‘Tis the season — join PicnicHealth in giving back to The American Kidney Fund and The Chandler Project

‘Tis the season — join PicnicHealth in giving back to The American Kidney Fund and The Chandler Project
The PicnicHealth Team
December 22, 2023
Blog post originally written by the AllStripes community team. AllStripes was acquired by PicnicHealth in 2023.

We’re thrilled to share that #PicnicHealthGivesBack, our annual giving campaign, has returned this year. From now until January 5, 2024, we’re donating to The American Kidney Fund (AKF) and The Chandler Project for each new PicnicHealth sign-up, up to $6k. Join PicnicHealth today to make an even bigger impact.

Right now, when you sign up for PicnicHealth, you’re not only helping move medical research forward — you’ll also be helping two amazing nonprofits. We share the same patient-centered values that these organizations embody while supporting their communities. Here are a few ways The American Kidney Fund and The Chandler Project inspire us.

The American Kidney Fund (AKF)

The American Kidney Fund stands out for its tireless efforts to support kidney patients at all stages. They are a beacon of hope for many, offering financial assistance, education, and health management resources for folks impacted by kidney disease. AKF's dedication to helping patients fight kidney disease and live healthier lives has been transformative. Their work supports patients at all stages of their journey – providing immediate assistance and fostering long-term impact by advocating for better healthcare policies and raising awareness about kidney health.

The Chandler Project

Similarly, The Chandler Project also shines for its dynamic support for people living with achondroplasia, the most common form of dwarfism. By funding research, advocating for better treatment options, and creating a supportive community, The Chandler Project has become a vital source of information and solidarity for many families. Their commitment to enhancing the quality of life for people with achondroplasia through research and support is both inspiring and impactful.

At PicnicHealth, our core values revolve around empowering patients to take control of their health journeys by making medical records and research studies accessible to everyone. Both AKF and The Chandler Project demonstrate these patient-centered principles through their incredible work. They not only provide immediate help but also empower individuals and communities for a better future. Their dedication to research and community resonates deeply with our ethos at PicnicHealth, making them the perfect partners for this year’s Giving Campaign.

How you can support

There are several ways you can join us in supporting these wonderful organizations:

Sign up for PicnicHealth: From now until January 11, 2024, we’ll donate to these organizations for every new sign-up, up to $6k.

Donate directly: If you wish to contribute more directly, you can visit The American Kidney Fund and The Chandler Project to make a donation. Every contribution makes a difference.

Thank you for being part of the PicnicHealth community. We wish you and your loved ones a very happy holiday.


The PicnicHealth Team

About PicnicHealth

Empower people to own their medical records. Advance medicine. We’re a passionate group of doctors, patients, data nerds, engineers, and builders, who believe in making something real that changes lives today and in the future.

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Create a List

List the names of all the doctors, hospitals, and other facilities your loved one visits regularly, along with those they have visited in the past. Try to go back as far as you can, striving for at least the last 5-10 years, but do your best. Even if you can’t remember them all, having a strong baseline can help you quickly identify gaps in records.

Ensure You Have the Appropriate Legal Status

It is important to make sure that you are fully empowered to make decisions on behalf of your loved one with Alzheimer’s. Your relationship status with the patient may not be enough to legally give you access to your loved one's medical information. It is a good idea to talk to an expert about securing special legal status, such as Power of Attorney (POA), a legal document that allows an individual to name someone as their decision maker should they no longer be able to make decisions on their own.

Gather and Organize the Medical Records in One Place

It’s important to have all of your loved one’s medical records together in one spot. This makes it much easier for you and your loved one’s physicians to accurately map the patient’s medical journey and more easily share information between doctors. Fortunately, tools exist to make record management and access simple. A free resource like PicnicHealth helps you collect and organize all of this information. PicnicHealth’s intuitive timeline allows you to pinpoint data across the medical history, eliminating your need for keeping heavy binders filled with paper records or keeping track of multiple software portal logins.

Review the Medical Records to be an Informed Advocate

The better you understand your loved one's medical history, the better you can advocate on their behalf. Access and understanding of this information will help you to ask informed questions with physicians. Through regular communication backed by the data in the medical records, you can help your loved one’s care team develop a more successful care plan.

Learn more about PicnicHealth’s commitment to the Alzheimer’s community and the Alzheimer’s Association

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Together, we can make a difference.

Learn more about PicnicHealth’s commitment to the Alzheimer’s community and the Alzheimer’s Association

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Build a support network.

When you’re juggling appointment times and insurance claims, putting a robust support system together might not strike you as the most urgent task. Investing the time to cultivate relationships with people can turn to in times of need will pay dividends. The next time you need a last-minute ride or just someone to listen, you won’t be on your own.

There are many condition-specific support groups and support groups for caregivers generally in person or online. In addition to the encouragement and empathy they provide, support groups can be a helpful source of tips, resources, and recommendations for navigating caregiving.


Stay organized.

The backbone of effective caregiving is organization. Keep medical information, appointment schedules, and medication lists in order. Use a planner or a digital service like PicnicHealth to stay on top of your responsibilities. This attention to detail can prevent future complications and reduce day-to-day stress.


Explore treatments and clinical trials.

We’ve seen incredible breakthroughs in treatment over the past couple of years, powered by patients and their caregivers participating in research. Stay in the loop about the latest in medical advancements and available resources that could benefit your loved one. Whether it’s a new therapy option or a community service that aids independence, being informed can make a world of difference in the quality of care you provide.


Make time for self-care.

It may seem self-centered to focus on self-care—but when you feel good, you can be a better caregiver. Whether it’s exercise, a mindfulness practice, a soak in the bath, or just time to rest when you need it, carve out those moments in the day when you can unwind, reset, and stay healthy mentally and physically. Think of it as building up your reserves of kindness, patience, and understanding—which can only benefit your loved one. No one can pour from an empty cup.

Having trouble managing your loved one's medical records?

Easily manage all of your loved one's medical records and contribute to ongoing Alzheimer's research with PicnicHealth.

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LC-FAOD Odyssey: A Preliminary Analysis, presented at INFORM 2021

Data from real-world medical records:

(from 13 patients with LC-FAOD)

16 yrs old

Median age at enrollment

38% Female

15 providers / patient

7.5 years of data / patient

Data from patient-reported outcome (PRO) survey

(from 13 patients with LC-FAOD)

We hope you found this session informative! Sign up for PicnicHealth’s Alzheimer’s research program below.

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Tip: Download or print the poster at the end of this article to review before your next appointment!
However, it's important to consult with a healthcare provider or registered dietitian to determine the appropriate amount of protein for your individual needs. In general, a diet with moderate protein intake (about 0.8 grams per kilogram of body weight per day) is recommended for people with kidney diseases.

Learn more about contributing to IgAN research with PicnicHealth. 

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Save The Top-10 List

Download this list to save onto your phone or print it out for your fridge!

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Keep an Eye on These Test Results

Download this poster to save onto your phone or print it out for your fridge!

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Resource Flyer

Explore the essential takeaways from Victoria's Webinar, along with some resources that she shared.

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Pre-Appointment Worksheet

Prepare for your loved one's next appointment

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