Have questions? Speak with a member of our team by calling
Have questions? Speak with a member of our team by calling
Join the VISTA observational study to help researchers learn more about living with and managing achondroplasia.
Provide your child’s anonymized medical records for research. Change what researchers know about achondroplasia, plus get free access to your child's complete medical records in your PicnicHealth timeline. Sign up in minutes.
Study Eligibility: You can enroll your child in the VISTA observational study if they are diagnosed with achondroplasia, <18 years old, and receive medical care in the US.
Join the VISTA observational study to help researchers learn more about living with and managing achondroplasia.
Provide your child’s anonymized medical records for research. Change what researchers know about achondroplasia, plus get free access to your child's complete medical records in your PicnicHealth timeline. Sign up in minutes.
Study Eligibility: You can enroll your child in the VISTA observational study if they are diagnosed with achondroplasia, <18 years old, and receive medical care in the US.
With your permission, we work with your child's care providers to collect anything related to their health history: imaging files, test results, and doctor’s notes in both digital and paper format. Your child's doctors are provided with our highly secure private portal to transfer the information to us.
We extract only the information that is valuable for researchers and replace anything identifiable with a randomized ID number through our proprietary, multi-step, de-identification technology. Your child's data is then assigned a unique code, or de-identified, and then compiled with many others into a comprehensive data report, and shared with BioMarin researchers through a secure, private portal.
Your child's de-identified health data will be shared with VISTA study researchers. We will only use their collected health data in accordance with the consent provided in relation to the VISTA study. See our terms and conditions.
VISTA is an observational research study being conducted by BioMarin in partnership with PicnicHealth. VISTA will investigate the experience of living with and caring for a child with achondroplasia. As part of the study, PicnicHealth will collect and organize your child’s medical records and de-identify them to remove your child’s name and any other identifying information. Your records will then be assigned a unique code for inclusion in the VISTA study. Additionally, at sign-up and every 6 months afterwards, both you and your child will be asked to complete surveys on your experiences of living with achondroplasia. You will be compensated for completing these.
Records Collected
Providers on Record
Partner Organizations
Answer a few questions about your medical care and which doctors you’ve seen.
Our team will collect and digitize your medical records at no cost to you. No uploads or appointments necessary.
Once we’ve digitized your records, access all of your records right from your PicnicHealth account - doctors’ notes, test results, imaging and more.
Your records are completely de-identified, then analyzed together with records from others.
Answer a few questions about your loved one's medical care and which doctors they've seen.
Our team will collect and digitize your loved one's medical records at no cost to you. No uploads or appointments necessary.
Once we’ve digitized your loved one's records, access all of their records right from your PicnicHealth account - doctors’ notes, test results, imaging and more.
Your loved one's records are completely de-identified, then analyzed together with records from others.
At PicnicHealth, we’re patients too, so we know how important it is that your private data stays private. Here’s our promise:
We protect your personal information with military grade encryption and abide by HIPAA compliant practices.
Your data is fully de-identified. We only share datasets that are structured for research, never redacted medical records.
PicnicHealth will ask for your consent every time before sharing any information with any partners. You can opt out at any time.
We use an IRB (Institutional Review Board) and work with a team of physicians to protect the best interest of our research volunteers.
At PicnicHealth, we’re patients too, so we know how important it is that your loved one's private data stays private. Here’s our promise:
We protect your loved one's personal information with military grade encryption and abide by HIPAA compliant practices.
Your loved one's data is fully de-identified. We only share datasets that are structured for research, never redacted medical records.
PicnicHealth will ask for your consent every time before sharing any information with any partners. You can opt out at any time.
We use an IRB (Institutional Review Board) and work with a team of physicians to protect the best interest of our research volunteers.
Answer a few questions about your medical care and which doctors you’ve seen.
Our team will collect and digitize your medical records at no cost to you. No uploads or appointments necessary.
Once we’ve digitized your records, access all of your records right from your PicnicHealth account - doctors’ notes, test results, imaging and more.
Your records are completely de-identified, then analyzed together with records from others.
Answer a few questions about your loved one's medical care and which doctors they've seen.
Our team will collect and digitize your loved one's medical records at no cost to you. No uploads or appointments necessary.
Once we’ve digitized your loved one's records, access all of their records right from your PicnicHealth account - doctors’ notes, test results, imaging and more.
Your loved one's records are completely de-identified, then analyzed together records from others.
With your permission, we work with your child's care providers to collect anything related to their health history: imaging files, test results, and doctor’s notes in both digital and paper format. Your child's doctors are provided with our highly secure private portal to transfer the information to us.
We extract only the information that is valuable for researchers and replace anything identifiable with a randomized ID number through our proprietary, multi-step, de-identification technology. Your child's data is then assigned a unique code, or de-identified, and then compiled with many others into a comprehensive data report, and shared with BioMarin researchers through a secure, private portal.
Your child's de-identified health data will be shared with VISTA study researchers. We will only use their collected health data in accordance with the consent provided in relation to the VISTA study. See our terms and conditions.
VISTA is an observational research study being conducted by BioMarin in partnership with PicnicHealth. VISTA will investigate the experience of living with and caring for a child with achondroplasia. As part of the study, PicnicHealth will collect and organize your child’s medical records and de-identify them to remove your child’s name and any other identifying information. Your records will then be assigned a unique code for inclusion in the VISTA study. Additionally, at sign-up and every 6 months afterwards, both you and your child will be asked to complete surveys on your experiences of living with achondroplasia. You will be compensated for completing these.
Records Collected
Providers on Record
Partner Organizations
At PicnicHealth, we’re patients too, so we know how important it is that your private data stays private. Here’s our promise:
We protect your personal information with military grade encryption and abide by HIPAA compliant practices.
Your data is fully de-identified. We only share datasets that are structured for research, never redacted medical records.
PicnicHealth will ask for your consent every time before sharing any information with any partners. You can opt out at any time.
We use an IRB (Institutional Review Board) and work with a team of physicians to protect the best interest of our research volunteers.
At PicnicHealth, we’re patients too, so we know how important it is that your loved one's private data stays private. Here’s our promise:
We protect your loved one's personal information with military grade encryption and abide by HIPAA compliant practices.
Your loved one's data is fully de-identified. We only share datasets that are structured for research, never redacted medical records.
PicnicHealth will ask for your consent every time before sharing any information with any partners. You can opt out at any time.
We use an IRB (Institutional Review Board) and work with a team of physicians to protect the best interest of our research volunteers.
More than anything, researchers need data from real children and families with achondroplasia to identify patterns and find answers to questions such as.
At PicnicHealth, we’re patients too, so we know how important it is that your private data stays private. Here’s our promise:
We protect your personal information with military grade encryption and abide by HIPAA compliant practices.
Your data is fully de-identified. We only share datasets that are structured for research, never redacted medical records.
PicnicHealth will ask for your consent every time before sharing any information with any partners. You can opt out at any time.
We use an IRB (Institutional Review Board) and work with a team of physicians to protect the best interest of our research volunteers.
At PicnicHealth, we’re patients too, so we know how important it is that your loved one's private data stays private. Here’s our promise:
We protect your loved one's personal information with military grade encryption and abide by HIPAA compliant practices.
Your loved one's data is fully de-identified. We only share datasets that are structured for research, never redacted medical records.
PicnicHealth will ask for your consent every time before sharing any information with any partners. You can opt out at any time.
We use an IRB (Institutional Review Board) and work with a team of physicians to protect the best interest of our research volunteers.
VISTA is an observational research study being conducted by BioMarin in partnership with PicnicHealth. VISTA will investigate the experience of living with and caring for a child with achondroplasia. As part of the study, PicnicHealth will collect and organize your child’s medical records and de-identify them to remove your child’s name and any other identifying information. Your records will then be assigned a unique code for inclusion in the VISTA study. Additionally, at sign-up and every 6 months afterwards, both you and your child will be asked to complete surveys on your experiences of living with achondroplasia. You will be compensated for completing these.
More than anything, researchers need data from real children and families with achondroplasia to identify patterns and find answers to questions such as.
If your child is enrolled in the VISTA observational study, and receives care in the US, it takes just a few minutes to sign up.
No commitment—you're free to opt-out at any time.
After sign-up and with your permission, we contact your child's care providers to collect their health history—imaging files, test results, and doctors' notes.
Our rigorous multi-step process removes all identifying information. See our Privacy Pledge. We will assign your child's data a unique identifier before sharing with BioMarin researchers.
We combine your child's de-identified health data with data from other participants to create an invaluable dataset—only for VISTA researchers.
If you consent to participate in VISTA and sign up for the PicnicHealth application, you will be able to gain access to your child’s digitized medical records for free, for the duration of the study or until you withdraw them from the study, or cancel your PicnicHealth application. You can maintain services to the PicnicHealth application after the end of the VISTA study at your own expense.
Join NowWith your permission, we work with your child's care providers to collect anything related to their health history: imaging files, test results, and doctor’s notes in both digital and paper format. Your child's doctors are provided with our highly secure private portal to transfer the information to us.
We extract only the information that is valuable for researchers and replace anything identifiable with a randomized ID number through our proprietary, multi-step, de-identification technology. Your child's data is then assigned a unique code, or de-identified, and then compiled with many others into a comprehensive data report, and shared with BioMarin researchers through a secure, private portal.
Your child's de-identified health data will be shared with VISTA study researchers. We will only use their collected health data in accordance with the consent provided in relation to the VISTA study. See our terms and conditions.
