IgA Nephropathy (IgAN)
This is an observational study of IgA Nephropathy patients in the United States. PicnicHealth collects data through participant-mediated access to electronic health records which will enable retrospective and prospective collection of secondary data reflecting real-life treatment use and clinical care.
Refer a patientStudy Design
The Immunoglobulin A Nephropathy Cohort Study is an observational, ambispective study of IgA nephropathy patients in the United States. Patient electronic health records will be collected and processed to abstract data elements from structured and unstructured text, resulting in a de-identified dataset reflective of real world treatment use, outcomes, and natural history.
Study Population
Patients who have a confirmed IgAN diagnosis and receive medical care in the U.S.
Number of Subjects
400-500 participants
Enrollment Period
Through June of 2025
Patient Materials
With guidance from patients, we developed this brochure to optimize conversations about participating in the study. Designed to be shared in 2-3 minutes, this brochure guides patients through enrollment and study participation.
