Help accelerate change through real-world data research.

Change Champions are change agents in their communities and advocates for real-world data research and medical record access. Together, we can raise awareness about the conditions impacting you and your loved ones and accelerate research breakthroughs.

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"I joined Change Champions because I don't want anybody to ever feel the way that I felt. Being able to be supported to share my story and to be an advocate is just so meaningful to me.”

Cristie Field
Change Champion

What is a change champion?

Team Players

You know how to cultivate meaningful relationships ​and you ​value inclusivity on your platform and make space ​for all voices.

Community Leaders

You stay up to date with what is going on within ​your community, and can spot opportunities to ​bring PicnicHealth into the conversation.

Role Models

You are passionate about giving back to your ​community and impacting those around you in a ​positive way.

What you'll do as a change champion

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Impact your community

Educate your community on the power of ​real-world data research and how they can ​use PicnicHealth to own their health. You ​will also help us build future products and ​services by providing your valuable ​feedback.

Make Your Voice Heard

You know best what it is like living with ​your condition. We'll partner with you to ​raise awareness and educate others ​through blog posts, video interviews, ​webinar participation and other channels!

Spread The Word

Help us reach our goal of empowering all ​patients through medical records ​ownership and research breakthroughs.  ​Refer members of your community to ​PicnicHealth and receive swag along the ​way!

CAH

 Change Champion

Marc
 
P.

CAH

 Change Champion

Taylor
 
Nolen

Achondroplasia

 Change Champion

Lydia
 
H.

Achondroplasia

 Change Champion

Janet
 
B.

Articles by Change Champions

Prepared for the 2 Percent
Marc’s journey with CAH shows his strength, family support, and how he overcomes challenges every day.
Prepared for the 2 Percent
Marc’s journey with CAH shows his strength, family support, and how he overcomes challenges every day.
Maddox's Journey: Love, Challenges, and Advocacy in the World of CAH
Walking through life with salt-wasting congenital adrenal hyperplasia (CAH) brings its own set of ups and downs. For Taylor and her son, Maddox, it’s a path marked by sudden storms and sunny days, a mix of medical emergencies and moments of pure childhood joy. Here’s their story, told with the warmth and honesty that Taylor brings to every conversation.
Maddox's Journey: Love, Challenges, and Advocacy in the World of CAH
Walking through life with salt-wasting congenital adrenal hyperplasia (CAH) brings its own set of ups and downs. For Taylor and her son, Maddox, it’s a path marked by sudden storms and sunny days, a mix of medical emergencies and moments of pure childhood joy. Here’s their story, told with the warmth and honesty that Taylor brings to every conversation.
Making a Difference: A Closer Look at Rare Patient Voice's Role in Research
In celebration of Rare Disease Month, we are thrilled to shine a spotlight on Change Champions, dedicated partners, and organizations making a lasting impact on rare disease research throughout the year. At the forefront of this movement is Rare Patient Voice, a remarkable resource founded with a singular mission – to provide patients and family caregivers a platform to be heard by actively participating in diverse research endeavors, including rare diseases.
Making a Difference: A Closer Look at Rare Patient Voice's Role in Research
In celebration of Rare Disease Month, we are thrilled to shine a spotlight on Change Champions, dedicated partners, and organizations making a lasting impact on rare disease research throughout the year. At the forefront of this movement is Rare Patient Voice, a remarkable resource founded with a singular mission – to provide patients and family caregivers a platform to be heard by actively participating in diverse research endeavors, including rare diseases.

FAQs

Want to know more? Explore our most frequently asked, patient questions.

Why should I join?
What will I do?
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Ready to become a change champion?

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