PicnicHealth Partners with Komodo Health

PicnicHealth Partners with Komodo Health Resource
By 
PicnicHealth
May 24, 2021
Blog post originally written by the AllStripes community team. AllStripes was acquired by PicnicHealth in 2023.

PicnicHealth Partners with Komodo Health to Enrich Its Research Platform Utilizing Real-World Patient Data

 

Collaboration enables PicnicHealth to unlock rich new insights about complex diseases and treatment outcomes in its Research Platform

 

May 24, 2021 – SAN FRANCISCO: PicnicHealth and Komodo Health today announced a partnership to support real-world evidence research programs for complex illnesses like multiple sclerosis and hemophilia. With this partnership, PicnicHealth will enrich its database of de-identified patient medical records with data from Komodo’s Healthcare Map™. The combined breadth and depth of real-world patient data will help support research efforts to close gaps in care, address unmet patient needs, and streamline clinical development efforts to deliver life-saving therapies to appropriate patients.


By integrating PicnicHealth’s data with Komodo’s Healthcare Map, PicnicHealth’s Research Platform will offer differentiated insights on complex therapeutic areas that may have variable impacts on population subsets. For heterogeneous diseases like multiple sclerosis, controlled clinical research settings are limited in the scope of insights they provide. At the same time, real-world studies have historically faced challenges in gathering the necessary data in these therapeutic areas where patients are moving between providers and healthcare organizations, which each use different systems of record.

 

To address these shortcomings, PicnicHealth is tapping Komodo’s Sentinel platform to gather journeys of thousands of patients with a given condition into a single research database. The series of initiatives is already generating insights that layer demographic and geographic distributions of patients with analyses of patient journeys and care patterns to unlock new learnings about patients with previously difficult-to-study diseases.

 

“Komodo Health and PicnicHealth share a mission to utilize health data to better understand disease,” said Noga Leviner, CEO and co-founder of PicnicHealth. “Through this collaboration, we will pool our combined capabilities to work toward a deeper understanding of patient histories, treatment patterns, and therapeutic outcomes in the real world. We are excited to be tapping into the breadth and depth of Komodo’s Healthcare Map to drive groundbreaking clinical research that can ultimately benefit patients suffering from complex diseases.”

 

PicnicHealth provides patients ownership of their medical data by aggregating each patient’s medical records into a comprehensive and accessible dashboard. In July 2020, the company launched the PicnicHealth Research Platform, a real-world evidence based biomedical research program to explore the progression of diseases, including multiple sclerosis, sickle cell disease, and hemophilia, among others.


Komodo Health has created the new standard for real-world data and analytics by pairing the industry’s most complete view of patient encounters with enterprise cloud technologies that connect the dots between individual patient journeys and large-scale health outcomes. Komodo’s Healthcare Map unlocks a deeper understanding of the healthcare experiences of more than 325 million patients. Additionally, its Sentinel platform allows clinical, commercial, and HEOR Life Sciences teams to integrate data from the Healthcare Map with their own proprietary datasets to track detailed patient behaviors and treatment patterns that unlock critical strategic insights.

 

“PicnicHealth shares our conviction that reliable medical data has the power to unearth deeper insight into disease trends, supplement clinical trials, and unlock the potential of new treatments,” said Arif Nathoo, MD, CEO and co-founder of Komodo Health. “We see that researchers need access to a longitudinal view of healthcare to understand how complex diseases work in the real world. Together, Komodo and PicnicHealth are creating a full picture to support patient-centered innovation and care.”

 

About PicnicHealth:

PicnicHealth is a healthcare technology company that partners with patients, porting their complete medical records into an easy-to-use online application. The platform gives patients unprecedented access to and control over their medical records and, with their consent, the opportunity to contribute this valuable data to further scientific research. Founded in 2014 by Noga Leviner and Troy Astorino, the company partners with several of the world’s largest biopharma companies and academic research institutions. PicnicHealth has raised more than $35M from Felicis Ventures, Amplify Partners, Foresite Capital, Refactor Capital, and Y Combinator. Learn more at PicnicHealth.com.

 

About Komodo Health:

Komodo Health believes that smarter, more innovative use of data and analytics is essential for reducing disease burden. We apply artificial intelligence and other advanced data science techniques to our first-of-its-kind Healthcare Map™, which tracks the unique patient journeys of over 325 million patients. We empower a multitude of healthcare stakeholders – life sciences companies, healthcare payers and providers, patient advocacy groups, and others – to create a more cost-effective, value-driven healthcare system. For more information, visit www.komodohealth.com.

 

Media Contacts: 

Komodo Health: [email protected] 

PicnicHealth: [email protected]

About 

PicnicHealth

About PicnicHealth

Empower people to own their medical records. Advance medicine. We’re a passionate group of doctors, patients, data nerds, engineers, and builders, who believe in making something real that changes lives today and in the future.

Sign Up

We know that every person's story is unique and deserves to be heard.

Join our early breast cancer registry to be counted and share your story with research.

Learn More

Create a List

List the names of all the doctors, hospitals, and other facilities your loved one visits regularly, along with those they have visited in the past. Try to go back as far as you can, striving for at least the last 5-10 years, but do your best. Even if you can’t remember them all, having a strong baseline can help you quickly identify gaps in records.

Ensure You Have the Appropriate Legal Status

It is important to make sure that you are fully empowered to make decisions on behalf of your loved one with Alzheimer’s. Your relationship status with the patient may not be enough to legally give you access to your loved one's medical information. It is a good idea to talk to an expert about securing special legal status, such as Power of Attorney (POA), a legal document that allows an individual to name someone as their decision maker should they no longer be able to make decisions on their own.

Gather and Organize the Medical Records in One Place

It’s important to have all of your loved one’s medical records together in one spot. This makes it much easier for you and your loved one’s physicians to accurately map the patient’s medical journey and more easily share information between doctors. Fortunately, tools exist to make record management and access simple. A free resource like PicnicHealth helps you collect and organize all of this information. PicnicHealth’s intuitive timeline allows you to pinpoint data across the medical history, eliminating your need for keeping heavy binders filled with paper records or keeping track of multiple software portal logins.

Review the Medical Records to be an Informed Advocate

The better you understand your loved one's medical history, the better you can advocate on their behalf. Access and understanding of this information will help you to ask informed questions with physicians. Through regular communication backed by the data in the medical records, you can help your loved one’s care team develop a more successful care plan.

Learn more about PicnicHealth’s commitment to the Alzheimer’s community and the Alzheimer’s Association

Learn More

Together, we can make a difference.

Learn more about PicnicHealth’s commitment to the Alzheimer’s community and the Alzheimer’s Association

Learn More
1

Build a support network.

When you’re juggling appointment times and insurance claims, putting a robust support system together might not strike you as the most urgent task. Investing the time to cultivate relationships with people can turn to in times of need will pay dividends. The next time you need a last-minute ride or just someone to listen, you won’t be on your own.

There are many condition-specific support groups and support groups for caregivers generally in person or online. In addition to the encouragement and empathy they provide, support groups can be a helpful source of tips, resources, and recommendations for navigating caregiving.

2

Stay organized.

The backbone of effective caregiving is organization. Keep medical information, appointment schedules, and medication lists in order. Use a planner or a digital service like PicnicHealth to stay on top of your responsibilities. This attention to detail can prevent future complications and reduce day-to-day stress.

3

Explore treatments and clinical trials.

We’ve seen incredible breakthroughs in treatment over the past couple of years, powered by patients and their caregivers participating in research. Stay in the loop about the latest in medical advancements and available resources that could benefit your loved one. Whether it’s a new therapy option or a community service that aids independence, being informed can make a world of difference in the quality of care you provide.

4

Make time for self-care.

It may seem self-centered to focus on self-care—but when you feel good, you can be a better caregiver. Whether it’s exercise, a mindfulness practice, a soak in the bath, or just time to rest when you need it, carve out those moments in the day when you can unwind, reset, and stay healthy mentally and physically. Think of it as building up your reserves of kindness, patience, and understanding—which can only benefit your loved one. No one can pour from an empty cup.

Having trouble managing your loved one's medical records?

Easily manage all of your loved one's medical records and contribute to ongoing Alzheimer's research with PicnicHealth.

Learn More

LC-FAOD Odyssey: A Preliminary Analysis, presented at INFORM 2021

Data from real-world medical records:

(from 13 patients with LC-FAOD)

16 yrs old

Median age at enrollment

38% Female

15 providers / patient

7.5 years of data / patient

Data from patient-reported outcome (PRO) survey

(from 13 patients with LC-FAOD)

We hope you found this session informative! Sign up for PicnicHealth’s Alzheimer’s research program below.

Join Now
Tip: Download or print the poster at the end of this article to review before your next appointment!
However, it's important to consult with a healthcare provider or registered dietitian to determine the appropriate amount of protein for your individual needs. In general, a diet with moderate protein intake (about 0.8 grams per kilogram of body weight per day) is recommended for people with kidney diseases.

Learn more about contributing to IgAN research with PicnicHealth. 

Learn More

Save The Top-10 List

Download this list to save onto your phone or print it out for your fridge!

Download PDF

Keep an Eye on These Test Results

Download this poster to save onto your phone or print it out for your fridge!

Download PDF

Resource Flyer

Explore the essential takeaways from Victoria's Webinar, along with some resources that she shared.

Download PDF

Pre-Appointment Worksheet

Prepare for your loved one's next appointment

Download PDF