Yet, it’s just the beginning. The novel therapies might not work for everyone, and a lot more work needs to be done. While randomized controlled trials remain a gold standard of advancing science, there’s another piece that’s essential to solving the Alzheimer’s research puzzle: real-world evidence.
Real-world evidence (RWE) takes data collected from the real world, outside of clinical trials, and uses it to assess patient outcomes. RWE for Alzheimer’s asks, What happens over a patient’s care journey? What works for different patients? Questions like these broaden our understanding of the day-to-day challenges of living with Alzheimer’s—and they’re key to paving the way to new advances and discoveries.
Today, reams of patient data are collected through electronic health records. It’s a potential gold mine of information for researchers, but RWE can only work its magic if patients share their data.
PicnicHealth offers a safe, secure, and easy way for real patients, in the real world, to share their medical records and be a part of the new wave of science. It takes just minutes to sign up, and when you do, your data is de-identified before it’s shared with researchers. You get something out of the bargain, too: access to your medical records, organized in a single timeline and accessible in one click.
Even better, RWE gives you the gratification of knowing that you’re contributing to vital research, almost effortlessly. It’s a chance to make your voice heard and move the needle on science. What if you were missing link to the next Alzheimer’s breakthrough?
- FDA Website. FDA’s Decision to Approve New Treatment for Alzheimer’s Disease. Accessed Nov. 17, 2021.
- More Alzheimer’s drugs head for FDA review: what scientists are watching. Nature. Nov. 15, 2021. Accessed Nov. 17, 2021.
- Alzheimer’s Association Website. 2021 Alzheimer’s Disease Facts and Figures. Accessed Nov. 17, 2021.