Change Champions are change agents in their communities and advocates for real-world data research and medical record access. Together, we can raise awareness about the conditions impacting you and your loved ones and accelerate research breakthroughs.Join Now
"I joined Change Champions because I don't want anybody to ever feel the way that I felt. Being able to be supported to share my story and to be an advocate is just so meaningful to me.”
You know how to cultivate meaningful relationships and you value inclusivity on your platform and make space for all voices.
You stay up to date with what is going on within your community, and can spot opportunities to bring PicnicHealth into the conversation.
You are passionate about giving back to your community and impacting those around you in a positive way.
Educate your community on the power of real-world data research and how they can use PicnicHealth to own their health. You will also help us build future products and services by providing your valuable feedback.
You know best what it is like living with your condition. We'll partner with you to raise awareness and educate others through blog posts, video interviews, webinar participation and other channels!
Help us reach our goal of empowering all patients through medical records ownership and research breakthroughs. Refer members of your community to PicnicHealth and receive swag along the way!
In celebration of Rare Disease Month, we are thrilled to shine a spotlight on Change Champions, dedicated partners, and organizations making a lasting impact on rare disease research throughout the year. At the forefront of this movement is Rare Patient Voice, a remarkable resource founded with a singular mission – to provide patients and family caregivers a platform to be heard by actively participating in diverse research endeavors, including rare diseases.
In honor of Rare Disease Awareness Month, we're thrilled to kick off our #ShareYourRare campaign. We believe that your stories matter, and through #ShareYourRare, we want to highlight the often-overlooked challenges and stories of those who are living with a rare condition.
Want to know more? Explore our most frequently asked, patient questions.