Simplificación de sus registros médicos y contribución al mejor entendimiento de la enfermedad de almacenamiento de glucógeno

Ultragenyx y PicnicHealth se han asociado para llevar a cabo una novedosa investigación cuyo propósito es entender mejor cómo las enfermedades de almacenamiento de glucógeno (EAG), específicamente la EAG tipo Ia y la EAG tipo III, afectan a las personas reales como usted o su hijo. Entender cómo se maneja y trata la enfermedad y los efectos de estos enfoques en el mundo real puede ayudar a abordar algunas preguntas importantes que pueden mejorar la calidad de la atención en el futuro.

PicnicHealth brinda acceso a toda su historia médica mediante la recopilación, digitalización y encriptación de todos sus registros médicos, de todos sus médicos y otros profesionales de la atención en salud (p.ej., dietistas). Ultragenyx es una compañía biofarmacéutica  que realiza investigaciones científicas para desarrollar nuevos tratamientos para una variedad de enfermedades genéticas raras, incluyendo EAG tipo Ia y EAG tipo III.  Inscribirse en este estudio no le tomará más de 15 minutos y su participación sola no afectará su capacidad para participar en estudios clínicos. 

También puede realizar la inscripción para su hijo o familiar con EAG.

Centralizamos los registros médicos para ayudarle a usted, a sus médicos y a los investigadores a entender mejor la EAG.

Completo y fácil de compartir

Acceda a sus registros desde cualquier lugar. Comparta toda su historia médica inmediatamente con su familia o sus médicos.

Gratuito y fácil

Al participar en este estudio de PicnicHealth y Ultragenyx, nosotros recopilaremos y organizaremos toda su historia médica de manera gratuita. 

Protección de la privacidad

Los investigadores solo obtienen puntos de datos anonimizados; nada de su información personal.

Tener todos sus registros en un solo sitio.

Comencemos
La unión hace la fuerza

Al compartir su travesía médica, puede ayudar a mejorar la travesía de otras personas en el futuro.

Aceleración de la investigación

Usar su información del mundo real permite a los investigadores mejorar la atención más rápidamente sin consultas adicionales de su parte. 

Controlado y seguro

Sus datos privados siguen siéndolo. Cumplimos con las normas HIPAA y utilizamos encriptación de grado militar de 256 bits.

Sus registros contribuyen con el avance en la investigación en EAG tipo Ia y EAG tipo III. 

Cómo funciona

Le invitamos a usted (o a su hijo) para que contribuyan al mejor entendimiento de las enfermedades de almacenamiento de glucógeno (EAG), específicamente la EAG tipo Ia y la EAG tipo III.
1

Inscribirse, revisar el consentimiento informado, compartir los nombres de sus médicos y proveedores de atención en salud, y contestar unas cuantas preguntas básicas.

2

 PicnicHealth recopila y anonimiza sus registros médicos.

3

 Los investigadores usan estos datos del mundo real para avanzar en la investigación de la EAG tipo Ia y la EAG tipo III. 

Ejemplo de una cuenta

Su información médica, segura

Seguridad

Siendo una compañía centrada en el paciente, PicnicHealth valora su privacidad y seguridad. Protegemos su información utilizando encriptación de punta a punta y cumpliendo con las prácticas HIPAA.

Transparencia

PicnicHealth pedirá su consentimiento antes de compartir cualquier información con algún asociado. Toda la información de identificación personal será eliminada de sus registros antes de compartirla con Ultragenyx.

Privacidad

No enviamos a los investigadores registros médicos editados. En su lugar, compartimos grupos de datos anonimizados estructurados únicamente con la información necesaria para la investigación.

Responsabilidad

PicnicHealth utiliza una JRI (Junta de Revisión Institucional) para que proteja y actúe en el mejor interés de nuestros voluntarios.

Principio de investigación de PicnicHealth 

La misión de PicnicHealth es avanzar en el bienestar de todas las personas. Nuestros estudios se ciñen a nuestro rígido compromiso de empoderamiento del paciente y las buenas prácticas de investigación.
Protegemos sus derechos y su privacidad

Una Junta de Revisión Institucional (JRI) revisa nuestros estudios para garantizar que los participantes estén bien informados y opten por su propia voluntad.

Estamos comprometidos con la investigación por el bienestar público 

Grupos de datos anonimizados están disponibles de forma gratuita para uso académico calificado, no comercial.

La participación depende de usted

Usted escoge optar proactivamente. Nunca compartiremos su información sin su consentimiento.

Nosotros anonimizamos sus datos

Antes de que los investigadores reciban sus datos, eliminamos toda la información de identificación personal.

Retiro en cualquier momento

Si decide que prefiere no participar más en la investigación, no hay ningún problema.

FAQs
Study Basics
basics
¿Quién puede participar en este estudio?
What is PicnicHealth?
PicnicHealth is a service specialized in helping patient collect and manage their medical records.

How is PicnicHealth related to UnitedHealthcare?
UnitedHealthcare is partnering with PicnicHealth as part of a Family Engagement Center initiative. Your child will receive PicnicHealth's services for free, which includes getting a PicnicHealth timeline with all of your child’s medical records in one place.  

What does PicnicHealth do? 
PicnicHealth collects your child’s medical records on your behalf and helps you manage them in a PicnicHealth timeline. When you see the doctor again, we’ll update your PicnicHealth timeline with the new records. You can access your medical records from anywhere and even share them with your child’s doctors with a few clicks.

Can I see what a PicnicHealth account looks like?
Yes. You can view this sample timeline.  

Will PicnicHealth cost me anything?
You’ll receive PicnicHealth’s service free of charge in partnership with UnitedHealthcare during the first year pilot program. One year after you start using PicnicHealth, your child’s PicnicHealth timeline will continue to be available, but no new records will be added. If UnitedHealthcare and PicnicHealth do not continue their partnership, you will have the option of subscribing directly.

How can I use my PicnicHealth timeline?
The PicnicHealth timeline provides a single source of information for you, your child’s doctors, and your UnitedHealthcare Family Advisors and Clinicians. It is a tool to help you coordinate care and navigate the diagnostic journey and can be shared with a few clicks. When you share your child’s medical records, the recipient will receive a secure link and get instant access to your child’s medical history.

Usted puede unirse a este estudio si usted (o su hijo) ha sido diagnosticado con una enfermedad de almacenamiento de glucógeno (EAG), específicamente con EAG tipo Ia o EAG tipo III, y vive en los EUA.

what-to-expect
¿Cuánto tomará obtener mis registros médicos?
What is PicnicHealth?
PicnicHealth is a service specialized in helping patient collect and manage their medical records.

How is PicnicHealth related to UnitedHealthcare?
UnitedHealthcare is partnering with PicnicHealth as part of a Family Engagement Center initiative. Your child will receive PicnicHealth's services for free, which includes getting a PicnicHealth timeline with all of your child’s medical records in one place.  

What does PicnicHealth do? 
PicnicHealth collects your child’s medical records on your behalf and helps you manage them in a PicnicHealth timeline. When you see the doctor again, we’ll update your PicnicHealth timeline with the new records. You can access your medical records from anywhere and even share them with your child’s doctors with a few clicks.

Can I see what a PicnicHealth account looks like?
Yes. You can view this sample timeline.  

Will PicnicHealth cost me anything?
You’ll receive PicnicHealth’s service free of charge in partnership with UnitedHealthcare during the first year pilot program. One year after you start using PicnicHealth, your child’s PicnicHealth timeline will continue to be available, but no new records will be added. If UnitedHealthcare and PicnicHealth do not continue their partnership, you will have the option of subscribing directly.

How can I use my PicnicHealth timeline?
The PicnicHealth timeline provides a single source of information for you, your child’s doctors, and your UnitedHealthcare Family Advisors and Clinicians. It is a tool to help you coordinate care and navigate the diagnostic journey and can be shared with a few clicks. When you share your child’s medical records, the recipient will receive a secure link and get instant access to your child’s medical history.

Toma cerca de 4 semanas recuperar la mayoría de sus registros históricos. Después de esto, podemos tardar otro par de meses para rastrear los registros más viejos y difíciles de acceder. El plazo depende de cuán rápido respondan sus médicos a la solicitud de PicnicHealth por sus registros.

data-and-privacy
¿Quién podrá ver mis registros médicos?
What is PicnicHealth?
PicnicHealth is a service specialized in helping patient collect and manage their medical records.

How is PicnicHealth related to UnitedHealthcare?
UnitedHealthcare is partnering with PicnicHealth as part of a Family Engagement Center initiative. Your child will receive PicnicHealth's services for free, which includes getting a PicnicHealth timeline with all of your child’s medical records in one place.  

What does PicnicHealth do? 
PicnicHealth collects your child’s medical records on your behalf and helps you manage them in a PicnicHealth timeline. When you see the doctor again, we’ll update your PicnicHealth timeline with the new records. You can access your medical records from anywhere and even share them with your child’s doctors with a few clicks.

Can I see what a PicnicHealth account looks like?
Yes. You can view this sample timeline.  

Will PicnicHealth cost me anything?
You’ll receive PicnicHealth’s service free of charge in partnership with UnitedHealthcare during the first year pilot program. One year after you start using PicnicHealth, your child’s PicnicHealth timeline will continue to be available, but no new records will be added. If UnitedHealthcare and PicnicHealth do not continue their partnership, you will have the option of subscribing directly.

How can I use my PicnicHealth timeline?
The PicnicHealth timeline provides a single source of information for you, your child’s doctors, and your UnitedHealthcare Family Advisors and Clinicians. It is a tool to help you coordinate care and navigate the diagnostic journey and can be shared with a few clicks. When you share your child’s medical records, the recipient will receive a secure link and get instant access to your child’s medical history.

PicnicHealth verá sus registros médicos para procesarlos. Usted puede escoger compartir sus registros con sus proveedores de atención en salud o a sus seres queridos presionando el botón "Enviar Registros" en la parte superior de su línea de tiempo de PicnicHealth. Al inscribirse a este estudio, usted acepta compartir su información de salud anonimizada y los datos de sus registros médicos con Ultragenyx para un mayor entendimiento de la EAG tipo Ia y la EAG tipo III. Para los fines del estudio, recibirán datos de salud que no tienen su nombre, dirección ni identificadores personales similares. En ciertas situaciones, para garantizar que el estudio se realiza de manera adecuada o para verificar la calidad de los datos, las autoridades regulatorias, los miembros de la junta de revisión institucional, o los auditores del estudio asociados, pueden obtener un acceso directo a copias de sus registros médicos (es decir, podrán ver su información médica y personal) sin violar la confidencialidad de sus datos.

basics
¿Yo veré los resultados del estudio?
What is PicnicHealth?
PicnicHealth is a service specialized in helping patient collect and manage their medical records.

How is PicnicHealth related to UnitedHealthcare?
UnitedHealthcare is partnering with PicnicHealth as part of a Family Engagement Center initiative. Your child will receive PicnicHealth's services for free, which includes getting a PicnicHealth timeline with all of your child’s medical records in one place.  

What does PicnicHealth do? 
PicnicHealth collects your child’s medical records on your behalf and helps you manage them in a PicnicHealth timeline. When you see the doctor again, we’ll update your PicnicHealth timeline with the new records. You can access your medical records from anywhere and even share them with your child’s doctors with a few clicks.

Can I see what a PicnicHealth account looks like?
Yes. You can view this sample timeline.  

Will PicnicHealth cost me anything?
You’ll receive PicnicHealth’s service free of charge in partnership with UnitedHealthcare during the first year pilot program. One year after you start using PicnicHealth, your child’s PicnicHealth timeline will continue to be available, but no new records will be added. If UnitedHealthcare and PicnicHealth do not continue their partnership, you will have the option of subscribing directly.

How can I use my PicnicHealth timeline?
The PicnicHealth timeline provides a single source of information for you, your child’s doctors, and your UnitedHealthcare Family Advisors and Clinicians. It is a tool to help you coordinate care and navigate the diagnostic journey and can be shared with a few clicks. When you share your child’s medical records, the recipient will receive a secure link and get instant access to your child’s medical history.

¡Sí! Consideramos que es importante que usted vea los resultados de la investigación producida utilizando sus datos, y estamos comprometidos a compartir con usted los resultados publicados (p.ej., publicaciones de investigación, resúmenes de conferencias). PicnicHealth le enviará un correo electrónico relacionado con las actualizaciones importantes del estudio incluyendo las nuevas ideas que usted ha ayudado a impulsar. La investigación toma tiempo, por lo tanto, agradeceremos su paciencia mientras los científicos y médicos trabajan aprendiendo nuevos aspectos sobre la EAG tipo Ia y la EAG tipo III.

what-to-expect
¿Cuánto tiempo atrás recopilarán ustedes los registros históricos?
What is PicnicHealth?
PicnicHealth is a service specialized in helping patient collect and manage their medical records.

How is PicnicHealth related to UnitedHealthcare?
UnitedHealthcare is partnering with PicnicHealth as part of a Family Engagement Center initiative. Your child will receive PicnicHealth's services for free, which includes getting a PicnicHealth timeline with all of your child’s medical records in one place.  

What does PicnicHealth do? 
PicnicHealth collects your child’s medical records on your behalf and helps you manage them in a PicnicHealth timeline. When you see the doctor again, we’ll update your PicnicHealth timeline with the new records. You can access your medical records from anywhere and even share them with your child’s doctors with a few clicks.

Can I see what a PicnicHealth account looks like?
Yes. You can view this sample timeline.  

Will PicnicHealth cost me anything?
You’ll receive PicnicHealth’s service free of charge in partnership with UnitedHealthcare during the first year pilot program. One year after you start using PicnicHealth, your child’s PicnicHealth timeline will continue to be available, but no new records will be added. If UnitedHealthcare and PicnicHealth do not continue their partnership, you will have the option of subscribing directly.

How can I use my PicnicHealth timeline?
The PicnicHealth timeline provides a single source of information for you, your child’s doctors, and your UnitedHealthcare Family Advisors and Clinicians. It is a tool to help you coordinate care and navigate the diagnostic journey and can be shared with a few clicks. When you share your child’s medical records, the recipient will receive a secure link and get instant access to your child’s medical history.

Recopilaremos registros tan atrás como sea posible. En la mayoría de los estados, se pide a los médicos conservar los registros durante al menos 7 años, pero muchos los conservan durante mucho más tiempo. Cuánto podamos retroceder depende realmente de las prácticas de conservación de los registros de sus médicos.

data-and-privacy
¿Qué información será eliminada de mis registros para anonimizarlos?
What is PicnicHealth?
PicnicHealth is a service specialized in helping patient collect and manage their medical records.

How is PicnicHealth related to UnitedHealthcare?
UnitedHealthcare is partnering with PicnicHealth as part of a Family Engagement Center initiative. Your child will receive PicnicHealth's services for free, which includes getting a PicnicHealth timeline with all of your child’s medical records in one place.  

What does PicnicHealth do? 
PicnicHealth collects your child’s medical records on your behalf and helps you manage them in a PicnicHealth timeline. When you see the doctor again, we’ll update your PicnicHealth timeline with the new records. You can access your medical records from anywhere and even share them with your child’s doctors with a few clicks.

Can I see what a PicnicHealth account looks like?
Yes. You can view this sample timeline.  

Will PicnicHealth cost me anything?
You’ll receive PicnicHealth’s service free of charge in partnership with UnitedHealthcare during the first year pilot program. One year after you start using PicnicHealth, your child’s PicnicHealth timeline will continue to be available, but no new records will be added. If UnitedHealthcare and PicnicHealth do not continue their partnership, you will have the option of subscribing directly.

How can I use my PicnicHealth timeline?
The PicnicHealth timeline provides a single source of information for you, your child’s doctors, and your UnitedHealthcare Family Advisors and Clinicians. It is a tool to help you coordinate care and navigate the diagnostic journey and can be shared with a few clicks. When you share your child’s medical records, the recipient will receive a secure link and get instant access to your child’s medical history.

PicnicHealth protegerá siempre sus derechos y su privacidad. Nosotros anonimizaremos sus datos antes de compartirlos con los investigadores, quitándoles la información de identificación personal. Esto incluye, aunque sin limitarse a ello, su nombre, correo electrónico, fecha de nacimiento, número telefónico, dirección y los nombres de sus médicos.

basics
¿Qué pasa si tengo una enfermedad de almacenamiento de glucógeno (EAG), pero no es EAG tipo Ia o EAG tipo III?
What is PicnicHealth?
PicnicHealth is a service specialized in helping patient collect and manage their medical records.

How is PicnicHealth related to UnitedHealthcare?
UnitedHealthcare is partnering with PicnicHealth as part of a Family Engagement Center initiative. Your child will receive PicnicHealth's services for free, which includes getting a PicnicHealth timeline with all of your child’s medical records in one place.  

What does PicnicHealth do? 
PicnicHealth collects your child’s medical records on your behalf and helps you manage them in a PicnicHealth timeline. When you see the doctor again, we’ll update your PicnicHealth timeline with the new records. You can access your medical records from anywhere and even share them with your child’s doctors with a few clicks.

Can I see what a PicnicHealth account looks like?
Yes. You can view this sample timeline.  

Will PicnicHealth cost me anything?
You’ll receive PicnicHealth’s service free of charge in partnership with UnitedHealthcare during the first year pilot program. One year after you start using PicnicHealth, your child’s PicnicHealth timeline will continue to be available, but no new records will be added. If UnitedHealthcare and PicnicHealth do not continue their partnership, you will have the option of subscribing directly.

How can I use my PicnicHealth timeline?
The PicnicHealth timeline provides a single source of information for you, your child’s doctors, and your UnitedHealthcare Family Advisors and Clinicians. It is a tool to help you coordinate care and navigate the diagnostic journey and can be shared with a few clicks. When you share your child’s medical records, the recipient will receive a secure link and get instant access to your child’s medical history.

Si usted (o su hijo) no tiene EAG tipo Ia o EAG tipo III, no será elegible para el estudio GSD Odyssey, pero se le ofrecerá una subscripción gratuita a la cuenta de PicnicHealth durante 1 año. Esto significa que recopilaremos sus registros médicos y prospectivos durante 1 año. Después de cumplirse 1 año, dejaremos de recopilar los registros prospectivos pero usted seguirá teniendo acceso a todos sus registros recolectados hasta dicho momento por tiempo indefinido.

what-to-expect
Cuando yo vea por primera vez mi línea de tiempo de PicnicHealth, ¿estará completa?
What is PicnicHealth?
PicnicHealth is a service specialized in helping patient collect and manage their medical records.

How is PicnicHealth related to UnitedHealthcare?
UnitedHealthcare is partnering with PicnicHealth as part of a Family Engagement Center initiative. Your child will receive PicnicHealth's services for free, which includes getting a PicnicHealth timeline with all of your child’s medical records in one place.  

What does PicnicHealth do? 
PicnicHealth collects your child’s medical records on your behalf and helps you manage them in a PicnicHealth timeline. When you see the doctor again, we’ll update your PicnicHealth timeline with the new records. You can access your medical records from anywhere and even share them with your child’s doctors with a few clicks.

Can I see what a PicnicHealth account looks like?
Yes. You can view this sample timeline.  

Will PicnicHealth cost me anything?
You’ll receive PicnicHealth’s service free of charge in partnership with UnitedHealthcare during the first year pilot program. One year after you start using PicnicHealth, your child’s PicnicHealth timeline will continue to be available, but no new records will be added. If UnitedHealthcare and PicnicHealth do not continue their partnership, you will have the option of subscribing directly.

How can I use my PicnicHealth timeline?
The PicnicHealth timeline provides a single source of information for you, your child’s doctors, and your UnitedHealthcare Family Advisors and Clinicians. It is a tool to help you coordinate care and navigate the diagnostic journey and can be shared with a few clicks. When you share your child’s medical records, the recipient will receive a secure link and get instant access to your child’s medical history.

Cuando usted vea por primera vez su línea de tiempo, es posible que algunos de sus registros médicos no estén todavía disponibles. Esto se debe a que PicnicHealth sigue trabajando duro recopilándolos para usted. Usted deberá ver sus registros médicos dentro de las 3 a 4 semanas después de la inscripción. Después del primer mes, su línea de tiempo se actualizará periódicamente con la información de sus nuevas consultas médicas. Automáticamente revisaremos si tienen registros nuevos cada 3 meses, aunque siempre puede contarnos cuando haya consultado a su médico para que su línea de tiempo sea actualizada más rápidamente.

data-and-privacy
¿Puedo borrar mis registros médicos de PicnicHealth?
What is PicnicHealth?
PicnicHealth is a service specialized in helping patient collect and manage their medical records.

How is PicnicHealth related to UnitedHealthcare?
UnitedHealthcare is partnering with PicnicHealth as part of a Family Engagement Center initiative. Your child will receive PicnicHealth's services for free, which includes getting a PicnicHealth timeline with all of your child’s medical records in one place.  

What does PicnicHealth do? 
PicnicHealth collects your child’s medical records on your behalf and helps you manage them in a PicnicHealth timeline. When you see the doctor again, we’ll update your PicnicHealth timeline with the new records. You can access your medical records from anywhere and even share them with your child’s doctors with a few clicks.

Can I see what a PicnicHealth account looks like?
Yes. You can view this sample timeline.  

Will PicnicHealth cost me anything?
You’ll receive PicnicHealth’s service free of charge in partnership with UnitedHealthcare during the first year pilot program. One year after you start using PicnicHealth, your child’s PicnicHealth timeline will continue to be available, but no new records will be added. If UnitedHealthcare and PicnicHealth do not continue their partnership, you will have the option of subscribing directly.

How can I use my PicnicHealth timeline?
The PicnicHealth timeline provides a single source of information for you, your child’s doctors, and your UnitedHealthcare Family Advisors and Clinicians. It is a tool to help you coordinate care and navigate the diagnostic journey and can be shared with a few clicks. When you share your child’s medical records, the recipient will receive a secure link and get instant access to your child’s medical history.

Usted puede optar por borrar sus registros médicos y datos del servicio de PicnicHealth en cualquier momento y por cualquier motivo. Solo envíe un correo electrónico a [email protected] Esto no afectará los datos de los cuales ya se ha retirado su nombre, y otra información de identificación personal similar y que ya han sido compartidos con propósitos de investigación.

basics
¿Cuál es el propósito del estudio?
What is PicnicHealth?
PicnicHealth is a service specialized in helping patient collect and manage their medical records.

How is PicnicHealth related to UnitedHealthcare?
UnitedHealthcare is partnering with PicnicHealth as part of a Family Engagement Center initiative. Your child will receive PicnicHealth's services for free, which includes getting a PicnicHealth timeline with all of your child’s medical records in one place.  

What does PicnicHealth do? 
PicnicHealth collects your child’s medical records on your behalf and helps you manage them in a PicnicHealth timeline. When you see the doctor again, we’ll update your PicnicHealth timeline with the new records. You can access your medical records from anywhere and even share them with your child’s doctors with a few clicks.

Can I see what a PicnicHealth account looks like?
Yes. You can view this sample timeline.  

Will PicnicHealth cost me anything?
You’ll receive PicnicHealth’s service free of charge in partnership with UnitedHealthcare during the first year pilot program. One year after you start using PicnicHealth, your child’s PicnicHealth timeline will continue to be available, but no new records will be added. If UnitedHealthcare and PicnicHealth do not continue their partnership, you will have the option of subscribing directly.

How can I use my PicnicHealth timeline?
The PicnicHealth timeline provides a single source of information for you, your child’s doctors, and your UnitedHealthcare Family Advisors and Clinicians. It is a tool to help you coordinate care and navigate the diagnostic journey and can be shared with a few clicks. When you share your child’s medical records, the recipient will receive a secure link and get instant access to your child’s medical history.

Nuestra meta es avanzar en el entendimiento de la EAG tipo Ia y la EAG tipo III y apoyar la investigación para mejorar la calidad de la atención. La información del registro médico es particularmente útil en enfermedades como EAG tipo Ia y EAG tipo III, ya que nos brinda reflexiones sobre lo que es realmente vivir con la enfermedad y cómo funcionan la opciones de tratamiento en el mundo real. Algunos objetivos de la investigación en EAG que la información de su salud puede ayudar a responder incluyen:

  • La travesía para obtener un diagnóstico confirmatorio de EAG
  • La carga emocional y social que puede tener el manejo de la enfermedad (para pacientes y cuidadores)
  • Los síntomas asociados, las complicaciones de la salud y otras condiciones relacionadas con la enfermedad
  • La evolución de la enfermedad
  • Los patrones de tratamiento y su eficacia 
  • La carga de los síntomas/manejo de la calidad de vida de la EAG
what-to-expect
¿Qué debo hacer si me doy cuenta de que en mi línea de tiempo de PicnicHealth faltan datos?
What is PicnicHealth?
PicnicHealth is a service specialized in helping patient collect and manage their medical records.

How is PicnicHealth related to UnitedHealthcare?
UnitedHealthcare is partnering with PicnicHealth as part of a Family Engagement Center initiative. Your child will receive PicnicHealth's services for free, which includes getting a PicnicHealth timeline with all of your child’s medical records in one place.  

What does PicnicHealth do? 
PicnicHealth collects your child’s medical records on your behalf and helps you manage them in a PicnicHealth timeline. When you see the doctor again, we’ll update your PicnicHealth timeline with the new records. You can access your medical records from anywhere and even share them with your child’s doctors with a few clicks.

Can I see what a PicnicHealth account looks like?
Yes. You can view this sample timeline.  

Will PicnicHealth cost me anything?
You’ll receive PicnicHealth’s service free of charge in partnership with UnitedHealthcare during the first year pilot program. One year after you start using PicnicHealth, your child’s PicnicHealth timeline will continue to be available, but no new records will be added. If UnitedHealthcare and PicnicHealth do not continue their partnership, you will have the option of subscribing directly.

How can I use my PicnicHealth timeline?
The PicnicHealth timeline provides a single source of information for you, your child’s doctors, and your UnitedHealthcare Family Advisors and Clinicians. It is a tool to help you coordinate care and navigate the diagnostic journey and can be shared with a few clicks. When you share your child’s medical records, the recipient will receive a secure link and get instant access to your child’s medical history.

En el primer mes, podrían faltar algunos registros ya que PicnicHealth se encuentra recopilándolos para usted. Después del primer mes, si usted sospecha que todavía faltan registros, puede darnos a conocer estos registros presionando en "Solicitar Registros" en la parte superior de su línea de tiempo.

data-and-privacy
¿Estarán seguros mis registros médicos?
What is PicnicHealth?
PicnicHealth is a service specialized in helping patient collect and manage their medical records.

How is PicnicHealth related to UnitedHealthcare?
UnitedHealthcare is partnering with PicnicHealth as part of a Family Engagement Center initiative. Your child will receive PicnicHealth's services for free, which includes getting a PicnicHealth timeline with all of your child’s medical records in one place.  

What does PicnicHealth do? 
PicnicHealth collects your child’s medical records on your behalf and helps you manage them in a PicnicHealth timeline. When you see the doctor again, we’ll update your PicnicHealth timeline with the new records. You can access your medical records from anywhere and even share them with your child’s doctors with a few clicks.

Can I see what a PicnicHealth account looks like?
Yes. You can view this sample timeline.  

Will PicnicHealth cost me anything?
You’ll receive PicnicHealth’s service free of charge in partnership with UnitedHealthcare during the first year pilot program. One year after you start using PicnicHealth, your child’s PicnicHealth timeline will continue to be available, but no new records will be added. If UnitedHealthcare and PicnicHealth do not continue their partnership, you will have the option of subscribing directly.

How can I use my PicnicHealth timeline?
The PicnicHealth timeline provides a single source of information for you, your child’s doctors, and your UnitedHealthcare Family Advisors and Clinicians. It is a tool to help you coordinate care and navigate the diagnostic journey and can be shared with a few clicks. When you share your child’s medical records, the recipient will receive a secure link and get instant access to your child’s medical history.

PicnicHealth toma la privacidad muy en serio. Su información personal nunca será compartida sin su permiso explícito. Sus registros médicos se mantienen seguros mediante el uso del estándar de encriptación más alto disponible: 256-bit SSL. Esta es la misma tecnología que usan los bancos para mantener segura la información de las cuentas.

basics
¿Realmente pueden los registros médicos ayudar a la investigación?
What is PicnicHealth?
PicnicHealth is a service specialized in helping patient collect and manage their medical records.

How is PicnicHealth related to UnitedHealthcare?
UnitedHealthcare is partnering with PicnicHealth as part of a Family Engagement Center initiative. Your child will receive PicnicHealth's services for free, which includes getting a PicnicHealth timeline with all of your child’s medical records in one place.  

What does PicnicHealth do? 
PicnicHealth collects your child’s medical records on your behalf and helps you manage them in a PicnicHealth timeline. When you see the doctor again, we’ll update your PicnicHealth timeline with the new records. You can access your medical records from anywhere and even share them with your child’s doctors with a few clicks.

Can I see what a PicnicHealth account looks like?
Yes. You can view this sample timeline.  

Will PicnicHealth cost me anything?
You’ll receive PicnicHealth’s service free of charge in partnership with UnitedHealthcare during the first year pilot program. One year after you start using PicnicHealth, your child’s PicnicHealth timeline will continue to be available, but no new records will be added. If UnitedHealthcare and PicnicHealth do not continue their partnership, you will have the option of subscribing directly.

How can I use my PicnicHealth timeline?
The PicnicHealth timeline provides a single source of information for you, your child’s doctors, and your UnitedHealthcare Family Advisors and Clinicians. It is a tool to help you coordinate care and navigate the diagnostic journey and can be shared with a few clicks. When you share your child’s medical records, the recipient will receive a secure link and get instant access to your child’s medical history.

Los registros médicos capturan lo que sucede actualmente cuando los médicos atienden a los pacientes, para que puedan ser realmente útiles para entender cómo se administra la atención médica en el mundo real. También contienen bastante información sobre cómo experimenta usted la EAG tipo Ia o la EAG tipo III — sus síntomas, su estado de salud, y sus tratamientos. Unir toda esta información en un grupo diverso de pacientes, les permitirá a los investigadores observar patrones que ningún médico puede ver por sí solo.

what-to-expect
¿Qué tipo de registros médicos recopilarán?
What is PicnicHealth?
PicnicHealth is a service specialized in helping patient collect and manage their medical records.

How is PicnicHealth related to UnitedHealthcare?
UnitedHealthcare is partnering with PicnicHealth as part of a Family Engagement Center initiative. Your child will receive PicnicHealth's services for free, which includes getting a PicnicHealth timeline with all of your child’s medical records in one place.  

What does PicnicHealth do? 
PicnicHealth collects your child’s medical records on your behalf and helps you manage them in a PicnicHealth timeline. When you see the doctor again, we’ll update your PicnicHealth timeline with the new records. You can access your medical records from anywhere and even share them with your child’s doctors with a few clicks.

Can I see what a PicnicHealth account looks like?
Yes. You can view this sample timeline.  

Will PicnicHealth cost me anything?
You’ll receive PicnicHealth’s service free of charge in partnership with UnitedHealthcare during the first year pilot program. One year after you start using PicnicHealth, your child’s PicnicHealth timeline will continue to be available, but no new records will be added. If UnitedHealthcare and PicnicHealth do not continue their partnership, you will have the option of subscribing directly.

How can I use my PicnicHealth timeline?
The PicnicHealth timeline provides a single source of information for you, your child’s doctors, and your UnitedHealthcare Family Advisors and Clinicians. It is a tool to help you coordinate care and navigate the diagnostic journey and can be shared with a few clicks. When you share your child’s medical records, the recipient will receive a secure link and get instant access to your child’s medical history.

PicnicHealth recopilará los registros médicos de todos los médicos, hospitales, y clínicas que usted nos indique. PicnicHealth no recopilará registros dentales ni de optometría.

data-and-privacy
¿Cómo pueden involucrarse los investigadores académicos?
What is PicnicHealth?
PicnicHealth is a service specialized in helping patient collect and manage their medical records.

How is PicnicHealth related to UnitedHealthcare?
UnitedHealthcare is partnering with PicnicHealth as part of a Family Engagement Center initiative. Your child will receive PicnicHealth's services for free, which includes getting a PicnicHealth timeline with all of your child’s medical records in one place.  

What does PicnicHealth do? 
PicnicHealth collects your child’s medical records on your behalf and helps you manage them in a PicnicHealth timeline. When you see the doctor again, we’ll update your PicnicHealth timeline with the new records. You can access your medical records from anywhere and even share them with your child’s doctors with a few clicks.

Can I see what a PicnicHealth account looks like?
Yes. You can view this sample timeline.  

Will PicnicHealth cost me anything?
You’ll receive PicnicHealth’s service free of charge in partnership with UnitedHealthcare during the first year pilot program. One year after you start using PicnicHealth, your child’s PicnicHealth timeline will continue to be available, but no new records will be added. If UnitedHealthcare and PicnicHealth do not continue their partnership, you will have the option of subscribing directly.

How can I use my PicnicHealth timeline?
The PicnicHealth timeline provides a single source of information for you, your child’s doctors, and your UnitedHealthcare Family Advisors and Clinicians. It is a tool to help you coordinate care and navigate the diagnostic journey and can be shared with a few clicks. When you share your child’s medical records, the recipient will receive a secure link and get instant access to your child’s medical history.

Los investigadores interesados en estudiar la EAG tipo Ia y la EAG tipo III usando los datos anonimizados recopilados pueden comunicarse con PicnicHealth [email protected]. A los investigadores se les pedirá que envíen una solicitud que resuma el motivo del estudio de investigación, las metas y el enfoque del análisis. Las solicitudes exigen información de los antecedentes que incluyan el personal involucrado, las credenciales relevantes, las instituciones asociadas, y cualquier conflicto de interés. PicnicHealth llevará a cabo un proceso para evaluar los potenciales asociados basándose en la validez de las preguntas de investigación y el compromiso para el adelanto de la ciencia para el bienestar público.

basics
¿Este es un estudio clínico?
What is PicnicHealth?
PicnicHealth is a service specialized in helping patient collect and manage their medical records.

How is PicnicHealth related to UnitedHealthcare?
UnitedHealthcare is partnering with PicnicHealth as part of a Family Engagement Center initiative. Your child will receive PicnicHealth's services for free, which includes getting a PicnicHealth timeline with all of your child’s medical records in one place.  

What does PicnicHealth do? 
PicnicHealth collects your child’s medical records on your behalf and helps you manage them in a PicnicHealth timeline. When you see the doctor again, we’ll update your PicnicHealth timeline with the new records. You can access your medical records from anywhere and even share them with your child’s doctors with a few clicks.

Can I see what a PicnicHealth account looks like?
Yes. You can view this sample timeline.  

Will PicnicHealth cost me anything?
You’ll receive PicnicHealth’s service free of charge in partnership with UnitedHealthcare during the first year pilot program. One year after you start using PicnicHealth, your child’s PicnicHealth timeline will continue to be available, but no new records will be added. If UnitedHealthcare and PicnicHealth do not continue their partnership, you will have the option of subscribing directly.

How can I use my PicnicHealth timeline?
The PicnicHealth timeline provides a single source of information for you, your child’s doctors, and your UnitedHealthcare Family Advisors and Clinicians. It is a tool to help you coordinate care and navigate the diagnostic journey and can be shared with a few clicks. When you share your child’s medical records, the recipient will receive a secure link and get instant access to your child’s medical history.

Este es un estudio observacional, no un estudio clínico. Un estudio clínico involucra la prueba de un tratamiento específico, como un medicamento o un dispositivo médico. En este estudio, estamos buscando lo datos de los registros médicos producidos durante sus consultas normales con sus proveedores de atención en salud y sus respuestas a encuestas sobre sus experiencias en la atención. La meta es entender mejor cómo se maneja y trata la EAG tipo Ia y la EAG tipo III, y qué otras condiciones pueden experimentar las personas diagnosticadas con EAG tipo Ia y EAG tipo III a fin de que los investigadores avancen en el entendimiento de la EAG tipo Ia y la EAG tipo III con la esperanza de mejorar la atención futura de las personas que viven con EAG tipo Ia y EAG tipo III.

what-to-expect
¿Obtendré registros de mis ecografías e imágenes?
What is PicnicHealth?
PicnicHealth is a service specialized in helping patient collect and manage their medical records.

How is PicnicHealth related to UnitedHealthcare?
UnitedHealthcare is partnering with PicnicHealth as part of a Family Engagement Center initiative. Your child will receive PicnicHealth's services for free, which includes getting a PicnicHealth timeline with all of your child’s medical records in one place.  

What does PicnicHealth do? 
PicnicHealth collects your child’s medical records on your behalf and helps you manage them in a PicnicHealth timeline. When you see the doctor again, we’ll update your PicnicHealth timeline with the new records. You can access your medical records from anywhere and even share them with your child’s doctors with a few clicks.

Can I see what a PicnicHealth account looks like?
Yes. You can view this sample timeline.  

Will PicnicHealth cost me anything?
You’ll receive PicnicHealth’s service free of charge in partnership with UnitedHealthcare during the first year pilot program. One year after you start using PicnicHealth, your child’s PicnicHealth timeline will continue to be available, but no new records will be added. If UnitedHealthcare and PicnicHealth do not continue their partnership, you will have the option of subscribing directly.

How can I use my PicnicHealth timeline?
The PicnicHealth timeline provides a single source of information for you, your child’s doctors, and your UnitedHealthcare Family Advisors and Clinicians. It is a tool to help you coordinate care and navigate the diagnostic journey and can be shared with a few clicks. When you share your child’s medical records, the recipient will receive a secure link and get instant access to your child’s medical history.

¡Sí! Usted podrá ver sus archivos de imágenes justo en su línea de tiempo de PicnicHealth.

basics
¿Cuál es la relación entre PicnicHealth y Ultragenyx?
What is PicnicHealth?
PicnicHealth is a service specialized in helping patient collect and manage their medical records.

How is PicnicHealth related to UnitedHealthcare?
UnitedHealthcare is partnering with PicnicHealth as part of a Family Engagement Center initiative. Your child will receive PicnicHealth's services for free, which includes getting a PicnicHealth timeline with all of your child’s medical records in one place.  

What does PicnicHealth do? 
PicnicHealth collects your child’s medical records on your behalf and helps you manage them in a PicnicHealth timeline. When you see the doctor again, we’ll update your PicnicHealth timeline with the new records. You can access your medical records from anywhere and even share them with your child’s doctors with a few clicks.

Can I see what a PicnicHealth account looks like?
Yes. You can view this sample timeline.  

Will PicnicHealth cost me anything?
You’ll receive PicnicHealth’s service free of charge in partnership with UnitedHealthcare during the first year pilot program. One year after you start using PicnicHealth, your child’s PicnicHealth timeline will continue to be available, but no new records will be added. If UnitedHealthcare and PicnicHealth do not continue their partnership, you will have the option of subscribing directly.

How can I use my PicnicHealth timeline?
The PicnicHealth timeline provides a single source of information for you, your child’s doctors, and your UnitedHealthcare Family Advisors and Clinicians. It is a tool to help you coordinate care and navigate the diagnostic journey and can be shared with a few clicks. When you share your child’s medical records, the recipient will receive a secure link and get instant access to your child’s medical history.

PicnicHealth y Ultragenyx son empresas independientes que se asociaron para este estudio. PicnicHealth es una empresa digital de salud que ayuda a los pacientes a recopilar y manejar sus registros médicos, los cuales pueden ser utilizados para apoyar la investigación. Ultragenyx es una empresa biofarmacéutica que realiza investigación científica para el desarrollo de nuevos tratamientos para una variedad de condiciones médicas raras, incluyendo EAG tipo Ia y EAG tipo III.

what-to-expect
¿PicnicHealth actualizará mis registros médicos cada vez que yo consulte al médico?
What is PicnicHealth?
PicnicHealth is a service specialized in helping patient collect and manage their medical records.

How is PicnicHealth related to UnitedHealthcare?
UnitedHealthcare is partnering with PicnicHealth as part of a Family Engagement Center initiative. Your child will receive PicnicHealth's services for free, which includes getting a PicnicHealth timeline with all of your child’s medical records in one place.  

What does PicnicHealth do? 
PicnicHealth collects your child’s medical records on your behalf and helps you manage them in a PicnicHealth timeline. When you see the doctor again, we’ll update your PicnicHealth timeline with the new records. You can access your medical records from anywhere and even share them with your child’s doctors with a few clicks.

Can I see what a PicnicHealth account looks like?
Yes. You can view this sample timeline.  

Will PicnicHealth cost me anything?
You’ll receive PicnicHealth’s service free of charge in partnership with UnitedHealthcare during the first year pilot program. One year after you start using PicnicHealth, your child’s PicnicHealth timeline will continue to be available, but no new records will be added. If UnitedHealthcare and PicnicHealth do not continue their partnership, you will have the option of subscribing directly.

How can I use my PicnicHealth timeline?
The PicnicHealth timeline provides a single source of information for you, your child’s doctors, and your UnitedHealthcare Family Advisors and Clinicians. It is a tool to help you coordinate care and navigate the diagnostic journey and can be shared with a few clicks. When you share your child’s medical records, the recipient will receive a secure link and get instant access to your child’s medical history.

PicnicHealth actualizará sus registros médicos periódicamente. Para mantener sus registros lo más actualizados posible, siempre puede comunicarle a PicnicHealth cuando haya consultado a su médico. Solo presione el botón “Solicitar Registros” en la parte superior de su línea de tiempo, y PicnicHealth recolectará los registros nuevos para usted.

basics
¿Si me uno a este estudio, podré participar en estudios clínicos?
What is PicnicHealth?
PicnicHealth is a service specialized in helping patient collect and manage their medical records.

How is PicnicHealth related to UnitedHealthcare?
UnitedHealthcare is partnering with PicnicHealth as part of a Family Engagement Center initiative. Your child will receive PicnicHealth's services for free, which includes getting a PicnicHealth timeline with all of your child’s medical records in one place.  

What does PicnicHealth do? 
PicnicHealth collects your child’s medical records on your behalf and helps you manage them in a PicnicHealth timeline. When you see the doctor again, we’ll update your PicnicHealth timeline with the new records. You can access your medical records from anywhere and even share them with your child’s doctors with a few clicks.

Can I see what a PicnicHealth account looks like?
Yes. You can view this sample timeline.  

Will PicnicHealth cost me anything?
You’ll receive PicnicHealth’s service free of charge in partnership with UnitedHealthcare during the first year pilot program. One year after you start using PicnicHealth, your child’s PicnicHealth timeline will continue to be available, but no new records will be added. If UnitedHealthcare and PicnicHealth do not continue their partnership, you will have the option of subscribing directly.

How can I use my PicnicHealth timeline?
The PicnicHealth timeline provides a single source of information for you, your child’s doctors, and your UnitedHealthcare Family Advisors and Clinicians. It is a tool to help you coordinate care and navigate the diagnostic journey and can be shared with a few clicks. When you share your child’s medical records, the recipient will receive a secure link and get instant access to your child’s medical history.

La participación en este estudio solo no afectará su capacidad para inscribirse en estudios clínicos, aunque los estudios clínicos pueden tener otros criterios de inclusión/exclusión (p.ej., la edad) que usted deberá cumplir para poder participar.

what-to-expect
¿Qué debo hacer si consulto un médico nuevo?
What is PicnicHealth?
PicnicHealth is a service specialized in helping patient collect and manage their medical records.

How is PicnicHealth related to UnitedHealthcare?
UnitedHealthcare is partnering with PicnicHealth as part of a Family Engagement Center initiative. Your child will receive PicnicHealth's services for free, which includes getting a PicnicHealth timeline with all of your child’s medical records in one place.  

What does PicnicHealth do? 
PicnicHealth collects your child’s medical records on your behalf and helps you manage them in a PicnicHealth timeline. When you see the doctor again, we’ll update your PicnicHealth timeline with the new records. You can access your medical records from anywhere and even share them with your child’s doctors with a few clicks.

Can I see what a PicnicHealth account looks like?
Yes. You can view this sample timeline.  

Will PicnicHealth cost me anything?
You’ll receive PicnicHealth’s service free of charge in partnership with UnitedHealthcare during the first year pilot program. One year after you start using PicnicHealth, your child’s PicnicHealth timeline will continue to be available, but no new records will be added. If UnitedHealthcare and PicnicHealth do not continue their partnership, you will have the option of subscribing directly.

How can I use my PicnicHealth timeline?
The PicnicHealth timeline provides a single source of information for you, your child’s doctors, and your UnitedHealthcare Family Advisors and Clinicians. It is a tool to help you coordinate care and navigate the diagnostic journey and can be shared with a few clicks. When you share your child’s medical records, the recipient will receive a secure link and get instant access to your child’s medical history.

En la parte superior de su línea de tiempo, presione sobre "Médicos" para añadir nuevos médicos o instituciones médicas. PicnicHealth recopilará entonces sus registros de sus médicos nuevos.

about
¿Qué hace PicnicHealth?
What is PicnicHealth?
PicnicHealth is a service specialized in helping patient collect and manage their medical records.

How is PicnicHealth related to UnitedHealthcare?
UnitedHealthcare is partnering with PicnicHealth as part of a Family Engagement Center initiative. Your child will receive PicnicHealth's services for free, which includes getting a PicnicHealth timeline with all of your child’s medical records in one place.  

What does PicnicHealth do? 
PicnicHealth collects your child’s medical records on your behalf and helps you manage them in a PicnicHealth timeline. When you see the doctor again, we’ll update your PicnicHealth timeline with the new records. You can access your medical records from anywhere and even share them with your child’s doctors with a few clicks.

Can I see what a PicnicHealth account looks like?
Yes. You can view this sample timeline.  

Will PicnicHealth cost me anything?
You’ll receive PicnicHealth’s service free of charge in partnership with UnitedHealthcare during the first year pilot program. One year after you start using PicnicHealth, your child’s PicnicHealth timeline will continue to be available, but no new records will be added. If UnitedHealthcare and PicnicHealth do not continue their partnership, you will have the option of subscribing directly.

How can I use my PicnicHealth timeline?
The PicnicHealth timeline provides a single source of information for you, your child’s doctors, and your UnitedHealthcare Family Advisors and Clinicians. It is a tool to help you coordinate care and navigate the diagnostic journey and can be shared with a few clicks. When you share your child’s medical records, the recipient will receive a secure link and get instant access to your child’s medical history.

PicnicHealth trabaja directamente con personas como usted para recolectar y manejar sus registros médicos. Esto significa salir y recopilar todos sus registros médicos de los diferentes médicos y mantenerlos actualizados durante el tiempo. PicnicHealth transformará entonces sus registros en una línea de tiempo que hace más fácil encontrar lo que esté buscando. Cuando vuelva a consultar a su médico, PicnicHealth actualizará su línea de tiempo con los nuevos registros. Usted puede acceder a su línea de tiempo de PicnicHealth desde cualquier lugar e incluso compartirla con sus médicos con solo presionar unos pocos botones.

what-to-expect
¿Puedo dejar de participar en el estudio?
What is PicnicHealth?
PicnicHealth is a service specialized in helping patient collect and manage their medical records.

How is PicnicHealth related to UnitedHealthcare?
UnitedHealthcare is partnering with PicnicHealth as part of a Family Engagement Center initiative. Your child will receive PicnicHealth's services for free, which includes getting a PicnicHealth timeline with all of your child’s medical records in one place.  

What does PicnicHealth do? 
PicnicHealth collects your child’s medical records on your behalf and helps you manage them in a PicnicHealth timeline. When you see the doctor again, we’ll update your PicnicHealth timeline with the new records. You can access your medical records from anywhere and even share them with your child’s doctors with a few clicks.

Can I see what a PicnicHealth account looks like?
Yes. You can view this sample timeline.  

Will PicnicHealth cost me anything?
You’ll receive PicnicHealth’s service free of charge in partnership with UnitedHealthcare during the first year pilot program. One year after you start using PicnicHealth, your child’s PicnicHealth timeline will continue to be available, but no new records will be added. If UnitedHealthcare and PicnicHealth do not continue their partnership, you will have the option of subscribing directly.

How can I use my PicnicHealth timeline?
The PicnicHealth timeline provides a single source of information for you, your child’s doctors, and your UnitedHealthcare Family Advisors and Clinicians. It is a tool to help you coordinate care and navigate the diagnostic journey and can be shared with a few clicks. When you share your child’s medical records, the recipient will receive a secure link and get instant access to your child’s medical history.

Sí. Su participación en este estudio es completamente voluntaria; usted puede retirarse en cualquier momento. Si elige dejar de participar, su información ya no será compartida con los investigadores, pero sus registros médicos seguirán estando disponibles a través de su cuenta de PicnicHealth. En dicho momento, dejaremos de recopilar todos los registros médicos nuevos. Usted podrá descargar copias de sus registros en cualquier momento. Siempre podrá indicar a PicnicHealth que borre sus registros médicos, aunque la información que ya haya sido compartida con terceros asociados, como Ultragenyx u otros investigadores académicos, no podrán ser borrados.

about
¿Puedo ver cómo se verían mis registros en mi cuenta de PicnicHealth?
What is PicnicHealth?
PicnicHealth is a service specialized in helping patient collect and manage their medical records.

How is PicnicHealth related to UnitedHealthcare?
UnitedHealthcare is partnering with PicnicHealth as part of a Family Engagement Center initiative. Your child will receive PicnicHealth's services for free, which includes getting a PicnicHealth timeline with all of your child’s medical records in one place.  

What does PicnicHealth do? 
PicnicHealth collects your child’s medical records on your behalf and helps you manage them in a PicnicHealth timeline. When you see the doctor again, we’ll update your PicnicHealth timeline with the new records. You can access your medical records from anywhere and even share them with your child’s doctors with a few clicks.

Can I see what a PicnicHealth account looks like?
Yes. You can view this sample timeline.  

Will PicnicHealth cost me anything?
You’ll receive PicnicHealth’s service free of charge in partnership with UnitedHealthcare during the first year pilot program. One year after you start using PicnicHealth, your child’s PicnicHealth timeline will continue to be available, but no new records will be added. If UnitedHealthcare and PicnicHealth do not continue their partnership, you will have the option of subscribing directly.

How can I use my PicnicHealth timeline?
The PicnicHealth timeline provides a single source of information for you, your child’s doctors, and your UnitedHealthcare Family Advisors and Clinicians. It is a tool to help you coordinate care and navigate the diagnostic journey and can be shared with a few clicks. When you share your child’s medical records, the recipient will receive a secure link and get instant access to your child’s medical history.

Sí. Puede consultar esta línea de tiempo de muestra.

about
¿Qué médicos y profesionales de la atención en salud puedo añadir?
What is PicnicHealth?
PicnicHealth is a service specialized in helping patient collect and manage their medical records.

How is PicnicHealth related to UnitedHealthcare?
UnitedHealthcare is partnering with PicnicHealth as part of a Family Engagement Center initiative. Your child will receive PicnicHealth's services for free, which includes getting a PicnicHealth timeline with all of your child’s medical records in one place.  

What does PicnicHealth do? 
PicnicHealth collects your child’s medical records on your behalf and helps you manage them in a PicnicHealth timeline. When you see the doctor again, we’ll update your PicnicHealth timeline with the new records. You can access your medical records from anywhere and even share them with your child’s doctors with a few clicks.

Can I see what a PicnicHealth account looks like?
Yes. You can view this sample timeline.  

Will PicnicHealth cost me anything?
You’ll receive PicnicHealth’s service free of charge in partnership with UnitedHealthcare during the first year pilot program. One year after you start using PicnicHealth, your child’s PicnicHealth timeline will continue to be available, but no new records will be added. If UnitedHealthcare and PicnicHealth do not continue their partnership, you will have the option of subscribing directly.

How can I use my PicnicHealth timeline?
The PicnicHealth timeline provides a single source of information for you, your child’s doctors, and your UnitedHealthcare Family Advisors and Clinicians. It is a tool to help you coordinate care and navigate the diagnostic journey and can be shared with a few clicks. When you share your child’s medical records, the recipient will receive a secure link and get instant access to your child’s medical history.

Podrá ingresar todos sus médicos, incluyendo su médico de atención primaria o pediatra, genetista, neurólogo, hepatólogo, gastroenterólogo, atención de emergencia, endocrinólogo, nefrólogo, cardiólogo, y especialistas neuromusculares. Adicionalmente puede incluir otros profesionales de la atención en salud aliados que ayudan a manejar la EAG, incluyendo los dietistas.

about
¿Qué pasa si no puedo recordar los nombres de todos mis médicos?
What is PicnicHealth?
PicnicHealth is a service specialized in helping patient collect and manage their medical records.

How is PicnicHealth related to UnitedHealthcare?
UnitedHealthcare is partnering with PicnicHealth as part of a Family Engagement Center initiative. Your child will receive PicnicHealth's services for free, which includes getting a PicnicHealth timeline with all of your child’s medical records in one place.  

What does PicnicHealth do? 
PicnicHealth collects your child’s medical records on your behalf and helps you manage them in a PicnicHealth timeline. When you see the doctor again, we’ll update your PicnicHealth timeline with the new records. You can access your medical records from anywhere and even share them with your child’s doctors with a few clicks.

Can I see what a PicnicHealth account looks like?
Yes. You can view this sample timeline.  

Will PicnicHealth cost me anything?
You’ll receive PicnicHealth’s service free of charge in partnership with UnitedHealthcare during the first year pilot program. One year after you start using PicnicHealth, your child’s PicnicHealth timeline will continue to be available, but no new records will be added. If UnitedHealthcare and PicnicHealth do not continue their partnership, you will have the option of subscribing directly.

How can I use my PicnicHealth timeline?
The PicnicHealth timeline provides a single source of information for you, your child’s doctors, and your UnitedHealthcare Family Advisors and Clinicians. It is a tool to help you coordinate care and navigate the diagnostic journey and can be shared with a few clicks. When you share your child’s medical records, the recipient will receive a secure link and get instant access to your child’s medical history.

Puede incluir todos los médicos que recuerde. Con frecuencia, el nombre del hospital o la clínica es suficiente, el equipo de PicnicHealth le acompañará si tiene alguna confusión. Si PicnicHealth encuentra médicos mencionados en los registros que usted no incluyó en su lista de médicos, usted recibirá un correo electrónico pidiendo su permiso para solicitar los registros de dicho médico nuevo.

about
¿Cómo sabrá mi médico que puede compartir mis registros?
What is PicnicHealth?
PicnicHealth is a service specialized in helping patient collect and manage their medical records.

How is PicnicHealth related to UnitedHealthcare?
UnitedHealthcare is partnering with PicnicHealth as part of a Family Engagement Center initiative. Your child will receive PicnicHealth's services for free, which includes getting a PicnicHealth timeline with all of your child’s medical records in one place.  

What does PicnicHealth do? 
PicnicHealth collects your child’s medical records on your behalf and helps you manage them in a PicnicHealth timeline. When you see the doctor again, we’ll update your PicnicHealth timeline with the new records. You can access your medical records from anywhere and even share them with your child’s doctors with a few clicks.

Can I see what a PicnicHealth account looks like?
Yes. You can view this sample timeline.  

Will PicnicHealth cost me anything?
You’ll receive PicnicHealth’s service free of charge in partnership with UnitedHealthcare during the first year pilot program. One year after you start using PicnicHealth, your child’s PicnicHealth timeline will continue to be available, but no new records will be added. If UnitedHealthcare and PicnicHealth do not continue their partnership, you will have the option of subscribing directly.

How can I use my PicnicHealth timeline?
The PicnicHealth timeline provides a single source of information for you, your child’s doctors, and your UnitedHealthcare Family Advisors and Clinicians. It is a tool to help you coordinate care and navigate the diagnostic journey and can be shared with a few clicks. When you share your child’s medical records, the recipient will receive a secure link and get instant access to your child’s medical history.

Cuando usted se inscriba, leerá y firmará un formulario que autoriza a PicnicHealth a solicitar sus registros médicos a su nombre. Usted puede firmar electrónicamente este formulario en línea —sin imprimir ni enviar por correo postal. Su médico sabrá entonces que puede compartir sus registros médicos con PicnicHealth.

about
¿Qué pasa si mi médico no cuenta con registros electrónicos?
What is PicnicHealth?
PicnicHealth is a service specialized in helping patient collect and manage their medical records.

How is PicnicHealth related to UnitedHealthcare?
UnitedHealthcare is partnering with PicnicHealth as part of a Family Engagement Center initiative. Your child will receive PicnicHealth's services for free, which includes getting a PicnicHealth timeline with all of your child’s medical records in one place.  

What does PicnicHealth do? 
PicnicHealth collects your child’s medical records on your behalf and helps you manage them in a PicnicHealth timeline. When you see the doctor again, we’ll update your PicnicHealth timeline with the new records. You can access your medical records from anywhere and even share them with your child’s doctors with a few clicks.

Can I see what a PicnicHealth account looks like?
Yes. You can view this sample timeline.  

Will PicnicHealth cost me anything?
You’ll receive PicnicHealth’s service free of charge in partnership with UnitedHealthcare during the first year pilot program. One year after you start using PicnicHealth, your child’s PicnicHealth timeline will continue to be available, but no new records will be added. If UnitedHealthcare and PicnicHealth do not continue their partnership, you will have the option of subscribing directly.

How can I use my PicnicHealth timeline?
The PicnicHealth timeline provides a single source of information for you, your child’s doctors, and your UnitedHealthcare Family Advisors and Clinicians. It is a tool to help you coordinate care and navigate the diagnostic journey and can be shared with a few clicks. When you share your child’s medical records, the recipient will receive a secure link and get instant access to your child’s medical history.

No hay problema. PicnicHealth puede trabajar con registros en cualquier formato, ya sea que su médico tome nota a mano o en un iPad.

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¿Cómo puedo usar mi línea de tiempo de PicnicHealth?
What is PicnicHealth?
PicnicHealth is a service specialized in helping patient collect and manage their medical records.

How is PicnicHealth related to UnitedHealthcare?
UnitedHealthcare is partnering with PicnicHealth as part of a Family Engagement Center initiative. Your child will receive PicnicHealth's services for free, which includes getting a PicnicHealth timeline with all of your child’s medical records in one place.  

What does PicnicHealth do? 
PicnicHealth collects your child’s medical records on your behalf and helps you manage them in a PicnicHealth timeline. When you see the doctor again, we’ll update your PicnicHealth timeline with the new records. You can access your medical records from anywhere and even share them with your child’s doctors with a few clicks.

Can I see what a PicnicHealth account looks like?
Yes. You can view this sample timeline.  

Will PicnicHealth cost me anything?
You’ll receive PicnicHealth’s service free of charge in partnership with UnitedHealthcare during the first year pilot program. One year after you start using PicnicHealth, your child’s PicnicHealth timeline will continue to be available, but no new records will be added. If UnitedHealthcare and PicnicHealth do not continue their partnership, you will have the option of subscribing directly.

How can I use my PicnicHealth timeline?
The PicnicHealth timeline provides a single source of information for you, your child’s doctors, and your UnitedHealthcare Family Advisors and Clinicians. It is a tool to help you coordinate care and navigate the diagnostic journey and can be shared with a few clicks. When you share your child’s medical records, the recipient will receive a secure link and get instant access to your child’s medical history.

Su línea de tiempo de PicnicHealth proporciona una fuente de información única para usted y sus médicos. Es una herramienta que le ayuda a coordinar la atención y a entender su propia salud. Usted puede compartir su línea de tiempo con cualquiera de sus médicos presionando solo unos pocos botones. El médico recibirá un vínculo de seguridad y tendrá acceso a su historia médica. Automáticamente revisaremos si tienen registros nuevos cada 3 meses, aunque siempre puede contarnos cuando haya consultado a su médico para que su línea de tiempo sea actualizada más rápidamente.

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¿Tendré que pagar algo por PicnicHealth?
What is PicnicHealth?
PicnicHealth is a service specialized in helping patient collect and manage their medical records.

How is PicnicHealth related to UnitedHealthcare?
UnitedHealthcare is partnering with PicnicHealth as part of a Family Engagement Center initiative. Your child will receive PicnicHealth's services for free, which includes getting a PicnicHealth timeline with all of your child’s medical records in one place.  

What does PicnicHealth do? 
PicnicHealth collects your child’s medical records on your behalf and helps you manage them in a PicnicHealth timeline. When you see the doctor again, we’ll update your PicnicHealth timeline with the new records. You can access your medical records from anywhere and even share them with your child’s doctors with a few clicks.

Can I see what a PicnicHealth account looks like?
Yes. You can view this sample timeline.  

Will PicnicHealth cost me anything?
You’ll receive PicnicHealth’s service free of charge in partnership with UnitedHealthcare during the first year pilot program. One year after you start using PicnicHealth, your child’s PicnicHealth timeline will continue to be available, but no new records will be added. If UnitedHealthcare and PicnicHealth do not continue their partnership, you will have the option of subscribing directly.

How can I use my PicnicHealth timeline?
The PicnicHealth timeline provides a single source of information for you, your child’s doctors, and your UnitedHealthcare Family Advisors and Clinicians. It is a tool to help you coordinate care and navigate the diagnostic journey and can be shared with a few clicks. When you share your child’s medical records, the recipient will receive a secure link and get instant access to your child’s medical history.

Usted recibirá el servicio de PicnicHealth de manera gratuita durante la duración del estudio mientras se encuentre participando en él. Esto significa que usted podrá tener acceso a todos los registros médicos y los registros prospectivos recopilados durante el estudio por tiempo indefinido.

What is PicnicHealth?
PicnicHealth is a service specialized in helping patient collect and manage their medical records.

How is PicnicHealth related to UnitedHealthcare?
UnitedHealthcare is partnering with PicnicHealth as part of a Family Engagement Center initiative. Your child will receive PicnicHealth's services for free, which includes getting a PicnicHealth timeline with all of your child’s medical records in one place.  

What does PicnicHealth do? 
PicnicHealth collects your child’s medical records on your behalf and helps you manage them in a PicnicHealth timeline. When you see the doctor again, we’ll update your PicnicHealth timeline with the new records. You can access your medical records from anywhere and even share them with your child’s doctors with a few clicks.

Can I see what a PicnicHealth account looks like?
Yes. You can view this sample timeline.  

Will PicnicHealth cost me anything?
You’ll receive PicnicHealth’s service free of charge in partnership with UnitedHealthcare during the first year pilot program. One year after you start using PicnicHealth, your child’s PicnicHealth timeline will continue to be available, but no new records will be added. If UnitedHealthcare and PicnicHealth do not continue their partnership, you will have the option of subscribing directly.

How can I use my PicnicHealth timeline?
The PicnicHealth timeline provides a single source of information for you, your child’s doctors, and your UnitedHealthcare Family Advisors and Clinicians. It is a tool to help you coordinate care and navigate the diagnostic journey and can be shared with a few clicks. When you share your child’s medical records, the recipient will receive a secure link and get instant access to your child’s medical history.