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Company Updates
2
 min read
PicnicHealth Acquires AllStripes, Fortifying its Role as the Leader in Patient-Centered Healthcare Evidence Generation
PicnicHealth announced the acquisition of AllStripes, a platform dedicated to generating evidence about the rare disease community. This strategic consolidation establishes PicnicHealth as the leading patient-centric evidence generation partner within a rapidly evolving life sciences landscape.
Company Updates
2
 min read
PicnicHealth Acquires AllStripes, Fortifying its Role as the Leader in Patient-Centered Healthcare Evidence Generation
PicnicHealth announced the acquisition of AllStripes, a platform dedicated to generating evidence about the rare disease community. This strategic consolidation establishes PicnicHealth as the leading patient-centric evidence generation partner within a rapidly evolving life sciences landscape.
Company
Company Updates
2
 min read
PicnicHealth Acquires AllStripes, Fortifying its Role as the Leader in Patient-Centered Healthcare Evidence Generation
PicnicHealth announced the acquisition of AllStripes, a platform dedicated to generating evidence about the rare disease community. This strategic consolidation establishes PicnicHealth as the leading patient-centric evidence generation partner within a rapidly evolving life sciences landscape.
Company Updates
2
 min read
PicnicHealth Acquires AllStripes, Fortifying its Role as the Leader in Patient-Centered Healthcare Evidence Generation
PicnicHealth announced the acquisition of AllStripes, a platform dedicated to generating evidence about the rare disease community. This strategic consolidation establishes PicnicHealth as the leading patient-centric evidence generation partner within a rapidly evolving life sciences landscape.
Company
A Letter to My Younger Self With Dwarfism
Life isn’t always fair. You have just turned 15 ½ and you’ve lost feeling in your lower legs. You have spinal cord compression. Lower back surgery is absolutely necessary. I know you think that this is the end of the world, but some miracles can happen. You will experience even harder things in life.
A Letter to My Younger Self With Dwarfism
Life isn’t always fair. You have just turned 15 ½ and you’ve lost feeling in your lower legs. You have spinal cord compression. Lower back surgery is absolutely necessary. I know you think that this is the end of the world, but some miracles can happen. You will experience even harder things in life.
Patients
How breast cancer research studies can help your family with early detection
Early detection of breast cancer can make all the difference in terms of treatment options and outcomes. In addition to regular self-exams and OBGYN appointments, having a complete picture of your family history is one of the best tools you have at your disposal.
How breast cancer research studies can help your family with early detection
Early detection of breast cancer can make all the difference in terms of treatment options and outcomes. In addition to regular self-exams and OBGYN appointments, having a complete picture of your family history is one of the best tools you have at your disposal.
Patients
When You're the Youngest Breast Cancer Patient Your Doctor's Ever Seen
I strongly believe that age is just a number.There was a point in my cancer journey when I bargained with God. I asked him why he allowed me to get diagnosed in my twenties and wished he could have changed the timing to at least my forties or fifties.
When You're the Youngest Breast Cancer Patient Your Doctor's Ever Seen
I strongly believe that age is just a number.There was a point in my cancer journey when I bargained with God. I asked him why he allowed me to get diagnosed in my twenties and wished he could have changed the timing to at least my forties or fifties.
Patients
It’s OK If You Don’t ‘Grow Bolder As You Grow Balder’ with Breast Cancer
What’s the most favorite thing about yourself? My answer used to be my thick hair. It was organically long, healthy, and shiny. I used to follow the Asian stereotype where nothing about my body was #thiccccc, except my hair.
It’s OK If You Don’t ‘Grow Bolder As You Grow Balder’ with Breast Cancer
What’s the most favorite thing about yourself? My answer used to be my thick hair. It was organically long, healthy, and shiny. I used to follow the Asian stereotype where nothing about my body was #thiccccc, except my hair.
Patients
Webinars
9
 min read
The Reimagined Registry: Revolutionizing Patient Care and Research through Real-World Data
In this engaging webinar, Clara, Heather, and Dan lead a discussion on the exciting ways stakeholders are optimizing registries to enhance research insights. The session explores the concept of the "Reimagined Registry" and delves into the characteristics of traditional registries. Patient registries are introduced as organized systems utilizing observational study methods to collect standardized patient information. These registries play a pivotal role in providing valuable real-world data for diverse research needs and inquiries. Join us in uncovering the potential of reimagined registries for research excellence.
Webinars
9
 min read
The Reimagined Registry: Revolutionizing Patient Care and Research through Real-World Data
In this engaging webinar, Clara, Heather, and Dan lead a discussion on the exciting ways stakeholders are optimizing registries to enhance research insights. The session explores the concept of the "Reimagined Registry" and delves into the characteristics of traditional registries. Patient registries are introduced as organized systems utilizing observational study methods to collect standardized patient information. These registries play a pivotal role in providing valuable real-world data for diverse research needs and inquiries. Join us in uncovering the potential of reimagined registries for research excellence.
Research
Why You're Never 'Done' Even After Breast Cancer Treatment
Why You're Never 'Done' Even After Breast Cancer Treatment
Why You're Never 'Done' Even After Breast Cancer Treatment
Why You're Never 'Done' Even After Breast Cancer Treatment
Patients
Company Updates
2
 min read
Why You're Never 'Done' Even After Breast Cancer Treatment
Why You're Never 'Done' Even After Breast Cancer Treatment
Company Updates
2
 min read
Why You're Never 'Done' Even After Breast Cancer Treatment
Why You're Never 'Done' Even After Breast Cancer Treatment
Company
Company Updates
2
 min read
Meet the Team: Sara Snell Taylor
Get to know Sara Snell Taylor, Senior Epidemiologist at PicnicHealth and discover how she leverages real-world data to improve patient outcomes
Company Updates
2
 min read
Meet the Team: Sara Snell Taylor
Get to know Sara Snell Taylor, Senior Epidemiologist at PicnicHealth and discover how she leverages real-world data to improve patient outcomes
Company
Company Updates
2
 min read
PicnicHealth Announces Entry into Market for Oncology-Focused Real-World Data
PicnicHealth is thrilled to announce our entry into the real-world data market for oncology. Leveraging our successes in chronic and rare diseases, we're now dedicated to advancing oncology research by collaborating directly with people living with cancer.
Company Updates
2
 min read
PicnicHealth Announces Entry into Market for Oncology-Focused Real-World Data
PicnicHealth is thrilled to announce our entry into the real-world data market for oncology. Leveraging our successes in chronic and rare diseases, we're now dedicated to advancing oncology research by collaborating directly with people living with cancer.
Company
Perspectives
5
 min read
Alzheimer’s Disease: How real-world data can answer big questions for drug developers
Roche has selected PicnicHealth as its partner to study Alzhemier’s disease (AD) in real world patients through their latest project, EMPOWER AD. The partnership leverages PicnicHealth’s end-to-end patient-centric approach to building registries from recruitment, to medical records retrieval, and machine learning (ML)-driven, human-curated data abstraction.
Perspectives
5
 min read
Alzheimer’s Disease: How real-world data can answer big questions for drug developers
Roche has selected PicnicHealth as its partner to study Alzhemier’s disease (AD) in real world patients through their latest project, EMPOWER AD. The partnership leverages PicnicHealth’s end-to-end patient-centric approach to building registries from recruitment, to medical records retrieval, and machine learning (ML)-driven, human-curated data abstraction.
Research
Company Updates
2
 min read
Team Spotlight: Justin Maslin
Welcome to PicnicHealth’s Team Spotlight series, where we introduce you to the talented people that are working behind the scenes at PicnicHealth. Today you’ll get to know Justin Maslin, the Engineering Manager for the Care Experience team at PicnicHealth
Company Updates
2
 min read
Team Spotlight: Justin Maslin
Welcome to PicnicHealth’s Team Spotlight series, where we introduce you to the talented people that are working behind the scenes at PicnicHealth. Today you’ll get to know Justin Maslin, the Engineering Manager for the Care Experience team at PicnicHealth
Company
Perspectives
5
 min read
The Latest from the FDA Regarding DCTs
In the era of telehealth and increased inclusivity, the FDA's recommendations pave the way for more patient-centric trials held at non-traditional locations. This game-changing guidance provides invaluable insights into DCT design, remote trial visits, electronic informed consent, safety monitoring, and leveraging digital health technologies.
Perspectives
5
 min read
The Latest from the FDA Regarding DCTs
In the era of telehealth and increased inclusivity, the FDA's recommendations pave the way for more patient-centric trials held at non-traditional locations. This game-changing guidance provides invaluable insights into DCT design, remote trial visits, electronic informed consent, safety monitoring, and leveraging digital health technologies.
Research
Perspectives
3
 min read
Top 5 RWE Trends in Health Economics and Outcomes Research
The global health economics and outcomes research (HEOR) market continues to grow year over year and is estimated to reach 2.46 billion by 2026. Read on for a breakdown of the top 5 trends driving this exciting industry growth.
Perspectives
3
 min read
Top 5 RWE Trends in Health Economics and Outcomes Research
The global health economics and outcomes research (HEOR) market continues to grow year over year and is estimated to reach 2.46 billion by 2026. Read on for a breakdown of the top 5 trends driving this exciting industry growth.
Research
Medical Research
3
 min read
How is PicnicHealth different from my patient portal?
Patients typically access their medical records through patient portals, which are online platforms that allow you to view their health information and communicate with your healthcare providers. Many patient portals are part of an electronic health record (EHR) system used by healthcare providers. While EHR systems are helpful tools for managing records from one facility, requesting prescription refills, or paying bills, they often fall short when consolidating information from different healthcare organizations or participating in research.
Medical Research
3
 min read
How is PicnicHealth different from my patient portal?
Patients typically access their medical records through patient portals, which are online platforms that allow you to view their health information and communicate with your healthcare providers. Many patient portals are part of an electronic health record (EHR) system used by healthcare providers. While EHR systems are helpful tools for managing records from one facility, requesting prescription refills, or paying bills, they often fall short when consolidating information from different healthcare organizations or participating in research.
Patients
Medical Research
3
 min read
How is participating in a PicnicHealth study different from a traditional clinical trial?
Clinical trials and PicnicHealth are two approaches when it comes to advancing medical knowledge and improving patient outcomes. While both clinical trials and PicnicHealth have their strengths and limitations, it's important to understand the differences between the two when considering options for improving healthcare.
Medical Research
3
 min read
How is participating in a PicnicHealth study different from a traditional clinical trial?
Clinical trials and PicnicHealth are two approaches when it comes to advancing medical knowledge and improving patient outcomes. While both clinical trials and PicnicHealth have their strengths and limitations, it's important to understand the differences between the two when considering options for improving healthcare.
Patients
Webinars
5
 min read
ISPOR 2023: 4 key RWE themes we saw at this year’s conference
Whether or not you had the opportunity to attend the three action-packed days of ISPOR this year, we’ve got you covered with a summary of 4 major themes that emerged.
Webinars
5
 min read
ISPOR 2023: 4 key RWE themes we saw at this year’s conference
Whether or not you had the opportunity to attend the three action-packed days of ISPOR this year, we’ve got you covered with a summary of 4 major themes that emerged.
Research
5 Must-Follow Kidney Disease Content Creators for IgAN Patients
Managing an IgA nephropathy (IgAN) diagnosis, whether it's yours or that of a loved one, can feel incredibly overwhelming, isolating, and just plain difficult. These five content creators living with IgAN are giving hope to the community by sharing their real experiences, tips, and resources to remind you you’re not alone.
5 Must-Follow Kidney Disease Content Creators for IgAN Patients
Managing an IgA nephropathy (IgAN) diagnosis, whether it's yours or that of a loved one, can feel incredibly overwhelming, isolating, and just plain difficult. These five content creators living with IgAN are giving hope to the community by sharing their real experiences, tips, and resources to remind you you’re not alone.
Patients
Webinars
8
 min read
Real-World Data By Design — Incorporating Different Data Types into Clinical Trials
With increasing applications of real-world data (RWD) upstream in the drug development lifecycle, it’s critical to recognize that there is no one-size-fits-all approach. So how can one incorporate different types of data from patients into clinical trials? Through conversation with a panel of experts from the biopharma industry and health technology companies, we will discuss scenarios when patient-mediated, tokenized and/or site-based approaches are warranted. Gaelan Ritter, Sneha Kishnani, and Andrew Larsen share their unique perspectives on the importance of a tailored yet flexible strategy and the potential value this can unlock for researchers and patients alike.Watch the recorded webinar or read the transcript below to explore design considerations for incorporating different types of real-world data into clinical trials.
Webinars
8
 min read
Real-World Data By Design — Incorporating Different Data Types into Clinical Trials
With increasing applications of real-world data (RWD) upstream in the drug development lifecycle, it’s critical to recognize that there is no one-size-fits-all approach. So how can one incorporate different types of data from patients into clinical trials? Through conversation with a panel of experts from the biopharma industry and health technology companies, we will discuss scenarios when patient-mediated, tokenized and/or site-based approaches are warranted. Gaelan Ritter, Sneha Kishnani, and Andrew Larsen share their unique perspectives on the importance of a tailored yet flexible strategy and the potential value this can unlock for researchers and patients alike.Watch the recorded webinar or read the transcript below to explore design considerations for incorporating different types of real-world data into clinical trials.
Research
AAPI Heritage Month: Asian Representation and Inclusion in Research
Although there is a large and diversified group of Asian Americans and Pacific Islanders (AAPI) in the United States, clinical trials and medical research frequently underrepresent this group. This underrepresentation result in a lack of knowledge about how particular medications and therapies affect AAPI people, potentially resulting in less effective or even hazardous medical interventions.
AAPI Heritage Month: Asian Representation and Inclusion in Research
Although there is a large and diversified group of Asian Americans and Pacific Islanders (AAPI) in the United States, clinical trials and medical research frequently underrepresent this group. This underrepresentation result in a lack of knowledge about how particular medications and therapies affect AAPI people, potentially resulting in less effective or even hazardous medical interventions.
Patients
Company Updates
3
 min read
PicnicHealth Announces Continued Real-World Data Strategic Partnership with Roche and Genentech to Advance Neurological Disease Research
PicnicHealth is excited to announce that we are expanding our long-term partnership with Roche and Genentech to better understand brain health and accelerate neurological disease research using real-world data.
Company Updates
3
 min read
PicnicHealth Announces Continued Real-World Data Strategic Partnership with Roche and Genentech to Advance Neurological Disease Research
PicnicHealth is excited to announce that we are expanding our long-term partnership with Roche and Genentech to better understand brain health and accelerate neurological disease research using real-world data.
Company
My Journey with IgAN: Overcoming Challenges and Finding Support
Sarah You is an IgAN Change Champion who has used her challenges with IgA nephropathy to help others. Sarah was diagnosed with IgAN when she was 21 years old, living as an international student in the US. She flew back to receive treatment and be with her family in Korea following her diagnosis. Now that she understands how to manage her IgAN, she has a master's degree in immunology and is currently applying to medical schools so she can be a support system for other rare disease patients.
My Journey with IgAN: Overcoming Challenges and Finding Support
Sarah You is an IgAN Change Champion who has used her challenges with IgA nephropathy to help others. Sarah was diagnosed with IgAN when she was 21 years old, living as an international student in the US. She flew back to receive treatment and be with her family in Korea following her diagnosis. Now that she understands how to manage her IgAN, she has a master's degree in immunology and is currently applying to medical schools so she can be a support system for other rare disease patients.
Patients
Perspectives
5
 min read
FDA Sets a High Bar for Externally Controlled Trials: Does Your Data Measure Up?
This year, the FDA shed light on important, cross-cutting considerations for patient-level, real-world data to serve as an external control arm. Our new blog post highlights what you need to know - and the data you need to have - to conduct an externally controlled trial.
Perspectives
5
 min read
FDA Sets a High Bar for Externally Controlled Trials: Does Your Data Measure Up?
This year, the FDA shed light on important, cross-cutting considerations for patient-level, real-world data to serve as an external control arm. Our new blog post highlights what you need to know - and the data you need to have - to conduct an externally controlled trial.
Research
Your IgAN Lab Values: A Comprehensive Guide
IgA nephropathy (IgAN) is a type of kidney disease that affects the glomeruli, the tiny filtering units within the kidneys. To diagnose and monitor IgAN, patients typically undergo a range of tests, including blood labs for kidney diseases, urine tests for kidney disease, and imaging studies.
Your IgAN Lab Values: A Comprehensive Guide
IgA nephropathy (IgAN) is a type of kidney disease that affects the glomeruli, the tiny filtering units within the kidneys. To diagnose and monitor IgAN, patients typically undergo a range of tests, including blood labs for kidney diseases, urine tests for kidney disease, and imaging studies.
Patients
Company Updates
4
 min read
CureDuchenne Partners with PicnicHealth to Advance Research and Simplify Patient Experience by Incorporating Electronic Health Records into Data-Integrated Biobank
CureDuchenne and PicnicHealth Announce Real-World Evidence-Focused Partnership to Incorporate Participant Medical Records into CureDuchenne Link
Company Updates
4
 min read
CureDuchenne Partners with PicnicHealth to Advance Research and Simplify Patient Experience by Incorporating Electronic Health Records into Data-Integrated Biobank
CureDuchenne and PicnicHealth Announce Real-World Evidence-Focused Partnership to Incorporate Participant Medical Records into CureDuchenne Link
Company
Kidney Biopsy for IgAN: Understanding the Procedure and Its Importance
In the US, nearly two million kidney biopsies are performed each year at a rate of 175 procedures per million population. Kidney biopsies can reveal important information about kidney function and inform nephrologists about the possible cause of symptoms that brought the patient in for a visit in the first place.
Kidney Biopsy for IgAN: Understanding the Procedure and Its Importance
In the US, nearly two million kidney biopsies are performed each year at a rate of 175 procedures per million population. Kidney biopsies can reveal important information about kidney function and inform nephrologists about the possible cause of symptoms that brought the patient in for a visit in the first place.
Patients
Top Tools to Help Manage Your IgA Nephropathy Care
Managing a chronic condition can be challenging, but there are tools to help patients monitor their health and manage their symptoms. From wearable health monitors to online medical record platforms, blood pressure monitors, symptom-tracking apps, and diet-tracking tools, patients have a variety of resources at their disposal. Here are six tools that can help you take control of your health and manage your IgA Nephropathy:
Top Tools to Help Manage Your IgA Nephropathy Care
Managing a chronic condition can be challenging, but there are tools to help patients monitor their health and manage their symptoms. From wearable health monitors to online medical record platforms, blood pressure monitors, symptom-tracking apps, and diet-tracking tools, patients have a variety of resources at their disposal. Here are six tools that can help you take control of your health and manage your IgA Nephropathy:
Patients
5 Advocacy Organizations for IgAN Warriors
There are many organizations dedicated to helping patients with IgA nephropathy. Here are five of the top organizations that IgA nephropathy patients can turn to for support and resources.
5 Advocacy Organizations for IgAN Warriors
There are many organizations dedicated to helping patients with IgA nephropathy. Here are five of the top organizations that IgA nephropathy patients can turn to for support and resources.
Patients
How to Find the Best Nephrologist for You
If you’ve been diagnosed with IgAN or suspect that you may have the disease, finding a knowledgeable and experienced nephrologist or IgAN specialist is crucial to managing your symptoms and receiving appropriate treatment. But where do you start?
How to Find the Best Nephrologist for You
If you’ve been diagnosed with IgAN or suspect that you may have the disease, finding a knowledgeable and experienced nephrologist or IgAN specialist is crucial to managing your symptoms and receiving appropriate treatment. But where do you start?
Patients
Webinars
3
 min read
HTRS 2023: PicnicHealth recaps this year’s Scientific Symposium on hemostatic and thrombotic disorders
The studies presented at the HTRS Scientific Symposium showcase some of the many ways PicnicHealth is partnering with leading researchers to deliver robust real-world evidence and improving patient care across different therapeutic areas, including rare diseases, hematology, immunology, neurology, and oncology
Webinars
3
 min read
HTRS 2023: PicnicHealth recaps this year’s Scientific Symposium on hemostatic and thrombotic disorders
The studies presented at the HTRS Scientific Symposium showcase some of the many ways PicnicHealth is partnering with leading researchers to deliver robust real-world evidence and improving patient care across different therapeutic areas, including rare diseases, hematology, immunology, neurology, and oncology
Research
When Is a Kidney Transplant Necessary for IgAN Patients?
A kidney transplant is a surgical procedure where a healthy kidney is placed into a patient whose kidneys no longer function properly. The healthy kidney comes from either a living or deceased donor. End-stage renal disease occurs when a patient’s kidneys lose the ability to filter fluid and waste from the body, leaving harmful levels of waste behind.
When Is a Kidney Transplant Necessary for IgAN Patients?
A kidney transplant is a surgical procedure where a healthy kidney is placed into a patient whose kidneys no longer function properly. The healthy kidney comes from either a living or deceased donor. End-stage renal disease occurs when a patient’s kidneys lose the ability to filter fluid and waste from the body, leaving harmful levels of waste behind.
Patients
IgAN Diagnosis: Symptoms, Tests, and Treatment
IgA nephropathy (IgAN) is a kidney disease that can cause inflammation and damage to the kidneys due to the deposition of the immunoglobulin A (IgA) protein in the tiny filters in the kidneys, called ‘glomeruli’, which can lead to kidney dysfunction. The diagnostic process for IgAN usually involves a combination of tests to evaluate kidney function and determine the extent of damage.
IgAN Diagnosis: Symptoms, Tests, and Treatment
IgA nephropathy (IgAN) is a kidney disease that can cause inflammation and damage to the kidneys due to the deposition of the immunoglobulin A (IgA) protein in the tiny filters in the kidneys, called ‘glomeruli’, which can lead to kidney dysfunction. The diagnostic process for IgAN usually involves a combination of tests to evaluate kidney function and determine the extent of damage.
Patients
Perspectives
5
 min read
Does a recent FDA approval signal changes for the wider industry when it comes to RWE?
PicnicHealth | Does a recent FDA approval signal changes for the wider industry when it comes to RWE?FDA approvals supported by Real-World Evidence (RWE) are rising. Life science companies would be remiss not to consider including evidence on the natural history of disease, unmet medical need, and/or patient-reported outcomes in their regulatory strategies. PicnicHealth has extensive experience helping life science companies execute strategies to leverage Real-World Data (RWD) and incorporate RWE into their research and business planning. Uncovering experiences and outcomes from real patients is at the heart of it all. Contact us to discuss how we can partner on confirmatory evidence studies to strengthen your regulatory submission.
Perspectives
5
 min read
Does a recent FDA approval signal changes for the wider industry when it comes to RWE?
PicnicHealth | Does a recent FDA approval signal changes for the wider industry when it comes to RWE?FDA approvals supported by Real-World Evidence (RWE) are rising. Life science companies would be remiss not to consider including evidence on the natural history of disease, unmet medical need, and/or patient-reported outcomes in their regulatory strategies. PicnicHealth has extensive experience helping life science companies execute strategies to leverage Real-World Data (RWD) and incorporate RWE into their research and business planning. Uncovering experiences and outcomes from real patients is at the heart of it all. Contact us to discuss how we can partner on confirmatory evidence studies to strengthen your regulatory submission.
Research
How COVID-19 Impacts Individuals with IgA Nephropathy: Insights and Precautions
The COVID-19 pandemic has had a significant impact on the lives of millions of people worldwide, including those with chronic conditions such as IgAN. Although there is limited research on the effects of COVID-19 on people with IgAN, it is crucial to take precautions and seek medical attention if you experience symptoms.
How COVID-19 Impacts Individuals with IgA Nephropathy: Insights and Precautions
The COVID-19 pandemic has had a significant impact on the lives of millions of people worldwide, including those with chronic conditions such as IgAN. Although there is limited research on the effects of COVID-19 on people with IgAN, it is crucial to take precautions and seek medical attention if you experience symptoms.
Patients
IgAN Treatment Options: Managing Symptoms and Supporting Kidney Health
IgA Nephropathy (IgAN), also known as Berger’s disease, is a rare kidney disease that can cause issues with the kidneys’ ability to filter waste from the bloodstream. IgAN occurs when a compound called immunoglobulin A (IgA) builds up in excess within the kidneys, resulting in inflamed tissue and other complications. Thanks to modern treatment methods, IgAN can be effectively managed and its prognosis significantly improved. However, if left untreated, IgAN can lead to serious health problems, underscoring the importance of timely diagnosis and treatment.
IgAN Treatment Options: Managing Symptoms and Supporting Kidney Health
IgA Nephropathy (IgAN), also known as Berger’s disease, is a rare kidney disease that can cause issues with the kidneys’ ability to filter waste from the bloodstream. IgAN occurs when a compound called immunoglobulin A (IgA) builds up in excess within the kidneys, resulting in inflamed tissue and other complications. Thanks to modern treatment methods, IgAN can be effectively managed and its prognosis significantly improved. However, if left untreated, IgAN can lead to serious health problems, underscoring the importance of timely diagnosis and treatment.
Patients
Lifestyle Changes to Support Kidney Health
IgA nephropathy, also known as IgAN or Berger’s disease is a type of kidney disease that occurs when there is an excess build-up of immunoglobulin-A (IgA) within the kidneys. If left untreated, this can cause inflammation of the kidneys and other complications that reduce the kidneys’ ability to efficiently filter waste products from the bloodstream.
Lifestyle Changes to Support Kidney Health
IgA nephropathy, also known as IgAN or Berger’s disease is a type of kidney disease that occurs when there is an excess build-up of immunoglobulin-A (IgA) within the kidneys. If left untreated, this can cause inflammation of the kidneys and other complications that reduce the kidneys’ ability to efficiently filter waste products from the bloodstream.
Patients
Understanding IgA Nephropathy Recognizing Symptoms and Signs
IgAN, or IgA nephropathy, is a chronic kidney disease affecting millions worldwide. Despite its prevalence, many patients struggle to understand the symptoms of IgAN and how to manage the condition effectively. ‍This is a problem that the team at PicnicHealth is working hard to solve. Founded by Noga Leviner in 2014, PicnicHealth was created by a fellow patient to empower others to take complete ownership of their health records and manage their conditions confidently. In this guide, we will explore the symptoms of IgAN, also known as Berger’s Disease, and provide helpful tips for managing the condition.
Understanding IgA Nephropathy Recognizing Symptoms and Signs
IgAN, or IgA nephropathy, is a chronic kidney disease affecting millions worldwide. Despite its prevalence, many patients struggle to understand the symptoms of IgAN and how to manage the condition effectively. ‍This is a problem that the team at PicnicHealth is working hard to solve. Founded by Noga Leviner in 2014, PicnicHealth was created by a fellow patient to empower others to take complete ownership of their health records and manage their conditions confidently. In this guide, we will explore the symptoms of IgAN, also known as Berger’s Disease, and provide helpful tips for managing the condition.
Patients
Webinars
20
 min read
The Transformational Value of Real-World Data for Drug Development and Regulatory Decision-Making
This webinar explores relevant examples of how Data Science and Digital Health are accelerating pharmaceutical innovation and driving impact for patients. Bringing together global experts with diverse perspectives spanning regulatory, R&D and health tech, this conversation highlights innovative, RWD-driven approaches to drug development and regulatory decision-making. Najat, Noga, Jesper, and Evelyn discuss the need for different types of data to construct a complete clinical picture – and how a data-driven approach can drive impact across both research and clinical practice.
Webinars
20
 min read
The Transformational Value of Real-World Data for Drug Development and Regulatory Decision-Making
This webinar explores relevant examples of how Data Science and Digital Health are accelerating pharmaceutical innovation and driving impact for patients. Bringing together global experts with diverse perspectives spanning regulatory, R&D and health tech, this conversation highlights innovative, RWD-driven approaches to drug development and regulatory decision-making. Najat, Noga, Jesper, and Evelyn discuss the need for different types of data to construct a complete clinical picture – and how a data-driven approach can drive impact across both research and clinical practice.
Research
I Learned Everything I Know About Wheelchairs on YouTube
Sometimes, my experience with IBM leaves me feeling amazed at how hard it is to figure everything out.
I Learned Everything I Know About Wheelchairs on YouTube
Sometimes, my experience with IBM leaves me feeling amazed at how hard it is to figure everything out.
Patients
I Advocate Not Only For Melissa, But For All People With PA
It’s important us PA parents keep using our voices to push for more research.
I Advocate Not Only For Melissa, But For All People With PA
It’s important us PA parents keep using our voices to push for more research.
Patients
From Italy to Holland, One Step at a Time
Our world had turned upside down, our ground had shifted below us, and we were trying to grasp at anything to hold on to.
From Italy to Holland, One Step at a Time
Our world had turned upside down, our ground had shifted below us, and we were trying to grasp at anything to hold on to.
Company
Perspectives
8
 min read
A Conversation About Wearables: Successes, Limitations, and the Potential Opportunities
We sat down with Evelyn Pyper, Senior Evidence Strategy Manager at PicnicHealth, to talk about successes, limitations, and areas for growth within the wearables industry.
Perspectives
8
 min read
A Conversation About Wearables: Successes, Limitations, and the Potential Opportunities
We sat down with Evelyn Pyper, Senior Evidence Strategy Manager at PicnicHealth, to talk about successes, limitations, and areas for growth within the wearables industry.
Research
All About Genetic Counseling
At the heart of genetic counseling is empowering patients and families with knowledge of genetic disease and being a supportive pillar as they navigate their journeys.
All About Genetic Counseling
At the heart of genetic counseling is empowering patients and families with knowledge of genetic disease and being a supportive pillar as they navigate their journeys.
Patients
Webinars
3
 min read
PicnicHealth Launches Webinar Series: The RWE ROI
PicnicHealth is launching a four-part webinar series that aims to reframe the “ROI” for RWE generation and tackle the question: beyond the return on investment for RWE, what is the risk of inaction?
Webinars
3
 min read
PicnicHealth Launches Webinar Series: The RWE ROI
PicnicHealth is launching a four-part webinar series that aims to reframe the “ROI” for RWE generation and tackle the question: beyond the return on investment for RWE, what is the risk of inaction?
Research
Company Updates
5
 min read
2022: A Year in Review
2022 was the biggest and most exciting year yet for PicnicHealth - not only for our team, but for our Change Champions, PicnicHealth users, and research partners. We want to thank everyone for being a part of this incredible community and making this past year possible. Before we jump into 2023, join us as we look back at our favorite moments of last year. We raised $60 million in Series C funding! PicnicHealth is ecstatic to have raised a $60m Series C to help build deep, complete, and clinically-rich real-world datasets in several new diseases. The team spent the year growing our research program portfolio, connecting with new patient populations to initiate new studies; introducing new capabilities to our patient app to make it easier for patients to tell us more about their experiences by completing surveys, diaries, and more; and building new data features to help researchers gain new insights faster.
Company Updates
5
 min read
2022: A Year in Review
2022 was the biggest and most exciting year yet for PicnicHealth - not only for our team, but for our Change Champions, PicnicHealth users, and research partners. We want to thank everyone for being a part of this incredible community and making this past year possible. Before we jump into 2023, join us as we look back at our favorite moments of last year. We raised $60 million in Series C funding! PicnicHealth is ecstatic to have raised a $60m Series C to help build deep, complete, and clinically-rich real-world datasets in several new diseases. The team spent the year growing our research program portfolio, connecting with new patient populations to initiate new studies; introducing new capabilities to our patient app to make it easier for patients to tell us more about their experiences by completing surveys, diaries, and more; and building new data features to help researchers gain new insights faster.
Company
Medical Research
2
 min read
How Novel Therapies are Impacting Hemophilia A and B
As a bleeding disorder, Hemophilia has the potential to create some serious problems for the patients that live with it every single day. Without the ability to properly clot your blood, it can be difficult to take many risks that could lead to excessive bleeding. Plus, this bleeding can occur internally at just about any time. This can significantly lower the patient’s overall quality of life, but there is a chance that it doesn’t have to be that way.
Medical Research
2
 min read
How Novel Therapies are Impacting Hemophilia A and B
As a bleeding disorder, Hemophilia has the potential to create some serious problems for the patients that live with it every single day. Without the ability to properly clot your blood, it can be difficult to take many risks that could lead to excessive bleeding. Plus, this bleeding can occur internally at just about any time. This can significantly lower the patient’s overall quality of life, but there is a chance that it doesn’t have to be that way.
Patients
Perspectives
6
 min read
At the Intersection of Mental Health and Chronic Disease
Mental health can mean a lot of different things to different people with seemingly vague definitions. MentalHealth.gov takes broad strokes to include emotional, psychological, and social well-being at the interface of how a person thinks, acts, and feels. Indicators that something is out of balance can present with a number of uncomfortable behaviors including having low or no energy, having unexplained aches or pains, or experiencing severe mood swings. It would be difficult to look through the entire list of possible symptoms and not relate at some level at some point in time, suggesting that mental wellness is just one fabric to the many layers that influence how we function on any given day. Unresolved or persistent mental health issues can lead to a diagnosis of mental illness, but it feels more fluid than other conditions or diseases that use more measurable diagnostic criteria such as abnormal lab values or imaging modalities to diagnose.
Perspectives
6
 min read
At the Intersection of Mental Health and Chronic Disease
Mental health can mean a lot of different things to different people with seemingly vague definitions. MentalHealth.gov takes broad strokes to include emotional, psychological, and social well-being at the interface of how a person thinks, acts, and feels. Indicators that something is out of balance can present with a number of uncomfortable behaviors including having low or no energy, having unexplained aches or pains, or experiencing severe mood swings. It would be difficult to look through the entire list of possible symptoms and not relate at some level at some point in time, suggesting that mental wellness is just one fabric to the many layers that influence how we function on any given day. Unresolved or persistent mental health issues can lead to a diagnosis of mental illness, but it feels more fluid than other conditions or diseases that use more measurable diagnostic criteria such as abnormal lab values or imaging modalities to diagnose.
Research
‘I Was Raised Reading Food Labels’
I'm beginning to understand a lot of the things that are going on with my body and things that I can do to have at least a little bit of agency.
‘I Was Raised Reading Food Labels’
I'm beginning to understand a lot of the things that are going on with my body and things that I can do to have at least a little bit of agency.
Patients
Webinars
2
 min read
PicnicHealth Hemophilia A Data Presented at ASH 2022
PicnicHealth’s research partners Roche-Genentech and other key opinion leaders in the hemophilia space presented data from PicnicHealth’s Hemophilia Cohort in an oral podium presentation and poster session at ASH 2022.
Webinars
2
 min read
PicnicHealth Hemophilia A Data Presented at ASH 2022
PicnicHealth’s research partners Roche-Genentech and other key opinion leaders in the hemophilia space presented data from PicnicHealth’s Hemophilia Cohort in an oral podium presentation and poster session at ASH 2022.
Research
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