Join the NAVIGATE-CIDP Study
Your medical records can fuel real-world research on Chronic Inflammatory Demyelinating Polyradiculoneuropathy (CIDP) — helping researchers track long-term outcomes and treatment effectiveness.
Participate from home
No extra labs, procedures, or study visits
Up to 36-month study
Be compensated $100 for your time spent enrolling upon confirmation of eligibility and up to $380 per year for time spent completing surveys
- Have a confirmed diagnosis of CIDP
- Reside and receive care in the U.S.
- 18 years of age or older
About the NAVIGATE-CIDP Study
The NAVIGATE-CIDP Study looks at how CIDP affects a person’s daily life, based on symptoms and quality-of-life surveys. It also tracks treatment patterns—like why people switch medications—and builds a foundation for future research.
By allowing PicnicHealth to collect, digitize and de-identify (meaning your name and personal details are removed) your medical records, you have the opportunity to participate in CIDP research while staying in control of your health data.
The NAVIGATE-CIDP Study team will analyze your medical records as part of this research effort to gather insights into the day-to-day lives of individuals impacted by CIDP.
What to expect
Medical Record Collection
Surveys
Support CIDP Research
You’ll get a free PicnicHealth account and access to your medical history
By participating in the NAVIGATE-CIDP Study, you’ll get access to any of the records we collect. Your medical records are yours to keep, forever.
PicnicHealth account benefits
Tools and visualizations
Zoom in on what’s most important and track trends over time.
Care management toolkit
Keep track of active medications and health concerns and receive clinical support.
Easy sharing
New doctor? Share your records to get the care you need without wasting time.
Contribute to a deeper understanding of CIDP
How It Works
Sign Up in Minutes
To get started, simply confirm your CIDP diagnosis and provide the names of a few healthcare providers. With your consent, PicnicHealth will request your medical records and review them to confirm eligibility for the study.
Sign Up
We’ll gather your records
PicnicHealth will do all the work to gather your medical records once you sign up. With instant, secure connections to thousands of healthcare institutions, we’re usually able to find most of your records in minutes, and we’ll organize everything into an easy-to-use dashboard.
The NAVIGATE-CIDP Study combines and analyzes medical records
As part of this observational study, the NAVIGATE-CIDP Study team may analyze your de-identified data alongside those of other study participants to gain a clearer picture of how CIDP affects daily life.
To protect your privacy, all personal details that could identify you are removed through a process called de-identification, ensuring that researchers receive only the essential health information they need. By combining data from many participants, the study can identify patterns and insights that may not be visible to any single physician.
Records are yours to keep
We’ll continue to collect new records for the duration of the study. Any records collected are yours to keep forever, to use and share as you please.
Ready to get started?
FAQs
This study is being done to learn how CIDP affects people’s daily lives and overall health. By combining surveys with medical record insights, researchers can better understand treatment choices and outcomes over time. The goal is to use this knowledge to guide future care and improve treatment options for CIDP.
You or your loved one may be eligible to join if you:
- Have a confirmed diagnosis of CIDP
- Reside and receive care in the U.S.
- 18 years of age or older
Yes. You will be asked to complete online surveys as part of the study once you sign up and once each month to help researchers understand how CIDP affects your daily life, overall health, and fatigue. You will be compensated for your time to complete the surveys.
PicnicHealth is a leading health technology company simplifying healthcare for everyone. Through a combination of clinical expertise and technology, PicnicHealth provides people with their organized medical records to prepare for doctor visits and advocate for themselves. People can also more easily participate in observational research to advance medicine and enrich lives.
Argenx is the research sponsor of the NAVIGATE-CIDP Study. Argenx has engaged PicnicHealth, a digital health company, to administer the surveys and securely collect and manage study participants’ medical records for the purpose of this study.
PicnicHealth follows Health Insurance Portability and Accountability Act (HIPAA)-compliant practices and uses advanced end-to-end encryption and security measures, the same technology banks use to keep information secure. Your records are only shared with your permission. It is still important for you to know that absolute confidentiality cannot be guaranteed.
Argenx is the research sponsor of the NAVIGATE-CIDP Study. Argenx has engaged PicnicHealth, a digital health company, to help securely collect and manage study participants’ medical records for the purpose of this study.
We’ll start by searching for any of your records through our connected network. If necessary, direct requests can also be sent to your healthcare providers. Electronic records can be available within minutes, while records from individual providers may take a couple of weeks.
This is not a clinical trial. A traditional clinical trial involves testing a specific treatment, like a drug or medical device. The NAVIGATE-CIDP Study will only review de-identified (meaning your name and personal details are removed) survey answers and data from medical records produced during your visits to the doctor – in other words, there are no additional labs, tests, or appointments required for you to participate.
PicnicHealth will never share your records without your explicit consent. By signing up for this study, you're agreeing to share your de-identified data with the argenx study team. No one outside PicnicHealth - including your doctor or insurance company - will be able to see your medical records unless you choose to share them by clicking "Send Records" at the top of your PicnicHealth timeline.
Yes, you can withdraw your consent at any time. This will not affect your medical care, future study participation, or enrollment. When you withdraw, PicnicHealth will stop collecting your records, but any data collected before will remain in the study.
No, there is no cost to participate as you’ll receive PicnicHealth’s service free of charge as part of your participation in the NAVIGATE-CIDP Study. If you would like to continue to have PicnicHealth collect your medical records, you may sign-up in the service as a customer at the end of the NAVIGATE-CIDP Study or if you are not eligible for the NAVIGATE-CIDP Study, you may opt to sign-up for a paid subscription.
“With PicnicHealth, I was able to eliminate the tedious work and stress of managing my records allowing me to focus on my care and living!”
PicnicHealth Research Participant
