Huntington’s disease is a rare inherited disease that causes the progressive breakdown of nerve cells in the brain. No current treatments can alter the course of HD, which is why it’s so important to study the causes and early symptoms of the disease. This can lead to potentially preventing or helping to treat the disease for a better quality of life. Our aim is to help provide data necessary for the researchers in this field to do just that.
PicnicHealth is partnered with Sage Therapeutics, a brain health company committed to developing novel therapies for disorders where there’s a high unmet need, to improve the research around Huntington’s Disease. Sage is committed to developing drugs that help patients living with debilitating brain disorders and are currently studying an orally administered investigational drug to understand its effect on cognitive symptoms in Huntington’s Disease.
By understanding what leads to a diagnosis of HD, researchers can find ways to treat those early symptoms and potentially better treat the disease. By allowing your patient data to be shared with Sage Therapeutics, you’re providing de-identified medical records, claims, and patient outcomes that can aid in this research. Sage can help identify how treatments impact patients and what the cost of care is in order to optimize treatments to improve quality of life and cut overall costs.
In fact, here are all the ways that Sage’s research could impact the HD patient journey:
- Inform physicians to provide a higher level of care.
- Raise awareness of signs and symptoms of HD for both physicians and those who may be diagnosed earlier.
- Help advance treatments for those who have been diagnosed to improve the quality of their lives.
- Inform policymakers and potential clinical trials to help find a cure.
- Help patients get access to treatments earlier on in their journey.
- Help empower patients and caregivers to better understand what an HD diagnosis does and doesn’t mean for their future.
There is so much good, and so many potential outcomes, that can come from this research. Find out how you can help contribute the needed data to build the foundation for those that are diagnosed today and will be tomorrow.