Resources & Articles

PicnicHealth's Lindsey Wahlstrom shares her daughter’s rare disease journey, the realities of caregiving, and what informed consent must look like for families.

A step-by-step walkthrough for receiving your Fitbit, setting it up, pairing it in the Fitbit app, and securely linking it to your PicnicHealth account.

Participating in a virtual research assessment allows you to contribute to important research from the comfort of your home. Your time and effort help advance understanding of CIDP while providing you with valuable insights into your health.

We’ve partnered with Celestra Health to advance CIDP research using innovative technology. By wearing your smart insoles for just 15 minutes of walking, you’ll help advance understanding and improve treatment options for CIDP.

Access your own medical records with PicnicHealth. Powered by AI, PicnicHealth enables patients to access their full records and make informed decisions.

Check our our latest features including our new AI assistant.

Today, we're so excited to announce the launch of our new AI assistant, a milestone that represents the next step in empowering patients with their own health data.

Marc’s journey with CAH shows his strength, family support, and how he overcomes challenges every day.

For the past decade, PicnicHealth has been dedicated to giving you control of your health by providing access to your complete medical records. We’ve had the privilege of working with tens of thousands of patients, most of whom live with chronic diseases, and through countless conversations, one thing has become crystal clear: managing complex care journeys is a huge challenge. Between juggling multiple specialists and keeping track of different treatment plans, it’s easy to feel both overwhelmed and that no single doctor sees the full picture.

Check our our latest features including AI highlights and blurbs to help you understand your medical records.

Discover what's new at PicnicHealth! Unlock rewards, streamline care team management, track conditions with ease, and explore our latest Pins feature.

Walking through life with salt-wasting congenital adrenal hyperplasia (CAH) brings its own set of ups and downs. For Taylor and her son, Maddox, it’s a path marked by sudden storms and sunny days, a mix of medical emergencies and moments of pure childhood joy. Here’s their story, told with the warmth and honesty that Taylor brings to every conversation.

As we celebrate Black History Month, we recognize that Black history and the wellness of Black communities must be top of mind every day of the year. Despite the many contributions Black people have made to medicine and wellness, alarming health disparities due to structural and interpersonal racism, still exist for Black people.

In celebration of Rare Disease Month, we are thrilled to shine a spotlight on Change Champions, dedicated partners, and organizations making a lasting impact on rare disease research throughout the year. At the forefront of this movement is Rare Patient Voice, a remarkable resource founded with a singular mission – to provide patients and family caregivers a platform to be heard by actively participating in diverse research endeavors, including rare diseases.

In honor of Rare Disease Awareness Month, we're thrilled to kick off our #ShareYourRare campaign. We believe that your stories matter, and through #ShareYourRare, we want to highlight the often-overlooked challenges and stories of those who are living with a rare condition.

Navigating the complex medical landscape is an imposing journey, and it becomes even more challenging when your child is diagnosed with a rare condition like Achondroplasia.

In the heart of Urbana, Ohio, Lydia and her husband Charlie embarked on an unexpected journey that began with the arrival of their daughter, Dagny. Diagnosed with achondroplasia, their story is one of discovery, resilience, and unwavering love.

In a world where each child's journey is unique, Brynn’s story stands out for its strength and resilience. Diagnosed with achondroplasia, Brynn, and her family, have navigated a path filled with challenges, discoveries, and immense love.

The journey of Janet's family into the world of achondroplasia began unexpectedly when their baby girl was diagnosed at four months old.

Life with IgA Nephropathy: What to expect after diagnosis

We partnered with The Chandler Project for an empowering achondroplasia community webinar on how to advocate for your child in a medical setting!

CAHtalog: The Power of Medical Records in Research is a brief presentation that highlights the CAHtalog registry – an effort sponsored by Neurocrine and supported by CARES and PicnicHealth.

The first of November has sort of always been the mental marker for me to “up my game” for the Holiday Season. Pumpkin lattes and all things Gourd related are being shoved down our throats. I used to like Pumpkin Spice but now I think it’s safe to say the Pumpkin Craze has gone a bit overboard. Nevertheless I still have love for those that get suckered into the few months of insane commercialism and Seasonal Trends.

In October 2022, at the young age of 30, Rachel found herself facing a life-altering diagnosis. While most people her age were enjoying reaching the toddler phase of parenting, she was plunged into a world of uncertainty, fear, and guilt. Her husband, a dedicated United States Navy member, was about to embark on an extended sea duty, leaving her to navigate the turbulence of a cancer diagnosis with two young children by her side.

Early detection of breast cancer can make all the difference in terms of treatment options and outcomes. In addition to regular self-exams and OBGYN appointments, having a complete picture of your family history is one of the best tools you have at your disposal.