Have questions? Speak with a member of our team by calling 

Why join?

Get your records, give to science

Your health in your hands.

Access all of your medical records directly from your PicnicHealth account. Just go to your appointments, and we do the rest.

  • View doctors’ notes, test results, medications, imaging, and more.
  • Search your records by visit date, doctor, location, or keyword.
  • We’ll update you when we add new records.

Share records seamlessly.

Coordinate your healthcare with a click. PicnicHealth makes it easy to share records with a new specialist, or just keep your family in the loop.

  • Share records directly via email, text message, or link.
  • Set custom security measures to share your records securely.
  • Pause or remove access any time.

Accelerate research from home.

Contributing to research has never been easier. Earn rewards for sharing your records with researchers, answering questions about your health, and referring friends.

  • Share your anonmyized records with Sickle Cell Disease researchers.
  • Earn rewards for completing surveys about your health.
  • Refer members of your community to participate.
Research Impact

Your records make a difference

Data contained in medical records tells the true story of each individual's journey with Sickle Cell. This information is powerful for you, your loved ones, and the sickle cell community.

Medical records help researchers learn:

  • How can we help Sickle Cell patients minimize symptoms and move into remission faster?
  • Are there ways to lessen the impact that Sickle Cell has on a patient’s daily life?
  • Can real world data help us predict what triggers Sickle Cell symptoms?
8.1M+

Records Collected

250k+

Providers on Record

50+

Partner Organizations

How it works

1.  Sign up in minutes

Answer a few questions about your medical care and which doctors you’ve seen.

2. We gather your records

Our team will collect and digitize your medical records at no cost to you. No uploads or appointments necessary.

3. Manage your health

Once we’ve digitized your records, access all of your records right from your PicnicHealth account - doctors’ notes, test results, imaging and more.

4. Opt in to research

Your records are completely de-identified, then analyzed together with records from others.

How it works

1.  Sign up in minutes

Answer a few questions about your loved one's medical care and which doctors they've seen.

2. We gather your loved one's records

Our team will collect and digitize your loved one's medical records at no cost to you. No uploads or appointments necessary.

3. Manage your loved one's health

Once we’ve digitized your loved one's records, access all of their records right from your PicnicHealth account - doctors’ notes, test results, imaging and more.

4. Opt in to research

Your loved one's records are completely de-identified, then analyzed together with records from others.

REAL PEOPLE, REAL STORIES
“As someone with three different autoimmune diseases, I wish I would have had PicnicHealth at the beginning of my journey. I have had to go to three different specialists to get the correct diagnosis.”
Shanna
PBC Research Participant
REAL PEOPLE, REAL STORIES
“As someone with three different autoimmune diseases, I wish I would have had PicnicHealth at the beginning of my journey. I have had to go to three different specialists to get the correct diagnosis.”
Shanna
PBC Research Participant
REAL PEOPLE, REAL STORIES
"After the initial shock and devastation of my diagnosis, I wanted to fight the disease in any way I could, and participating in medical research became my way of fighting back. Research has been successful in helping to improve treatments, but until there’s a cure, my fight will continue."
Lisa Marie
PicnicHealth Research Participant

Privacy & Security

At PicnicHealth, we’re patients too, so we know how important it is that your private data stays private. Here’s our promise:

Security

We protect your personal information with military grade encryption and abide by HIPAA compliant practices.

Privacy

Your data is fully de-identified. We only share datasets that are structured for research, never redacted medical records.

Transparency

PicnicHealth will ask for your consent every time before sharing any information with any partners. You can opt out at any time.

Responsibility

We use an IRB (Institutional Review Board) and work with a team of physicians to protect the best interest of our research volunteers.

Privacy & Security

At PicnicHealth, we’re patients too, so we know how important it is that your loved one's private data stays private. Here’s our promise:

Security

We protect your loved one's personal information with military grade encryption and abide by HIPAA compliant practices.

Privacy

Your loved one's data is fully de-identified. We only share datasets that are structured for research, never redacted medical records.

Transparency

PicnicHealth will ask for your consent every time before sharing any information with any partners. You can opt out at any time.

Responsibility

We use an IRB (Institutional Review Board) and work with a team of physicians to protect the best interest of our research volunteers.

How it works

1.  Sign up in minutes

Answer a few questions about your medical care and which doctors you’ve seen.

2. We gather your records

Our team will collect and digitize your medical records at no cost to you. No uploads or appointments necessary.

3. Manage your health

Once we’ve digitized your records, access all of your records right from your PicnicHealth account - doctors’ notes, test results, imaging and more.

4. Opt in to research

Your records are completely de-identified, then analyzed together with records from others.

How it works

1.  Sign up in minutes

Answer a few questions about your loved one's medical care and which doctors they've seen.

2. We gather your loved one's records

Our team will collect and digitize your loved one's medical records at no cost to you. No uploads or appointments necessary.

3. Manage your loved one's health

Once we’ve digitized your loved one's records, access all of their records right from your PicnicHealth account - doctors’ notes, test results, imaging and more.

4. Opt in to research

Your loved one's records are completely de-identified, then analyzed together records from others.

Why join?

Get your records, give to science

Your health in your hands.

Access all of your medical records directly from your PicnicHealth account. Just go to your appointments, and we do the rest.

  • View doctors’ notes, test results, medications, imaging, and more.
  • Search your records by visit date, doctor, location, or keyword.
  • We’ll update you when we add new records.

Share records seamlessly.

Coordinate your healthcare with a click. PicnicHealth makes it easy to share records with a new specialist, or just keep your family in the loop.

  • Share records directly via email, text message, or link.
  • Set custom security measures to share your records securely.
  • Pause or remove access any time.

Accelerate research from home.

Contributing to research has never been easier. Earn rewards for sharing your records with researchers, answering questions about your health, and referring friends.

  • Share your anonmyized records with Sickle Cell Disease researchers.
  • Earn rewards for completing surveys about your health.
  • Refer members of your community to participate.
Research Impact

Your records make a difference

Data contained in medical records tells the true story of each individual's journey with Sickle Cell. This information is powerful for you, your loved ones, and the sickle cell community.

Medical records help researchers learn:

  • How can we help Sickle Cell patients minimize symptoms and move into remission faster?
  • Are there ways to lessen the impact that Sickle Cell has on a patient’s daily life?
  • Can real world data help us predict what triggers Sickle Cell symptoms?
8.1M+

Records Collected

250k+

Providers on Record

50+

Partner Organizations

REAL PEOPLE, REAL STORIES
“As someone with three different autoimmune diseases, I wish I would have had PicnicHealth at the beginning of my journey. I have had to go to three different specialists to get the correct diagnosis.”
Shanna
PBC Research Participant
REAL PEOPLE, REAL STORIES
“As someone with three different autoimmune diseases, I wish I would have had PicnicHealth at the beginning of my journey. I have had to go to three different specialists to get the correct diagnosis.”
Shanna
PBC Research Participant
REAL PEOPLE, REAL STORIES
"After the initial shock and devastation of my diagnosis, I wanted to fight the disease in any way I could, and participating in medical research became my way of fighting back. Research has been successful in helping to improve treatments, but until there’s a cure, my fight will continue."
Lisa Marie
PicnicHealth Research Participant

Privacy & Security

At PicnicHealth, we’re patients too, so we know how important it is that your private data stays private. Here’s our promise:

Security

We protect your personal information with military grade encryption and abide by HIPAA compliant practices.

Privacy

Your data is fully de-identified. We only share datasets that are structured for research, never redacted medical records.

Transparency

PicnicHealth will ask for your consent every time before sharing any information with any partners. You can opt out at any time.

Responsibility

We use an IRB (Institutional Review Board) and work with a team of physicians to protect the best interest of our research volunteers.

Privacy & Security

At PicnicHealth, we’re patients too, so we know how important it is that your loved one's private data stays private. Here’s our promise:

Security

We protect your loved one's personal information with military grade encryption and abide by HIPAA compliant practices.

Privacy

Your loved one's data is fully de-identified. We only share datasets that are structured for research, never redacted medical records.

Transparency

PicnicHealth will ask for your consent every time before sharing any information with any partners. You can opt out at any time.

Responsibility

We use an IRB (Institutional Review Board) and work with a team of physicians to protect the best interest of our research volunteers.

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REAL PEOPLE, REAL STORIES
“As someone with three different autoimmune diseases, I wish I would have had PicnicHealth at the beginning of my journey. I have had to go to three different specialists to get the correct diagnosis.”
Shanna
PBC Research Participant
REAL PEOPLE, REAL STORIES
“As someone with three different autoimmune diseases, I wish I would have had PicnicHealth at the beginning of my journey. I have had to go to three different specialists to get the correct diagnosis.”
Shanna
PBC Research Participant
REAL PEOPLE, REAL STORIES
"After the initial shock and devastation of my diagnosis, I wanted to fight the disease in any way I could, and participating in medical research became my way of fighting back. Research has been successful in helping to improve treatments, but until there’s a cure, my fight will continue."
Lisa Marie
PicnicHealth Research Participant

We work with great partners.

PicnicHealth partners with advocacy organizations across the country to engage with the sickle cell community and learn more about your needs. Our advocacy partners are committed to providing resources and services to Sickle Cell patients and their families, and we are honored to collaborate with such inspiring organizations. Below are a few of our partners.

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Frequently Asked Questions
Who will be able to see my medical records?

By signing up for this study, you're agreeing to share your medical records with researchers and organizations working in the sickle cell disease space. They will only receive records stripped of any information that could be used to identify you personally. Outside of that, no one will be able to see your medical records unless you choose to share them by clicking "Send Records" at the top of your PicnicHealth timeline.

Data and Privacy
What does PicnicHealth do?

PicnicHealth works directly with patients like you to help collect and manage your medical records. That means going out and collecting all of your medical records from your different doctors and keeping them up-to-date over time. PicnicHealth will then transform your records into a timeline that makes it easier to find what you’re looking for. When you see your doctor again, PicnicHealth will update your timeline with new records. You can access your PicnicHealth timeline from anywhere and even share it with your doctors with a few clicks.

About PicnicHealth
How long will it take to get my medical records?

It takes about 3 to 4 weeks to retrieve most of your historical medical records. After that, it can take another couple of months for us to track down the oldest and trickiest records to access.  The timing depends on how quickly your doctors respond to PicnicHealth's requests for your records.

What to Expect
Who can join this study?

You can join this study if you have been diagnosed with sickle cell disease, live in the U.S., and have received medical care in the U.S. in the past 7 years.

Study Basics
What is the purpose of the study?

Our goal is to advance the understanding of sickle cell disease and to support research to improve quality of care. Information from medical records is particularly useful for rare diseases, such as sickle cell disease, because it gives us insight into what living with the disease is really like and how treatment options work in the real world, all without
needing to enroll patients in large, invasive clinical trials.

Study Basics
Will I see the study results?

Yes! We believe it’s important for you to see the results of research produced using your data and we’ll make every effort to share published results back with you.

Study Basics
Can I see what my records will look like in my PicnicHealth account?

Yes. You can view this sample timeline.

About PicnicHealth
How far back will you collect historical records?

For this research study, we will collect records going back as far as possible. In most states, doctors are required to keep records for at least 7 years, but many will keep them for much longer. So how far back we can go really depends on the record keeping practices of your doctors.

What to Expect
Can I delete my medical records from PicnicHealth?

You may choose to delete your medical records and data from the PicnicHealth service at any time and for any reason. Just email PicnicHealth at [email protected].  Once records have been collected for the study, you can’t remove them from the study.

Data and Privacy
Will my medical records be secure?

PicnicHealth takes privacy very seriously. Your personal data is never shared without your explicit permission.Your medical records are kept safe using the highest encryption standard available: 256-bit SSL. This is the same technology that banks use to keep account information safe.

Data and Privacy
What if I can’t remember the names of all my doctors?

You can just enter as many doctors as you remember. The hospital or clinic name is usually enough and the PicnicHealth team will follow up with you if there’s any confusion. If PicnicHealth finds doctors mentioned in your records who you did not include on your doctor list, you will get an email asking for your permission to request records from that new doctor.

About PicnicHealth
When I first see my PicnicHealth timeline, will it be complete?

When you first see your timeline, it's possible that some of your medical records are not yet available. That's because PicnicHealth is still working hard to collect them for you. You should be able to see your medical records within a month of signing up. After the first month, your timeline will be updated regularly with information from your new doctor visits.

What to Expect
Can medical records really help with research?

Medical records record what’s actually happening when doctors see patients, so they can be really helpful for understanding how care is delivered in the real world. They also contain a lot of information about how you experience sickle cell disease --your symptoms, your health status, and your treatments. Putting all of this information together for a diverse group of patients will allow the scientific community to see patterns that no one doctor can see on his or her own.

Study Basics
Who is sponsoring the study? Are there any third parties involved?

The study is directly sponsored by PicnicHealth. At PicnicHealth, we specialize in building de-identified medical record data sets for researchers. Our goal is to get this data into the hands of researchers who can analyze the data to answer research questions about how sickle cell disease looks and is treated out in the real world (not in a very controlled clinical trial setting) with the hope that this can ultimately lead to better care. Third party organizations can apply for access to the de-identified data. These might be government, academic, or commercial innovators. As with all PicnicHealth studies, access to the data will be free to all academic researchers.

Study Basics
What should I do if I notice there are medical records missing from my PicnicHealth timeline?

In the first months, some records might be missing because PicnicHealth is still collecting them for you. After the first month, if you suspect that records are still missing, you can let us know about those records by clicking "Request Records" at the top of your timeline.

What to Expect
How will my doctor know it’s okay to share my records?

When you sign up, you’ll read and sign a form that authorizes PicnicHealth to request your medical records on your behalf. You can e-sign this form online -- no printing or mailing involved. Your doctor will then know that it's okay to share your medical records with PicnicHealth.

About PicnicHealth
Is this a clinical trial?

This is not a clinical trial. A traditional clinical trial involves testing a specific treatment, like a drug or medical device. In this study, we are only looking at data from medical records produced during your normal visits to the doctor. The goal is to better understand how patients with sickle cell disease are being treated and how to advance care for patients everywhere.

Study Basics
What if my doctor doesn’t have electronic records?

No problem. PicnicHealth can work with data in any format, whether your doctor takes notes with a pen or on an iPad.

About PicnicHealth
What kinds of medical records will you collect?

PicnicHealth will collect medical records from all the doctors, hospitals, and clinics that you tell us about. PicnicHealth does not collect dental or optometry records.

What to Expect
Will I get records from my scans and imaging?

Yes! You will be able to view your imaging files right in your PicnicHealth timeline.

What to Expect
How can I use my PicnicHealth timeline?

Your PicnicHealth timeline provides a single source of information for you and your doctors. It is a tool to help you coordinate care and understand your own health. You can share your timeline with any of your doctors with a few clicks. The doctor will receive a secure link and get access to your medical history.

About PicnicHealth
Will PicnicHealth update my medical records every time I see the doctor?

PicnicHealth will update your medical records regularly. To keep your records most up-to-date, you can always tell PicnicHealth when you have seen the doctor. Just click the “Request Records” button at the top of your timeline, and PicnicHealth will retrieve your new records for you.

What to Expect
Will PicnicHealth cost me anything?

You’ll receive PicnicHealth’s service free of charge for as long as you’re a participant in the study.

About PicnicHealth
Where can I learn more about sickle cell disease?

PicnicHealth has put together a sickle cell disease guide with all the basics you need to know about sickle cell disease, including symptoms, how it's diagnosed, how to manage your care, what kind of treatment is available, and research into new treatments.

Study Basics
What should I do if I see a new doctor?

At the top of your timeline, click on "Doctors" to add new doctors or medical facilities. PicnicHealth will then collect your records from your new doctors.

What to Expect
Can I stop participating in the study?

Yes. Your participation in this study is completely voluntary and you can withdraw at any time. If you choose to stop participating, your medical records will remain available for you through your PicnicHealth account. At that time we will stop collecting any new medical records. You can download copies of your records at any time. You can always tell PicnicHealth to delete your medical records, although the information that has already been shared with third party partners can’t be deleted.

What to Expect

Share your history to change the history of Sickle Cell Disease

Join Now
Have questions about how it works or PicnicHealth?
Email us at [email protected].