As a bleeding disorder, Hemophilia has the potential to create some serious problems for the patients that live with it every single day. Without the ability to properly clot your blood, it can be difficult to take many risks that could lead to excessive bleeding. Plus, this bleeding can occur internally at just about any time. This can significantly lower the patient’s overall quality of life, but there is a chance that it doesn’t have to be that way.
PicnicHealth has partnered with a number of pharmaceutical companies to provide patient data and de-identified medical histories to aid their novel therapy research. With so many companies on the trail of better understanding how Hemophilia is passed on and diagnosed, the hope is that there will be a solution to greatly improve the quality of life for patients all over the world.
The data we provide to our partners, which patients opt into, can help the research in these three main ways:
- De-identified medical records can help provide a better understanding of the physical and mental health of patients with Hemophilia as well as how those patients interact with our healthcare system.
- De-identified medical claims can help researchers assess the total cost of care in order to optimize outcomes and improve those costs.
- De-identified patient outcomes can help improve the overall impact of Hemophilia and lead to solutions that will improve the overall day-to-day quality of life.
Providing this data is easy to do and provides a great deal of helpful information to those that are actively trying to solve this disorder to either fix it or at least improve the patient’s life. Find out how you can help contribute the needed data to build the foundation for those that are diagnosed today and will be tomorrow.