Donate differently!

For each patient who signs up for PicnicHealth, we will contribute to The American Kidney Fund in support of the IgAN community.

Join Now

The American Kidney Fund (AKF) is the leading nonprofit dedicated to combating kidney disease for 37 million Americans and those at risk. Their broad range of programs helps people at every stage of their fight against kidney disease, from prevention to post-transplant care.

Learn More

How PicnicHealth Works

We believe that better care happens when you have control over your records.

Join Now

Tell us about your care

Just answer a few questions about yourself and let us know who your doctors are. As soon as you finish signing up, we’ll start contacting your doctors and hospitals.

Join Now

We’ll start building your timeline

No calling, faxing, or paperwork for you! We’ll brave the hold music and contact every one of your doctors to make sure they’ve received and processed our request.

You're In Control

With your records consolidated in one place, you’ll be able to access them whenever you need them. Pull up your medical information anywhere you have internet access—and share it securely with your care team.

Earn rewards completing health surveys at home

When you join PicnicHealth, you may be invited to complete health and well-being surveys. These surveys help researchers understand your daily experience and capture insights that may not be available in your medical records.

You can complete surveys from your PicnicHealth account, you may also receive compensation for sharing your story.

PicnicHealth has impacted my health care journey in so many ways. I’ve been easily able to provide records to my transplant team, and identify my trends in my lab work. I like to own my healthcare journey and stay informed. PicnicHealth has been able to help me do that.

Cristie Field
Change Champion

Our Partners

We work with great partners year round.

Privacy & Security

At PicnicHealth, we’re patients too, so we know how important it is that your private data stays private. Here’s our promise:

Security

We protect your personal information with military grade encryption and abide by HIPAA compliant practices.

Privacy

Your data is fully de-identified. We only share datasets that are structured for research, never redacted medical records.

Transparency

PicnicHealth will ask for your consent every time before sharing any information with any partners. You can opt out at any time.

Responsibility

We use an IRB (Institutional Review Board) and work with a team of physicians to protect the best interest of our research volunteers.

Frequently Asked Questions

What does PicnicHealth do?

PicnicHealth collects, digitizes, and secures your medical records—then arranges everything in one intuitive timeline. No need to worry about a note from your doctor or the results from a lab. It’s all there for easy reference, right when you need it. We handle all the hard work of phone calls and faxes to request and collect your records from your doctors.

PicnicHealth also partners with some of the world’s leading researchers to find new breakthroughs in healthcare. By opting into relevant research, you can join forces with thousands of others who are helping advance science. By examining de-identified medical data from large groups of people, researchers can spot trends, understand patient journeys and find out how effective different treatments are in real life.

Study Basics
What is the purpose of PicnicHealth studies?

Our goal is to power the next wave of breakthroughs in treating challenging diseases. Medical records document what living with the disease is really like and how treatment options work in the real world, all without needing to enroll people in large, invasive clinical trials. When combined with other patient records, we can begin to understand what diagnosis, care, and progression look like for populations like never before.

Study Basics
Can my medical records really help with research?

Medical records tell a story of what’s actually happening when doctors see patients and can be really helpful for understanding how care is delivered in the real world. They also contain a lot of information about how you experience disease—your symptoms, health status, and treatments. Putting all of this information together for a diverse group of people will allow the scientific community to see patterns that no one doctor can see on his or her own.

Study Basics
How can PicnicHealth make my records de-identified for research?

Our process is fairly sophisticated. We don’t just redact your records by crossing out or deleting your name. When preparing records to share with researchers, we actually extract specific pieces of information from your records—like lab results or medications—and put those into a separate file. Then we combine those with similar information from other de-identified patient records. So the actual file researchers receive is primarily a spreadsheet with a bunch of numbers, drug names, and dates. This is the most useful format for their research, and it also does a much better job of protecting patient privacy than sharing full medical records. Most of our research includes hundreds or thousands of patients, ensuring that this collective information is totally de-identified.

Study Basics
Will my medical records be secure?

Thousands of people use PicnicHealth to track their health histories, so we take privacy very seriously. We’ll never share your data without your permission. We’re HIPAA compliant and use end-to-end encryption, the same technology banks use to keep your information secure.

Study Basics
Can I see what my records will look like in my PicnicHealth account?

Yes! You can view a sample account here. We call it your PicnicHealth Timeline because you can see your care journey from start to finish, with all your visits from all your doctors in chronological order.

Study Basics
What is IgA nephropathy?

IgA nephropathy, also known simply as IgAN, is a kidney disorder. It happens when a type of protein called Immunoglobulin A (IgA) builds up in your kidneys. This buildup can cause inflammation and damage to your kidney’s filters, known as glomeruli. Over time, this can potentially lead to kidney failure.

Study Basics
What causes IgA nephropathy?

The exact cause of IgA nephropathy is still unknown. Researchers are actively investigating why some people accumulate IgA deposits in their kidneys.

Study Basics
Is IgA nephropathy life threatening?

IgA nephropathy can become life-threatening if it progresses to more advanced stages of kidney disease. However, with proper management and treatment, many people live with the condition for years without progressing to severe stages.

Study Basics
What treatments are available for IgA nephropathy?

As of 2023, there are two FDA-approved treatments specifically for IgA nephropathy: Filspari and Tarpeyo. Additional treatment options include corticosteroids, drugs that suppress the immune system (immunosuppressants), and medications that help control blood pressure and protect your kidneys (ACE/ARB inhibitors).

Study Basics

Stay up to date with our newsletter

At PicnicHealth, we are patients too - and we hate spam. Once a month, we’ll send you a newsletter that covers tips from your community, research updates, and inspirational stories from other patients.

Thank you for subscribing!
Oops! Something went wrong, please try again.