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PicnicHealth Announces Engagement with Bristol Myers Squibb to Leverage Real-World Evidence to Study Symptomatic Obstructive Hypertrophic Cardiomyopathy Patients

PicnicHealth Announces Engagement with Bristol Myers Squibb to Leverage Real-World Evidence to Study Symptomatic Obstructive Hypertrophic Cardiomyopathy Patients   

This engagement is designed to help Bristol Myers Squibb unlock new insights about long-term, real-world patient experiences within the DISCOVER-HCM Registry 

San Francisco, Calif. – November 10, 2022 – PicnicHealth, a patient-centered health technology company, today announced an engagement with Bristol Myers Squibb to leverage patient-centered, real-world evidence generation to complement Bristol Myers Squibb’s DISCOVER-HCM Registry, a 1,500-patient registry of consented symptomatic obstructive hypertrophic cardiomyopathy (oHCM) patients receiving CAMZYOS (mavacamten) or other treatment. PicnicHealth’s platform will empower patient participants to access their own medical information aggregated in a single, easy-to-access place.  

The DISCOVER-HCM Registry will evaluate the safety, treatment pattern, short- and long-term outcomes, and healthcare resource utilization of patients in the United States with symptomatic oHCM treated in the real-world clinical setting with either CAMZYOS (mavacamten), approved by the U.S. Food and Drug Administration (FDA) for the treatment of adults with symptomatic NYHA class II-III oHCM to improve functional capacity and symptoms, or other treatment. For patients participating in the DISCOVER-HCM Registry that choose to opt-in to the PicnicHealth data research project, PicnicHealth’s technology will be used to collect their historical and prospective medical information, including emergency room visits, hospitalizations, care at other clinics and other medical events, to supplement the registry data. Capturing and organizing these data will improve investigators' understanding of participants’ complete medical journeys, including medication use, comorbidities, and past medical procedures. 

“It can be difficult to get a complete picture of patients' experiences with the healthcare system, even for patients enrolled in clinical trials," said Noga Leviner, CEO and Co-founder at PicnicHealth. "Consented real-world patient data from PicnicHealth can be helpful in post-approval studies because it gives the study sponsor ongoing access to patients’ complete medical records helping them better understand patient experiences and outcomes.” 

Using its industry-leading machine learning methods in combination with expert medical curation, PicnicHealth will structure de-identified medical records to generate complete, clinically rich, longitudinal data that will supplement data from the DISCOVER-HCM Registry. This data research project has the potential to demonstrate how using technology-powered, patient-centric data collection from routine medical care can improve how long-term, post-marketing studies are performed and enable a better understanding of the risks and benefits of treatments in the real world. 

About PicnicHealth
PicnicHealth is a healthcare technology company that partners directly with patients to build deep real-world datasets. The company leverages state-of-the-art machine learning, combined with human curation, to port complete medical records into an easy-to-use online application. The platform gives patients unprecedented access to and control over their medical records and, with their consent, the opportunity to contribute this valuable data to further scientific research. Founded in 2014 by Noga Leviner and Troy Astorino, the company partners with dozens of the world’s largest biopharma companies and academic research institutions. Learn more at PicnicHealth.com and picnichealth.com/research-platform.

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Learn more at PicnicHealth.com and picnichealth.com/research-platform.

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About PicnicHealth

Empower people to own their medical records. Advance medicine. We’re a passionate group of doctors, patients, data nerds, engineers, and builders, who believe in making something real that changes lives today and in the future.

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Create a List

List the names of all the doctors, hospitals, and other facilities your loved one visits regularly, along with those they have visited in the past. Try to go back as far as you can, striving for at least the last 5-10 years, but do your best. Even if you can’t remember them all, having a strong baseline can help you quickly identify gaps in records.

Ensure You Have the Appropriate Legal Status

It is important to make sure that you are fully empowered to make decisions on behalf of your loved one with Alzheimer’s. Your relationship status with the patient may not be enough to legally give you access to your loved one's medical information. It is a good idea to talk to an expert about securing special legal status, such as Power of Attorney (POA), a legal document that allows an individual to name someone as their decision maker should they no longer be able to make decisions on their own.

Gather and Organize the Medical Records in One Place

It’s important to have all of your loved one’s medical records together in one spot. This makes it much easier for you and your loved one’s physicians to accurately map the patient’s medical journey and more easily share information between doctors. Fortunately, tools exist to make record management and access simple. A free resource like PicnicHealth helps you collect and organize all of this information. PicnicHealth’s intuitive timeline allows you to pinpoint data across the medical history, eliminating your need for keeping heavy binders filled with paper records or keeping track of multiple software portal logins.

Review the Medical Records to be an Informed Advocate

The better you understand your loved one's medical history, the better you can advocate on their behalf. Access and understanding of this information will help you to ask informed questions with physicians. Through regular communication backed by the data in the medical records, you can help your loved one’s care team develop a more successful care plan.

Learn more about PicnicHealth’s commitment to the Alzheimer’s community and the Alzheimer’s Association

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Together, we can make a difference.

Learn more about PicnicHealth’s commitment to the Alzheimer’s community and the Alzheimer’s Association

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1

Build a support network.

If your loved one is in the early stages of Alzheimer’s, putting a support system together might not seem like priority #1. But it’s never too soon to build a network of people that you can turn to in times of need. Cultivate connections today with the people who can be there tomorrow, or whenever you might need a hand.

You may also want to connect with other Alzheimer’s caregivers through a support group, whether it meets in-person or online. In addition to the encouragement and empathy they provide, support groups can be a helpful source of tips, resources, and recommendations for navigating the world of Alzheimer’s.

2

Stay organized.

If your loved one is in the early stages of Alzheimer’s, putting a support system together might not seem like priority #1. But it’s never too soon to build a network of people that you can turn to in times of need. Cultivate connections today with the people who can be there tomorrow, or whenever you might need a hand.

You may also want to connect with other Alzheimer’s caregivers through a support group, whether it meets in-person or online. In addition to the encouragement and empathy they provide, support groups can be a helpful source of tips, resources, and recommendations for navigating the world of Alzheimer’s.

3

Plan for the future.

It isn’t always easy to look into the future with Alzheimer’s—but doing the legwork now will save you from stress later. If your loved one is in the early stages of illness, you can involve them in conversations about legal, financial, and long-term care planning decisions. Despite the difficulty of these topics, you’ll all feel empowered by facing them early, and you can move ahead with greater confidence.

4

Explore treatments and clinical trials.

It’s an exciting time for Alzheimer’s research, with new treatments in development and coming to market. Ask your loved one’s doctors about therapies they can try or clinical trials they can join. One easy way to participate in research is to sign up at PicnicHealth, which helps to advance Alzheimer’s science by sharing participants’ anonymous health data with some of the brightest minds in research.

5

Make time for self-care

It may seem self-centered to focus on self-care—but when you feel good, you can be a better caregiver. Whether it’s exercise, a mindfulness practice, a soak in the bath, or just time to rest when you need it, carve out those moments in the day when you can unwind, reset, and stay healthy mentally and physically. Think of it as building up your reserves of kindness, patience, and understanding—which can only benefit your loved one with Alzheimer’s. And don’t forget to keep a sense of humor along the way.

Having trouble managing your loved one's medical records?

Easily manage all of your loved one's medical records and contribute to ongoing Alzheimer's research with PicnicHealth.

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25,966

patients onboarded to platform

1,427,368

medical visits processed

56,861

facilities provided medical records

255,101

healthcare providers

95+

research programs

12

published posters and manuscripts

10

partnerships withtop 30 pharma

New Research

Discover how PicnicHealth data powered medical research in 2021

Keeping Patients at the Center

This year, experts from PicnicHealth joined podcasts, webisodes, virtual summits and much more to speak to the importance of patient-centric approaches when building complete, deep real-world datasets.

LC-FAOD Odyssey: A Preliminary Analysis, presented at INFORM 2021

Data from real-world medical records:

(from 13 patients with LC-FAOD)

16 yrs old

Median age at enrollment

38% Female

15 providers / patient

7.5 years of data / patient

Data from patient-reported outcome (PRO) survey

(from 13 patients with LC-FAOD)

We hope you found this session informative! Sign up for PicnicHealth’s Alzheimer’s research program below.

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31,903

patients onboarded across 19 conditions

2,719,618

medical visits processed

255,101

healthcare providers

86,256

Facilities provided medical records

70+

Change Champions onboarded

95+

Research programs

15+

published posters and manuscripts

14

partnerships with top 30 pharma

Register today!