisors and Clinicians. It is a tool to help you coordinate care and navigate the diagnostic journey and can be shared with a few clicks. When you share your child’s medical records, the recipient will receive a secure link and get instant access to your child’s medical history.

Yes! You will be able to view your imaging files right in the PicnicHealth timeline.

basics
How is CARES involved in the registry?
What is PicnicHealth?
PicnicHealth is a service specialized in helping patient collect and manage their medical records.

How is PicnicHealth related to UnitedHealthcare?
UnitedHealthcare is partnering with PicnicHealth as part of a Family Engagement Center initiative. Your child will receive PicnicHealth's services for free, which includes getting a PicnicHealth timeline with all of your child’s medical records in one place.  

What does PicnicHealth do? 
PicnicHealth collects your child’s medical records on your behalf and helps you manage them in a PicnicHealth timeline. When you see the doctor again, we’ll update your PicnicHealth timeline with the new records. You can access your medical records from anywhere and even share them with your child’s doctors with a few clicks.

Can I see what a PicnicHealth account looks like?
Yes. You can view this sample timeline.  

Will PicnicHealth cost me anything?
You’ll receive PicnicHealth’s service free of charge in partnership with UnitedHealthcare during the first year pilot program. One year after you start using PicnicHealth, your child’s PicnicHealth timeline will continue to be available, but no new records will be added. If UnitedHealthcare and PicnicHealth do not continue their partnership, you will have the option of subscribing directly.

How can I use my PicnicHealth timeline?
The PicnicHealth timeline provides a single source of information for you, your child’s doctors, and your UnitedHealthcare Family Advisors and Clinicians. It is a tool to help you coordinate care and navigate the diagnostic journey and can be shared with a few clicks. When you share your child’s medical records, the recipient will receive a secure link and get instant access to your child’s medical history.

CARES Foundation endorses the CAHtalog™ registry and has helped in the planning and implementation of the registry. The Foundation supports research that aims to better support and understand CAH.

about
How can I use my PicnicHealth timeline?
What is PicnicHealth?
PicnicHealth is a service specialized in helping patient collect and manage their medical records.

How is PicnicHealth related to UnitedHealthcare?
UnitedHealthcare is partnering with PicnicHealth as part of a Family Engagement Center initiative. Your child will receive PicnicHealth's services for free, which includes getting a PicnicHealth timeline with all of your child’s medical records in one place.  

What does PicnicHealth do? 
PicnicHealth collects your child’s medical records on your behalf and helps you manage them in a PicnicHealth timeline. When you see the doctor again, we’ll update your PicnicHealth timeline with the new records. You can access your medical records from anywhere and even share them with your child’s doctors with a few clicks.

Can I see what a PicnicHealth account looks like?
Yes. You can view this sample timeline.  

Will PicnicHealth cost me anything?
You’ll receive PicnicHealth’s service free of charge in partnership with UnitedHealthcare during the first year pilot program. One year after you start using PicnicHealth, your child’s PicnicHealth timeline will continue to be available, but no new records will be added. If UnitedHealthcare and PicnicHealth do not continue their partnership, you will have the option of subscribing directly.

How can I use my PicnicHealth timeline?
The PicnicHealth timeline provides a single source of information for you, your child’s doctors, and your UnitedHealthcare Family Advisors and Clinicians. It is a tool to help you coordinate care and navigate the diagnostic journey and can be shared with a few clicks. When you share your child’s medical records, the recipient will receive a secure link and get instant access to your child’s medical history.

Your PicnicHealth timeline provides a single source of information for you and your doctors. It is a tool to help you coordinate care and understand your own health. You can share your timeline with any of your doctors with a few clicks. The doctor will receive a secure link and get access to your medical history.

what-to-expect
Will PicnicHealth update my medical records every time I see the doctor?
What is PicnicHealth?
PicnicHealth is a service specialized in helping patient collect and manage their medical records.

How is PicnicHealth related to UnitedHealthcare?
UnitedHealthcare is partnering with PicnicHealth as part of a Family Engagement Center initiative. Your child will receive PicnicHealth's services for free, which includes getting a PicnicHealth timeline with all of your child’s medical records in one place.  

What does PicnicHealth do? 
PicnicHealth collects your child’s medical records on your behalf and helps you manage them in a PicnicHealth timeline. When you see the doctor again, we’ll update your PicnicHealth timeline with the new records. You can access your medical records from anywhere and even share them with your child’s doctors with a few clicks.

Can I see what a PicnicHealth account looks like?
Yes. You can view this sample timeline.  

Will PicnicHealth cost me anything?
You’ll receive PicnicHealth’s service free of charge in partnership with UnitedHealthcare during the first year pilot program. One year after you start using PicnicHealth, your child’s PicnicHealth timeline will continue to be available, but no new records will be added. If UnitedHealthcare and PicnicHealth do not continue their partnership, you will have the option of subscribing directly.

How can I use my PicnicHealth timeline?
The PicnicHealth timeline provides a single source of information for you, your child’s doctors, and your UnitedHealthcare Family Advisors and Clinicians. It is a tool to help you coordinate care and navigate the diagnostic journey and can be shared with a few clicks. When you share your child’s medical records, the recipient will receive a secure link and get instant access to your child’s medical history.

PicnicHealth will update your medical records regularly. To keep your records most up-to-date, you can always tell PicnicHealth when you have seen the doctor. Just click the “Request Records” button at the top of your timeline, and PicnicHealth will retrieve your new records for you.

basics
Who is funding the registry?
What is PicnicHealth?
PicnicHealth is a service specialized in helping patient collect and manage their medical records.

How is PicnicHealth related to UnitedHealthcare?
UnitedHealthcare is partnering with PicnicHealth as part of a Family Engagement Center initiative. Your child will receive PicnicHealth's services for free, which includes getting a PicnicHealth timeline with all of your child’s medical records in one place.  

What does PicnicHealth do? 
PicnicHealth collects your child’s medical records on your behalf and helps you manage them in a PicnicHealth timeline. When you see the doctor again, we’ll update your PicnicHealth timeline with the new records. You can access your medical records from anywhere and even share them with your child’s doctors with a few clicks.

Can I see what a PicnicHealth account looks like?
Yes. You can view this sample timeline.  

Will PicnicHealth cost me anything?
You’ll receive PicnicHealth’s service free of charge in partnership with UnitedHealthcare during the first year pilot program. One year after you start using PicnicHealth, your child’s PicnicHealth timeline will continue to be available, but no new records will be added. If UnitedHealthcare and PicnicHealth do not continue their partnership, you will have the option of subscribing directly.

How can I use my PicnicHealth timeline?
The PicnicHealth timeline provides a single source of information for you, your child’s doctors, and your UnitedHealthcare Family Advisors and Clinicians. It is a tool to help you coordinate care and navigate the diagnostic journey and can be shared with a few clicks. When you share your child’s medical records, the recipient will receive a secure link and get instant access to your child’s medical history.

The CAHtalog™ registry is sponsored by Neurocrine Biosciences, Inc.

what-to-expect
What should I do if I see a new doctor?
What is PicnicHealth?
PicnicHealth is a service specialized in helping patient collect and manage their medical records.

How is PicnicHealth related to UnitedHealthcare?
UnitedHealthcare is partnering with PicnicHealth as part of a Family Engagement Center initiative. Your child will receive PicnicHealth's services for free, which includes getting a PicnicHealth timeline with all of your child’s medical records in one place.  

What does PicnicHealth do? 
PicnicHealth collects your child’s medical records on your behalf and helps you manage them in a PicnicHealth timeline. When you see the doctor again, we’ll update your PicnicHealth timeline with the new records. You can access your medical records from anywhere and even share them with your child’s doctors with a few clicks.

Can I see what a PicnicHealth account looks like?
Yes. You can view this sample timeline.  

Will PicnicHealth cost me anything?
You’ll receive PicnicHealth’s service free of charge in partnership with UnitedHealthcare during the first year pilot program. One year after you start using PicnicHealth, your child’s PicnicHealth timeline will continue to be available, but no new records will be added. If UnitedHealthcare and PicnicHealth do not continue their partnership, you will have the option of subscribing directly.

How can I use my PicnicHealth timeline?
The PicnicHealth timeline provides a single source of information for you, your child’s doctors, and your UnitedHealthcare Family Advisors and Clinicians. It is a tool to help you coordinate care and navigate the diagnostic journey and can be shared with a few clicks. When you share your child’s medical records, the recipient will receive a secure link and get instant access to your child’s medical history.

At the top of the timeline, click on "Doctors" to add new doctors or medical facilities. PicnicHealth will then collect records from your new doctors.

about
Will joining CAHtalog™ cost me anything?
What is PicnicHealth?
PicnicHealth is a service specialized in helping patient collect and manage their medical records.

How is PicnicHealth related to UnitedHealthcare?
UnitedHealthcare is partnering with PicnicHealth as part of a Family Engagement Center initiative. Your child will receive PicnicHealth's services for free, which includes getting a PicnicHealth timeline with all of your child’s medical records in one place.  

What does PicnicHealth do? 
PicnicHealth collects your child’s medical records on your behalf and helps you manage them in a PicnicHealth timeline. When you see the doctor again, we’ll update your PicnicHealth timeline with the new records. You can access your medical records from anywhere and even share them with your child’s doctors with a few clicks.

Can I see what a PicnicHealth account looks like?
Yes. You can view this sample timeline.  

Will PicnicHealth cost me anything?
You’ll receive PicnicHealth’s service free of charge in partnership with UnitedHealthcare during the first year pilot program. One year after you start using PicnicHealth, your child’s PicnicHealth timeline will continue to be available, but no new records will be added. If UnitedHealthcare and PicnicHealth do not continue their partnership, you will have the option of subscribing directly.

How can I use my PicnicHealth timeline?
The PicnicHealth timeline provides a single source of information for you, your child’s doctors, and your UnitedHealthcare Family Advisors and Clinicians. It is a tool to help you coordinate care and navigate the diagnostic journey and can be shared with a few clicks. When you share your child’s medical records, the recipient will receive a secure link and get instant access to your child’s medical history.

There will be no cost to you associated with your participation in CAHtalog™.

basics
Where can I find more information about other CAH research opportunities?
What is PicnicHealth?
PicnicHealth is a service specialized in helping patient collect and manage their medical records.

How is PicnicHealth related to UnitedHealthcare?
UnitedHealthcare is partnering with PicnicHealth as part of a Family Engagement Center initiative. Your child will receive PicnicHealth's services for free, which includes getting a PicnicHealth timeline with all of your child’s medical records in one place.  

What does PicnicHealth do? 
PicnicHealth collects your child’s medical records on your behalf and helps you manage them in a PicnicHealth timeline. When you see the doctor again, we’ll update your PicnicHealth timeline with the new records. You can access your medical records from anywhere and even share them with your child’s doctors with a few clicks.

Can I see what a PicnicHealth account looks like?
Yes. You can view this sample timeline.  

Will PicnicHealth cost me anything?
You’ll receive PicnicHealth’s service free of charge in partnership with UnitedHealthcare during the first year pilot program. One year after you start using PicnicHealth, your child’s PicnicHealth timeline will continue to be available, but no new records will be added. If UnitedHealthcare and PicnicHealth do not continue their partnership, you will have the option of subscribing directly.

How can I use my PicnicHealth timeline?
The PicnicHealth timeline provides a single source of information for you, your child’s doctors, and your UnitedHealthcare Family Advisors and Clinicians. It is a tool to help you coordinate care and navigate the diagnostic journey and can be shared with a few clicks. When you share your child’s medical records, the recipient will receive a secure link and get instant access to your child’s medical history.

Additional research opportunities can be found on CARES Foundation website – visit https://caresfoundation.org/clinical-trials-an-overview/ongoing-clinical-trials/ for more information.

what-to-expect
Can I stop participating in the registry?
What is PicnicHealth?
PicnicHealth is a service specialized in helping patient collect and manage their medical records.

How is PicnicHealth related to UnitedHealthcare?
UnitedHealthcare is partnering with PicnicHealth as part of a Family Engagement Center initiative. Your child will receive PicnicHealth's services for free, which includes getting a PicnicHealth timeline with all of your child’s medical records in one place.  

What does PicnicHealth do? 
PicnicHealth collects your child’s medical records on your behalf and helps you manage them in a PicnicHealth timeline. When you see the doctor again, we’ll update your PicnicHealth timeline with the new records. You can access your medical records from anywhere and even share them with your child’s doctors with a few clicks.

Can I see what a PicnicHealth account looks like?
Yes. You can view this sample timeline.  

Will PicnicHealth cost me anything?
You’ll receive PicnicHealth’s service free of charge in partnership with UnitedHealthcare during the first year pilot program. One year after you start using PicnicHealth, your child’s PicnicHealth timeline will continue to be available, but no new records will be added. If UnitedHealthcare and PicnicHealth do not continue their partnership, you will have the option of subscribing directly.

How can I use my PicnicHealth timeline?
The PicnicHealth timeline provides a single source of information for you, your child’s doctors, and your UnitedHealthcare Family Advisors and Clinicians. It is a tool to help you coordinate care and navigate the diagnostic journey and can be shared with a few clicks. When you share your child’s medical records, the recipient will receive a secure link and get instant access to your child’s medical history.

Yes. Your participation in this research is completely voluntary and you can withdraw at any time. If you choose to stop participating, your medical records will remain available for you through your PicnicHealth account. At that time PicnicHealth will stop collecting any new medical records. You can download copies of your records at any time. You can always tell PicnicHealth to delete your medical records, although the de-identified information that has already been shared with CAH researchers can’t be deleted.

basics
Can I participate if I have non-classic CAH?
What is PicnicHealth?
PicnicHealth is a service specialized in helping patient collect and manage their medical records.

How is PicnicHealth related to UnitedHealthcare?
UnitedHealthcare is partnering with PicnicHealth as part of a Family Engagement Center initiative. Your child will receive PicnicHealth's services for free, which includes getting a PicnicHealth timeline with all of your child’s medical records in one place.  

What does PicnicHealth do? 
PicnicHealth collects your child’s medical records on your behalf and helps you manage them in a PicnicHealth timeline. When you see the doctor again, we’ll update your PicnicHealth timeline with the new records. You can access your medical records from anywhere and even share them with your child’s doctors with a few clicks.

Can I see what a PicnicHealth account looks like?
Yes. You can view this sample timeline.  

Will PicnicHealth cost me anything?
You’ll receive PicnicHealth’s service free of charge in partnership with UnitedHealthcare during the first year pilot program. One year after you start using PicnicHealth, your child’s PicnicHealth timeline will continue to be available, but no new records will be added. If UnitedHealthcare and PicnicHealth do not continue their partnership, you will have the option of subscribing directly.

How can I use my PicnicHealth timeline?
The PicnicHealth timeline provides a single source of information for you, your child’s doctors, and your UnitedHealthcare Family Advisors and Clinicians. It is a tool to help you coordinate care and navigate the diagnostic journey and can be shared with a few clicks. When you share your child’s medical records, the recipient will receive a secure link and get instant access to your child’s medical history.

Not at this time. We are currently piloting the registry only in patients with classic CAH. Depending on the success of the registry, we hope to open it to patients with non-classic CAH in the future.

What is PicnicHealth?
PicnicHealth is a service specialized in helping patient collect and manage their medical records.

How is PicnicHealth related to UnitedHealthcare?
UnitedHealthcare is partnering with PicnicHealth as part of a Family Engagement Center initiative. Your child will receive PicnicHealth's services for free, which includes getting a PicnicHealth timeline with all of your child’s medical records in one place.  

What does PicnicHealth do? 
PicnicHealth collects your child’s medical records on your behalf and helps you manage them in a PicnicHealth timeline. When you see the doctor again, we’ll update your PicnicHealth timeline with the new records. You can access your medical records from anywhere and even share them with your child’s doctors with a few clicks.

Can I see what a PicnicHealth account looks like?
Yes. You can view this sample timeline.  

Will PicnicHealth cost me anything?
You’ll receive PicnicHealth’s service free of charge in partnership with UnitedHealthcare during the first year pilot program. One year after you start using PicnicHealth, your child’s PicnicHealth timeline will continue to be available, but no new records will be added. If UnitedHealthcare and PicnicHealth do not continue their partnership, you will have the option of subscribing directly.

How can I use my PicnicHealth timeline?
The PicnicHealth timeline provides a single source of information for you, your child’s doctors, and your UnitedHealthcare Family Advisors and Clinicians. It is a tool to help you coordinate care and navigate the diagnostic journey and can be shared with a few clicks. When you share your child’s medical records, the recipient will receive a secure link and get instant access to your child’s medical history.