PicnicHealth proudly supports the Muscular Dystrophy Association
Benefits to joining

What you get with PicnicHealth

Your Timeline

Medical records all in one place.

Access all of you or your loved one’s medical records directly from your PicnicHealth account. Get updates automatically.

What’s included:

View doctors’ notes, test results, medications, imaging, and more.

Search records by visit date, doctor, location, or keyword.

Get updated when new records are added.

Sharing

Share records seamlessly.

Coordinate your healthcare with one click. PicnicHealth makes it easy to share records with a new specialist, or just keep your family in the loop.

What’s included:

Share records directly via email, text message, or link.

Set custom security measures to share your records securely.

Pause or remove access any time.

Sharing

Accelerate research from home.

Contributing to research has never been easier. Earn rewards for sharing records with researchers, answering questions, and referring friends.

What’s included:

Share anonmyized records with researchers.

Earn rewards for completing surveys.

Refer members of your community to participate.

How it works

1.  Sign up in minutes

Create an account, answer a few questions, and share the names of facilities where you or your loved one have received care.

2. We gather the records

Our team will get to work collecting and digitizing the medical records at no cost to you. No uploads or appointments necessary.

3. Access the records

Once we’ve digitized the records, access them all right from your PicnicHealth account - doctors’ notes, test results, imaging and more.

4. Contribute to research

Records are completely anonymized, then analyzed together with your community’s data, to help accelerate research into new treatments.

Featured Studies

Join a study to get records and advance research

REAL PEOPLE, REAL STORIES

Don’t just take our word for it

Your story matters, and we want to help make your voice heard in research. Read through some of our Change Champion's testimonials to see why they support PicnicHealth in making a difference in real-world research and their communities.

“ALS Research is important to me, because it gives me hope for my future. I’m confident that we will one day find an effective treatment and put it into this tragic disease...but until then, we must keep fighting.”

Allie
ALS Research Participant

“I love the idea of having all my medical records compiled together in one spot! So much simpler than logging on to each individual care persons Patient Portal. And the fact that it was also aiding in the research of Pompe disease is the icing on the cake!”

Rachel
Pompe Research Participant

We work with a great partner.

The Muscular Dystrophy Association (MDA) relentlessly pursues their promise to transform the lives of people living with neuromuscular diseases, through research, care and advocacy. We are honored to collaborate with such an inspiring organization.

Research Impact

How does medical data help?

By contributing de-identified records to medical research, you’re becoming part of a community that’s accelerating the development of new treatments, and giving researchers a fuller picture of DMD, ALS, MG, and Pompe in the real world.

Real world evidence helps researchers learn:

  • Who is most at risk of side effects from certain medications
  • How effective are treatments over many years
  • What are the gaps in current treatments where new cures could be developed
8.1M+

Records Collected

250k+

Providers on Record

50+

Partner Organizations

Privacy & Security

At PicnicHealth, we’re patients too, so we know how important it is that your private data stays private. Here’s our promise:

Security

We protect your personal information with military grade encryption and abide by HIPAA compliant practices.

Privacy

Your data is fully anonymized. We only share datasets that are structured for research, never redacted medical records.

Transparency

PicnicHealth will ask for your consent every time before sharing any information with any partners. You can opt out at any time.

Responsibility

We use an IRB (Institutional Review Board) and work with a team of physicians to protect the best interest of our research volunteers.

Frequently Asked Questions
Who can join this study?

Anyone who has been diagnosed, or is a caregiver with permission to share the medical history of the person diagnosed, and lives in the U.S.

Study Basics
What does PicnicHealth do?

PicnicHealth works directly with people like you to help collect and manage your medical records. That means going out and collecting all of your medical records from your different doctors and keeping them up-to-date over time. PicnicHealth will then transform your records into a timeline that makes it easier to find what you’re looking for. When you see your doctor again, PicnicHealth will update your timeline with new records. You can access your PicnicHealth timeline from anywhere and even share it with your doctors with a few clicks.

About PicnicHealth
How long will it take to get my medical records?

It takes about 3 to 4 weeks to retrieve most of your historical medical records. The timing mainly depends on how quickly your doctors respond to PicnicHealth's requests for your records.

What to Expect
Who will be able to see my medical records?

By signing up for this study, you agree to share your medical records with medical researchers. They will only receive records stripped of any information that could be used to identify you personally. Outside of that, no one—including your doctor or insurance company—will be able to see your medical records unless you choose to share them by clicking "Send Records" at the top of your PicnicHealth timeline.

Data and Privacy
Can I see what my records will look like in my PicnicHealth account?

Yes. You can view this sample timeline.

About PicnicHealth
What is the purpose of the study?

Our goal is to advance the understanding of various diseases while supporting research to improve the quality of care. Information from medical records is particularly useful for diseases, because it gives us insight into what living with the disease is really like and how treatment options work in the real world.

Study Basics
What if I can’t remember the names of all my doctors?

You can just enter as many doctors as you remember. The hospital or clinic name is usually enough and the PicnicHealth team will follow up with you if there’s any confusion. If PicnicHealth finds doctors mentioned in your records who you did not include on your doctor list, you will get an email asking for your permission to request records from that new doctor.

About PicnicHealth
How far back will you collect historical records?

We will collect records going back as far as possible. In most states, doctors are required to keep records for at least 7 years, but many will keep them for much longer. So how far back we can go really depends on the record keeping practices of your doctors.

What to Expect
Can I delete my medical records from PicnicHealth?

You may choose to delete your medical records from the PicnicHealth service at any time and for any reason. Just email PicnicHealth at [email protected]. Once records have been collected for a particular research initiative, you can’t remove them from that research initiative.

Data and Privacy
Will I see the research results?

Yes! We believe it’s important for you to see the results of research produced using your data and we’ll make every effort to share published results back with you.

Study Basics
How will my doctor know it’s okay to share my records?

When you sign up, you’ll read and sign a form that authorizes PicnicHealth to request your medical records on your behalf. You can e-sign this form online—no printing or mailing involved. Your doctor will then know that it's okay to share your medical records with PicnicHealth.

About PicnicHealth
When I first see my PicnicHealth timeline, will it be complete?

When you first see your timeline, it's possible that some of your medical records are not yet available. That's because PicnicHealth is still working hard to collect them for you. You should be able to see your medical records within 3 to 4 weeks of signing up. After the first month, your timeline will be updated regularly with information from your new doctor visits.

What to Expect
Will my medical records be secure?

PicnicHealth takes privacy very seriously. Your personal information is never shared without your explicit permission. Your medical records are kept safe using the highest encryption standard available: 256-bit SSL. This is the same technology that banks use to keep account information safe.

Data and Privacy
Can medical records really help with research?

Medical records record what’s actually happening when doctors see patients, so they can be really helpful for understanding how medical care is delivered in the real world. They also contain a lot of information about your experiences—your symptoms, your health status, and your treatments. Putting all of this information together for a diverse group of patients will allow researchers to see patterns that no one doctor can see on his or her own.

Study Basics
What if my doctor doesn’t have electronic records?

No problem. PicnicHealth can work with records in any format, whether your doctor takes notes with a pen or on an iPad.

About PicnicHealth
What should I do if I notice there are medical records missing from my PicnicHealth timeline?

In the first month, some records might be missing because PicnicHealth is still collecting them for you. After the first month, if you suspect that records are still missing, you can let us know about those records by clicking "Request Records" at the top of your timeline.

What to Expect
Is this a clinical trial?

This is not a clinical trial. A traditional clinical trial involves testing a specific treatment, like a drug or medical device. In this research, we are only looking at data from medical records produced during your normal visits to the doctor. The goal is to better understand how patients across the US are being treated and why a disease looks different in different people.

Study Basics
How can I use my PicnicHealth timeline?

Your PicnicHealth timeline provides a single source of information for you and your doctors. It is a tool to help you coordinate care and understand your own health. You can share your timeline with any of your doctors with a few clicks. The doctor will receive a secure link and get access to your medical history.

About PicnicHealth
What kinds of medical records will you collect?

PicnicHealth will collect medical records from all the doctors, hospitals, and clinics that you tell us about. PicnicHealth does not collect dental or optometry records.

What to Expect
Who is sponsoring the study? Are there any third parties involved?

The research is directly sponsored by PicnicHealth. At PicnicHealth, we specialize in building de-identified medical record data sets for researchers. Our goal is to get this data into the hands of researchers who can analyze the data to answer research questions about how diseases look and are treated out in the real world (not in a very controlled clinical trial setting) with the hope that this can ultimately lead to better care. Third party organizations can apply for access to the de-identified data. These might be government, academic, or commercial innovators. As with all PicnicHealth research, access to the data will be free to all academic researchers.

Study Basics
Will PicnicHealth cost me anything?

You’ll receive PicnicHealth’s service free of charge for the duration of the study as long as you’re a participant.

About PicnicHealth
Will I get records from my scans and imaging?

Yes! You will be able to view your imaging files right in your PicnicHealth timeline.

What to Expect
Will PicnicHealth update my medical records every time I see the doctor?

PicnicHealth will update your medical records regularly. To keep your records most up-to-date, you can always tell PicnicHealth when you have seen the doctor. Just click the “Request Records” button at the top of your timeline, and PicnicHealth will retrieve your new records for you.

What to Expect
What should I do if I see a new doctor?

At the top of your timeline, click on "Doctors" to add new doctors or medical facilities. PicnicHealth will then collect your records from your new doctors.

What to Expect
Can I stop participating in this research?

Yes. Your participation in this research is completely voluntary and you can withdraw at any time. If you choose to stop participating, your medical records will remain available for you through your PicnicHealth account. At that time we will stop collecting any new medical records. You can download copies of your records at any time. You can always tell PicnicHealth to delete your medical records, although the information that has already been shared with third party partners can’t be deleted.

What to Expect

Share history to change history

Join a study to get records and advance research

Don't see you or your loved one's condition yet? If you'd like, you can still sign up here.