Empowering Wellness: Spotlight on Three Organizations Championing Black Mental and Physical Health

PicnicHealth | Empowering Wellness: Spotlight on Three Organizations Championing Black Mental and Physical Health
February 13, 2024
Blog post originally written by the AllStripes community team. AllStripes was acquired by PicnicHealth in 2023.

As we celebrate Black History Month, we recognize that Black history and the wellness of Black communities must be top of mind every day of the year. Despite the many contributions Black people have made to medicine and wellness, alarming health disparities due to structural and interpersonal racism, still exist for Black people. Black communities have taken it upon themselves to work toward  building equitable and inclusive healthcare systems. From confronting the complexities of cancer diagnoses to nurturing mental health resilience and advocating for women's well-being, these three organizations stand as beacons of support and empowerment that center Black lives in healthcare.

TOUCH, The Black Breast Cancer Alliance

Black women are more likely than white women to die of breast cancer at any age across any sub-type, and have the lowest 5-year relative breast cancer survival rate compared to all other racial/ethnic groups for every stage of diagnosis and every breast cancer subtype. TOUCH, The Black Breast Cancer Alliance, is a non-profit organization dedicated to addressing and improving these dire statistics. Their programming takes on the unique challenges and disparities faced by Black individuals affected by breast cancer. This alliance strives to raise awareness about breast cancer within the Black community, emphasizing the importance of early detection, education, and support. 

TOUCH is committed to fostering a sense of empowerment and resilience among Black breast cancer survivors and patients by providing resources, advocacy, and a platform for their voices to be heard. Through community engagement and collaboration, TOUCH works towards eliminating health disparities, promoting health equity, and improving the overall well-being of Black individuals impacted by breast cancer.

Black Women’s Health Imperative

The Black Women's Health Imperative (BWHI) is a nonprofit organization dedicated to promoting the health and well-being of Black women and girls. Founded in 1983, the BWHI focuses on addressing the unique health challenges faced by Black women through research, education, and advocacy.

The organization recognizes the intersectionality of race and gender and strives to eliminate health disparities by raising awareness about issues such as reproductive justice, cardiovascular health, mental health, and HIV/AIDS prevention within the Black community. BWHI works to empower Black women to take control of their health, providing resources, information, and support to help them make informed decisions about their well-being.

Through community engagement, policy advocacy, and partnerships with healthcare professionals, the Black Women's Health Imperative aims to create positive changes in healthcare policies and practices, ultimately improving the overall health outcomes for Black women and girls. By addressing the specific needs and challenges faced by this demographic, the BWHI plays a crucial role in advancing health equity and fostering a healthier future for Black women.

Black Mental Health Alliance

The Black Mental Health Alliance (BMHA) is a nonprofit organization committed to promoting mental health and emotional well-being within the Black community. Established to address the unique mental health challenges faced by Black individuals, the BMHA focuses on advocacy, education, and support to reduce stigma, increase access to mental health resources, and improve overall mental health outcomes.

The organization recognizes the historical and systemic factors that contribute to mental health disparities in the Black community, and it aims to empower individuals to seek and receive culturally competent mental health care. BMHA provides educational programs, training, and resources to promote mental health awareness and resilience. Additionally, the alliance works to destigmatize mental health issues through community engagement, dialogue, and collaboration with mental health professionals.

By fostering partnerships with community organizations, mental health providers, and other stakeholders, the Black Mental Health Alliance strives to create a more inclusive and supportive environment for Black individuals seeking mental health services. Ultimately, the organization plays a crucial role in advocating for mental health equity and ensuring that Black communities have the resources and support needed to address their mental health concerns effectively.



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Create a List

List the names of all the doctors, hospitals, and other facilities your loved one visits regularly, along with those they have visited in the past. Try to go back as far as you can, striving for at least the last 5-10 years, but do your best. Even if you can’t remember them all, having a strong baseline can help you quickly identify gaps in records.

Ensure You Have the Appropriate Legal Status

It is important to make sure that you are fully empowered to make decisions on behalf of your loved one with Alzheimer’s. Your relationship status with the patient may not be enough to legally give you access to your loved one's medical information. It is a good idea to talk to an expert about securing special legal status, such as Power of Attorney (POA), a legal document that allows an individual to name someone as their decision maker should they no longer be able to make decisions on their own.

Gather and Organize the Medical Records in One Place

It’s important to have all of your loved one’s medical records together in one spot. This makes it much easier for you and your loved one’s physicians to accurately map the patient’s medical journey and more easily share information between doctors. Fortunately, tools exist to make record management and access simple. A free resource like PicnicHealth helps you collect and organize all of this information. PicnicHealth’s intuitive timeline allows you to pinpoint data across the medical history, eliminating your need for keeping heavy binders filled with paper records or keeping track of multiple software portal logins.

Review the Medical Records to be an Informed Advocate

The better you understand your loved one's medical history, the better you can advocate on their behalf. Access and understanding of this information will help you to ask informed questions with physicians. Through regular communication backed by the data in the medical records, you can help your loved one’s care team develop a more successful care plan.

Learn more about PicnicHealth’s commitment to the Alzheimer’s community and the Alzheimer’s Association

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Together, we can make a difference.

Learn more about PicnicHealth’s commitment to the Alzheimer’s community and the Alzheimer’s Association

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Build a support network.

When you’re juggling appointment times and insurance claims, putting a robust support system together might not strike you as the most urgent task. Investing the time to cultivate relationships with people can turn to in times of need will pay dividends. The next time you need a last-minute ride or just someone to listen, you won’t be on your own.

There are many condition-specific support groups and support groups for caregivers generally in person or online. In addition to the encouragement and empathy they provide, support groups can be a helpful source of tips, resources, and recommendations for navigating caregiving.


Stay organized.

The backbone of effective caregiving is organization. Keep medical information, appointment schedules, and medication lists in order. Use a planner or a digital service like PicnicHealth to stay on top of your responsibilities. This attention to detail can prevent future complications and reduce day-to-day stress.


Explore treatments and clinical trials.

We’ve seen incredible breakthroughs in treatment over the past couple of years, powered by patients and their caregivers participating in research. Stay in the loop about the latest in medical advancements and available resources that could benefit your loved one. Whether it’s a new therapy option or a community service that aids independence, being informed can make a world of difference in the quality of care you provide.


Make time for self-care.

It may seem self-centered to focus on self-care—but when you feel good, you can be a better caregiver. Whether it’s exercise, a mindfulness practice, a soak in the bath, or just time to rest when you need it, carve out those moments in the day when you can unwind, reset, and stay healthy mentally and physically. Think of it as building up your reserves of kindness, patience, and understanding—which can only benefit your loved one. No one can pour from an empty cup.

Having trouble managing your loved one's medical records?

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LC-FAOD Odyssey: A Preliminary Analysis, presented at INFORM 2021

Data from real-world medical records:

(from 13 patients with LC-FAOD)

16 yrs old

Median age at enrollment

38% Female

15 providers / patient

7.5 years of data / patient

Data from patient-reported outcome (PRO) survey

(from 13 patients with LC-FAOD)

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However, it's important to consult with a healthcare provider or registered dietitian to determine the appropriate amount of protein for your individual needs. In general, a diet with moderate protein intake (about 0.8 grams per kilogram of body weight per day) is recommended for people with kidney diseases.

Learn more about contributing to IgAN research with PicnicHealth. 

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Save The Top-10 List

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Keep an Eye on These Test Results

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Resource Flyer

Explore the essential takeaways from Victoria's Webinar, along with some resources that she shared.

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Pre-Appointment Worksheet

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