You have the power to change history.

It’s easier than ever to support research that advances medicine. With PicnicHealth, you can contribute to research simply by volunteering to share your anonymized medical data. No extra appointments, prescriptions, or tests.

We make a bigger impact together.

Every person’s medical history is unique. But collectively, our medical data becomes more powerful than the sum of its parts. With a complete picture, researchers can identify trends and unlock insights that lead to medical breakthroughs. Which ultimately can make a difference for you, your loved ones, and future generations.

Be part of something bigger.

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We work with the world’s
best researchers.

PicnicHealth selectively partners with researchers on specific diseases. By allowing these researchers to use anonymized records, PicnicHealth is able to provide study participants their medical record timeline for free.

Real-world evidence is the
new frontier of medicine.

Medical research has brought many breakthroughs, but historically it ignored the vast majority of data in the world—the medical records of real people, like you, in their normal course of care. PicnicHealth set out to change that. By leveraging historical records, known as “real-world evidence,” we can contribute to finding better care for tomorrow. This real-world evidence can help us identify trends, supplement clinical trials, and understand effectiveness of new treatments.

Here's how it works for you:

Opt in if you’d like to contribute your data to research.
We’ll anonymize your data so it is not identifiable.
Researchers get datasets to help power breakthroughs.
“As a patient myself, being able to shape the future of research is incredibly rewarding. I firmly believe we can better use technology to improve health outcomes.”
- Gillian Hanson, Physician and Director of Data & Informatics at PicnicHealth

Gillian is part of the founding team of PicnicHealth. She has been an advocate of patient-centered medicine as both a physician and a patient who has managed a coagulation disorder.

“I’m excited to contribute my medical history to better understand this challenging disease. Not only will your research improve others’ journeys, it allows me and my doctors complete visibility of my entire medical history in one electronic file.”
- Mike, PicnicHealth Research Participant

PicnicHealth and Genentech have teamed up to create FlywheelMS, a first-of-its-kind research study that combines the medical journeys of thousands of people with multiple sclerosis (MS) into a single research database.

“Dealing with sickle cell has been a lifelong rollercoaster. The thought of my voice being heard in the world of medicine is really what motivated me to join this study. Not only to advocate for myself but others and knowing the advocacy put forth will have both a powerful and positive impact.”
- Chinara, PicnicHealth Research Participant

PicnicHealth is developing a new study to understand what diagnosis, care, and progression look like for people living with sickle cell disease.

Our Research Principles

We’re patients ourselves. Which is why we treat you as a partner—the way we want to be treated.

We protect your rights and privacy

An Institutional Review Board (IRB) reviews our studies to ensure people like you are well informed.

We anonymize your data

Before researchers receive your data, we remove any and all personally identifiable information.

We are committed to public research

Anonymized medical data sets are free for qualified academic, non-commercial use.

Participation is up to you

You must proactively opt in. And we will never share your information.

Withdraw at any time

If you decide you'd rather not participate in research anymore, no problem. We will fully respect your decision, no questions asked.

Frequently Asked Questions

Can medical records really help with research?
Medical records tell a story of what’s actually happening when doctors see patients, and can be really helpful for understanding how care is delivered in the real world. They also contain a lot of information about how you experience disease—your symptoms, health status, and treatments. Putting all of this information together for a diverse group of people allows the scientific community to see patterns that no one doctor can see on his or her own.
How much does PicnicHealth cost?
PicnicHealth is free for anyone who participates in a PicnicHealth research study. If you are not eligible for a study or prefer not to contribute your anonymized records for research, PicnicHealth costs $299 for initial collection of all past records, and then $39 per month for ongoing updates.
If I participate in a study, will I see its results?
Yes! We believe it’s important for you to see the results of research produced using your records and we make every effort to share published results back with you.
How can you make my records anonymous for research?
Our process is fairly sophisticated. We don’t just redact your records by crossing out or deleting your name. When preparing records to share with researchers, we actually remove specific pieces of information from your records—like lab results or medications—and put those into a separate file. Then we combine those with similar information from other de-identified patient records. So the actual file researchers receive is primarily a spreadsheet with a bunch of numbers, drug names, and dates. This is the most useful format for their research, and it also does a much better job of protecting patient privacy than sharing full medical records. Most of our research includes hundreds or thousands of patients, ensuring that this collective information is totally anonymous.
Does PicnicHealth run clinical trials?
Contributing your records for research through PicnicHealth is not a clinical trial, though sometimes they may be used in conjunction with a clinical trial. A traditional clinical trial involves testing a specific treatment, like a drug or medical device. At PicnicHealth, we are only collecting medical records produced during your normal visits to the doctor. This means you won’t need to change medications or any part of your current treatment plan in order to participate. The goal of this study is to better understand how people with certain diseases are being treated and how to advance care for people living with those diseases everywhere.
Want to know more?

Lets talk.

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Help advance medicine for all.

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