Have questions? Speak with a member of our team by calling 

Accelerate Classic Congenital Adrenal Hyperplasia (CAH) research from home.

PicnicHealth is teaming up with Clinical Connection to help propel research and optimize care for those living with Classic Congenital Adrenal Hyperplasia (CAH).

After you sign up, and we confirm your eligibility, you will receive $25.

Why join?

Get your records, give to science

Your health in your hands.

Access all of your medical records directly from your PicnicHealth account. Just go to your appointments, and we do the rest.

  • View doctors’ notes, test results, medications, imaging, and more.
  • Search your records by visit date, doctor, location, or keyword.
  • We’ll update you when we add new records.

Share records seamlessly.

Coordinate your healthcare with a click. PicnicHealth makes it easy to share records with a new specialist, or just keep your family in the loop.

  • Share records directly via email, text message, or link.
  • Set custom security measures to share your records securely.
  • Pause or remove access any time.

Accelerate research from home.

Contributing to research has never been easier. Earn rewards for sharing your records with researchers, answering questions about your health, and referring friends.

  • Share your anonmyized records with CAH researchers.
  • Earn rewards for completing surveys about your health.
  • Refer members of your community to participate.
Research Impact

Your records make a difference

Data contained in medical records tells the true story of each individual's journey with CAH. This information is powerful for you, your loved ones, and the CAH community.

Medical records help researchers learn:

  • Can we provide patients with new treatments without a formal clinical trial?
  • How can we examine diseases over time to find what risk factors correlate with occurrence and progression?
  • How do we understand how medical treatments work for real people in the normal course of care?
8.1M+

Records Collected

250k+

Providers on Record

50+

Partner Organizations

How it works

1.  Sign up in minutes

Answer a few questions about your medical care and which doctors you’ve seen.

2. We gather your records

Our team will collect and digitize your medical records at no cost to you. No uploads or appointments necessary.

3. Manage your health

Once we’ve digitized your records, access all of your records right from your PicnicHealth account - doctors’ notes, test results, imaging and more.

4. Opt in to research

Your records are completely de-identified, then analyzed together with records from others.

How it works

1.  Sign up in minutes

Answer a few questions about your loved one's medical care and which doctors they've seen.

2. We gather your loved one's records

Our team will collect and digitize your loved one's medical records at no cost to you. No uploads or appointments necessary.

3. Manage your loved one's health

Once we’ve digitized your loved one's records, access all of their records right from your PicnicHealth account - doctors’ notes, test results, imaging and more.

4. Opt in to research

Your loved one's records are completely de-identified, then analyzed together with records from others.

Privacy & Security

At PicnicHealth, we’re patients too, so we know how important it is that your loved one's private data stays private. Here’s our promise:

Security

We protect your loved one's personal information with military grade encryption and abide by HIPAA compliant practices.

Privacy

Your loved one's data is fully de-identified. We only share datasets that are structured for research, never redacted medical records.

Transparency

PicnicHealth will ask for your consent every time before sharing any information with any partners. You can opt out at any time.

Responsibility

We use an IRB (Institutional Review Board) and work with a team of physicians to protect the best interest of our research volunteers.

REAL PEOPLE, REAL STORIES
"After the initial shock and devastation of my diagnosis, I wanted to fight the disease in any way I could, and participating in medical research became my way of fighting back. Research has been successful in helping to improve treatments, but until there’s a cure, my fight will continue."
Lisa Marie
PicnicHealth Research Participant
REAL PEOPLE, REAL STORIES
"After the initial shock and devastation of my diagnosis, I wanted to fight the disease in any way I could, and participating in medical research became my way of fighting back. Research has been successful in helping to improve treatments, but until there’s a cure, my fight will continue."
Lisa Marie
PicnicHealth Research Participant
REAL PEOPLE, REAL STORIES
I helped start PicnicHealth because I believe there’s nothing more rewarding than shaping the future of research. I firmly believe technology can improve outcomes for bleeding disorder patients.
Gillian Hanson
PicnicHealth founding team member, physician, and Von Willebrand's patient

Privacy & Security

At PicnicHealth, we’re patients too, so we know how important it is that your private data stays private. Here’s our promise:

Security

We protect your personal information with military grade encryption and abide by HIPAA compliant practices.

Privacy

Your data is fully de-identified. We only share datasets that are structured for research, never redacted medical records.

Transparency

PicnicHealth will ask for your consent every time before sharing any information with any partners. You can opt out at any time.

Responsibility

We use an IRB (Institutional Review Board) and work with a team of physicians to protect the best interest of our research volunteers.

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1
2
2
3
3
REAL PEOPLE, REAL STORIES
"After the initial shock and devastation of my diagnosis, I wanted to fight the disease in any way I could, and participating in medical research became my way of fighting back. Research has been successful in helping to improve treatments, but until there’s a cure, my fight will continue."
Lisa Marie
PicnicHealth Research Participant
REAL PEOPLE, REAL STORIES
"After the initial shock and devastation of my diagnosis, I wanted to fight the disease in any way I could, and participating in medical research became my way of fighting back. Research has been successful in helping to improve treatments, but until there’s a cure, my fight will continue."
Lisa Marie
PicnicHealth Research Participant
REAL PEOPLE, REAL STORIES
I helped start PicnicHealth because I believe there’s nothing more rewarding than shaping the future of research. I firmly believe technology can improve outcomes for bleeding disorder patients.
Gillian Hanson
PicnicHealth founding team member, physician, and Von Willebrand's patient

Privacy & Security

At PicnicHealth, we’re patients too, so we know how important it is that your loved one's private data stays private. Here’s our promise:

Security

We protect your loved one's personal information with military grade encryption and abide by HIPAA compliant practices.

Privacy

Your loved one's data is fully de-identified. We only share datasets that are structured for research, never redacted medical records.

Transparency

PicnicHealth will ask for your consent every time before sharing any information with any partners. You can opt out at any time.

Responsibility

We use an IRB (Institutional Review Board) and work with a team of physicians to protect the best interest of our research volunteers.

Privacy & Security

At PicnicHealth, we’re patients too, so we know how important it is that your private data stays private. Here’s our promise:

Security

We protect your personal information with military grade encryption and abide by HIPAA compliant practices.

Privacy

Your data is fully de-identified. We only share datasets that are structured for research, never redacted medical records.

Transparency

PicnicHealth will ask for your consent every time before sharing any information with any partners. You can opt out at any time.

Responsibility

We use an IRB (Institutional Review Board) and work with a team of physicians to protect the best interest of our research volunteers.

How it works

1.  Sign up in minutes

Answer a few questions about your loved one's medical care and which doctors they've seen.

2. We gather your loved one's records

Our team will collect and digitize your loved one's medical records at no cost to you. No uploads or appointments necessary.

3. Manage your loved one's health

Once we’ve digitized your loved one's records, access all of their records right from your PicnicHealth account - doctors’ notes, test results, imaging and more.

4. Opt in to research

Your loved one's records are completely de-identified, then analyzed together with records from others.

How it works

1.  Sign up in minutes

Answer a few questions about your medical care and which doctors you’ve seen.

2. We gather your records

Our team will collect and digitize your medical records at no cost to you. No uploads or appointments necessary.

3. Manage your health

Once we’ve digitized your records, access all of your records right from your PicnicHealth account - doctors’ notes, test results, imaging and more.

4. Opt in to research

Your records are completely de-identified, then analyzed together with records from others.

Why join?

Get your records, give to science

Your health in your hands.

Access all of your medical records directly from your PicnicHealth account. Just go to your appointments, and we do the rest.

  • View doctors’ notes, test results, medications, imaging, and more.
  • Search your records by visit date, doctor, location, or keyword.
  • We’ll update you when we add new records.

Share records seamlessly.

Coordinate your healthcare with a click. PicnicHealth makes it easy to share records with a new specialist, or just keep your family in the loop.

  • Share records directly via email, text message, or link.
  • Set custom security measures to share your records securely.
  • Pause or remove access any time.

Accelerate research from home.

Contributing to research has never been easier. Earn rewards for sharing your records with researchers, answering questions about your health, and referring friends.

  • Share your anonmyized records with CAH researchers.
  • Earn rewards for completing surveys about your health.
  • Refer members of your community to participate.
Research Impact

Your records make a difference

Data contained in medical records tells the true story of each individual's journey with CAH. This information is powerful for you, your loved ones, and the CAH community.

Medical records help researchers learn:

  • Can we provide patients with new treatments without a formal clinical trial?
  • How can we examine diseases over time to find what risk factors correlate with occurrence and progression?
  • How do we understand how medical treatments work for real people in the normal course of care?
8.1M+

Records Collected

250k+

Providers on Record

50+

Partner Organizations

REAL PEOPLE, REAL STORIES
"After the initial shock and devastation of my diagnosis, I wanted to fight the disease in any way I could, and participating in medical research became my way of fighting back. Research has been successful in helping to improve treatments, but until there’s a cure, my fight will continue."
Lisa Marie
PicnicHealth Research Participant
REAL PEOPLE, REAL STORIES
"After the initial shock and devastation of my diagnosis, I wanted to fight the disease in any way I could, and participating in medical research became my way of fighting back. Research has been successful in helping to improve treatments, but until there’s a cure, my fight will continue."
Lisa Marie
PicnicHealth Research Participant
REAL PEOPLE, REAL STORIES
I helped start PicnicHealth because I believe there’s nothing more rewarding than shaping the future of research. I firmly believe technology can improve outcomes for bleeding disorder patients.
Gillian Hanson
PicnicHealth founding team member, physician, and Von Willebrand's patient

Privacy & Security

At PicnicHealth, we’re patients too, so we know how important it is that your loved one's private data stays private. Here’s our promise:

Security

We protect your loved one's personal information with military grade encryption and abide by HIPAA compliant practices.

Privacy

Your loved one's data is fully de-identified. We only share datasets that are structured for research, never redacted medical records.

Transparency

PicnicHealth will ask for your consent every time before sharing any information with any partners. You can opt out at any time.

Responsibility

We use an IRB (Institutional Review Board) and work with a team of physicians to protect the best interest of our research volunteers.

Privacy & Security

At PicnicHealth, we’re patients too, so we know how important it is that your private data stays private. Here’s our promise:

Security

We protect your personal information with military grade encryption and abide by HIPAA compliant practices.

Privacy

Your data is fully de-identified. We only share datasets that are structured for research, never redacted medical records.

Transparency

PicnicHealth will ask for your consent every time before sharing any information with any partners. You can opt out at any time.

Responsibility

We use an IRB (Institutional Review Board) and work with a team of physicians to protect the best interest of our research volunteers.

How it works

1.  Sign up in minutes

Answer a few questions about your loved one's medical care and which doctors they've seen.

2. We gather your loved one's records

Our team will collect and digitize your loved one's medical records at no cost to you. No uploads or appointments necessary.

3. Manage your loved one's health

Once we’ve digitized your loved one's records, access all of their records right from your PicnicHealth account - doctors’ notes, test results, imaging and more.

4. Opt in to research

Your loved one's records are completely de-identified, then analyzed together with records from others.

How it works

1.  Sign up in minutes

Answer a few questions about your medical care and which doctors you’ve seen.

2. We gather your records

Our team will collect and digitize your medical records at no cost to you. No uploads or appointments necessary.

3. Manage your health

Once we’ve digitized your records, access all of your records right from your PicnicHealth account - doctors’ notes, test results, imaging and more.

4. Opt in to research

Your records are completely de-identified, then analyzed together with records from others.

REAL PEOPLE, REAL STORIES
"After the initial shock and devastation of my diagnosis, I wanted to fight the disease in any way I could, and participating in medical research became my way of fighting back. Research has been successful in helping to improve treatments, but until there’s a cure, my fight will continue."
Lisa Marie
PicnicHealth Research Participant
REAL PEOPLE, REAL STORIES
"After the initial shock and devastation of my diagnosis, I wanted to fight the disease in any way I could, and participating in medical research became my way of fighting back. Research has been successful in helping to improve treatments, but until there’s a cure, my fight will continue."
Lisa Marie
PicnicHealth Research Participant
REAL PEOPLE, REAL STORIES
I helped start PicnicHealth because I believe there’s nothing more rewarding than shaping the future of research. I firmly believe technology can improve outcomes for bleeding disorder patients.
Gillian Hanson
PicnicHealth founding team member, physician, and Von Willebrand's patient
Why join?

Get your records, give to science

Your health in your hands.

Access all of your medical records directly from your PicnicHealth account. Just go to your appointments, and we do the rest.

  • View doctors’ notes, test results, medications, imaging, and more.
  • Search your records by visit date, doctor, location, or keyword.
  • We’ll update you when we add new records.

Share records seamlessly.

Coordinate your healthcare with a click. PicnicHealth makes it easy to share records with a new specialist, or just keep your family in the loop.

  • Share records directly via email, text message, or link.
  • Set custom security measures to share your records securely.
  • Pause or remove access any time.

Accelerate research from home.

Contributing to research has never been easier. Earn rewards for sharing your records with researchers, answering questions about your health, and referring friends.

  • Share your anonmyized records with CAH researchers.
  • Earn rewards for completing surveys about your health.
  • Refer members of your community to participate.
Research Impact

Your records make a difference

Data contained in medical records tells the true story of each individual's journey with CAH. This information is powerful for you, your loved ones, and the CAH community.

Medical records help researchers learn:

  • Can we provide patients with new treatments without a formal clinical trial?
  • How can we examine diseases over time to find what risk factors correlate with occurrence and progression?
  • How do we understand how medical treatments work for real people in the normal course of care?
8.1M+

Records Collected

250k+

Providers on Record

50+

Partner Organizations

Privacy & Security

At PicnicHealth, we’re patients too, so we know how important it is that your loved one's private data stays private. Here’s our promise:

Security

We protect your loved one's personal information with military grade encryption and abide by HIPAA compliant practices.

Privacy

Your loved one's data is fully de-identified. We only share datasets that are structured for research, never redacted medical records.

Transparency

PicnicHealth will ask for your consent every time before sharing any information with any partners. You can opt out at any time.

Responsibility

We use an IRB (Institutional Review Board) and work with a team of physicians to protect the best interest of our research volunteers.

Privacy & Security

At PicnicHealth, we’re patients too, so we know how important it is that your private data stays private. Here’s our promise:

Security

We protect your personal information with military grade encryption and abide by HIPAA compliant practices.

Privacy

Your data is fully de-identified. We only share datasets that are structured for research, never redacted medical records.

Transparency

PicnicHealth will ask for your consent every time before sharing any information with any partners. You can opt out at any time.

Responsibility

We use an IRB (Institutional Review Board) and work with a team of physicians to protect the best interest of our research volunteers.

REAL PEOPLE, REAL STORIES
"After the initial shock and devastation of my diagnosis, I wanted to fight the disease in any way I could, and participating in medical research became my way of fighting back. Research has been successful in helping to improve treatments, but until there’s a cure, my fight will continue."
Lisa Marie
PicnicHealth Research Participant
REAL PEOPLE, REAL STORIES
"After the initial shock and devastation of my diagnosis, I wanted to fight the disease in any way I could, and participating in medical research became my way of fighting back. Research has been successful in helping to improve treatments, but until there’s a cure, my fight will continue."
Lisa Marie
PicnicHealth Research Participant
REAL PEOPLE, REAL STORIES
I helped start PicnicHealth because I believe there’s nothing more rewarding than shaping the future of research. I firmly believe technology can improve outcomes for bleeding disorder patients.
Gillian Hanson
PicnicHealth founding team member, physician, and Von Willebrand's patient
Why join?

Get your records, give to science

Your health in your hands.

Access all of your medical records directly from your PicnicHealth account. Just go to your appointments, and we do the rest.

  • View doctors’ notes, test results, medications, imaging, and more.
  • Search your records by visit date, doctor, location, or keyword.
  • We’ll update you when we add new records.

Share records seamlessly.

Coordinate your healthcare with a click. PicnicHealth makes it easy to share records with a new specialist, or just keep your family in the loop.

  • Share records directly via email, text message, or link.
  • Set custom security measures to share your records securely.
  • Pause or remove access any time.

Accelerate research from home.

Contributing to research has never been easier. Earn rewards for sharing your records with researchers, answering questions about your health, and referring friends.

  • Share your anonmyized records with CAH researchers.
  • Earn rewards for completing surveys about your health.
  • Refer members of your community to participate.

Privacy & Security

At PicnicHealth, we’re patients too, so we know how important it is that your loved one's private data stays private. Here’s our promise:

Security

We protect your loved one's personal information with military grade encryption and abide by HIPAA compliant practices.

Privacy

Your loved one's data is fully de-identified. We only share datasets that are structured for research, never redacted medical records.

Transparency

PicnicHealth will ask for your consent every time before sharing any information with any partners. You can opt out at any time.

Responsibility

We use an IRB (Institutional Review Board) and work with a team of physicians to protect the best interest of our research volunteers.

Privacy & Security

At PicnicHealth, we’re patients too, so we know how important it is that your private data stays private. Here’s our promise:

Security

We protect your personal information with military grade encryption and abide by HIPAA compliant practices.

Privacy

Your data is fully de-identified. We only share datasets that are structured for research, never redacted medical records.

Transparency

PicnicHealth will ask for your consent every time before sharing any information with any partners. You can opt out at any time.

Responsibility

We use an IRB (Institutional Review Board) and work with a team of physicians to protect the best interest of our research volunteers.

Research Impact

Your records make a difference

Data contained in medical records tells the true story of each individual's journey with CAH. This information is powerful for you, your loved ones, and the CAH community.

Medical records help researchers learn:

  • Can we provide patients with new treatments without a formal clinical trial?
  • How can we examine diseases over time to find what risk factors correlate with occurrence and progression?
  • How do we understand how medical treatments work for real people in the normal course of care?
8.1M+

Records Collected

250k+

Providers on Record

50+

Partner Organizations

"PicnicHealth makes it possible for patients like you and I to have a voice in the medical research community. It means the world to me that I can participate in the advancement of care and knowledge for my condition.”

Chelsea
PicnicHealth Research Participant

"It’s important to me to bring awareness to the disease and do my part to help future patients. Sending records to researchers is just the start of what we can do!”

Cristie
PicnicHealth Research Participant

“I participate in research to help generations after me not to go through the same pain.”

Nadine
PicnicHealth Research Participant

HOW WE WORK

Clinical Connection

Clinical Connection and PicnicHealth have teamed up to facilitate convenient participation for patients in studies that may help reshape the future of medical progress. Together we are helping to link patients with studies tailored to their requirements.

Medical Record Access

Access your medical records anywhere, anytime

PicnicHealth’s platform connects you with a comprehensive timeline of your medical records, updated when you request new records. Best of all, qualified patients can join for free.

Help breast cancer research while earning rewards

When you complete surveys on the PicnicHealth platform you can earn rewards. Your surveys help researchers understand your daily experience and capture insights that may not be available in your medical records.

How PicnicHealth Works

We believe that better care happens when you have control over your records.

Join For Free

Tell us about your care

Just answer a few questions about yourself and let us know who your doctors are. As soon as you finish signing up, we’ll start contacting your doctors and hospitals.

Join Now

We’ll start building your timeline

No calling, faxing, or paperwork for you! We’ll brave the hold music and contact every one of your doctors to make sure they’ve received and processed our request.

You're In Control

With your records consolidated in one place, you’ll be able to access them whenever you need them. Pull up your medical information anywhere you have internet access—and share it securely with your care team.

Earn rewards completing health surveys at home

When you join PicnicHealth, you may be invited to complete health and well-being surveys. These surveys help researchers understand your daily experience and capture insights that may not be available in your medical records.

You can complete surveys from your PicnicHealth account, you may also receive compensation for sharing your story.

HOW WE WORK

Clinical Connection

Clinical Connection and PicnicHealth have teamed up to facilitate convenient participation for patients in studies that may help reshape the future of medical progress. Together we are helping to link patients with studies tailored to their requirements.

Medical Record Access

Access your medical records anytime, anywhere

PicnicHealth organizes all of your medical records in one simple timeline that updates automatically. Keep track of your health history and share important information with your care team.

Learn from other IgA Nephropathy patients

Whether you're caring for a loved one or managing your own care, IgAN Warriors has your back. Explore resources, stories, and tips shared by Change Champions and experts within your IgAN community.

How PicnicHealth Works

Join Now

Sign up for PicnicHealth in less than five minutes

Just answer a few questions about yourself and let us know who your doctors are. As soon as you finish signing up, we’ll start connecting you with your medical records.

Change Champions

Meet Other IgAN Patients Who Have Empowered Themselves Through PicnicHealth

Your medical history,
your control

We securely store your data, but you're in charge. We know this is your most private information, so it's entirely up to you if and when you want to give access to anyone else. Whether that's a doctor or a research study, our job is to make sure your records are fully under your control.

Change Champions

Meet Other IgAN Patients Who Have Empowered Themselves Through PicnicHealth

Unlock your health journey
with PicnicHealth

  • Use your timeline for care management
  • Connect with your IgAN community
  • Learn how your research participation is making an impact
IGAN WARRIORS Change Champions

Meet Other IgAN Patients Who Have Empowered Themselves Through PicnicHealth

Frequently Asked Questions
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Accelerate Classic Congenital Adrenal Hyperplasia (CAH) research from home.

PicnicHealth is teaming up with Clinical Connection to help propel research and optimize care for those living with Classic Congenital Adrenal Hyperplasia (CAH).

After you sign up, and we confirm your eligibility, you will receive $25.

Join Now
Who is eligible to join?
  • Diagnosed with Classic CAH
  • Received medical care in the U.S.

“Research is extremely important to me. With research we will be able to fully understand if there are preventative measures that can be taken that could either slow the progression of other symptoms or totally eliminate them.”

Janet
VISTA research participant

“Research is what gives doctors the information they need to best treat my child. It is how we get new medicines. It develops new things to improve the quality of life. We're grateful for research, so very grateful.”

Melissa
VISTA research participant

Your records make a difference

Data contained in medical records tells the true story of each individual's journey with CAH. This information is powerful for you, your loved ones, and the CAH community.

Medical records help researchers learn:

  • Can we provide patients with new treatments without a formal clinical trial?
  • How can we examine diseases over time to find what risk factors correlate with occurrence and progression?
  • How do we understand how medical treatments work for real people in the normal course of care?
Join Now

What does participation look like?

To sign up, all you need to do is confirm achondroplasia diagnosis, and provide the names of a few of your child's healthcare providers.

With your consent, PicnicHealth will then work to compile your child's complete health history into a digital timeline. All this information will be securely transferred to a private portal, that is updated regularly which only you can access.

Protecting Your Child's Privacy

We take privacy seriously.  When your child’s health data is gathered, we make sure to strip away any personal details that could identify them, using a process we call de-identification. This way researchers get the valuable health information they need, without any of the private information they don’t.  

Your child’s de-identified data will only be shared with the VISTA study researchers.  You can learn more about this in our data ownership policy.

Participate and Get Compensated

By joining VISTA, both you and your child will have the opportunity to complete short (10-15 minutes long) surveys every six months about health and daily life, right from your Picnichealth account. These surveys are not just a way for you to earn compensation – they’re also a crucial tool for researchers, helping them understand aspects of your child’s health that aren’t captured in medical records.

The power of community in research

Learn more about our achondroplasia Change Champions and advocacy partners and how you can get involved!

Stay up to date with our newsletter

At PicnicHealth, we are people too - and we hate spam. Once a month, we’ll send you a newsletter that covers tips from your community, research updates, and inspirational stories.

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Frequently Asked Questions
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Share your loved one's story to change the future of CAH

Join Now
Have questions about how it works or PicnicHealth?
Email us at help@picnichealth.com.

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Subscribe to our newsletter to receive tips from your community, research updates, and stories from other patients.

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At PicnicHealth, we're patients too - and we hate spam. We promise to only send you the good stuff.

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