It’s an exciting time for Alzheimer’s disease research. The FDA approved the first new drug for Alzheimer’s in nearly 20 years in June 2021, and other potential treatments, targeting amyloid plaques in the brain, are making their way through clinical trials.1, 2 It’s a glimmer of hope for Alzheimer’s patients, who number over 6 million in the U.S. alone.3
Yet, it’s just the beginning. The novel therapies might not work for everyone, and a lot more work needs to be done. While randomized controlled trials remain a gold standard of advancing science, there’s another piece that’s essential to solving the Alzheimer’s research puzzle: real-world evidence.
Real-world evidence (RWE) takes data collected from the real world, outside of clinical trials, and uses it to assess patient outcomes. RWE for Alzheimer’s asks, What happens over a patient’s care journey? What works for different patients? Questions like these broaden our understanding of the day-to-day challenges of living with Alzheimer’s—and they’re key to paving the way to new advances and discoveries.
Today, reams of patient data are collected through electronic health records. It’s a potential gold mine of information for researchers, but RWE can only work its magic if patients share their data.
PicnicHealth offers a safe, secure, and easy way for real patients, in the real world, to share their medical records and be a part of the new wave of science. It takes just minutes to sign up, and when you do, your data is de-identified before it’s shared with researchers. You get something out of the bargain, too: access to your medical records, organized in a single timeline and accessible in one click.
Even better, RWE gives you the gratification of knowing that you’re contributing to vital research, almost effortlessly. It’s a chance to make your voice heard and move the needle on science. What if you were missing link to the next Alzheimer’s breakthrough?
- FDA Website. FDA’s Decision to Approve New Treatment for Alzheimer’s Disease. Accessed Nov. 17, 2021.
- More Alzheimer’s drugs head for FDA review: what scientists are watching. Nature. Nov. 15, 2021. Accessed Nov. 17, 2021.
- Alzheimer’s Association Website. 2021 Alzheimer’s Disease Facts and Figures. Accessed Nov. 17, 2021.