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Disease Management

Signs and Symptoms of Alzheimer's

By 
The PicnicHealth Team

Oct 12, 2022 • 7 min read

Alzheimer's disease is a progressive, degenerative brain disorder that causes problems with memory, thinking, and behavior. The earliest symptoms of Alzheimer's usually begin to appear in people in their late 30s or early 40s, but because they are often mistaken for other health conditions, they may not be noticed. As the disease progresses, it becomes increasingly difficult to diagnose and treat accurately.

Difficulty remembering things.

When the disease is in its early stages, you may notice that your loved one seems to have difficulty recalling names or where they put things. As the disease progresses, your loved one may have more difficulty recalling details of conversations or events that occured recently. They may also have trouble remembering their own name on occasion.

Difficulty managing finances.

  • Difficulty paying bills.
  • Difficulty managing bank accounts.
  • Inability to manage financial paperwork, such as signing checks or withdrawing money from ATMs.

If you notice these signs of trouble with your loved one's finances, it may be an indication that your loved one is experiencing memory problems or other cognitive decline. But it's important to remember that not all memory problems are caused by Alzheimer’s disease, so talk to your loved one about getting tested by a doctor if you think something is wrong.

Inability to make decisions and plan.

Losing the ability to make decisions, plan and organize thoughts is one of the most common signs of Alzheimer's disease. You may notice that your loved one:

  • Finds it difficult to follow through with decisions.
  • Has trouble prioritizing tasks or activities (for example, they might spend a lot of time on something unimportant).
  • Has difficulty organizing things or thinking logically about how to do so (for example, they can't seem to keep their clothes sorted by type).

Changes in mood, personality, and behavior.

As Alzheimer’s disease progresses, you may notice changes in your loved one’s mood, personality, and behavior. These emotional and behavioral changes are common symptoms of the disease, and they can occur at any stage of the illness. For example, your loved one may become irritable, anxious, depressed, apathetic, or withdrawn, and they may lose interest in activities they once enjoyed. These changes can be difficult to cope with, but it’s important to remember that they are a natural part of the disease process and can be managed with the right support and care.

Decreased interest in activities and hobbies.

As Alzheimer's progresses, your loved one may lose interest in activities and hobbies they once enjoyed.

They may no longer enjoy the same activities that they previously enjoyed or may not have the energy or stamina for them..

If your loved one is being treated for depression, the loss of interest in activities and hobbies could be a sign of an underlying issue related to their depression, rather than a symptom of Alzheimer’s disease.

Eating less and losing weight.

  • Weight loss. This is a common symptom of Alzheimer’s disease and can be caused by a loss of interest in eating or by a decline in the brain’s ability to detect hunger..
  • Difficulty swallowing and/or choking on food. Swallowing problems may lead to coughing, gagging, or frequent vomiting.
  • Loss of appetite and/or poor hygiene (e.g., not bathing) are common symptoms of Alzheimer’s disease as well. Some people with Alzheimer’s may have difficulty swallowing because the disease affects their ability to coordinate the muscles used for swallowing. This can lead them to avoid eating altogether out of fear of choking. Similarly, people with Alzheimer’s may stop showering because the disease can impair their ability to focus and complete simple tasks like getting dressed, bruising their teeth, and applying shampoo/conditioner. This is also true for those who have difficulty standing for long periods of time, which may make it challenging to complete these tasks. Additionally, the physical act of bending over to perform these tasks may also be difficult for some people with Alzheimer’s.

Confusion about time, place, or people.

Confusion about time, place, or people can be early symptoms of Alzheimer's. If you notice these symptoms in yourself or someone you know, it may be a sign of Alzheimer’s:

  • Difficulty with orientation. People with the disease may have difficulty learning new places and memorizing them because the disease affects the brain’s ability to process and store new information.
  • Difficulty with place and time. People with the disease may get lost on familiar routes or forget when they are supposed to leave for events because the disease affects their ability to remember and recall information.
  • Difficulty with people. People with the disease may forget who their friends and family members are, or they might struggle to recognize them when they see them again after a long period of time apart (for example, if a person was hospitalized for several weeks). This is because the disease affects the brain’s ability to store and retrieve information about people, including their names and faces.
  • Memory problems related to language processing. It is normal to forget words occasionally as we age, but it could be an early sign of Alzheimer's if someone consistently has trouble finding the correct word during a conversation because they cannot remember it at that moment in time.This happens because affected individuals often lose their ability to process and use language first..

Difficulty learning new information.

  • Difficulty learning new information. As the disease progresses, people with Alzheimer’s may have difficulty learning new information and remembering what they have learned because the disease affects the brain’s ability to process and store new information.
  • Trouble following instructions. When someone is giving directions or trying to teach something to a person with Alzheimer’s, it's important that they explain things step by step in a clear and concise manner. However, if the instructions are given too quickly or are too complex, it can be difficult for someone with Alzheimer’s to understand or follow them.
  • Trouble following conversations is also a common symptom of Alzheimer’s. People with the disease may have difficulty following conversations, especially if there are multiple people involved in the discussion, because the disease affects their ability to process and understand spoken language. Additionally, they may have poor judgment about when it is appropriate to make comments in a group setting or in private conversations because the disease can also impact their ability to interpret social cues and understand the thoughts and feelings of others.
  • Memory loss affecting social activities. People with the disease may forget their friends' names or their relationships with others, and they may make inappropriate comments about past experiences or events that never happened because the disease affects their ability to recall information about people and events. Additionally, people with Alzheimer’s may mix up words like “mother” or “father” because the disease affects their ability to use language correctly.

Problems with driving, giving up driving altogether, or having a serious accident while driving.

If you are having problems driving, it is important to see a doctor. This may be a sign of Alzheimer’s disease or another health condition that needs treatment. Alzheimer’s is a progressive brain disorder that affects memory, thinking, and behavior, and can impair a person’s ability to operate a motor vehicle safely. If left untreated, Alzheimer’s can worsen over time and increase the risk of accidents and injuries while driving.

If you have been in an accident while driving, tell the police officer investigating your accident if you are taking any medications or supplements that might affect how well you can drive. This is because some medications and supplements can cause drowsiness, dizziness, or other side effects that can impair driving ability. Your doctor or pharmacist should also provide this information when filing out the accident report, and the same applies to any medications taken by other people in the car.

Driving is not a right; it's a privilege given by state and local governments to those who are able to safely drive on public roads and highways without posing an undue risk to themselves or others around them. Because of this, many states have laws against driving under the influence of alcohol or drugs, which can impair driving ability and increase the risk of accidents or injuries. These laws help keep everyone safer when they're behind their steering wheel, and it is important to follow them to ensure the safety of yourself and others on the road.

It is important to see the doctor if you notice any of these changes in yourself or a loved one.

If you notice changes in memory, thinking or behavior that are impacting daily life in yourself or someone you care about, it is important to see a doctor as soon as possible. Early detection of Alzheimer’s can help slow down the progression of the disease and improve the quality of life for people with the condition.

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Create a List

List the names of all the doctors, hospitals, and other facilities your loved one visits regularly, along with those they have visited in the past. Try to go back as far as you can, striving for at least the last 5-10 years, but do your best. Even if you can’t remember them all, having a strong baseline can help you quickly identify gaps in records.

Ensure You Have the Appropriate Legal Status

It is important to make sure that you are fully empowered to make decisions on behalf of your loved one with Alzheimer’s. Your relationship status with the patient may not be enough to legally give you access to your loved one's medical information. It is a good idea to talk to an expert about securing special legal status, such as Power of Attorney (POA), a legal document that allows an individual to name someone as their decision maker should they no longer be able to make decisions on their own.

Gather and Organize the Medical Records in One Place

It’s important to have all of your loved one’s medical records together in one spot. This makes it much easier for you and your loved one’s physicians to accurately map the patient’s medical journey and more easily share information between doctors. Fortunately, tools exist to make record management and access simple. A free resource like PicnicHealth helps you collect and organize all of this information. PicnicHealth’s intuitive timeline allows you to pinpoint data across the medical history, eliminating your need for keeping heavy binders filled with paper records or keeping track of multiple software portal logins.

Review the Medical Records to be an Informed Advocate

The better you understand your loved one's medical history, the better you can advocate on their behalf. Access and understanding of this information will help you to ask informed questions with physicians. Through regular communication backed by the data in the medical records, you can help your loved one’s care team develop a more successful care plan.

Learn more about PicnicHealth’s commitment to the Alzheimer’s community and the Alzheimer’s Association

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Together, we can make a difference.

Learn more about PicnicHealth’s commitment to the Alzheimer’s community and the Alzheimer’s Association

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1. Build a support network.

When you’re juggling appointment times and insurance claims, putting a robust support system together might not strike you as the most urgent task. Investing the time to cultivate relationships with people can turn to in times of need will pay dividends. The next time you need a last-minute ride or just someone to listen, you won’t be on your own.

There are many condition-specific support groups and support groups for caregivers generally in person or online. In addition to the encouragement and empathy they provide, support groups can be a helpful source of tips, resources, and recommendations for navigating caregiving.

2. Stay organized.

The backbone of effective caregiving is organization. Keep medical information, appointment schedules, and medication lists in order. Use a planner or a digital service like PicnicHealth to stay on top of your responsibilities. This attention to detail can prevent future complications and reduce day-to-day stress.

3. Explore treatments and clinical trials.

We’ve seen incredible breakthroughs in treatment over the past couple of years, powered by patients and their caregivers participating in research. Stay in the loop about the latest in medical advancements and available resources that could benefit your loved one. Whether it’s a new therapy option or a community service that aids independence, being informed can make a world of difference in the quality of care you provide.

4. Make time for self-care.

It may seem self-centered to focus on self-care—but when you feel good, you can be a better caregiver. Whether it’s exercise, a mindfulness practice, a soak in the bath, or just time to rest when you need it, carve out those moments in the day when you can unwind, reset, and stay healthy mentally and physically. Think of it as building up your reserves of kindness, patience, and understanding—which can only benefit your loved one. No one can pour from an empty cup.

Having trouble managing your loved one's medical records?

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LC-FAOD Odyssey: A Preliminary Analysis, presented at INFORM 2021

Data from real-world medical records:

(from 13 patients with LC-FAOD)

16 yrs old

Median age at enrollment

38% Female

15 providers / patient

7.5 years of data / patient

Data from patient-reported outcome (PRO) survey

(from 13 patients with LC-FAOD)

We hope you found this session informative! Sign up for PicnicHealth’s Alzheimer’s research program below.

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Tip: Download or print the poster at the end of this article to review before your next appointment!
However, it's important to consult with a healthcare provider or registered dietitian to determine the appropriate amount of protein for your individual needs. In general, a diet with moderate protein intake (about 0.8 grams per kilogram of body weight per day) is recommended for people with kidney diseases.

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Explore the essential takeaways from Victoria's Webinar, along with some resources that she shared.

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Pre-Appointment Worksheet

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A tablet, phone, or laptop with a working camera, microphone, and stable internet connection.
A quiet, distraction-free area with enough space to walk a few steps if applicable.
A chair that you can use during any movements or tasks you’ll be asked to perform.
The tripod mailed to you via Amazon.

What to Expect

Before your video call:

Book Your Assessment
Visit your to-do list on your PicnicHealth Research Dashboard or click the scheduling link sent to your email. Note: Search for “New task for the ORBIT-CIDP Study" to find the video call scheduling link.
Receive Confirmation
Check your email for a confirmation with your scheduled video call time and instructions.

On the day of your video call:

Click on Video Link
Join your personal video call using the link we sent by email, or text message, or find it on your research dashboard.
Meet your nurse
A Registered Nurse (RN) will guide your virtual assessment, which will last about 30 minutes.
Complete the Physical Activity Assessment (INCAT)
The nurse will guide you through questions and, if needed, physical tasks to help researchers gain a deeper understanding of CIDP.
Complete the Movement Assessment (Optional)
If you participate, a nurse will guide you through three short recorded movement activities to complete as best you can:
Chair Task
While seated with your arms crossed over your chest and hands on oppositeshoulders, you’ll be asked to stand up, remain standing for 20 seconds, and then sit back down.
Arm Movement Task
While seated with your arms resting at your sides, you’ll be asked to raise both arms out to the sides until they meet above your head, then lower them back to your lap.
Finger Dexterity Task
While seated, raise your right hand with fingers extended. Touch your thumb to each fingertip in order, then reverse. Repeat with your left hand. This will then be repeated with your left hand.
Earn Compensation

Receive up to $55 for your participation:

  • $25 for completing the Physical Activity Assessment (INCAT).
  • $30 for the Optional Movement Assessment.
Recording: Your research assessment may be recorded to ensure accurate data collection. If you participate in the optional Movement Assessment, it will also be recorded. These recordings may capture your voice and responses, but identifiable information like your face, name, or background will be removed to protect your privacy.
Opt Into the Smart Insole Study Activity
Complete the opt-in survey to confirm your participation.
Receive Your Smart Insoles
Your smart insoles will be shipped to your home via FedEx and should arrive within 1 week.
Create Your Account

You’ll receive an email from Celestra Health with your account details. Follow those steps to set up your account.

  • If you don’t see an email from Celestra Health in your inbox, please check your spam or junk folder.
Download the App
After creating your account, you’ll be directed to a landing page with links to the App Store or Google Play. Use the link to download the correct version of the app for your device.
For illustrative purposes only, your insoles may look different
Log In
Open the app and log in using the email address and password you used when creating your account.
Enable Permissions
  • For iOS users: Enable Motion & Fitness and allow access to Apple Health.
  • For Android users: Enable Activity Recognition permissions.
Connect Your Insoles
Turn on Bluetooth, and follow the app's instructions to connect your smart insoles.
Enable Notifications
Enable push notifications to stay updated on reminders and activity progress.
For illustrative purposes only, your insoles may look different
Start Walking Sessions
When you’re ready to perform a walking session, tap ‘Start’ on the Ad Hoc Walking task card in the app.
Smart insoles are designed to fit comfortably into any pair of closed shoes
Need Help?
Should you need to contact Celestra Health support for any reason, you can submit a ticket through the Help section of the app by tapping the Submit A Ticket card and filling out the form. A Celestra Health representative will typically respond within one business day.
A fully charged device (smartphone, tablet, or laptop) with a working camera, microphone, and stable internet connection.
A quiet, well-lit space that is free from distractions.
Good lighting so your face is clearly visible; having a small flashlight or your phone’s flashlight nearby can help with skin, scalp, or joint checks.
Flexible device positioning so you can easily adjust or prop up your device hands-free if the research staff asks to view specific areas (such as your face, hands, or scalp).
Space to move in case you are briefly asked to stand or walk a few steps.
Your medication information, including your current steroid(s) and BENLYSTA® (belimumab) — either the medication bottles or a list with doses and schedule.
Time to focus without interruptions so the visit can be completed comfortably.
Before Your Video Call:
Schedule your visit
Use the scheduling link on your PicnicHealth Research Dashboard or the link sent to your email.
Tip: Search your inbox for “New task for the BEACON-SLE Study - schedule your remote visit” to find the scheduling email.
Check your confirmation
You’ll receive an email with your appointment time and instructions for joining the video call.
On the Day of Your Video Call:
Join the call
Click the Zoom link sent to you by email or text message, or use the link available on your research dashboard.
Meet with the research staff member
  • They will ask you structured questions about your health and any lupus symptoms you’ve experienced over the past 30 days.
  • If needed, they may guide you through a few simple visual checks (such as looking at your skin, hair, joints, or mouth). You can always tell them if you’re not comfortable with anything.
Receive Compensation
You’ll receive up to $60 for completing your visit.
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