Donate differently!
For each patient who signs up for PicnicHealth, we will contribute to The American Kidney Fund in support of the IgAN community.
Join NowThe American Kidney Fund (AKF) is the leading nonprofit dedicated to combating kidney disease for 37 million Americans and those at risk. Their broad range of programs helps people at every stage of their fight against kidney disease, from prevention to post-transplant care.
Learn MoreHow PicnicHealth Works
We believe that better care happens when you have control over your records.
Join NowTell us about your care
Just answer a few questions about yourself and let us know who your doctors are. As soon as you finish signing up, we’ll start contacting your doctors and hospitals.
Join NowWe’ll start building your timeline
No calling, faxing, or paperwork for you! We’ll brave the hold music and contact every one of your doctors to make sure they’ve received and processed our request.
You're In Control
With your records consolidated in one place, you’ll be able to access them whenever you need them. Pull up your medical information anywhere you have internet access—and share it securely with your care team.
Earn rewards completing health surveys at home
When you join PicnicHealth, you may be invited to complete health and well-being surveys. These surveys help researchers understand your daily experience and capture insights that may not be available in your medical records.
You can complete surveys from your PicnicHealth account, you may also receive compensation for sharing your story.
PicnicHealth has impacted my health care journey in so many ways. I’ve been easily able to provide records to my transplant team, and identify my trends in my lab work. I like to own my healthcare journey and stay informed. PicnicHealth has been able to help me do that.
Our Partners
We work with great partners year round.
Privacy & Security
At PicnicHealth, we’re patients too, so we know how important it is that your private data stays private. Here’s our promise:
Security
We protect your personal information with military grade encryption and abide by HIPAA compliant practices.
Privacy
Your data is fully de-identified. We only share datasets that are structured for research, never redacted medical records.
Transparency
PicnicHealth will ask for your consent every time before sharing any information with any partners. You can opt out at any time.
Responsibility
We use an IRB (Institutional Review Board) and work with a team of physicians to protect the best interest of our research volunteers.
Frequently Asked Questions
PicnicHealth collects, digitizes, and secures your medical records—then arranges everything in one intuitive timeline. No need to worry about a note from your doctor or the results from a lab. It’s all there for easy reference, right when you need it. We handle all the hard work of phone calls and faxes to request and collect your records from your doctors.
PicnicHealth also partners with some of the world’s leading researchers to find new breakthroughs in healthcare. By opting into relevant research, you can join forces with thousands of others who are helping advance science. By examining de-identified medical data from large groups of people, researchers can spot trends, understand patient journeys and find out how effective different treatments are in real life.
Our goal is to power the next wave of breakthroughs in treating challenging diseases. Medical records document what living with the disease is really like and how treatment options work in the real world, all without needing to enroll people in large, invasive clinical trials. When combined with other patient records, we can begin to understand what diagnosis, care, and progression look like for populations like never before.
Medical records tell a story of what’s actually happening when doctors see patients and can be really helpful for understanding how care is delivered in the real world. They also contain a lot of information about how you experience disease—your symptoms, health status, and treatments. Putting all of this information together for a diverse group of people will allow the scientific community to see patterns that no one doctor can see on his or her own.
Our process is fairly sophisticated. We don’t just redact your records by crossing out or deleting your name. When preparing records to share with researchers, we actually extract specific pieces of information from your records—like lab results or medications—and put those into a separate file. Then we combine those with similar information from other de-identified patient records. So the actual file researchers receive is primarily a spreadsheet with a bunch of numbers, drug names, and dates. This is the most useful format for their research, and it also does a much better job of protecting patient privacy than sharing full medical records. Most of our research includes hundreds or thousands of patients, ensuring that this collective information is totally de-identified.
Thousands of people use PicnicHealth to track their health histories, so we take privacy very seriously. We’ll never share your data without your permission. We’re HIPAA compliant and use end-to-end encryption, the same technology banks use to keep your information secure.
Yes! You can view a sample account here. We call it your PicnicHealth Timeline because you can see your care journey from start to finish, with all your visits from all your doctors in chronological order.
IgA nephropathy, also known simply as IgAN, is a kidney disorder. It happens when a type of protein called Immunoglobulin A (IgA) builds up in your kidneys. This buildup can cause inflammation and damage to your kidney’s filters, known as glomeruli. Over time, this can potentially lead to kidney failure.
The exact cause of IgA nephropathy is still unknown. Researchers are actively investigating why some people accumulate IgA deposits in their kidneys.
IgA nephropathy can become life-threatening if it progresses to more advanced stages of kidney disease. However, with proper management and treatment, many people live with the condition for years without progressing to severe stages.
As of 2023, there are two FDA-approved treatments specifically for IgA nephropathy: Filspari and Tarpeyo. Additional treatment options include corticosteroids, drugs that suppress the immune system (immunosuppressants), and medications that help control blood pressure and protect your kidneys (ACE/ARB inhibitors).
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At PicnicHealth, we are patients too - and we hate spam. Once a month, we’ll send you a newsletter that covers tips from your community, research updates, and inspirational stories from other patients.