Simplify your medical records and contribute to a better understanding of glycogen storage disease

Ultragenyx and PicnicHealth are partnering to conduct innovative research that aims to better understand how glycogen storage disease (GSD), specifically GSDIa and GSDIII, affect real people like you or your child. Understanding how a disease is managed and treated and the effects of these approaches in the real-world can help address some important questions that could improve the future quality of care.

PicnicHealth gives you access to your complete medical history by collecting, digitizing, and encrypting all of your medical records, from all of your doctors and other healthcare professionals (e.g., dietitians). Ultragenyx is a biopharmaceutical company that does scientific research to develop new treatments for a range of rare genetic diseases, including GSDIa and GSDIII. Signing up for this study will take no more than 15 minutes and will not affect your ability to participate in clinical trials.

You can also sign up for your child or family member with GSD.

For Spanish, click
here (para español, haga clic aquí).

We centralize medical records to help you, your doctors, and researchers better understand GSD.

Complete and shareable

Access your records from anywhere. Share your full medical history instantly with your family or doctors.

Free and easy

By participating in this PicnicHealth and Ultragenyx study, we’ll collect and organize your complete medical history for free.

Privacy protected

Researchers only get de-identified data points, not any of your personal information.

Get all of your records in one place.

Get Started
Stronger together

By sharing your medical journey, you can help improve the journey for others in the future.

Accelerated research

Using your real-world information allows researchers to improve care faster, without extra visits from you.

Controlled and secure

Your private data stays that way. We are HIPAA compliant and use 256-bit military grade encryption.

Contribute your records to advance GSDIa and GSDIII research.

How it works

We invite you (or your child) to contribute to better understanding glycogen storage disease (GSD), specifically GSDIa and GSDIII.
1

Sign up, review the consent form, share the names of your healthcare providers, and answer a few basic questions.

2

PicnicHealth compiles and anonymizes your medical records.

3

Researchers use this real-world data to advance GSDIa and GSDIII research.

See A Sample Account

Your medical information, secure.

Security

As a patient-centered company, PicnicHealth values your privacy and security. We protect your information by using end-to-end encryption and abiding by HIPAA compliant practices.

Transparency

PicnicHealth will ask for your consent before sharing any information with any partners. Any personally identifying information will be removed from your records before sharing with Ultragenyx.

Privacy

We do not send researchers redacted medical records. Instead, we share de-identified datasets with only the information needed for research.

Responsibility

PicnicHealth uses an IRB (Institutional Review Board) to protect and act in the best interest of our volunteers.

PicnicHealth research principles

PicnicHealth’s mission is to advance the well-being of all people. Our studies follow our rigid commitment to patient empowerment and good research practice.
We protect your rights and privacy

An Institutional Review Board (IRB) reviews our studies to ensure participants are well informed and are opting in willingly.

We’re committed to research for public good.

Anonymized medical data sets are free for qualified academic, non-commercial use.

Participation is up to you.

You make the choice to proactively opt in.

We de-identify your data.

Before researchers receive your data, we remove all personally identifiable information.

Withdraw at any time.

If you decide you'd rather not participate in research anymore, no problem.

FAQs
Study Basics
data-and-privacy
Who will be able to see my medical records?
What is PicnicHealth?
PicnicHealth is a service specialized in helping patient collect and manage their medical records.

How is PicnicHealth related to UnitedHealthcare?
UnitedHealthcare is partnering with PicnicHealth as part of a Family Engagement Center initiative. Your child will receive PicnicHealth's services for free, which includes getting a PicnicHealth timeline with all of your child’s medical records in one place.  

What does PicnicHealth do? 
PicnicHealth collects your child’s medical records on your behalf and helps you manage them in a PicnicHealth timeline. When you see the doctor again, we’ll update your PicnicHealth timeline with the new records. You can access your medical records from anywhere and even share them with your child’s doctors with a few clicks.

Can I see what a PicnicHealth account looks like?
Yes. You can view this sample timeline.  

Will PicnicHealth cost me anything?
You’ll receive PicnicHealth’s service free of charge in partnership with UnitedHealthcare during the first year pilot program. One year after you start using PicnicHealth, your child’s PicnicHealth timeline will continue to be available, but no new records will be added. If UnitedHealthcare and PicnicHealth do not continue their partnership, you will have the option of subscribing directly.

How can I use my PicnicHealth timeline?
The PicnicHealth timeline provides a single source of information for you, your child’s doctors, and your UnitedHealthcare Family Advisors and Clinicians. It is a tool to help you coordinate care and navigate the diagnostic journey and can be shared with a few clicks. When you share your child’s medical records, the recipient will receive a secure link and get instant access to your child’s medical history.

PicnicHealth will see your medical records to process them. You can choose to share your records with your healthcare providers or loved ones by clicking "Send Records" the top of your PicnicHealth timeline. By signing up for this study, you're agreeing to share your de-identified health information and data from your medical records with Ultragenyx to better understand GSDIa and GSDIII. For purposes of the study, they will receive health data that are stripped of your name, address, and similar personal identifiers. In certain situations, to make sure that the study is being done properly or to check the quality of the data, regulatory authorities, institutional review board members, or study auditors associated with may be granted direct access to copies of your medical records (i.e. they may see your medical and personal information) without violating the confidentiality of your data.

basics
Who can join this study?
What is PicnicHealth?
PicnicHealth is a service specialized in helping patient collect and manage their medical records.

How is PicnicHealth related to UnitedHealthcare?
UnitedHealthcare is partnering with PicnicHealth as part of a Family Engagement Center initiative. Your child will receive PicnicHealth's services for free, which includes getting a PicnicHealth timeline with all of your child’s medical records in one place.  

What does PicnicHealth do? 
PicnicHealth collects your child’s medical records on your behalf and helps you manage them in a PicnicHealth timeline. When you see the doctor again, we’ll update your PicnicHealth timeline with the new records. You can access your medical records from anywhere and even share them with your child’s doctors with a few clicks.

Can I see what a PicnicHealth account looks like?
Yes. You can view this sample timeline.  

Will PicnicHealth cost me anything?
You’ll receive PicnicHealth’s service free of charge in partnership with UnitedHealthcare during the first year pilot program. One year after you start using PicnicHealth, your child’s PicnicHealth timeline will continue to be available, but no new records will be added. If UnitedHealthcare and PicnicHealth do not continue their partnership, you will have the option of subscribing directly.

How can I use my PicnicHealth timeline?
The PicnicHealth timeline provides a single source of information for you, your child’s doctors, and your UnitedHealthcare Family Advisors and Clinicians. It is a tool to help you coordinate care and navigate the diagnostic journey and can be shared with a few clicks. When you share your child’s medical records, the recipient will receive a secure link and get instant access to your child’s medical history.

You can join this study if you have been diagnosed with glycogen storage disease (GSD), specifically GSDIa or GSDIII and live in the U.S.

about
What does PicnicHealth do?
What is PicnicHealth?
PicnicHealth is a service specialized in helping patient collect and manage their medical records.

How is PicnicHealth related to UnitedHealthcare?
UnitedHealthcare is partnering with PicnicHealth as part of a Family Engagement Center initiative. Your child will receive PicnicHealth's services for free, which includes getting a PicnicHealth timeline with all of your child’s medical records in one place.  

What does PicnicHealth do? 
PicnicHealth collects your child’s medical records on your behalf and helps you manage them in a PicnicHealth timeline. When you see the doctor again, we’ll update your PicnicHealth timeline with the new records. You can access your medical records from anywhere and even share them with your child’s doctors with a few clicks.

Can I see what a PicnicHealth account looks like?
Yes. You can view this sample timeline.  

Will PicnicHealth cost me anything?
You’ll receive PicnicHealth’s service free of charge in partnership with UnitedHealthcare during the first year pilot program. One year after you start using PicnicHealth, your child’s PicnicHealth timeline will continue to be available, but no new records will be added. If UnitedHealthcare and PicnicHealth do not continue their partnership, you will have the option of subscribing directly.

How can I use my PicnicHealth timeline?
The PicnicHealth timeline provides a single source of information for you, your child’s doctors, and your UnitedHealthcare Family Advisors and Clinicians. It is a tool to help you coordinate care and navigate the diagnostic journey and can be shared with a few clicks. When you share your child’s medical records, the recipient will receive a secure link and get instant access to your child’s medical history.

PicnicHealth works directly with patients like you to help collect and manage your medical records. That means going out and collecting all of your medical records from your different doctors and keeping them up-to-date over time. PicnicHealth will then transform your records into a timeline that makes it easier to find what you’re looking for. When you see your doctor again, PicnicHealth will update your timeline with new records. You can access your PicnicHealth timeline from anywhere and even share it with your doctors with a few clicks.

what-to-expect
How long will it take to get my medical records?
What is PicnicHealth?
PicnicHealth is a service specialized in helping patient collect and manage their medical records.

How is PicnicHealth related to UnitedHealthcare?
UnitedHealthcare is partnering with PicnicHealth as part of a Family Engagement Center initiative. Your child will receive PicnicHealth's services for free, which includes getting a PicnicHealth timeline with all of your child’s medical records in one place.  

What does PicnicHealth do? 
PicnicHealth collects your child’s medical records on your behalf and helps you manage them in a PicnicHealth timeline. When you see the doctor again, we’ll update your PicnicHealth timeline with the new records. You can access your medical records from anywhere and even share them with your child’s doctors with a few clicks.

Can I see what a PicnicHealth account looks like?
Yes. You can view this sample timeline.  

Will PicnicHealth cost me anything?
You’ll receive PicnicHealth’s service free of charge in partnership with UnitedHealthcare during the first year pilot program. One year after you start using PicnicHealth, your child’s PicnicHealth timeline will continue to be available, but no new records will be added. If UnitedHealthcare and PicnicHealth do not continue their partnership, you will have the option of subscribing directly.

How can I use my PicnicHealth timeline?
The PicnicHealth timeline provides a single source of information for you, your child’s doctors, and your UnitedHealthcare Family Advisors and Clinicians. It is a tool to help you coordinate care and navigate the diagnostic journey and can be shared with a few clicks. When you share your child’s medical records, the recipient will receive a secure link and get instant access to your child’s medical history.

It takes about 4 weeks to retrieve most of your historical records. After that, it can take another couple of months for us to track down the oldest and trickiest records to access. The timing depends on how quickly your doctors respond to PicnicHealth’s requests for your records.

basics
Will I see the study results?
What is PicnicHealth?
PicnicHealth is a service specialized in helping patient collect and manage their medical records.

How is PicnicHealth related to UnitedHealthcare?
UnitedHealthcare is partnering with PicnicHealth as part of a Family Engagement Center initiative. Your child will receive PicnicHealth's services for free, which includes getting a PicnicHealth timeline with all of your child’s medical records in one place.  

What does PicnicHealth do? 
PicnicHealth collects your child’s medical records on your behalf and helps you manage them in a PicnicHealth timeline. When you see the doctor again, we’ll update your PicnicHealth timeline with the new records. You can access your medical records from anywhere and even share them with your child’s doctors with a few clicks.

Can I see what a PicnicHealth account looks like?
Yes. You can view this sample timeline.  

Will PicnicHealth cost me anything?
You’ll receive PicnicHealth’s service free of charge in partnership with UnitedHealthcare during the first year pilot program. One year after you start using PicnicHealth, your child’s PicnicHealth timeline will continue to be available, but no new records will be added. If UnitedHealthcare and PicnicHealth do not continue their partnership, you will have the option of subscribing directly.

How can I use my PicnicHealth timeline?
The PicnicHealth timeline provides a single source of information for you, your child’s doctors, and your UnitedHealthcare Family Advisors and Clinicians. It is a tool to help you coordinate care and navigate the diagnostic journey and can be shared with a few clicks. When you share your child’s medical records, the recipient will receive a secure link and get instant access to your child’s medical history.

Yes! We believe it’s important for you to see the results of research produced using your data and we are committed to sharing published results (e.g., research publications, conference abstracts) with you. PicnicHealth will email you regarding any important updates to the study including new insights you have helped power. Research takes time, so we appreciate your patience while scientists and clinicians are working on learning new things about GSDIa or GSDIII.

what-to-expect
How far back will you collect historical records?
What is PicnicHealth?
PicnicHealth is a service specialized in helping patient collect and manage their medical records.

How is PicnicHealth related to UnitedHealthcare?
UnitedHealthcare is partnering with PicnicHealth as part of a Family Engagement Center initiative. Your child will receive PicnicHealth's services for free, which includes getting a PicnicHealth timeline with all of your child’s medical records in one place.  

What does PicnicHealth do? 
PicnicHealth collects your child’s medical records on your behalf and helps you manage them in a PicnicHealth timeline. When you see the doctor again, we’ll update your PicnicHealth timeline with the new records. You can access your medical records from anywhere and even share them with your child’s doctors with a few clicks.

Can I see what a PicnicHealth account looks like?
Yes. You can view this sample timeline.  

Will PicnicHealth cost me anything?
You’ll receive PicnicHealth’s service free of charge in partnership with UnitedHealthcare during the first year pilot program. One year after you start using PicnicHealth, your child’s PicnicHealth timeline will continue to be available, but no new records will be added. If UnitedHealthcare and PicnicHealth do not continue their partnership, you will have the option of subscribing directly.

How can I use my PicnicHealth timeline?
The PicnicHealth timeline provides a single source of information for you, your child’s doctors, and your UnitedHealthcare Family Advisors and Clinicians. It is a tool to help you coordinate care and navigate the diagnostic journey and can be shared with a few clicks. When you share your child’s medical records, the recipient will receive a secure link and get instant access to your child’s medical history.

We will collect records going back as far as possible. In most states, doctors are required to keep records for at least 7 years, but many will keep them for much longer. So how far back we can go really depends on the record keeping practices of your doctors.

about
Can I see what my records will look like in my PicnicHealth account?
What is PicnicHealth?
PicnicHealth is a service specialized in helping patient collect and manage their medical records.

How is PicnicHealth related to UnitedHealthcare?
UnitedHealthcare is partnering with PicnicHealth as part of a Family Engagement Center initiative. Your child will receive PicnicHealth's services for free, which includes getting a PicnicHealth timeline with all of your child’s medical records in one place.  

What does PicnicHealth do? 
PicnicHealth collects your child’s medical records on your behalf and helps you manage them in a PicnicHealth timeline. When you see the doctor again, we’ll update your PicnicHealth timeline with the new records. You can access your medical records from anywhere and even share them with your child’s doctors with a few clicks.

Can I see what a PicnicHealth account looks like?
Yes. You can view this sample timeline.  

Will PicnicHealth cost me anything?
You’ll receive PicnicHealth’s service free of charge in partnership with UnitedHealthcare during the first year pilot program. One year after you start using PicnicHealth, your child’s PicnicHealth timeline will continue to be available, but no new records will be added. If UnitedHealthcare and PicnicHealth do not continue their partnership, you will have the option of subscribing directly.

How can I use my PicnicHealth timeline?
The PicnicHealth timeline provides a single source of information for you, your child’s doctors, and your UnitedHealthcare Family Advisors and Clinicians. It is a tool to help you coordinate care and navigate the diagnostic journey and can be shared with a few clicks. When you share your child’s medical records, the recipient will receive a secure link and get instant access to your child’s medical history.

Yes. You can view this sample timeline.

basics
What if I have a glycogen storage disease (GSD), but not GSDIa or GSDIII?
What is PicnicHealth?
PicnicHealth is a service specialized in helping patient collect and manage their medical records.

How is PicnicHealth related to UnitedHealthcare?
UnitedHealthcare is partnering with PicnicHealth as part of a Family Engagement Center initiative. Your child will receive PicnicHealth's services for free, which includes getting a PicnicHealth timeline with all of your child’s medical records in one place.  

What does PicnicHealth do? 
PicnicHealth collects your child’s medical records on your behalf and helps you manage them in a PicnicHealth timeline. When you see the doctor again, we’ll update your PicnicHealth timeline with the new records. You can access your medical records from anywhere and even share them with your child’s doctors with a few clicks.

Can I see what a PicnicHealth account looks like?
Yes. You can view this sample timeline.  

Will PicnicHealth cost me anything?
You’ll receive PicnicHealth’s service free of charge in partnership with UnitedHealthcare during the first year pilot program. One year after you start using PicnicHealth, your child’s PicnicHealth timeline will continue to be available, but no new records will be added. If UnitedHealthcare and PicnicHealth do not continue their partnership, you will have the option of subscribing directly.

How can I use my PicnicHealth timeline?
The PicnicHealth timeline provides a single source of information for you, your child’s doctors, and your UnitedHealthcare Family Advisors and Clinicians. It is a tool to help you coordinate care and navigate the diagnostic journey and can be shared with a few clicks. When you share your child’s medical records, the recipient will receive a secure link and get instant access to your child’s medical history.

If you (or your child) does not have GSDIa or GSDIII, you won’t be eligible for GSD Odyssey, but you will be offered a free PicnicHealth account subscription for 1 year. This means that we will collect your historical records and prospective records for 1 year. After the 1 year mark, we will stop collecting prospective records but you will keep access to all your records collected up to that point indefinitely.

data-and-privacy
What information will be removed from my records to de-identify them?
What is PicnicHealth?
PicnicHealth is a service specialized in helping patient collect and manage their medical records.

How is PicnicHealth related to UnitedHealthcare?
UnitedHealthcare is partnering with PicnicHealth as part of a Family Engagement Center initiative. Your child will receive PicnicHealth's services for free, which includes getting a PicnicHealth timeline with all of your child’s medical records in one place.  

What does PicnicHealth do? 
PicnicHealth collects your child’s medical records on your behalf and helps you manage them in a PicnicHealth timeline. When you see the doctor again, we’ll update your PicnicHealth timeline with the new records. You can access your medical records from anywhere and even share them with your child’s doctors with a few clicks.

Can I see what a PicnicHealth account looks like?
Yes. You can view this sample timeline.  

Will PicnicHealth cost me anything?
You’ll receive PicnicHealth’s service free of charge in partnership with UnitedHealthcare during the first year pilot program. One year after you start using PicnicHealth, your child’s PicnicHealth timeline will continue to be available, but no new records will be added. If UnitedHealthcare and PicnicHealth do not continue their partnership, you will have the option of subscribing directly.

How can I use my PicnicHealth timeline?
The PicnicHealth timeline provides a single source of information for you, your child’s doctors, and your UnitedHealthcare Family Advisors and Clinicians. It is a tool to help you coordinate care and navigate the diagnostic journey and can be shared with a few clicks. When you share your child’s medical records, the recipient will receive a secure link and get instant access to your child’s medical history.

PicnicHealth will always protect your rights and privacy. We de-identify your data before sharing it with researchers, stripping away personally identifiable information. This includes, but is not limited to, your name, email, date of birth, phone number, address, and the names of your doctors.

data-and-privacy
Will my medical records be secure?
What is PicnicHealth?
PicnicHealth is a service specialized in helping patient collect and manage their medical records.

How is PicnicHealth related to UnitedHealthcare?
UnitedHealthcare is partnering with PicnicHealth as part of a Family Engagement Center initiative. Your child will receive PicnicHealth's services for free, which includes getting a PicnicHealth timeline with all of your child’s medical records in one place.  

What does PicnicHealth do? 
PicnicHealth collects your child’s medical records on your behalf and helps you manage them in a PicnicHealth timeline. When you see the doctor again, we’ll update your PicnicHealth timeline with the new records. You can access your medical records from anywhere and even share them with your child’s doctors with a few clicks.

Can I see what a PicnicHealth account looks like?
Yes. You can view this sample timeline.  

Will PicnicHealth cost me anything?
You’ll receive PicnicHealth’s service free of charge in partnership with UnitedHealthcare during the first year pilot program. One year after you start using PicnicHealth, your child’s PicnicHealth timeline will continue to be available, but no new records will be added. If UnitedHealthcare and PicnicHealth do not continue their partnership, you will have the option of subscribing directly.

How can I use my PicnicHealth timeline?
The PicnicHealth timeline provides a single source of information for you, your child’s doctors, and your UnitedHealthcare Family Advisors and Clinicians. It is a tool to help you coordinate care and navigate the diagnostic journey and can be shared with a few clicks. When you share your child’s medical records, the recipient will receive a secure link and get instant access to your child’s medical history.

PicnicHealth takes privacy very seriously. Your personal data is never shared without your explicit permission.Your medical records are kept safe using the highest encryption standard available: 256-bit SSL. This is the same technology that banks use to keep account information safe.

what-to-expect
When I first see my PicnicHealth timeline, will it be complete?
What is PicnicHealth?
PicnicHealth is a service specialized in helping patient collect and manage their medical records.

How is PicnicHealth related to UnitedHealthcare?
UnitedHealthcare is partnering with PicnicHealth as part of a Family Engagement Center initiative. Your child will receive PicnicHealth's services for free, which includes getting a PicnicHealth timeline with all of your child’s medical records in one place.  

What does PicnicHealth do? 
PicnicHealth collects your child’s medical records on your behalf and helps you manage them in a PicnicHealth timeline. When you see the doctor again, we’ll update your PicnicHealth timeline with the new records. You can access your medical records from anywhere and even share them with your child’s doctors with a few clicks.

Can I see what a PicnicHealth account looks like?
Yes. You can view this sample timeline.  

Will PicnicHealth cost me anything?
You’ll receive PicnicHealth’s service free of charge in partnership with UnitedHealthcare during the first year pilot program. One year after you start using PicnicHealth, your child’s PicnicHealth timeline will continue to be available, but no new records will be added. If UnitedHealthcare and PicnicHealth do not continue their partnership, you will have the option of subscribing directly.

How can I use my PicnicHealth timeline?
The PicnicHealth timeline provides a single source of information for you, your child’s doctors, and your UnitedHealthcare Family Advisors and Clinicians. It is a tool to help you coordinate care and navigate the diagnostic journey and can be shared with a few clicks. When you share your child’s medical records, the recipient will receive a secure link and get instant access to your child’s medical history.

When you first see your timeline, it's possible that some of your medical records are not yet available. That's because PicnicHealth is still working hard to collect them for you. You should be able to see your medical records within 3 to 4 weeks of signing up. After the first month, your timeline will be updated regularly with information from your new doctor visits. We will automatically check to see if you have new records every 3 months, though you can always tell us when you see your doctor for your timeline to be updated faster.

basics
What is the purpose of the study?
What is PicnicHealth?
PicnicHealth is a service specialized in helping patient collect and manage their medical records.

How is PicnicHealth related to UnitedHealthcare?
UnitedHealthcare is partnering with PicnicHealth as part of a Family Engagement Center initiative. Your child will receive PicnicHealth's services for free, which includes getting a PicnicHealth timeline with all of your child’s medical records in one place.  

What does PicnicHealth do? 
PicnicHealth collects your child’s medical records on your behalf and helps you manage them in a PicnicHealth timeline. When you see the doctor again, we’ll update your PicnicHealth timeline with the new records. You can access your medical records from anywhere and even share them with your child’s doctors with a few clicks.

Can I see what a PicnicHealth account looks like?
Yes. You can view this sample timeline.  

Will PicnicHealth cost me anything?
You’ll receive PicnicHealth’s service free of charge in partnership with UnitedHealthcare during the first year pilot program. One year after you start using PicnicHealth, your child’s PicnicHealth timeline will continue to be available, but no new records will be added. If UnitedHealthcare and PicnicHealth do not continue their partnership, you will have the option of subscribing directly.

How can I use my PicnicHealth timeline?
The PicnicHealth timeline provides a single source of information for you, your child’s doctors, and your UnitedHealthcare Family Advisors and Clinicians. It is a tool to help you coordinate care and navigate the diagnostic journey and can be shared with a few clicks. When you share your child’s medical records, the recipient will receive a secure link and get instant access to your child’s medical history.

Our goal is to advance the understanding of GSDIa and GSDIII and to support research to improve the quality of care. Information from medical records is particularly useful for diseases like GSDIa and GSDIII, because it gives us insight into what living with the disease is really like and how treatment options work in the real world. Some GSD research objectives that your health information can help answer include:

  • The journey to obtaining a confirmatory diagnosis of GSD
  • The emotional and social toll managing the disease can take (for patients & caregivers)
  • Associated symptoms, health complications, and other disease-related conditions
  • Disease progression
  • Treatment patterns and their effectiveness 
  • The burden of GSD symptoms/management on quality of life

basics
Can medical records really help with research?
What is PicnicHealth?
PicnicHealth is a service specialized in helping patient collect and manage their medical records.

How is PicnicHealth related to UnitedHealthcare?
UnitedHealthcare is partnering with PicnicHealth as part of a Family Engagement Center initiative. Your child will receive PicnicHealth's services for free, which includes getting a PicnicHealth timeline with all of your child’s medical records in one place.  

What does PicnicHealth do? 
PicnicHealth collects your child’s medical records on your behalf and helps you manage them in a PicnicHealth timeline. When you see the doctor again, we’ll update your PicnicHealth timeline with the new records. You can access your medical records from anywhere and even share them with your child’s doctors with a few clicks.

Can I see what a PicnicHealth account looks like?
Yes. You can view this sample timeline.  

Will PicnicHealth cost me anything?
You’ll receive PicnicHealth’s service free of charge in partnership with UnitedHealthcare during the first year pilot program. One year after you start using PicnicHealth, your child’s PicnicHealth timeline will continue to be available, but no new records will be added. If UnitedHealthcare and PicnicHealth do not continue their partnership, you will have the option of subscribing directly.

How can I use my PicnicHealth timeline?
The PicnicHealth timeline provides a single source of information for you, your child’s doctors, and your UnitedHealthcare Family Advisors and Clinicians. It is a tool to help you coordinate care and navigate the diagnostic journey and can be shared with a few clicks. When you share your child’s medical records, the recipient will receive a secure link and get instant access to your child’s medical history.

Medical records record what’s actually happening when doctors see patients, so they can be really helpful for understanding how care is delivered in the real world. They also contain a lot of information about how you experience GSDIa and GSDIII --your symptoms, your health status, and your treatments. Putting all of this information together for a diverse group of patients will allow the scientific community to see patterns that no one doctor can see on his or her own.

data-and-privacy
Can I delete my medical records from PicnicHealth?
What is PicnicHealth?
PicnicHealth is a service specialized in helping patient collect and manage their medical records.

How is PicnicHealth related to UnitedHealthcare?
UnitedHealthcare is partnering with PicnicHealth as part of a Family Engagement Center initiative. Your child will receive PicnicHealth's services for free, which includes getting a PicnicHealth timeline with all of your child’s medical records in one place.  

What does PicnicHealth do? 
PicnicHealth collects your child’s medical records on your behalf and helps you manage them in a PicnicHealth timeline. When you see the doctor again, we’ll update your PicnicHealth timeline with the new records. You can access your medical records from anywhere and even share them with your child’s doctors with a few clicks.

Can I see what a PicnicHealth account looks like?
Yes. You can view this sample timeline.  

Will PicnicHealth cost me anything?
You’ll receive PicnicHealth’s service free of charge in partnership with UnitedHealthcare during the first year pilot program. One year after you start using PicnicHealth, your child’s PicnicHealth timeline will continue to be available, but no new records will be added. If UnitedHealthcare and PicnicHealth do not continue their partnership, you will have the option of subscribing directly.

How can I use my PicnicHealth timeline?
The PicnicHealth timeline provides a single source of information for you, your child’s doctors, and your UnitedHealthcare Family Advisors and Clinicians. It is a tool to help you coordinate care and navigate the diagnostic journey and can be shared with a few clicks. When you share your child’s medical records, the recipient will receive a secure link and get instant access to your child’s medical history.

You may choose to delete your medical records and data from the PicnicHealth service at any time and for any reason. Just email PicnicHealth at [email protected].  Once records have been collected for the study, you can’t remove them from the study.

about
What doctors and healthcare professionals can I add?
What is PicnicHealth?
PicnicHealth is a service specialized in helping patient collect and manage their medical records.

How is PicnicHealth related to UnitedHealthcare?
UnitedHealthcare is partnering with PicnicHealth as part of a Family Engagement Center initiative. Your child will receive PicnicHealth's services for free, which includes getting a PicnicHealth timeline with all of your child’s medical records in one place.  

What does PicnicHealth do? 
PicnicHealth collects your child’s medical records on your behalf and helps you manage them in a PicnicHealth timeline. When you see the doctor again, we’ll update your PicnicHealth timeline with the new records. You can access your medical records from anywhere and even share them with your child’s doctors with a few clicks.

Can I see what a PicnicHealth account looks like?
Yes. You can view this sample timeline.  

Will PicnicHealth cost me anything?
You’ll receive PicnicHealth’s service free of charge in partnership with UnitedHealthcare during the first year pilot program. One year after you start using PicnicHealth, your child’s PicnicHealth timeline will continue to be available, but no new records will be added. If UnitedHealthcare and PicnicHealth do not continue their partnership, you will have the option of subscribing directly.

How can I use my PicnicHealth timeline?
The PicnicHealth timeline provides a single source of information for you, your child’s doctors, and your UnitedHealthcare Family Advisors and Clinicians. It is a tool to help you coordinate care and navigate the diagnostic journey and can be shared with a few clicks. When you share your child’s medical records, the recipient will receive a secure link and get instant access to your child’s medical history.

You can enter all your doctors, including your primary care physician or pediatrician, geneticist, neurologist, hepatologist, gastroenterologist, emergency care, endocrinologist, nephrologist, cardiologist,  neuromuscular specialists, and more. In addition, you can enter other allied healthcare professionals that help manage GSD, including dietitians

what-to-expect
What should I do if I notice there are medical records missing from my PicnicHealth timeline?
What is PicnicHealth?
PicnicHealth is a service specialized in helping patient collect and manage their medical records.

How is PicnicHealth related to UnitedHealthcare?
UnitedHealthcare is partnering with PicnicHealth as part of a Family Engagement Center initiative. Your child will receive PicnicHealth's services for free, which includes getting a PicnicHealth timeline with all of your child’s medical records in one place.  

What does PicnicHealth do? 
PicnicHealth collects your child’s medical records on your behalf and helps you manage them in a PicnicHealth timeline. When you see the doctor again, we’ll update your PicnicHealth timeline with the new records. You can access your medical records from anywhere and even share them with your child’s doctors with a few clicks.

Can I see what a PicnicHealth account looks like?
Yes. You can view this sample timeline.  

Will PicnicHealth cost me anything?
You’ll receive PicnicHealth’s service free of charge in partnership with UnitedHealthcare during the first year pilot program. One year after you start using PicnicHealth, your child’s PicnicHealth timeline will continue to be available, but no new records will be added. If UnitedHealthcare and PicnicHealth do not continue their partnership, you will have the option of subscribing directly.

How can I use my PicnicHealth timeline?
The PicnicHealth timeline provides a single source of information for you, your child’s doctors, and your UnitedHealthcare Family Advisors and Clinicians. It is a tool to help you coordinate care and navigate the diagnostic journey and can be shared with a few clicks. When you share your child’s medical records, the recipient will receive a secure link and get instant access to your child’s medical history.

In the first month, some records might be missing because PicnicHealth is still collecting them for you. After the first month, if you suspect that records are still missing, you can let us know about those records by clicking "Request Records" at the top of your timeline.

about
What if I can’t remember the names of all my doctors?
What is PicnicHealth?
PicnicHealth is a service specialized in helping patient collect and manage their medical records.

How is PicnicHealth related to UnitedHealthcare?
UnitedHealthcare is partnering with PicnicHealth as part of a Family Engagement Center initiative. Your child will receive PicnicHealth's services for free, which includes getting a PicnicHealth timeline with all of your child’s medical records in one place.  

What does PicnicHealth do? 
PicnicHealth collects your child’s medical records on your behalf and helps you manage them in a PicnicHealth timeline. When you see the doctor again, we’ll update your PicnicHealth timeline with the new records. You can access your medical records from anywhere and even share them with your child’s doctors with a few clicks.

Can I see what a PicnicHealth account looks like?
Yes. You can view this sample timeline.  

Will PicnicHealth cost me anything?
You’ll receive PicnicHealth’s service free of charge in partnership with UnitedHealthcare during the first year pilot program. One year after you start using PicnicHealth, your child’s PicnicHealth timeline will continue to be available, but no new records will be added. If UnitedHealthcare and PicnicHealth do not continue their partnership, you will have the option of subscribing directly.

How can I use my PicnicHealth timeline?
The PicnicHealth timeline provides a single source of information for you, your child’s doctors, and your UnitedHealthcare Family Advisors and Clinicians. It is a tool to help you coordinate care and navigate the diagnostic journey and can be shared with a few clicks. When you share your child’s medical records, the recipient will receive a secure link and get instant access to your child’s medical history.

You can just enter as many doctors as you remember. The hospital or clinic name is usually enough and the PicnicHealth team will follow up with you if there’s any confusion. If PicnicHealth finds doctors mentioned in your records who you did not include on your doctor list, you will get an email asking for your permission to request records from that new doctor.

basics
Is this a clinical trial?
What is PicnicHealth?
PicnicHealth is a service specialized in helping patient collect and manage their medical records.

How is PicnicHealth related to UnitedHealthcare?
UnitedHealthcare is partnering with PicnicHealth as part of a Family Engagement Center initiative. Your child will receive PicnicHealth's services for free, which includes getting a PicnicHealth timeline with all of your child’s medical records in one place.  

What does PicnicHealth do? 
PicnicHealth collects your child’s medical records on your behalf and helps you manage them in a PicnicHealth timeline. When you see the doctor again, we’ll update your PicnicHealth timeline with the new records. You can access your medical records from anywhere and even share them with your child’s doctors with a few clicks.

Can I see what a PicnicHealth account looks like?
Yes. You can view this sample timeline.  

Will PicnicHealth cost me anything?
You’ll receive PicnicHealth’s service free of charge in partnership with UnitedHealthcare during the first year pilot program. One year after you start using PicnicHealth, your child’s PicnicHealth timeline will continue to be available, but no new records will be added. If UnitedHealthcare and PicnicHealth do not continue their partnership, you will have the option of subscribing directly.

How can I use my PicnicHealth timeline?
The PicnicHealth timeline provides a single source of information for you, your child’s doctors, and your UnitedHealthcare Family Advisors and Clinicians. It is a tool to help you coordinate care and navigate the diagnostic journey and can be shared with a few clicks. When you share your child’s medical records, the recipient will receive a secure link and get instant access to your child’s medical history.

This is an observational study, not a clinical trial. A clinical trial involves testing a specific treatment, like a drug or medical device. In this study, we are looking at data from medical records produced during your normal visits to your healthcare providers and your responses to questionnaires about your care experiences. The goal is to better understand how GSDIa and GSDIII are managed and treated, and what other conditions individuals diagnosed with GSDIa and GSDIII may experience in order to advance researchers’ understanding of GSDIa and GSDIII and hopefully improve future care for people living with GSDIa and GSDIII.

about
How will my doctor know it’s okay to share my records?
What is PicnicHealth?
PicnicHealth is a service specialized in helping patient collect and manage their medical records.

How is PicnicHealth related to UnitedHealthcare?
UnitedHealthcare is partnering with PicnicHealth as part of a Family Engagement Center initiative. Your child will receive PicnicHealth's services for free, which includes getting a PicnicHealth timeline with all of your child’s medical records in one place.  

What does PicnicHealth do? 
PicnicHealth collects your child’s medical records on your behalf and helps you manage them in a PicnicHealth timeline. When you see the doctor again, we’ll update your PicnicHealth timeline with the new records. You can access your medical records from anywhere and even share them with your child’s doctors with a few clicks.

Can I see what a PicnicHealth account looks like?
Yes. You can view this sample timeline.  

Will PicnicHealth cost me anything?
You’ll receive PicnicHealth’s service free of charge in partnership with UnitedHealthcare during the first year pilot program. One year after you start using PicnicHealth, your child’s PicnicHealth timeline will continue to be available, but no new records will be added. If UnitedHealthcare and PicnicHealth do not continue their partnership, you will have the option of subscribing directly.

How can I use my PicnicHealth timeline?
The PicnicHealth timeline provides a single source of information for you, your child’s doctors, and your UnitedHealthcare Family Advisors and Clinicians. It is a tool to help you coordinate care and navigate the diagnostic journey and can be shared with a few clicks. When you share your child’s medical records, the recipient will receive a secure link and get instant access to your child’s medical history.

When you sign up, you’ll read and sign a form that authorizes PicnicHealth to request your medical records on your behalf. You can e-sign this form online -- no printing or mailing involved. Your doctor will then know that it's okay to share your medical records with PicnicHealth.

basics
How are PicnicHealth and Ultragenyx related?
What is PicnicHealth?
PicnicHealth is a service specialized in helping patient collect and manage their medical records.

How is PicnicHealth related to UnitedHealthcare?
UnitedHealthcare is partnering with PicnicHealth as part of a Family Engagement Center initiative. Your child will receive PicnicHealth's services for free, which includes getting a PicnicHealth timeline with all of your child’s medical records in one place.  

What does PicnicHealth do? 
PicnicHealth collects your child’s medical records on your behalf and helps you manage them in a PicnicHealth timeline. When you see the doctor again, we’ll update your PicnicHealth timeline with the new records. You can access your medical records from anywhere and even share them with your child’s doctors with a few clicks.

Can I see what a PicnicHealth account looks like?
Yes. You can view this sample timeline.  

Will PicnicHealth cost me anything?
You’ll receive PicnicHealth’s service free of charge in partnership with UnitedHealthcare during the first year pilot program. One year after you start using PicnicHealth, your child’s PicnicHealth timeline will continue to be available, but no new records will be added. If UnitedHealthcare and PicnicHealth do not continue their partnership, you will have the option of subscribing directly.

How can I use my PicnicHealth timeline?
The PicnicHealth timeline provides a single source of information for you, your child’s doctors, and your UnitedHealthcare Family Advisors and Clinicians. It is a tool to help you coordinate care and navigate the diagnostic journey and can be shared with a few clicks. When you share your child’s medical records, the recipient will receive a secure link and get instant access to your child’s medical history.

PicnicHealth and Ultragenyx are separate companies that are partnering for this study. PicnicHealth is a digital health company that helps patients collect and manage their medical records which can be used to support research. Ultragenyx is a biopharmaceutical company that does scientific research to develop new treatments for a range of rare medical conditions, including GSDIa and GSDIII.

what-to-expect
What kinds of medical records will you collect?
What is PicnicHealth?
PicnicHealth is a service specialized in helping patient collect and manage their medical records.

How is PicnicHealth related to UnitedHealthcare?
UnitedHealthcare is partnering with PicnicHealth as part of a Family Engagement Center initiative. Your child will receive PicnicHealth's services for free, which includes getting a PicnicHealth timeline with all of your child’s medical records in one place.  

What does PicnicHealth do? 
PicnicHealth collects your child’s medical records on your behalf and helps you manage them in a PicnicHealth timeline. When you see the doctor again, we’ll update your PicnicHealth timeline with the new records. You can access your medical records from anywhere and even share them with your child’s doctors with a few clicks.

Can I see what a PicnicHealth account looks like?
Yes. You can view this sample timeline.  

Will PicnicHealth cost me anything?
You’ll receive PicnicHealth’s service free of charge in partnership with UnitedHealthcare during the first year pilot program. One year after you start using PicnicHealth, your child’s PicnicHealth timeline will continue to be available, but no new records will be added. If UnitedHealthcare and PicnicHealth do not continue their partnership, you will have the option of subscribing directly.

How can I use my PicnicHealth timeline?
The PicnicHealth timeline provides a single source of information for you, your child’s doctors, and your UnitedHealthcare Family Advisors and Clinicians. It is a tool to help you coordinate care and navigate the diagnostic journey and can be shared with a few clicks. When you share your child’s medical records, the recipient will receive a secure link and get instant access to your child’s medical history.

PicnicHealth will collect medical records from all the doctors, hospitals, and clinics that you tell us about. PicnicHealth does not collect dental or optometry records.

about
What if my doctor doesn’t have electronic records?
What is PicnicHealth?
PicnicHealth is a service specialized in helping patient collect and manage their medical records.

How is PicnicHealth related to UnitedHealthcare?
UnitedHealthcare is partnering with PicnicHealth as part of a Family Engagement Center initiative. Your child will receive PicnicHealth's services for free, which includes getting a PicnicHealth timeline with all of your child’s medical records in one place.  

What does PicnicHealth do? 
PicnicHealth collects your child’s medical records on your behalf and helps you manage them in a PicnicHealth timeline. When you see the doctor again, we’ll update your PicnicHealth timeline with the new records. You can access your medical records from anywhere and even share them with your child’s doctors with a few clicks.

Can I see what a PicnicHealth account looks like?
Yes. You can view this sample timeline.  

Will PicnicHealth cost me anything?
You’ll receive PicnicHealth’s service free of charge in partnership with UnitedHealthcare during the first year pilot program. One year after you start using PicnicHealth, your child’s PicnicHealth timeline will continue to be available, but no new records will be added. If UnitedHealthcare and PicnicHealth do not continue their partnership, you will have the option of subscribing directly.

How can I use my PicnicHealth timeline?
The PicnicHealth timeline provides a single source of information for you, your child’s doctors, and your UnitedHealthcare Family Advisors and Clinicians. It is a tool to help you coordinate care and navigate the diagnostic journey and can be shared with a few clicks. When you share your child’s medical records, the recipient will receive a secure link and get instant access to your child’s medical history.

No problem. PicnicHealth can work with data in any format, whether your doctor takes notes with a pen or on an iPad.

basics
Will I still be able to participate in clinical trials if I join this study?
What is PicnicHealth?
PicnicHealth is a service specialized in helping patient collect and manage their medical records.

How is PicnicHealth related to UnitedHealthcare?
UnitedHealthcare is partnering with PicnicHealth as part of a Family Engagement Center initiative. Your child will receive PicnicHealth's services for free, which includes getting a PicnicHealth timeline with all of your child’s medical records in one place.  

What does PicnicHealth do? 
PicnicHealth collects your child’s medical records on your behalf and helps you manage them in a PicnicHealth timeline. When you see the doctor again, we’ll update your PicnicHealth timeline with the new records. You can access your medical records from anywhere and even share them with your child’s doctors with a few clicks.

Can I see what a PicnicHealth account looks like?
Yes. You can view this sample timeline.  

Will PicnicHealth cost me anything?
You’ll receive PicnicHealth’s service free of charge in partnership with UnitedHealthcare during the first year pilot program. One year after you start using PicnicHealth, your child’s PicnicHealth timeline will continue to be available, but no new records will be added. If UnitedHealthcare and PicnicHealth do not continue their partnership, you will have the option of subscribing directly.

How can I use my PicnicHealth timeline?
The PicnicHealth timeline provides a single source of information for you, your child’s doctors, and your UnitedHealthcare Family Advisors and Clinicians. It is a tool to help you coordinate care and navigate the diagnostic journey and can be shared with a few clicks. When you share your child’s medical records, the recipient will receive a secure link and get instant access to your child’s medical history.

Participation in the study alone will not impact your ability to sign up for clinical trials, though clinical trials may still have other inclusion/exclusion criteria (e.g., age) that you will need to meet to participate.

data-and-privacy
How can academic researchers get involved?
What is PicnicHealth?
PicnicHealth is a service specialized in helping patient collect and manage their medical records.

How is PicnicHealth related to UnitedHealthcare?
UnitedHealthcare is partnering with PicnicHealth as part of a Family Engagement Center initiative. Your child will receive PicnicHealth's services for free, which includes getting a PicnicHealth timeline with all of your child’s medical records in one place.  

What does PicnicHealth do? 
PicnicHealth collects your child’s medical records on your behalf and helps you manage them in a PicnicHealth timeline. When you see the doctor again, we’ll update your PicnicHealth timeline with the new records. You can access your medical records from anywhere and even share them with your child’s doctors with a few clicks.

Can I see what a PicnicHealth account looks like?
Yes. You can view this sample timeline.  

Will PicnicHealth cost me anything?
You’ll receive PicnicHealth’s service free of charge in partnership with UnitedHealthcare during the first year pilot program. One year after you start using PicnicHealth, your child’s PicnicHealth timeline will continue to be available, but no new records will be added. If UnitedHealthcare and PicnicHealth do not continue their partnership, you will have the option of subscribing directly.

How can I use my PicnicHealth timeline?
The PicnicHealth timeline provides a single source of information for you, your child’s doctors, and your UnitedHealthcare Family Advisors and Clinicians. It is a tool to help you coordinate care and navigate the diagnostic journey and can be shared with a few clicks. When you share your child’s medical records, the recipient will receive a secure link and get instant access to your child’s medical history.

Researchers interested in studying GSDIa and GSDIII  using the de-identified data collected can contact PicnicHealth at [email protected]. Researchers will be asked to submit an application that outlines their research study rationale, goals, and analysis approach.  Applications require background information including personnel involved, relevant credentials, associated institutions, and any conflicts of interest.  PicnicHealth then follows a process to evaluate potential partners based on the validity of the research questions and commitment to advance science for the public good.

what-to-expect
Will I get records from my scans and imaging?
What is PicnicHealth?
PicnicHealth is a service specialized in helping patient collect and manage their medical records.

How is PicnicHealth related to UnitedHealthcare?
UnitedHealthcare is partnering with PicnicHealth as part of a Family Engagement Center initiative. Your child will receive PicnicHealth's services for free, which includes getting a PicnicHealth timeline with all of your child’s medical records in one place.  

What does PicnicHealth do? 
PicnicHealth collects your child’s medical records on your behalf and helps you manage them in a PicnicHealth timeline. When you see the doctor again, we’ll update your PicnicHealth timeline with the new records. You can access your medical records from anywhere and even share them with your child’s doctors with a few clicks.

Can I see what a PicnicHealth account looks like?
Yes. You can view this sample timeline.  

Will PicnicHealth cost me anything?
You’ll receive PicnicHealth’s service free of charge in partnership with UnitedHealthcare during the first year pilot program. One year after you start using PicnicHealth, your child’s PicnicHealth timeline will continue to be available, but no new records will be added. If UnitedHealthcare and PicnicHealth do not continue their partnership, you will have the option of subscribing directly.

How can I use my PicnicHealth timeline?
The PicnicHealth timeline provides a single source of information for you, your child’s doctors, and your UnitedHealthcare Family Advisors and Clinicians. It is a tool to help you coordinate care and navigate the diagnostic journey and can be shared with a few clicks. When you share your child’s medical records, the recipient will receive a secure link and get instant access to your child’s medical history.

Yes! You will be able to view your imaging files right in your PicnicHealth timeline.

about
How can I use my PicnicHealth timeline?
What is PicnicHealth?
PicnicHealth is a service specialized in helping patient collect and manage their medical records.

How is PicnicHealth related to UnitedHealthcare?
UnitedHealthcare is partnering with PicnicHealth as part of a Family Engagement Center initiative. Your child will receive PicnicHealth's services for free, which includes getting a PicnicHealth timeline with all of your child’s medical records in one place.  

What does PicnicHealth do? 
PicnicHealth collects your child’s medical records on your behalf and helps you manage them in a PicnicHealth timeline. When you see the doctor again, we’ll update your PicnicHealth timeline with the new records. You can access your medical records from anywhere and even share them with your child’s doctors with a few clicks.

Can I see what a PicnicHealth account looks like?
Yes. You can view this sample timeline.  

Will PicnicHealth cost me anything?
You’ll receive PicnicHealth’s service free of charge in partnership with UnitedHealthcare during the first year pilot program. One year after you start using PicnicHealth, your child’s PicnicHealth timeline will continue to be available, but no new records will be added. If UnitedHealthcare and PicnicHealth do not continue their partnership, you will have the option of subscribing directly.

How can I use my PicnicHealth timeline?
The PicnicHealth timeline provides a single source of information for you, your child’s doctors, and your UnitedHealthcare Family Advisors and Clinicians. It is a tool to help you coordinate care and navigate the diagnostic journey and can be shared with a few clicks. When you share your child’s medical records, the recipient will receive a secure link and get instant access to your child’s medical history.

Your PicnicHealth timeline provides a single source of information for you and your doctors. It is a tool to help you coordinate care and understand your own health. You can share your timeline with any of your doctors with a few clicks. The doctor will receive a secure link and get access to your medical history. We will automatically check to see if you have new records every 3 months, though you can always tell us when you see your doctor for your timeline to be updated faster.

basics
Will I be compensated for this study?
What is PicnicHealth?
PicnicHealth is a service specialized in helping patient collect and manage their medical records.

How is PicnicHealth related to UnitedHealthcare?
UnitedHealthcare is partnering with PicnicHealth as part of a Family Engagement Center initiative. Your child will receive PicnicHealth's services for free, which includes getting a PicnicHealth timeline with all of your child’s medical records in one place.  

What does PicnicHealth do? 
PicnicHealth collects your child’s medical records on your behalf and helps you manage them in a PicnicHealth timeline. When you see the doctor again, we’ll update your PicnicHealth timeline with the new records. You can access your medical records from anywhere and even share them with your child’s doctors with a few clicks.

Can I see what a PicnicHealth account looks like?
Yes. You can view this sample timeline.  

Will PicnicHealth cost me anything?
You’ll receive PicnicHealth’s service free of charge in partnership with UnitedHealthcare during the first year pilot program. One year after you start using PicnicHealth, your child’s PicnicHealth timeline will continue to be available, but no new records will be added. If UnitedHealthcare and PicnicHealth do not continue their partnership, you will have the option of subscribing directly.

How can I use my PicnicHealth timeline?
The PicnicHealth timeline provides a single source of information for you, your child’s doctors, and your UnitedHealthcare Family Advisors and Clinicians. It is a tool to help you coordinate care and navigate the diagnostic journey and can be shared with a few clicks. When you share your child’s medical records, the recipient will receive a secure link and get instant access to your child’s medical history.

Yes, you can be compensated $25 for successfully enrolling in the study with a Visa gift card. The gift card will be sent once your eligibility for the study is confirmed (e.g., confirmed diagnosis of GSDIa or GSDIII). After your eligibility is confirmed, you should receive the gift card within 5 to 10 business days.

what-to-expect
Will PicnicHealth update my medical records every time I see the doctor?
What is PicnicHealth?
PicnicHealth is a service specialized in helping patient collect and manage their medical records.

How is PicnicHealth related to UnitedHealthcare?
UnitedHealthcare is partnering with PicnicHealth as part of a Family Engagement Center initiative. Your child will receive PicnicHealth's services for free, which includes getting a PicnicHealth timeline with all of your child’s medical records in one place.  

What does PicnicHealth do? 
PicnicHealth collects your child’s medical records on your behalf and helps you manage them in a PicnicHealth timeline. When you see the doctor again, we’ll update your PicnicHealth timeline with the new records. You can access your medical records from anywhere and even share them with your child’s doctors with a few clicks.

Can I see what a PicnicHealth account looks like?
Yes. You can view this sample timeline.  

Will PicnicHealth cost me anything?
You’ll receive PicnicHealth’s service free of charge in partnership with UnitedHealthcare during the first year pilot program. One year after you start using PicnicHealth, your child’s PicnicHealth timeline will continue to be available, but no new records will be added. If UnitedHealthcare and PicnicHealth do not continue their partnership, you will have the option of subscribing directly.

How can I use my PicnicHealth timeline?
The PicnicHealth timeline provides a single source of information for you, your child’s doctors, and your UnitedHealthcare Family Advisors and Clinicians. It is a tool to help you coordinate care and navigate the diagnostic journey and can be shared with a few clicks. When you share your child’s medical records, the recipient will receive a secure link and get instant access to your child’s medical history.

PicnicHealth will update your medical records regularly. To keep your records most up-to-date, you can always tell PicnicHealth when you have seen the doctor. Just click the “Request Records” button at the top of your timeline, and PicnicHealth will retrieve your new records for you.

about
Will PicnicHealth cost me anything?
What is PicnicHealth?
PicnicHealth is a service specialized in helping patient collect and manage their medical records.

How is PicnicHealth related to UnitedHealthcare?
UnitedHealthcare is partnering with PicnicHealth as part of a Family Engagement Center initiative. Your child will receive PicnicHealth's services for free, which includes getting a PicnicHealth timeline with all of your child’s medical records in one place.  

What does PicnicHealth do? 
PicnicHealth collects your child’s medical records on your behalf and helps you manage them in a PicnicHealth timeline. When you see the doctor again, we’ll update your PicnicHealth timeline with the new records. You can access your medical records from anywhere and even share them with your child’s doctors with a few clicks.

Can I see what a PicnicHealth account looks like?
Yes. You can view this sample timeline.  

Will PicnicHealth cost me anything?
You’ll receive PicnicHealth’s service free of charge in partnership with UnitedHealthcare during the first year pilot program. One year after you start using PicnicHealth, your child’s PicnicHealth timeline will continue to be available, but no new records will be added. If UnitedHealthcare and PicnicHealth do not continue their partnership, you will have the option of subscribing directly.

How can I use my PicnicHealth timeline?
The PicnicHealth timeline provides a single source of information for you, your child’s doctors, and your UnitedHealthcare Family Advisors and Clinicians. It is a tool to help you coordinate care and navigate the diagnostic journey and can be shared with a few clicks. When you share your child’s medical records, the recipient will receive a secure link and get instant access to your child’s medical history.

You’ll receive PicnicHealth’s service free of charge for the duration of the study as long as you’re a participant. This means that you will be able to access all historical records and the prospective records collected during the study indefinitely.

what-to-expect
What should I do if I see a new doctor?
What is PicnicHealth?
PicnicHealth is a service specialized in helping patient collect and manage their medical records.

How is PicnicHealth related to UnitedHealthcare?
UnitedHealthcare is partnering with PicnicHealth as part of a Family Engagement Center initiative. Your child will receive PicnicHealth's services for free, which includes getting a PicnicHealth timeline with all of your child’s medical records in one place.  

What does PicnicHealth do? 
PicnicHealth collects your child’s medical records on your behalf and helps you manage them in a PicnicHealth timeline. When you see the doctor again, we’ll update your PicnicHealth timeline with the new records. You can access your medical records from anywhere and even share them with your child’s doctors with a few clicks.

Can I see what a PicnicHealth account looks like?
Yes. You can view this sample timeline.  

Will PicnicHealth cost me anything?
You’ll receive PicnicHealth’s service free of charge in partnership with UnitedHealthcare during the first year pilot program. One year after you start using PicnicHealth, your child’s PicnicHealth timeline will continue to be available, but no new records will be added. If UnitedHealthcare and PicnicHealth do not continue their partnership, you will have the option of subscribing directly.

How can I use my PicnicHealth timeline?
The PicnicHealth timeline provides a single source of information for you, your child’s doctors, and your UnitedHealthcare Family Advisors and Clinicians. It is a tool to help you coordinate care and navigate the diagnostic journey and can be shared with a few clicks. When you share your child’s medical records, the recipient will receive a secure link and get instant access to your child’s medical history.

At the top of your timeline, click on "Doctors" to add new doctors or medical facilities. PicnicHealth will then collect your records from your new doctors.

what-to-expect
Can I stop participating in the study?
What is PicnicHealth?
PicnicHealth is a service specialized in helping patient collect and manage their medical records.

How is PicnicHealth related to UnitedHealthcare?
UnitedHealthcare is partnering with PicnicHealth as part of a Family Engagement Center initiative. Your child will receive PicnicHealth's services for free, which includes getting a PicnicHealth timeline with all of your child’s medical records in one place.  

What does PicnicHealth do? 
PicnicHealth collects your child’s medical records on your behalf and helps you manage them in a PicnicHealth timeline. When you see the doctor again, we’ll update your PicnicHealth timeline with the new records. You can access your medical records from anywhere and even share them with your child’s doctors with a few clicks.

Can I see what a PicnicHealth account looks like?
Yes. You can view this sample timeline.  

Will PicnicHealth cost me anything?
You’ll receive PicnicHealth’s service free of charge in partnership with UnitedHealthcare during the first year pilot program. One year after you start using PicnicHealth, your child’s PicnicHealth timeline will continue to be available, but no new records will be added. If UnitedHealthcare and PicnicHealth do not continue their partnership, you will have the option of subscribing directly.

How can I use my PicnicHealth timeline?
The PicnicHealth timeline provides a single source of information for you, your child’s doctors, and your UnitedHealthcare Family Advisors and Clinicians. It is a tool to help you coordinate care and navigate the diagnostic journey and can be shared with a few clicks. When you share your child’s medical records, the recipient will receive a secure link and get instant access to your child’s medical history.

Yes. Your participation in this study is completely voluntary and you can withdraw at any time.  If you choose to stop participating, your information will no longer be shared with researchers, but your medical records will remain available for you through your PicnicHealth account.  At that time, we will stop collecting any new medical records. You can download copies of your records at any time.  You can always tell PicnicHealth to delete your medical records, although the information that has already been shared with third party partners, such as Ultragenyx or other academic researchers, can’t be deleted.

What is PicnicHealth?
PicnicHealth is a service specialized in helping patient collect and manage their medical records.

How is PicnicHealth related to UnitedHealthcare?
UnitedHealthcare is partnering with PicnicHealth as part of a Family Engagement Center initiative. Your child will receive PicnicHealth's services for free, which includes getting a PicnicHealth timeline with all of your child’s medical records in one place.  

What does PicnicHealth do? 
PicnicHealth collects your child’s medical records on your behalf and helps you manage them in a PicnicHealth timeline. When you see the doctor again, we’ll update your PicnicHealth timeline with the new records. You can access your medical records from anywhere and even share them with your child’s doctors with a few clicks.

Can I see what a PicnicHealth account looks like?
Yes. You can view this sample timeline.  

Will PicnicHealth cost me anything?
You’ll receive PicnicHealth’s service free of charge in partnership with UnitedHealthcare during the first year pilot program. One year after you start using PicnicHealth, your child’s PicnicHealth timeline will continue to be available, but no new records will be added. If UnitedHealthcare and PicnicHealth do not continue their partnership, you will have the option of subscribing directly.

How can I use my PicnicHealth timeline?
The PicnicHealth timeline provides a single source of information for you, your child’s doctors, and your UnitedHealthcare Family Advisors and Clinicians. It is a tool to help you coordinate care and navigate the diagnostic journey and can be shared with a few clicks. When you share your child’s medical records, the recipient will receive a secure link and get instant access to your child’s medical history.