Your lived experience with achondroplasia could provide key insights into future research
The VISTA study, in collaboration with BioMarin and PicnicHealth, is an ongoing observational study dedicated to creating a holistic picture of the achondroplasia journey – including quality of life and care.
Through the study your or your child’s medical records will be collected and analyzed by VISTA researchers and you’ll get a free PicnicHealth account to view and organize your or your child’s health history.
Contribute to a deeper understanding of achondroplasia
The VISTA Adult and Adolescent study is an observational research effort with no additional appointments, lab work, or tests required. Participation is open to all eligible individuals, regardless of treatment status, and can be done entirely from home.
PicnicHealth
By allowing PicnicHealth to collect, digitize and de-identify your or your child’s medical records, you have the opportunity to participate in achondroplasia research while staying in control of your or your child’s health data.
BioMarin
The VISTA team will analyze your or your child’s de-identified data as part of this research effort to gather insights into the day-to-day lives of individuals and families impacted by achondroplasia.
You’ll get a free PicnicHealth account and access to your medical history
By participating in the VISTA study, you’ll get access to any of the records we collect. Your or your child’s medical records are yours to keep, forever.
PicnicHealth Account Benefits
Access your records
Get a digitized view of your or your child’s relevant medical history, accessible from anywhere, on any device.
Tools and visualizations
Zoom in on what’s most important and track trends over time.
Care management toolkit
Keep track of active medications and health concerns and receive clinical support.
Easy sharing
New doctor? Share your or your child’s records to get the care you need without wasting time.
Contribute to a deeper understanding of achondroplasia
How It Works
Sign Up in Minutes
To sign up, simply confirm your or your child's achondroplasia diagnosis and provide the names of a few healthcare providers. With your consent, PicnicHealth will compile your health history into a secure, regularly updated digital timeline that only you can access.
We’ll gather your records
PicnicHealth will do all the work to gather your or your child’s medical records once you sign up. With instant, secure connections to thousands of healthcare institutions, we’re usually able to find most of your records in minutes, and we’ll organize everything into an easy-to-use dashboard.
VISTA combines and analyzes medical records
As part of this observational study, the VISTA team may analyze your or your child’s de-identified data alongside those of other study participants to gain a clearer picture of how achondroplasia affects daily life.
To protect your privacy, all personal details that could identify you or your child are removed through a process called de-identification, ensuring that researchers receive only the essential health information they need. By combining data from many participants, the study can identify patterns and insights that may not be visible to any single physician.
Records are yours to keep
We’ll continue to collect new records for the duration of the study. All records are yours to keep forever, to use and share as you please. Rest assured, your privacy is protected, and we implement robust security measures—including the same data protection standards used by banks—to keep your information secure.
Ready to get started?
Frequently Asked Questions
