Have questions? Speak with a member of our team by calling
PicnicHealth is teaming up with Rare Patient Voice to help propel research and optimize care for those living with IgAN.
You need to be eligible to receive compensation. This study is NOT related to diabetic nephropathy.
PicnicHealth is teaming up with Rare Patient Voice to help propel research and optimize care for those living with IgAN.
You need to be eligible to receive compensation. This study is NOT related to diabetic nephropathy.
Access all of your medical records directly from your PicnicHealth account. Just go to your appointments, and we do the rest.
Coordinate your healthcare with a click. PicnicHealth makes it easy to share records with a new specialist, or just keep your family in the loop.
Contributing to research has never been easier. Earn rewards for sharing your records with researchers, answering questions about your health, and referring friends.
Data contained in medical records tells the true story of each individual's journey with IgAN. This information is powerful for you, your loved ones, and the IgAN community.
Records Collected
Providers on Record
Partner Organizations
Answer a few questions about your medical care and which doctors you’ve seen.
Our team will collect and digitize your medical records at no cost to you. No uploads or appointments necessary.
Once we’ve digitized your records, access all of your records right from your PicnicHealth account - doctors’ notes, test results, imaging and more.
Your records are completely de-identified, then analyzed together with records from others.
Answer a few questions about your loved one's medical care and which doctors they've seen.
Our team will collect and digitize your loved one's medical records at no cost to you. No uploads or appointments necessary.
Once we’ve digitized your loved one's records, access all of their records right from your PicnicHealth account - doctors’ notes, test results, imaging and more.
Your loved one's records are completely de-identified, then analyzed together with records from others.
At PicnicHealth, we’re patients too, so we know how important it is that your loved one's private data stays private. Here’s our promise:
We protect your loved one's personal information with military grade encryption and abide by HIPAA compliant practices.
Your loved one's data is fully de-identified. We only share datasets that are structured for research, never redacted medical records.
PicnicHealth will ask for your consent every time before sharing any information with any partners. You can opt out at any time.
We use an IRB (Institutional Review Board) and work with a team of physicians to protect the best interest of our research volunteers.
At PicnicHealth, we’re patients too, so we know how important it is that your private data stays private. Here’s our promise:
We protect your personal information with military grade encryption and abide by HIPAA compliant practices.
Your data is fully de-identified. We only share datasets that are structured for research, never redacted medical records.
PicnicHealth will ask for your consent every time before sharing any information with any partners. You can opt out at any time.
We use an IRB (Institutional Review Board) and work with a team of physicians to protect the best interest of our research volunteers.
Have all medical records in one place to communicate well with doctors, family, and care partners
Let PicnicHealth collect and organize the records for you
Share your story with researchers who are developing new treatments
Input the required information so we can begin collecting medical records and confirm your diagnosis.
After we collect your records, view them in your timeline.
Share your story with researchers and receive updates on research with our partners when available.
At PicnicHealth, we’re patients too, so we know how important it is that your loved one's private data stays private. Here’s our promise:
We protect your loved one's personal information with military grade encryption and abide by HIPAA compliant practices.
Your loved one's data is fully de-identified. We only share datasets that are structured for research, never redacted medical records.
PicnicHealth will ask for your consent every time before sharing any information with any partners. You can opt out at any time.
We use an IRB (Institutional Review Board) and work with a team of physicians to protect the best interest of our research volunteers.
At PicnicHealth, we’re patients too, so we know how important it is that your private data stays private. Here’s our promise:
We protect your personal information with military grade encryption and abide by HIPAA compliant practices.
Your data is fully de-identified. We only share datasets that are structured for research, never redacted medical records.
PicnicHealth will ask for your consent every time before sharing any information with any partners. You can opt out at any time.
We use an IRB (Institutional Review Board) and work with a team of physicians to protect the best interest of our research volunteers.
Answer a few questions about your loved one's medical care and which doctors they've seen.
Our team will collect and digitize your loved one's medical records at no cost to you. No uploads or appointments necessary.
Once we’ve digitized your loved one's records, access all of their records right from your PicnicHealth account - doctors’ notes, test results, imaging and more.
Your loved one's records are completely de-identified, then analyzed together with records from others.
Answer a few questions about your medical care and which doctors you’ve seen.
Our team will collect and digitize your medical records at no cost to you. No uploads or appointments necessary.
Once we’ve digitized your records, access all of your records right from your PicnicHealth account - doctors’ notes, test results, imaging and more.
Your records are completely de-identified, then analyzed together with records from others.
Access all of your medical records directly from your PicnicHealth account. Just go to your appointments, and we do the rest.
Coordinate your healthcare with a click. PicnicHealth makes it easy to share records with a new specialist, or just keep your family in the loop.
Contributing to research has never been easier. Earn rewards for sharing your records with researchers, answering questions about your health, and referring friends.
Data contained in medical records tells the true story of each individual's journey with IgAN. This information is powerful for you, your loved ones, and the IgAN community.
Records Collected
Providers on Record
Partner Organizations
At PicnicHealth, we’re patients too, so we know how important it is that your loved one's private data stays private. Here’s our promise:
We protect your loved one's personal information with military grade encryption and abide by HIPAA compliant practices.
Your loved one's data is fully de-identified. We only share datasets that are structured for research, never redacted medical records.
PicnicHealth will ask for your consent every time before sharing any information with any partners. You can opt out at any time.
We use an IRB (Institutional Review Board) and work with a team of physicians to protect the best interest of our research volunteers.
At PicnicHealth, we’re patients too, so we know how important it is that your private data stays private. Here’s our promise:
We protect your personal information with military grade encryption and abide by HIPAA compliant practices.
Your data is fully de-identified. We only share datasets that are structured for research, never redacted medical records.
PicnicHealth will ask for your consent every time before sharing any information with any partners. You can opt out at any time.
We use an IRB (Institutional Review Board) and work with a team of physicians to protect the best interest of our research volunteers.
Answer a few questions about your loved one's medical care and which doctors they've seen.
Our team will collect and digitize your loved one's medical records at no cost to you. No uploads or appointments necessary.
Once we’ve digitized your loved one's records, access all of their records right from your PicnicHealth account - doctors’ notes, test results, imaging and more.
Your loved one's records are completely de-identified, then analyzed together with records from others.
Answer a few questions about your medical care and which doctors you’ve seen.
Our team will collect and digitize your medical records at no cost to you. No uploads or appointments necessary.
Once we’ve digitized your records, access all of your records right from your PicnicHealth account - doctors’ notes, test results, imaging and more.
Your records are completely de-identified, then analyzed together with records from others.
Access all of your medical records directly from your PicnicHealth account. Just go to your appointments, and we do the rest.
Coordinate your healthcare with a click. PicnicHealth makes it easy to share records with a new specialist, or just keep your family in the loop.
Contributing to research has never been easier. Earn rewards for sharing your records with researchers, answering questions about your health, and referring friends.
Data contained in medical records tells the true story of each individual's journey with IgAN. This information is powerful for you, your loved ones, and the IgAN community.
Records Collected
Providers on Record
Partner Organizations
At PicnicHealth, we’re patients too, so we know how important it is that your loved one's private data stays private. Here’s our promise:
We protect your loved one's personal information with military grade encryption and abide by HIPAA compliant practices.
Your loved one's data is fully de-identified. We only share datasets that are structured for research, never redacted medical records.
PicnicHealth will ask for your consent every time before sharing any information with any partners. You can opt out at any time.
We use an IRB (Institutional Review Board) and work with a team of physicians to protect the best interest of our research volunteers.
At PicnicHealth, we’re patients too, so we know how important it is that your private data stays private. Here’s our promise:
We protect your personal information with military grade encryption and abide by HIPAA compliant practices.
Your data is fully de-identified. We only share datasets that are structured for research, never redacted medical records.
PicnicHealth will ask for your consent every time before sharing any information with any partners. You can opt out at any time.
We use an IRB (Institutional Review Board) and work with a team of physicians to protect the best interest of our research volunteers.
Access all of your medical records directly from your PicnicHealth account. Just go to your appointments, and we do the rest.
Coordinate your healthcare with a click. PicnicHealth makes it easy to share records with a new specialist, or just keep your family in the loop.
Contributing to research has never been easier. Earn rewards for sharing your records with researchers, answering questions about your health, and referring friends.
At PicnicHealth, we’re patients too, so we know how important it is that your loved one's private data stays private. Here’s our promise:
We protect your loved one's personal information with military grade encryption and abide by HIPAA compliant practices.
Your loved one's data is fully de-identified. We only share datasets that are structured for research, never redacted medical records.
PicnicHealth will ask for your consent every time before sharing any information with any partners. You can opt out at any time.
We use an IRB (Institutional Review Board) and work with a team of physicians to protect the best interest of our research volunteers.
At PicnicHealth, we’re patients too, so we know how important it is that your private data stays private. Here’s our promise:
We protect your personal information with military grade encryption and abide by HIPAA compliant practices.
Your data is fully de-identified. We only share datasets that are structured for research, never redacted medical records.
PicnicHealth will ask for your consent every time before sharing any information with any partners. You can opt out at any time.
We use an IRB (Institutional Review Board) and work with a team of physicians to protect the best interest of our research volunteers.
Data contained in medical records tells the true story of each individual's journey with IgAN. This information is powerful for you, your loved ones, and the IgAN community.
Records Collected
Providers on Record
Partner Organizations
"PicnicHealth makes it possible for patients like you and I to have a voice in the medical research community. It means the world to me that I can participate in the advancement of care and knowledge for my condition.”
"It’s important to me to bring awareness to the disease and do my part to help future patients. Sending records to researchers is just the start of what we can do!”
“I participate in research to help generations after me not to go through the same pain.”
HOW WE WORK
Rare Patient Voice (RPV) and PicnicHealth have partnered to make it simple for patients with rare and non-rare diseases to take part in studies that could revolutionize medical advancements for different patient communities. Together we are connecting patients and caregivers who wish to engage in research with studies that will provide them a platform to share their voices.
PicnicHealth’s platform connects you with a comprehensive timeline of your medical records, updated when you request new records. Best of all, qualified patients can join for free.
When you complete surveys on the PicnicHealth platform you can earn rewards. Your surveys help researchers understand your daily experience and capture insights that may not be available in your medical records.
We believe that better care happens when you have control over your records.
Join For FreeJust answer a few questions about yourself and let us know who your doctors are. As soon as you finish signing up, we’ll start contacting your doctors and hospitals.
Join Now
No calling, faxing, or paperwork for you! We’ll brave the hold music and contact every one of your doctors to make sure they’ve received and processed our request.
With your records consolidated in one place, you’ll be able to access them whenever you need them. Pull up your medical information anywhere you have internet access—and share it securely with your care team.
When you join PicnicHealth, you may be invited to complete health and well-being surveys. These surveys help researchers understand your daily experience and capture insights that may not be available in your medical records.
You can complete surveys from your PicnicHealth account, you may also receive compensation for sharing your story.
HOW WE WORK
Rare Patient Voice (RPV) and PicnicHealth have partnered to make it simple for patients with rare and non-rare diseases to take part in studies that could revolutionize medical advancements for different patient communities. Together we are connecting patients and caregivers who wish to engage in research with studies that will provide them a platform to share their voices.
PicnicHealth organizes all of your medical records in one simple timeline that updates automatically. Keep track of your health history and share important information with your care team.
Whether you're caring for a loved one or managing your own care, IgAN Warriors has your back. Explore resources, stories, and tips shared by Change Champions and experts within your IgAN community.
Just answer a few questions about yourself and let us know who your doctors are. As soon as you finish signing up, we’ll start connecting you with your medical records.
We securely store your data, but you're in charge. We know this is your most private information, so it's entirely up to you if and when you want to give access to anyone else. Whether that's a doctor or a research study, our job is to make sure your records are fully under your control.
PicnicHealth is teaming up with Rare Patient Voice to help propel research and optimize care for those living with IgAN.
You need to be eligible to receive compensation. This study is NOT related to diabetic nephropathy.
“Research is extremely important to me. With research we will be able to fully understand if there are preventative measures that can be taken that could either slow the progression of other symptoms or totally eliminate them.”
“Research is what gives doctors the information they need to best treat my child. It is how we get new medicines. It develops new things to improve the quality of life. We're grateful for research, so very grateful.”
Data contained in medical records tells the true story of each individual's journey with IgAN. This information is powerful for you, your loved ones, and the IgAN community.
To sign up, all you need to do is confirm achondroplasia diagnosis, and provide the names of a few of your child's healthcare providers.
With your consent, PicnicHealth will then work to compile your child's complete health history into a digital timeline. All this information will be securely transferred to a private portal, that is updated regularly which only you can access.
We take privacy seriously. When your child’s health data is gathered, we make sure to strip away any personal details that could identify them, using a process we call de-identification. This way researchers get the valuable health information they need, without any of the private information they don’t.
Your child’s de-identified data will only be shared with the VISTA study researchers. You can learn more about this in our data ownership policy.
By joining VISTA, both you and your child will have the opportunity to complete short (10-15 minutes long) surveys every six months about health and daily life, right from your Picnichealth account. These surveys are not just a way for you to earn compensation – they’re also a crucial tool for researchers, helping them understand aspects of your child’s health that aren’t captured in medical records.
Learn more about our achondroplasia Change Champions and advocacy partners and how you can get involved!
Explore personal journeys, insights, and resilience within the achondroplasia community through our blog posts.
Dear Younger Becky, Life isn’t always fair. You have just turned 15 1/2 and you’ve lost feeling in your legs.
Navigating the complex medical landscape is an imposing journey, and it becomes even more challenging when your child is ...
In a world where each child's journey is unique, Brynn’s story stands out for its strength and resilience.
The journey of Janet's family into the world of achondroplasia began unexpectedly when their baby girl was diagnosed at four months old.
In the heart of Urbana, Ohio, Lydia and her husband Charlie embarked on an unexpected journey that began with the arrival of their daughter...
At PicnicHealth, we are people too - and we hate spam. Once a month, we’ll send you a newsletter that covers tips from your community, research updates, and inspirational stories.
Subscribe to our newsletter to receive tips from your community, research updates, and stories from other patients.
At PicnicHealth, we're patients too - and we hate spam. We promise to only send you the good stuff.
Get community stories, tips, and articles right to your inbox.
