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Publications

Discover how PicnicHealth data is powering cutting-edge medical research.

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Research Poster

EMPOWER AD: A NOVEL, PATIENT-CENTRIC, LONGITUDINAL, CLINICAL DATASET IN THE UNITED STATES

AD/PD 2023
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March 28, 2023
Research Poster

Exploring The Path To Diagnosis For Patients With Myasthenia Gravis Using Real-World Data

ISPOR 2023
|
May 10, 2023
Research Poster

Utilization of Diagnostic Testing in Alzheimer’s Patients

ISPOR 2023
|
May 9, 2023
Research Poster

Disease Modifying Therapy (DMT) Utilization and Health Care Resource Utilization (HCRU) Among Adults with Multiple Sclerosis (MS) in a United States-Based Real-World Cohort

ISPOR 2023
|
May 8, 2023
Research Poster

Common Documentation Errors in the Electronic Health Records of Persons with Hemophilia B

HTRS 2023 Scientific Symposium
|
March 12, 2023
Research Poster

Treatment burden and unmet needs in hemophilia patients with inhibitors: Results from a real-world observational study in the United States

HTRS 2023 Scientific Symposium
|
March 12, 2023
Abstract

Characteristics and Bleeding Behavior of Females with Mild Hemophilia A: Longitudinal Study from PicnicHealth Hemophilia A Database

ASH Annual Meeting and Exposition
|
December 10, 2022
Research Poster

Characteristics and Healthcare Utilization of Patients with Mild or Moderate Hemophilia A in the US - An Analysis from the PicnicHealth Cohort

ASH Annual Meeting and Exposition
|
December 10, 2022
Abstract

Multiyear, Real-World, Retrospective Cohort Study Using a Patient-Centric Approach to Evaluate the Burden of Hemophilia B in the United States

ASH Annual Meeting & Exposition
|
November 15, 2022
Research Poster

Characterizing patients with pruritus and primary biliary cholangitis (PBC) in the PicnicHealth PBC cohort; contrasting medical record-documented pruritus with patient-reported pruritus from the PBC-40

AASLD The Liver Meeting 2022
|
November 1, 2022
Research Poster

Characterizing primary biliary cholangitis (PBC) patients in the real world: demographics and treatment characteristics of the PicnicHealth PBC cohort

AASLD The Liver Meeting 2022
|
November 1, 2022
Research Poster

Identifying Flares in Lupus Nephritis Patients by Combining Structured and Unstructured Medical Records with Lab Data

ISPOR EU 2022
|
November 1, 2022
Research Poster

A Novel, Patient-Centred Real-World Evidence Study Designed to Better Understand Active and Nonactive Progressive Multiple Sclerosis Using Health Records in the United States

ECTRIMS 2022
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October 1, 2022
Research Poster

COVID-19 Vaccination Patterns and Outcomes Among Persons With Multiple Sclerosis in the FlywheelMS Cohort

ECTRIMS 2022
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October 1, 2022
Research Poster

Characterizing sickle cell disease and burden of illness in the United States of America: a retrospective analysis of real-world data

EHA 2022 Hybrid Congress
|
June 1, 2022
Abstract

Characterizing sickle cell disease and burden of illness in the United States of America: a retrospective analysis of real-world data

EHA 2022 Hybrid Congress
|
June 1, 2022
Infographic

Lupus Nephritis Cohort Infographic

|
August 24, 2022
Manuscript

Generating real-world data from health records: design of a patient-centric study in multiple sclerosis using a commercial health records platform

JAMIA Open
|
January 17, 2022
Research Poster

Introduction to Odyssey: Real-world rare disease data collection program from digitized health records for patients with long-chain fatty acid oxidation disorders (LC-FAOD) in the United States

INFORM Annual Meeting
|
October 27, 2021
Abstract

Characterizing mild and moderate hemophilia A patients in the real world: a patient-centric approach

ASH Annual Meeting & Exposition
|
December 3, 2021
Abstract

A novel methodology for building longitudinal, patient-centric real world datasets in hemophilia A

ASH Annual Meeting & Exposition
|
December 3, 2021
Abstract

Addition of narrative text abstraction to ICD-based abstraction significantly improves identification of lupus nephritis in real-world data

ACR Convergence 2021
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November 6, 2021
Abstract

COMMODORE Cohort: A real-world, non-interventional cohort study to evaluate the safety and effectiveness of C5 inhibitors in patients with PNH

Blood (2020) 136 (Supplement 1): 31-32
|
November 5, 2020
Abstract

The Neat-HER virtual registry: Results on HER2+ breast cancer patients receiving neratinib as extended adjuvant therapy

San Antonio Breast Cancer Symposium
|
December 9, 2020
Research Poster

FlywheelMS: Stratification of anxiety and depression by MS subtype as captured in digitized health records

ACTRIMS 2021 Virtual Forum
|
February 25, 2021
Research Poster

Collecting real-world MRI in multiple sclerosis: preliminary results from FlywheelMS

MSVirtual 2020
|
September 11, 2020
Abstract

HD Constellation: A novel patient-centered approach to enriching clinical datasets by combining medical record chart review and Enroll-HD

MDS Virtual Congress 2020
|
September 12, 2020
Research Poster

FlywheelMS: The prevalence of multiple sclerosis subtypes in digitized health records

MSVirtual 2020
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September 11, 2020
Research Poster

A patient-centric approach to improve the understanding of sickle cell disease using real-world data

ASH Annual Meeting & Exposition
|
December 5, 2020
Research Poster

FlywheelMS: A Novel, patient-centered study to better understand multiple sclerosis using electronic health records and other real-world data sources

ECTRIMS Congress
|
September 12, 2019
White Paper

Why PicnicHealth data? Comparing PicnicHealth data with existing research databases

PicnicHealth Team
|
April 1, 2021
White Paper

How PicnicHealth generates real world data from medical records

PicnicHealth Team
|
April 1, 2021
Infographic

Shine the Light on Sickle Cell

PicnicHealth Team
|
June 18, 2021
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