Shape the future of hemophilia research
When you contribute your de-identified medical records to hemophilia research, you join thousands of other patients who have participated in research and empowered their communities through PicnicHealth.
Participate from home
No extra labs, procedures, or study visits
Eligible participants can receive up to $650 in compensation
You may be eligible to join the MARVL-US Study if you:
- Have a confirmed hereditary hemophilia A or B diagnosis
- Are currently treated with or intend to start HYMPAVZI™ (marstacimab-hncq)
- Are 6 years of age or older
- Reside and receive care in the U.S.
About the MARVL-US Study
The MARVL-US Study is designed to unlock a clearer understanding of how HYMPAVZI™ (marstacimab-hncq) impacts the health and daily life of individuals living with hemophilia in real-world settings and routine care, beyond the clinical trial experience through de-identified medical record collection and surveys. Sign up takes 10 minutes or less. Once enrolled, you will be asked to complete up to 6 paid surveys online for the first year. PicnicHealth will take care of the rest.
By allowing PicnicHealth to collect, digitize and de-identify (removal of personal details) your or your child’s medical records, you have the opportunity to participate in hemophilia research while staying in control of your health data.
The study team will use your records and survey responses to better understand how HYMPAVZI™ (marstacimab-hncq) impacts your hemophilia in real-world settings.
What to expect
Medical Record Collection
Eligibility Verification
Paid Surveys
You’ll get a free PicnicHealth account and access to your medical history
By participating in MARVL-US Study, you’ll get access to any of the records we collect on your behalf. Data from your records will be de-identified and combined with others for researchers to analyze and provide insights into the lived experience of individuals who meet the study criteria. Your/your child’s medical records are yours to keep, forever.
PicnicHealth account benefits
Tools and visualizations
Zoom in on what’s most important and track trends over time.
Care management toolkit
Keep track of active medications and health concerns and receive clinical support.
Easy sharing
New doctor? Share your/your child’s records to get the care you need without wasting time.
Contribute to a deeper understanding of HYMPAVZI™ (marstacimab-hncq) for hemophilia
Sign upHow It Works
Sign up in minutes
To sign up, simply confirm your/your child's hemophilia diagnosis, HYMPAVZI™ (marstacimab-hncq) prescription, and provide the names of a few healthcare providers. With your consent, PicnicHealth will compile your health history into a secure, regularly updated digital timeline that only you can access.
Sign up
We’ll gather your records
PicnicHealth will do all the work to gather your/your child’s medical records once you sign up. With instant, secure connections to thousands of healthcare institutions, we’re usually able to find most of your records in minutes, and we’ll organize everything into an easy-to-use dashboard.
MARVL-US combines and analyzes medical records
As part of this non-interventional study (research that observes your health without asking you to try new treatments), the MARVL-US research team may analyze you or your child's de-identified data and survey responses alongside other participants' to better understand real-world HYMPAVZI™ (marstacimab-hncq) use and how hemophilia affects daily life.
To protect your privacy, your name and personal details are removed through de-identification, ensuring researchers receive only essential health information. By combining data from many participants, the study can identify patterns and insights that may not be visible to any single healthcare provider.
Records are yours to keep
We’ll continue to collect new records for the duration of the study. Any records collected are yours to keep forever, to use and share as you please.
Ready to get started?
FAQs
The MARVL-US Study is a study sponsored by Pfizer. This new study is designed to unlock a clearer understanding of how HYMPAVZI™ (marstacimab-hncq) impacts the health and daily life of individuals living with hemophilia in real-world settings and routine care, beyond the clinical trial experience.
By joining, you’ll help advance medical knowledge of hemophilia and support research into how people feel about their hemophilia when taking HYMPAVZI™ (marstacimab-hncq). The medical records and survey responses PicnicHealth collects may help improve care, guide treatment decisions, and lead to a better future for everyone affected by hemophilia.
You are eligible for participating in the MARVL-US Study if you:
- Have a confirmed hereditary hemophilia A or B diagnosis
- Are currently treated with or intend to start HYMPAVZI™ (marstacimab-hncq)
- Are 6 years of age or older
- Reside and receive care in the U.S.
PicnicHealth is a secure health technology partner selected by Pfizer to support the MARVL-US Study. They collect and organize your medical records on your behalf. PicnicHealth will only share de-identified data with the research team—meaning your name and personal information are removed before researchers access anything.
- You’ll review and sign a one-time consent form online.
- Once signed up, PicnicHealth will collect your medical records directly from your healthcare providers.
- During the study, you will be asked to complete up to 6 paid surveys online for the first year.
- There are no clinic visits, labs, or extra procedures involved.
Only de-identified information is shared with the research team. Your name, contact information, and other identifying details are removed before your data is used for research. PicnicHealth follows strict privacy and security protocols and does not share your information for marketing or other non-research purposes.
PicnicHealth will only share de-identified data with the research team, meaning your name and personal information are removed before researchers are provided access to any data. Additionally, PicnicHealth will only share information relevant to the research study (like your hematology records) with the sponsor.
Yes. You'll receive a $200 e-gift card for enrolling into the study and $75 for each survey you complete. You'll also get a free PicnicHealth account that allows you to view and manage your own medical records online for the duration of the study. The e-gift card can be claimed online from your PicnicHealth dashboard and emailed to you from GiftBit.
Compensation is redeemable once we confirm that you meet the eligibility criteria for the study and after completing each survey. Confirming eligibility usually takes 1-3 weeks, depending on how quickly we retrieve your medical records.
The study team will continue to collect your medical records for up to 3 years. You will only be asked to complete surveys for the first year of participation. After that, PicnicHealth will take care of the rest.
Yes. Participation is voluntary, and you can withdraw at any time. If you do, no new records will be collected, though de-identified data already shared with the research partner may still be used for research.
If you have questions about PicnicHealth or the MARVL-US Study, please contact PicnicHealth directly. You can reach out to the PicnicHealth team at marvl-us@picnicresearch.com call at (415) 680-3085.
PicnicHealth is a leading health technology company simplifying healthcare for everyone. Through a combination of clinical expertise and technology, PicnicHealth provides patients with their organized medical records to prepare for doctor visits and advocate for themselves. Patients can also more easily participate in non-interventional research (research that observes your health without asking you to try new treatments) to advance medicine and enrich lives.
We’ll start by searching for any of your records through our connected network of healthcare facilities that can release your records electronically. If necessary, direct requests can also be sent to your healthcare providers. Electronic records available through our connected network can be available within an hour, while records from direct requests may take a couple of weeks.
PicnicHealth will never share your records without your explicit consent. By signing up for this study, you're agreeing to share your de-identified data with Pfizer for the purpose of inclusion in or informing the MARVL-US Study. Outside of that, no one will be able to see your medical records unless you choose to share them by clicking "Send Records" at the top of the PicnicHealth timeline.
You will be the only person who can access your medical records on PicnicHealth. No one — including your doctor or insurance company — will be able to see your medical records unless you choose to share them by clicking "Send Records" at the top of the PicnicHealth timeline.
PicnicHealth follows HIPAA-compliant practices (federal laws that protect your health information) and uses advanced end-to-end encryption and security measures, the same technology banks use to keep information secure. Your records are only shared with your permission.
No, there is no cost to participate in the MARVL-US Study. You’ll receive free access to PicnicHealth for the duration of the study. During this time, your medical records will be collected, digitized, and organized in a secure timeline you can view anytime.
After the study ends, you’ll keep all your records. If you want PicnicHealth to continue updating your timeline, you can choose to subscribe at a discounted rate.
For more details or assistance regarding the PicnicHealth platform and medical record services, visit our website or reach out to the PicnicHealth team at hello@picnicresearch.com call at (415) 680-3085.
“With PicnicHealth, I was able to eliminate the tedious work and stress of managing my records allowing me to focus on my care and living!”
PicnicHealth Research Participant
