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When you sign-up your child for PicnicHealth, they will create a timeline for your child from their medical records. Your child's PicnicHealth timeline provides a single source of information for you, your child, and your doctors. It is a tool to help you coordinate your child's care and understand their health. You can share their timeline with any of their doctors with a few clicks. The doctor will receive a secure link and get access to their medical history.

Your child is eligible for a free PicnicHealth account if they are diagnosed with achondroplasia, are younger than 18 years of age, and receive medical care in the United States.

PicnicHealth and BioMarin take privacy very seriously. Your child's medical records are kept safe using the highest encryption standard available: 256-bit SSL. This is the same technology that banks use to keep account information safe.

PicnicHealth will collect medical records from all the doctors, hospitals, and clinics that you tell us about. PicnicHealth does not collect dental or optometry records.

PicnicHealth will never share your child's records without your explicit consent. By signing up for PicnicHealth, you're agreeing to share your child's medical records collected by PicnicHealth. You can also choose to share the collected medical records using the share function at the top of your PicnicHealth timeline. You will be the only person who can access your child's medical records on PicnicHealth. No one — including their doctor or insurance company — will be able to see their medical records unless you choose to share them.

Yes. You can view this sample timeline.

You may choose to delete their medical records from the PicnicHealth service at any time and for any reason. Just email PicnicHealth at [email protected]‍. However, any data that has already been shared with a research partner, up until the time you notify PicnicHealth to stop participating in research, cannot be changed or deleted.

That's ok. Enter as many doctors as you remember. The hospital or clinic name is usually enough and the PicnicHealth team will follow up with you if there’s any confusion. If PicnicHealth finds doctors mentioned in your child's records who you did not include on their doctor list, you will get an email asking for your permission to request records from that new doctor.

No, there is no cost to participate. You’ll receive PicnicHealth’s service free of charge ($650 value) as part of your participation in the VISTA observational study. If you would like to continue to have PicnicHealth collect your child's medical records, you may enroll in the service as a customer at the end of the VISTA Study.

PicnicHealth works directly with people like you to help collect and manage your medical records. That means going out and collecting all of your medical records from your doctors and keeping them up-to-date over time. PicnicHealth will then transform those records into a timeline that makes it easier to find what you’re looking for. When you see your doctor again, PicnicHealth will update your timeline with new records. You can access your PicnicHealth timeline from anywhere and even share it with your doctors with a few clicks.

PicnicHealth will update your child's medical records regularly. To keep their records most up-to-date, you can always tell PicnicHealth when they have seen the doctor. Just click the “Request Records” button at the top of the timeline, and PicnicHealth will retrieve new records for you.

Medical records document what’s actually happening when doctors see patients, so they can be really helpful for understanding how care is delivered. They also contain a lot of information about a patient’s condition, like achondroplasia, health status, and care. Putting all of this information together for a diverse group of patients will allow the scientific community to see patterns that no one doctor can see on his or her own, enabling the community to better care for individuals living with achondroplasia.

In the first month, some records might be missing because PicnicHealth is still collecting them for you. After the first month, if you suspect that records are still missing, you can let us know about those records by clicking "Request Records" at the top of your child's timeline. If you suspect that any information on your Timeline is incorrect, please contact us at [email protected].

At the top of your timeline, click on "Doctors" to add new doctors or medical facilities. PicnicHealth will then collect your child's records from your new doctors. If you have any questions about how to use the timeline, please feel free to contact us at [email protected].

It takes about 3 to 4 weeks to retrieve most of your child's historical medical records. The timing mainly depends on how quickly their doctors respond to PicnicHealth's requests for your records.

In most states, doctors are required to keep records for at least 7 years, but many will keep them for much longer. So how far back we can go really depends on the record-keeping practices of your child's doctors.