PicnicHealth connects patients and researchers to deliver the most complete, fit for purpose real-world data.Let's Talk
By working directly with patients who contribute their medical data to research, we can build the most complete picture of patient health across all of their providers - not just one care site or specialist.
Building the right cohort of patients is easy with our existing patient communities and rapid recruitment through dozens of established direct-to-patient channels. Patients sign up and consent to participate in 10 minutes and get access to their medical records. Do you have patients in ongoing registries or trials? Send them to PicnicHealth and we’ll get them set up.
Our research platform delivers customized real-world data at the patient level. Specify the data elements to extract from medical records, including doctors' notes, narrative text, and more.
Our unique, patient-centric approach to real-world data empowers patients to contribute more. Through the PicnicHealth Patient Timeline and prospective collection of medical records and PROs, our patients continue to stay engaged and participate over the full lifecycle of a study.
Complete medical records are just the beginning. With patient consent, we can further enhance the value of medical data by securely linking to other patient-level data sources using standard tokenization methods, including:
Wondering what PicnicHealth can do for you? Here’s a few ways our partners are using our research platform to support their evidence-generation needs.
FlywheelMS is a novel, patient-centric study that aims to create a meaningful real-world dataset to better understand disease course and patterns of care for Multiple Sclerosis (MS) in the U.S.
By capturing both retrospective and prospective data for each patient from all of their providers, this study looks to uncover novel insights about the clinical profile of individuals prior to disease onset, and to study patterns of healthcare in the MS community and the impact on clinical and radiological outcomes.
Neratinib (Nerlynx), an irreversible pan-HER tyrosine kinase inhibitor, is approved for use in HER2+ breast cancer. A virtual patient registry (NEAT-HER) was developed to collect historical and ongoing medical data to evaluate neratinib (Nerlynx) in the real world.
PicnicHealth’s methodology is feasible and efficient for building a virtual registry that collects useful information on patient/tumor characteristics, treatment patterns, and other important clinical outcomes in patients receiving extended adjuvant neratinib in real-world practice settings.
Medical records from select Huntington’s disease (HD) patients in the US will be matched at an individual level to data from Enroll-HD, an ongoing global observational study. This real-world data of routine medical care will fill in gaps, adding data collected prior to enrollment in Enroll-HD and between annual study visits.
By collecting real-world data of routine and HD-specific care, researchers hope to better understand patient journeys and identify early signs of HD and progression.
Hemophilia A and B are best treated through infusion of missing clotting factors to stop or prevent bleeding episodes. The experiences of patients with mild-to-moderate disease, however, differ from patients with severe hemophilia, and the development of novel gene therapies will require the quantification of longitudinal burden of disease to support regulatory decisions and payer discussions.
PicnicHealth has assembled a longitudinal, real-world hemophilia dataset including Hemophilia A and B patients with varying levels of disease severity (e.g., mild-to-moderate and severe).
We partner with leading academic and life sciences researchers to accelerate medical research and improve patient care across many different therapeutic areas, including rare diseases, hematology, immunology, neurology, and oncology.
INFORM Annual Meeting
ASH Annual Meeting & Exposition
ASH Annual Meeting & Exposition
ACR Convergence 2021