Lifestyle Changes to Support Kidney Health

Lifestyle Changes to Manage IgAN Care
By 
the PicnicHealth Team
March 22, 2023
Blog post originally written by the AllStripes community team. AllStripes was acquired by PicnicHealth in 2023.

IgA nephropathy, also known as IgAN or Berger’s disease is a type of kidney disease that occurs when there is an excess build-up of immunoglobulin-A (IgA) within the kidneys. If left untreated, this can cause inflammation of the kidneys and other complications that reduce the kidneys’ ability to efficiently filter waste products from the bloodstream.

Unfortunately, IgAN cannot be reversed, but there are ways to slow the course of the disease and manage its symptoms with the help of medical technology, treatment methods, and lifestyle changes. Thanks to numerous advancements in medical technology and treatment methods, there are ways to slow the course of the disease and mitigate some of the damage to the kidneys. With proper treatment and lifestyle adjustments, many individuals with IgA nephropathy can manage their symptoms effectively and experience improved longevity post-diagnosis.

In this article, we will go over some of the things people living with IgA nephropathy can do to support kidney health, and how a handful of common lifestyle and dietary changes can help reduce stress on the body’s kidneys and urinary system.

Understanding IgA Nephropathy

IgAN usually progresses slowly over years, but the course of the disease varies from person to person. Some people leak blood in their urine without developing other problems, while others may eventually achieve complete remission or develop end-stage kidney failure.

Because it can take years for significant IgA nephropathy-related kidney damage to develop, some people may have IgA nephropathy and not be aware of it. The first signs an individual might notice are pink or tea-colored urine, visible blood in the urine, or foamy urine (2).

If left untreated, IgA nephropathy can cause high blood pressure, high cholesterol, nephrotic syndrome, or even death (1). Hence, it’s vital to visit the doctor and schedule appropriate tests if you suspect a problem with your kidneys.

IgA Nephropathy Diet

If you are wondering which foods can help support healthy kidney function, there are many options to choose from. While healthcare providers may offer a chronic kidney disease diet food list, it’s essential to consult with your healthcare team before making any dietary changes to ensure that it is the right fit for you. One diet that may be recommended for people with chronic kidney problems is the DASH (Dietary Approaches to Stop Hypertension) diet.

The DASH diet emphasizes a variety of nutrient-dense foods, such as fruits, vegetables, and lean meats, while limiting sodium, red meat, saturated and trans fats, and added sugars. This diet can help to lower blood pressure, which can make life easier for the kidneys. Additionally, the DASH diet has been shown to promote weight loss and reduce the risk of developing chronic diseases such as cancer or diabetes.

However, while the DASH diet is generally considered beneficial for kidney health, some foods that are permissible within the DASH diet may not be suitable for inflamed or diseased kidneys. Therefore, it’s crucial to consult with a healthcare professional before making any changes to your diet. Your healthcare provider(s) can help you customize your diet to meet your unique needs, medical history, and other relevant information.

Ten Foods Bad for Kidneys

People suffering from chronic kidney disease or IgA nephropathy may have a more difficult time filtering certain minerals within the bloodstream. Because of this, it’s often very important for people with kidney issues to eliminate sources of excess sodium, potassium, and phosphorus from their diets (3).

Here are ten foods to avoid:

  1. Canned goods (especially those high in sodium)
  2. Whole wheat bread (due to the higher content of potassium and phosphorus)
  3. Bananas (high in potassium)
  4. Chips, crackers, pretzels (snack foods like this are generally high in sodium)
  5. Potatoes, sweet potatoes (high in potassium)
  6. Apricots (high in potassium)
  7. Pickled foods (typically high in sodium)
  8. Brown rice (similar to whole grain bread with a higher content of potassium and phosphorus)
  9. Avocados (high in potassium)
  10. Dairy products (high in potassium and phosphorus)

{{10-list}}

While some people with IgA nephropathy may be able to eat some of these foods in moderation, it’s best to consult with your doctor or primary care physician before drastically altering your diet.

In summary, IgAN cannot be reversed, but medical technology, treatment methods, and lifestyle changes can slow the course of the disease and manage its symptoms. People living with IgAN can support their kidney health by following a DASH diet, avoiding foods high in sodium, potassium, and phosphorus, and consulting with their healthcare providers before making any dietary changes. By taking proactive steps to manage their symptoms, people with IgAN can live longer and healthier lives.

Resources:

https://www.mayoclinic.org/diseases-conditions/iga-nephropathy/symptoms-causes/syc-20352268

https://www.kidneyfund.org/all-about-kidneys/other-kidney-diseases/iga-nephropathy

https://www.healthline.com/nutrition/foods-to-avoid-with-kidney-disease

https://www.healthline.com/nutrition/dash-diet

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the PicnicHealth Team

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List the names of all the doctors, hospitals, and other facilities your loved one visits regularly, along with those they have visited in the past. Try to go back as far as you can, striving for at least the last 5-10 years, but do your best. Even if you can’t remember them all, having a strong baseline can help you quickly identify gaps in records.

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Gather and Organize the Medical Records in One Place

It’s important to have all of your loved one’s medical records together in one spot. This makes it much easier for you and your loved one’s physicians to accurately map the patient’s medical journey and more easily share information between doctors. Fortunately, tools exist to make record management and access simple. A free resource like PicnicHealth helps you collect and organize all of this information. PicnicHealth’s intuitive timeline allows you to pinpoint data across the medical history, eliminating your need for keeping heavy binders filled with paper records or keeping track of multiple software portal logins.

Review the Medical Records to be an Informed Advocate

The better you understand your loved one's medical history, the better you can advocate on their behalf. Access and understanding of this information will help you to ask informed questions with physicians. Through regular communication backed by the data in the medical records, you can help your loved one’s care team develop a more successful care plan.

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1

Build a support network.

When you’re juggling appointment times and insurance claims, putting a robust support system together might not strike you as the most urgent task. Investing the time to cultivate relationships with people can turn to in times of need will pay dividends. The next time you need a last-minute ride or just someone to listen, you won’t be on your own.

There are many condition-specific support groups and support groups for caregivers generally in person or online. In addition to the encouragement and empathy they provide, support groups can be a helpful source of tips, resources, and recommendations for navigating caregiving.

2

Stay organized.

The backbone of effective caregiving is organization. Keep medical information, appointment schedules, and medication lists in order. Use a planner or a digital service like PicnicHealth to stay on top of your responsibilities. This attention to detail can prevent future complications and reduce day-to-day stress.

3

Explore treatments and clinical trials.

We’ve seen incredible breakthroughs in treatment over the past couple of years, powered by patients and their caregivers participating in research. Stay in the loop about the latest in medical advancements and available resources that could benefit your loved one. Whether it’s a new therapy option or a community service that aids independence, being informed can make a world of difference in the quality of care you provide.

4

Make time for self-care.

It may seem self-centered to focus on self-care—but when you feel good, you can be a better caregiver. Whether it’s exercise, a mindfulness practice, a soak in the bath, or just time to rest when you need it, carve out those moments in the day when you can unwind, reset, and stay healthy mentally and physically. Think of it as building up your reserves of kindness, patience, and understanding—which can only benefit your loved one. No one can pour from an empty cup.

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Data from real-world medical records:

(from 13 patients with LC-FAOD)

16 yrs old

Median age at enrollment

38% Female

15 providers / patient

7.5 years of data / patient

Data from patient-reported outcome (PRO) survey

(from 13 patients with LC-FAOD)

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However, it's important to consult with a healthcare provider or registered dietitian to determine the appropriate amount of protein for your individual needs. In general, a diet with moderate protein intake (about 0.8 grams per kilogram of body weight per day) is recommended for people with kidney diseases.

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