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How you can see all your medical records and support IBD research at the same time

Have you ever struggled to track down medical records from a past doctor visit? You’re not alone. “I founded PicnicHealth after managing a Crohn’s disease diagnosis. It started as a way to give patients more control navigating their own care,” said Noga Leviner, co-founder and CEO of PicnicHealth.

PicnicHealth does the hard work of tracking down medical records for patients, giving them access to their complete records, organized in one place. Users can view their whole medical history in a timeline view that includes doctor notes, imaging, lab results, medications and more. Patients can easily search for the information they need or share access with family members and doctors—which can be critical when seeing a new specialist.

“We save patients hours of work by contacting providers, collecting electronic and hard-copy records, digitizing and organizing everything into an easily-to-navigate format they can actually use,” said Leviner. By giving patients and their doctors full visibility into their medical history, PicnicHealth hopes to ensure patients get the best treatments—preventing redundant or suboptimal care.

“Every day we hear stories from patients where PicnicHealth has made a difference, whether it's catching something in a record that they weren’t aware of, avoiding unnecessary testing, or getting to a diagnosis faster because their doctor has all of the pieces to the puzzle,” said Leviner.

But Noga and her team at PicnicHealth also realized they were actually solving a much bigger problem by turning each patient’s messy, nonuniform medical records into structured data. The result not only helps patients directly but it also really moves the needle on research.

How do medical records help research? With PicnicHealth, patients can choose to contribute their data to scientific research, which helps life sciences researchers accelerate breakthroughs in care. Researchers use this anonymized “real-world data” to understand how diseases are experienced by patients and treated by clinicians in the real world, going beyond the highly controlled setting of clinical trials. The goal is to create better treatments that can ultimately improve outcomes for patients.

PicnicHealth has now helped tens of thousands of patients diagnosed with chronic or complex diseases, and most of them have actively opted-in to contribute their de-identified data to medical research. Patients can sign up in 10 minutes by providing basic info and the names of your doctors or hospitals. It’s free for anyone who volunteers to contribute their de-identified data to help research.

“Especially during the Covid era, we’ve heard from our users that they really appreciate being able to do their part for research easily from the safety of their home,” said Leviner.


Learn more and sign up for PicnicHealth at PicnicHealth.com/IBD.

We hope you found this session informative! Sign up for PicnicHealth’s Alzheimer’s research program below.

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LC-FAOD Odyssey: A Preliminary Analysis, presented at INFORM 2021

Data from real-world medical records:

(from 13 patients with LC-FAOD)

16 yrs old

Median age at enrollment

38% Female

15 providers / patient

7.5 years of data / patient

Data from patient-reported outcome (PRO) survey

(from 13 patients with LC-FAOD)

25,966

patients onboarded to platform

1,427,368

medical visits processed

56,861

facilities provided medical records

255,101

healthcare providers

95+

research programs

12

published posters and manuscripts

10

partnerships withtop 30 pharma

New Research

Discover how PicnicHealth data powered medical research in 2021

Keeping Patients at the Center

This year, experts from PicnicHealth joined podcasts, webisodes, virtual summits and much more to speak to the importance of patient-centric approaches when building complete, deep real-world datasets.

1

Build a support network.

If your loved one is in the early stages of Alzheimer’s, putting a support system together might not seem like priority #1. But it’s never too soon to build a network of people that you can turn to in times of need. Cultivate connections today with the people who can be there tomorrow, or whenever you might need a hand.

You may also want to connect with other Alzheimer’s caregivers through a support group, whether it meets in-person or online. In addition to the encouragement and empathy they provide, support groups can be a helpful source of tips, resources, and recommendations for navigating the world of Alzheimer’s.

2

Stay organized.

If your loved one is in the early stages of Alzheimer’s, putting a support system together might not seem like priority #1. But it’s never too soon to build a network of people that you can turn to in times of need. Cultivate connections today with the people who can be there tomorrow, or whenever you might need a hand.

You may also want to connect with other Alzheimer’s caregivers through a support group, whether it meets in-person or online. In addition to the encouragement and empathy they provide, support groups can be a helpful source of tips, resources, and recommendations for navigating the world of Alzheimer’s.

3

Plan for the future.

It isn’t always easy to look into the future with Alzheimer’s—but doing the legwork now will save you from stress later. If your loved one is in the early stages of illness, you can involve them in conversations about legal, financial, and long-term care planning decisions. Despite the difficulty of these topics, you’ll all feel empowered by facing them early, and you can move ahead with greater confidence.

4

Explore treatments and clinical trials.

It’s an exciting time for Alzheimer’s research, with new treatments in development and coming to market. Ask your loved one’s doctors about therapies they can try or clinical trials they can join. One easy way to participate in research is to sign up at PicnicHealth, which helps to advance Alzheimer’s science by sharing participants’ anonymous health data with some of the brightest minds in research.

5

Make time for self-care

It may seem self-centered to focus on self-care—but when you feel good, you can be a better caregiver. Whether it’s exercise, a mindfulness practice, a soak in the bath, or just time to rest when you need it, carve out those moments in the day when you can unwind, reset, and stay healthy mentally and physically. Think of it as building up your reserves of kindness, patience, and understanding—which can only benefit your loved one with Alzheimer’s. And don’t forget to keep a sense of humor along the way.

Click here for more caregiver tools and resources

Learn more about PicnicHealth's Research Program

Alan is PicnicHealth's Head of Marketing.

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Empower people to own their medical records. Advance medicine. We’re a passionate group of doctors, patients, data nerds, engineers, and builders, who believe in making something real that changes lives today and in the future.

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