Hi! I am Erin Fortin; I'm 28 years old from Long Island, NY and was diagnosed with PNH in 2019. I enjoy being involved in the PNH community and meeting other patients through various advocacy work I've been grateful to participate in. Besides PNH, I enjoy spending time with my 10 month old daughter, husband, family and friends, drawing, and making stickers for my Etsy Shop!
Patients typically access their medical records through patient portals, which are online platforms that allow you to view their health information and communicate with your healthcare providers. Many patient portals are part of an electronic health record (EHR) system used by healthcare providers. While EHR systems are helpful tools for managing records from one facility, requesting prescription refills, or paying bills, they often fall short when consolidating information from different healthcare organizations or participating in research.
Clinical trials and PicnicHealth are two approaches when it comes to advancing medical knowledge and improving patient outcomes. While both clinical trials and PicnicHealth have their strengths and limitations, it's important to understand the differences between the two when considering options for improving healthcare.